Taylor Edward Thomas Elizabeth Martin Kevin

WOW he sugar coated this disease & that’s disappointing. So for those who need more understanding, this is disease hijacks your body WHILE YOU ARE FULLY AWARE. That makes it worse! This is my grandpa currently and he has had PSP going on 6 years. He cannot talk, he cannot walk, he chokes on food and liquids so food needs to be blended and water needs to be thickened to insure no aspiration which can lead to pneumonia, eventually feeding tube will be put in, he cannot look up or down without moving his head so there is no Peripheral vision. They bite their tongues and they bleed. Uncontrollable PSP face (google what that looks like, they always look worried or surprised) Uncontrollable emotions like laughing and crying he cannot help it. Depression. PT & OT barely help. If anything after he is in pain for days on end after. Freeze gait is present, if he holds on to a bar he is squeezing it for dear life and it’s hard to get him to unlock his hands or let go, he is tired all the time but can only sleep 10-20 minutes unless given strong sleep pills and anxiety pills which also do not work, dizziness and sometimes falling out of bed(they feel like they’re slipping out of bed) his joints and neck are so stiff and eventually PSP patients shrivel up and cannot keep their head up and their hands become cramped(think vegetable but still FULLY aware) their brain tricks them into thinking it’s time to use the restroom so it can be up and down for hours taking them to the bathroom, he has developed Echoalia which is him repeating everything I say when he is able to muster up a mumble, agitation and I just know with all I described, I STILL missed a lot of points. NOW HERE IS REAL ADVICE FROM A CAREGIVER who takes care of someone with this disease: this is hard! Take care of yourself. It’s an emotional ride. You are watching someone you love lose themselves quickly. If you cannot take care of yourself due to lack of sleep you cannot be there for your psp individual. Have family and friends help out so you get a day off. I went 9 months with no help and no sleep. I was losing my mind. You’re filled with anxiety about when the next fall is going to happen or if I have to find him on the floor because he forgot to ring his bell to tell me he has to use the bathroom. You need a lot of help and support. No body can do this alone. Also look up “Big and Loud” on KZbin it’s speech therapy and exercises for your loved one. Keep them talking as long as you can. Do vocal warm ups with them. OH and they respond so well to music. My grandpa won’t talk and I can tell he’s trying to speak but if I put on his favorite songs he is able to sing and that brings happiness to both PSP patients and the caregiver. Good luck 🍀

THATS MY DADDD

My doctor just told me yesterday that I need a pacemaker and like a year or two I was telling me about this option. He says I'm young and doesn't want to put the regular pacemaker in because of the leads and it wears out and when they take it out it can cause death so he suggested this but also nobody in Missouri has gotten one he said which makes me a little worried. I don't know which pacemaker I'll decide to do when it comes to that time but this is scary something that was just approved.

He really whitewashed this horrific disease. My husband was diagnosed in 2022, it took a long time to diagnose. Now it is 2024 and my husband can't do anything on his own. Speech has been gone for over a year. He is extremely stiff, movement almost impossible. I could go on and on. Pray for a cure.

How are they tracking this? I have a possible diagnosis of CMD.

Jesus Christ, you look good Nick

Exactly me!! My new cardiologist totally believes me although my angiogram and other tests looked good. His partner, however, told me I can't have angina with clear vessels. After and ER visit and how I am responding to medications, I probably have coronary angiospasm and/or microvascular disease. It is a very serious situation, so don't let anyone dismiss your symptoms. No wonder heart disease is the largest killer of women! How many doctors have dismissed symptoms.

Does Dr. K do complex mitral valve surgery like barlows valve that are hooved? Or maybe it's hoofed lol. I have a severe leaky mitral valve/mvp.

Is a patient with a traditional pacemaker a protentional candidate for this new device?

And what is the treatment for that? I had my Dr say after an angiogram it "might be" but no follow up; n what to do about it 😥

My wife has an AHI OVER 100. will this be good for here?

Lost my cousin who was a gym rat to this in March of 24. 47 years oks left wife and two kids , one 17. Still in shock, if you have symptoms take it seriously.

She cute

What procedure done to her?

Autoimmune diseases impact millions and can be challenging to manage. Dr. Benjamin Plotz highlights the complexity of these conditions. RYZE HRT offers innovative treatments for autoimmune diseases, combining functional and Western medicine to create personalized care plans. By addressing the root causes and symptoms, RYZE HRT aims to improve the quality of life for those affected.

So this doctor talked and said nothing

I have elevated a n a so I am referred to rheumatology for more investigation. Would love to talk to others going through or have gone thru this please

Husband passed with “rare ?” disease and neighbor died 1 year before!!! Rare????

