I hope your doing much better beautiful girl

I can't hear hardly a word you're saying sweet girl. :(

Hey I we spoke in waterstones with my friend Charlie (he has pots and eds) and Cas. I'm pretty sure you toke Charlie's details but if you wanted to hang out sometime drop a message. Would be lovely to get to know you properly. It was nice meeting you

where it all started! so so nice seeing you today, love to see you all super chill now 🤣

you are amazing girl! as you can tell I couldn’t wait any longer to stalk you 🤣 (it’s Aanisah btw your new bestie at the hosp🤪)

I have chiari

Have you looked into MCAS for your allergic reactions? I wonder if that could be it? & were you put on antihistamines? As that would help both urticaria & MCAS, so would be helpful even if you have MCAS but aren’t diagnosed xx

I enjoyed your vlog Jade, looking forward to the next one !

Lovely to see you back!!

How is ur pots

👏👏👏👏👏👏👏

Fab , the originals inspiration from the FaceTime call helped that night x

Damn, you are so talented!!! When did this passion start?

Love it!!

Hey I was at the Charlie puth concert. You sound good

Came from the Charlie Puth live

Hahahhahaha love how excited your mum gets over all the bargains😂 She looks well proud of herself😆

Good job😁👍

chronic illness is tough.. and there are lots of feelings that come and go.. hang in there

I had to skip bits as I don’t have time to watch such long videos with uni, but I understand how you felt about that appointment being disappointing when you were hoping for answers (which would have led to treatment), but whoever you were with doesn’t understand how tough those feelings are when you’ve been ill for so long. I’m sorry she made a difficult appointment worse, maybe it’s the video, but she came across as really insensitive and unhelpful & I know I would have personally found her lack of understanding & empathy upsetting, so I’m sorry if you felt that way too :( Some of my loved ones are the same way so I have to just take what they say with a pinch of salt and not take it to heart, because it really just comes from a lack of understanding. But I understand, and you’re going to get answers eventually, keep hanging in there for now 💕

I love when you said "you have a right to be upset." Couldn't agree with more. Love how you don't hide the reality xxx

Hey, it's Kieran. Hope you're doing well, was lovely to meet you!

The quality of your front facing camera is amazing! & I hope you feel better soon and get an answer to it all!

hope you feel better soon! It sounds like a flare up.. plus a virus or cold or something

so happy you are doing better then from a couple years ago! Being able to get out by yourself now and then is great!

Keeps these updates up

Your positivity is infectious. Thanks for the video. I’m trying so hard Beat MTD. And I didn’t expect your motivational speech but thanks for it all!!

Thanks for this. Can’t wait to see your progress.

Thanks for sharing😃

Upload more songs!! And if you have original, your awesome

You’ve made me laugh 😄 I love a good rant me. I found this after looking up ehlers Danlos and periods to see if anyone else gets unbearable periods too. I also have pots but didn’t connect the top in my mind. I have period pains like you said where I’m actually screaming, shaking , nearly throwing up and passing out . It’s insane and I wonder if it is becuase of my pain condition 🤷‍♀️ mine used to be quick and heavy. 3 days max but they are now a good 5-7 days still heAvy and sore. It does suck. Heat pads are my saviour but I have to stay in bed for a couple of days at the beginning.

u wanna use your guitar strap while u sit play u will do good

very sweet!

That's so beautiful !!! You have a lovely voice !!!

i alwsys miss work on my first day of my cycle every month, its the only time my POTS medicine is ineffective

What are the symtomps of ur MTD.Is that you are easily getting tired when u talk?

You have POTS and MDT I think you should look into EDS?

Dude, same. Like i had to miss the third day of school because if it. I was in my first class and started getting naseau and wanted to throw up so I went to the nurse, and it got so bad that they wanted to wheelchair me out of the school and call an ambulance. I'm not sure if this is pots but I get the pain feeling down my legs and get really dizzy so I can't hear or see anything

Hi! I’m Courtenay- I was actually just diagnosed with dysphonia this year too, and it’s been very difficult.. Thank you for posting this! I was wondering if you have social media so we could connect/talk on there! It’s nice to know fellow strugglers haha

Has anything improved with your voice? I'm a singer with this diagnosis and POTS as well.

Oh Jade 😘 This is exactly how I feel, every single word of what you said 😕 They might not get it or understand how hard you try but I do 💗 And your mum and sister do 💗 And I know you’re worried about getting worse but I want you to know that it does get easier to deal with, even if you’re not physically better, it does get easier to cope with 😊 Keep hanging in there lovely xx

I think doing this is fabulous. My 12-year old daughter will be relieved to know she is not alone. I will have her check out your Monday posts. Thanks so much for sharing this part of your life.

ahah nice video!

😂.. I can walk and do the stairs most days, but there will be no brisk about it! So happy to see you having a bit of fun and sun! 🌟

Awesome! I hope you are still feeling better!