Day 74 - How can it be June?!
7:39
4 жыл бұрын
Day 68 - Happy 40th Bec
7:03
4 жыл бұрын
Day 64 - Trikafta explained
7:48
4 жыл бұрын
Day 62 - First dose of Trikafta
5:15
Day 57 - Brads back from Salisbury
5:24
Day 53 - Papworth port flush day
5:37
Day 50 - VE Day
5:34
4 жыл бұрын
Day 41 - Its brrrrr freezing
4:20
4 жыл бұрын
Day 34 More Jobs and 21,000 + steps
5:54
Day 32! One month down
8:11
4 жыл бұрын
Day 27 - A few ism’s in 1/2 hour
6:14
Day 25 - Did someone say eggs?
5:05
4 жыл бұрын
So it’s all got real now. Day 6
6:27
Пікірлер
@peterleid5060
@peterleid5060 3 жыл бұрын
Congratulations!! What an encouraging story that Trikafta brings Sammie. A little too late arriving for me, but I guess 13 years ago when I received a bi-lateral lung transplant I received the best available option. Diet wise I found that it's best to cut out almost all carbohydrate and up the fat and protein so my ratio is +/- 75-80% fats, 15-20% protein and up to a maximum of 5% carbohydrate. I never count calories because they are misleading... only calories from carbohydrates can be stored as "extra weight"... fat in the diet cannot be stored as fat and only a small amount of protein will be metabolised to make glucose and perhaps make it to fat storage (unlikely). The anti-rejection medication I must take makes me a diabetic, but my HbA1c is 53... normal on this Hi Fat, extremely low carb lifestyle. I'm a lean 12 Stone. The clinicians at Papworth Hospital are very happy with my overall health and I'm about to enjoy my 64th birthday!! Sounds to me as if you'll get to a good old age too Sammie, with this new group of breakthrough genetic modifier medications. My very best wishes.
@Emma-AnneHarmer-Collin70
@Emma-AnneHarmer-Collin70 4 жыл бұрын
My mum always believed in hugging trees xx
@Emma-AnneHarmer-Collin70
@Emma-AnneHarmer-Collin70 4 жыл бұрын
Well done you hun xx
@ThePollydoodles
@ThePollydoodles 4 жыл бұрын
Hey glad the meds already started working (i have cf too) . did you get the drug on compassionate use? guessing your from uk also? x
@sammieread4402
@sammieread4402 4 жыл бұрын
ThePollydoodles Hi, yes on compassionate grounds it’s amazing. I’m from the UK how’s your cf? X
@ThePollydoodles
@ThePollydoodles 4 жыл бұрын
@@sammieread4402 aw im glad !!..its good that it's available for those who really need it :) My Cf is not too bad currently, last blow was 68, but was normally mid 70's-80, but struggled alot after having my baby (now nearly 2 )and my pfts droppped into 50's but got them back up to a more comfortable level at 68.. however i have quite tricky bugs so is hard to improve now as IVs to treat are too harsh on liver etc!! Can't wait fot trikafta to be out properly! How was your lung function before and how are you now? if you've been able to do blows with everything going on!? xx
@sammieread4402
@sammieread4402 4 жыл бұрын
ThePollydoodles started just below 40 now mid high 50’s within 4 weeks it really is amazing. Fingers crossed it’s available to everyone soon who needs it X stay safe X
@Familylawgroup
@Familylawgroup 4 жыл бұрын
I was trying to learn about Trifakta and came across this video and learned about the law change in England about organ donation. That is SOOOO awesome. I live in St. Louis, Missouri in the United States. In our country, organ donation laws differ with each state. We can consent when we renew our state ID/ driver's licenses. Is England the first country to have a default answer to BE a donor unless you say NO to being one? In England, can family members override the default consent and can minors consent to being a donor despite parental objection?
@samanthamclean245
@samanthamclean245 4 жыл бұрын
OMG ❤️❤️❤️❤️
@samanthamclean245
@samanthamclean245 4 жыл бұрын
🤣🤣
@theherstorychannel
@theherstorychannel 4 жыл бұрын
Oh Ozzy 🥰 I have to walk Scruffy separate from the other two now cuz he can't keep up anymore. Still loves his walks and all the dogs he gets to meet though! ❤
@Emma-AnneHarmer-Collin70
@Emma-AnneHarmer-Collin70 4 жыл бұрын
Another great vlog xx
@Emma-AnneHarmer-Collin70
@Emma-AnneHarmer-Collin70 4 жыл бұрын
Was Brill hun xx
@theherstorychannel
@theherstorychannel 4 жыл бұрын
Glad you're feeling better lovely! If you ever want a natter just shout me over the fence 🤣💖
@samanthamclean245
@samanthamclean245 4 жыл бұрын
😘
@lorrainekinder4171
@lorrainekinder4171 4 жыл бұрын
take care sammie xxx
@samanthamclean245
@samanthamclean245 4 жыл бұрын
🥰
@samanthamclean245
@samanthamclean245 4 жыл бұрын
💐
@kellyperks5596
@kellyperks5596 4 жыл бұрын
Hi Sammie! Well done on the vlog. Watched it with my daughter to give her an insight into someone else's life and how you are isolating. Looking forward to the next one xxx
@gaynorriley1628
@gaynorriley1628 4 жыл бұрын
Love you Sammie, great first vlog! Can’t wait for the next one. Take care 😘😘😘❤️
@samanthamclean245
@samanthamclean245 4 жыл бұрын
❤️