What medication???

Loved working under attending physician Dr. Taler. He is an incredible physician and a wonderful mentor

Price??

I just went for the operation and never had a problem going on more than 30 years

I had a 11cm fibroid which I shrunk naturally, cancelled a unnecessary full hysterectomy.

It was challenging and unbearable because of how critical my health situation was. but I am grateful and happy to have ordered Dr Aluda herbal supplements on KZbin which I used and it shrunk my multiple fibroids completely:

I've just been catapulted into this world of autoimmunity and it's blowing my mind. The immune system not being able to do its job? Ok, so I go to my primary physician today and we set in motion A few processes. Blood work, mammogram, orthopedics, stop, for now. Connect those dots. I'm heavy. Dermatology says I have spinal nerve damage. I have Psoriasis. Another skin ailment led to a biopsy which led to autoimmunity. I am totally confused as to how to fight this! It can require a system of specialists that has to collaborate with each other to reach a conclution they don't have. Roll the dice! I have given most of this to the Lord, especially pain. I asked for comfort and strength and He gave me both. There will be a lot more of it needed in the future. I'm old. I'm ready. It's time to trust the Master.

I am so blessed to soon starting my fellowship at an organisation that values its staff regardless of their roles… SAH

There are different causes for sleep apnea. Obviously not for central sleep apnea, but for obstructive sleep apnea. For obstructive sleep apnea, it's not always the tongue. How do you screen people to know it's the tongue specifically, and not the Uvula, pallete, jaw or otherwise. If it doesn't work, do you have to pay for removal? What is the success rate so far? Also, I am going to assume that stimulating the tongue to move forward doesn't interupt the sleep state. So it doesn't interupt REM cycles.

Am glad to meet nurses here

4/6/2019. I fast every day. Not sure if it helps. Nothing seems to help. Pain has only gotten worse as well. It's exhausting and soul crushing. No one understands how much we suffer inside and out. I It's awful. 😢

June 16, 2004

My son whos 14 has RA and ankylosing spotylitis however you spell is. I have scleroderma, SLE Lupus, sjogrens, small fiber and large fiber neuropathy, neuromyelitis optica which is like MS but worse, Raynaud's and others. Ny gene pool sucks

I'm suffering from pain in my chest for 28 years I hope they can help us 😢thank you for information 🙏

I got it in my right arm in the hospital and had to have surgery

Crazy. I'd never get an implant for this.

I have Inspire and I love it. I've had it for about 4 years now, and it has truly been a lifesaver for me. I encourage anyone who has OSA (Obstructive Sleep Apnea) to research Inspire. I am also willing to chat with any and all people who have OSA about Inspire.

I tell you, Nay: but, except ye repent, ye shall all likewise perish. (Luke 13:5) Enter ye in at the strait gate: for wide is the gate, and broad is the way, that leadeth to destruction, and many there be which go in thereat: Because strait is the gate, and narrow is the way, which leadeth unto life, and few there be that find it. (Matthew 7:13-14) And whosoever was not found written in the book of life was cast into the lake of fire. (Revelation of John 20:15)

Wow what a great story!

My cousin is 73, diagnosed 2 years ago. It's so sad to see his decline.

I dont if i have it but ive been getting sick alot this year im always tired even if i slept in the night and im 13 years old right now i need tips what i have to do i dont know what it is could it be auto immuun or something else im kinda scared right now

I’m so healthy. Eat right. Exercise. I love my job and have a great family life. But I have two auto immune diseases. I wish they could figure out more about what causes these things.

Please I nee your help. Can a virgin have uterine fibroid?

People are really unaware of how glyphosate has worked its way into food and air in 30 years. Some people can go to places that don't use it and recover from some autoimmune diseases. Estonia banned glyphosate for this reason. Glyphosate is in US air, it's in the water, it's in nuts, wheat oranges, blueberries. Glyphosate is killing us.

neanderthal is the cause...kzbin.info/www/bejne/gGK6oXugZ5ujiZYsi=z3Y3tyYCzXFlgtF0

It’s getting bad for me.

What were the actual problems with his valve and what surgery was actually performed? Like did you add a ring, did u add artificial chordae? I would like a little more details. I need ohs and just found out my GWU surgeon is leaving soon and that I should see medstars Dr. Bafi. I was told ohs gives a way better look at the heart than robotic.

Can you have this Device if you have a defibrillator implant?

I have hashimoto whats weird is that i have never heard of it untill now its like common among many people. Did that exist long ago? Or are we seing this more often after covid? I wonder

I blame Monsanto!!!!😡😡😡💩

I wonder if this helps with central sleep apnea. It seems like it would only help obstructive sleep apnea, no?