Congratulations!! What an encouraging story that Trikafta brings Sammie. A little too late arriving for me, but I guess 13 years ago when I received a bi-lateral lung transplant I received the best available option. Diet wise I found that it's best to cut out almost all carbohydrate and up the fat and protein so my ratio is +/- 75-80% fats, 15-20% protein and up to a maximum of 5% carbohydrate. I never count calories because they are misleading... only calories from carbohydrates can be stored as "extra weight"... fat in the diet cannot be stored as fat and only a small amount of protein will be metabolised to make glucose and perhaps make it to fat storage (unlikely). The anti-rejection medication I must take makes me a diabetic, but my HbA1c is 53... normal on this Hi Fat, extremely low carb lifestyle. I'm a lean 12 Stone. The clinicians at Papworth Hospital are very happy with my overall health and I'm about to enjoy my 64th birthday!! Sounds to me as if you'll get to a good old age too Sammie, with this new group of breakthrough genetic modifier medications. My very best wishes.
@Emma-AnneHarmer-Collin704 жыл бұрын
My mum always believed in hugging trees xx
@Emma-AnneHarmer-Collin704 жыл бұрын
Well done you hun xx
@ThePollydoodles4 жыл бұрын
Hey glad the meds already started working (i have cf too) . did you get the drug on compassionate use? guessing your from uk also? x
@sammieread44024 жыл бұрын
ThePollydoodles Hi, yes on compassionate grounds it’s amazing. I’m from the UK how’s your cf? X
@ThePollydoodles4 жыл бұрын
@@sammieread4402 aw im glad !!..its good that it's available for those who really need it :) My Cf is not too bad currently, last blow was 68, but was normally mid 70's-80, but struggled alot after having my baby (now nearly 2 )and my pfts droppped into 50's but got them back up to a more comfortable level at 68.. however i have quite tricky bugs so is hard to improve now as IVs to treat are too harsh on liver etc!! Can't wait fot trikafta to be out properly! How was your lung function before and how are you now? if you've been able to do blows with everything going on!? xx
@sammieread44024 жыл бұрын
ThePollydoodles started just below 40 now mid high 50’s within 4 weeks it really is amazing. Fingers crossed it’s available to everyone soon who needs it X stay safe X
@Familylawgroup4 жыл бұрын
I was trying to learn about Trifakta and came across this video and learned about the law change in England about organ donation. That is SOOOO awesome. I live in St. Louis, Missouri in the United States. In our country, organ donation laws differ with each state. We can consent when we renew our state ID/ driver's licenses. Is England the first country to have a default answer to BE a donor unless you say NO to being one? In England, can family members override the default consent and can minors consent to being a donor despite parental objection?
@samanthamclean2454 жыл бұрын
OMG ❤️❤️❤️❤️
@samanthamclean2454 жыл бұрын
🤣🤣
@theherstorychannel4 жыл бұрын
Oh Ozzy 🥰 I have to walk Scruffy separate from the other two now cuz he can't keep up anymore. Still loves his walks and all the dogs he gets to meet though! ❤
@Emma-AnneHarmer-Collin704 жыл бұрын
Another great vlog xx
@Emma-AnneHarmer-Collin704 жыл бұрын
Was Brill hun xx
@theherstorychannel4 жыл бұрын
Glad you're feeling better lovely! If you ever want a natter just shout me over the fence 🤣💖
@samanthamclean2454 жыл бұрын
😘
@lorrainekinder41714 жыл бұрын
take care sammie xxx
@samanthamclean2454 жыл бұрын
🥰
@samanthamclean2454 жыл бұрын
💐
@kellyperks55964 жыл бұрын
Hi Sammie! Well done on the vlog. Watched it with my daughter to give her an insight into someone else's life and how you are isolating. Looking forward to the next one xxx
@gaynorriley16284 жыл бұрын
Love you Sammie, great first vlog! Can’t wait for the next one. Take care 😘😘😘❤️