Thank you. Just thank you.

This is so my story!!!!! i am seeing a neurologist had an mri and hearing test nothing thinks a type of migraine im pretty sure this is it!

Great video thankyou my sons just about to see a neurologist as we think he’s having these. ❤

Sweet dreams by Beyoncé used to trigger my Deja vu experiences. Not anymore, but that song used to creep me out

Ive just been diagnosed with temporal lobe epilepsy yet ive never has a seizure/ fit...is this possible?

A carnivore diet and methylane blue supplements will heal. Completely.

My seizures are pretty much the same as yours and are triggered by music as well. I was curious, if I don’t go the doctor for my seizures will they cause damage long term without medication? I’m scared to go to the doctor because I really don’t want to lose my license I’m young and in school and need my car for that and just social life in general. driving and listening to music is my favorite thing to do.

I’ve never ever heard anyone else say the same thing about hearing a song that’s kinda familiar and on the tip of the tongue. My dad would always say he would get this song in his head, but he couldn’t ever place it, and then he would get this weird taste in his mouth after. I wonder if it was acid from the rising nausea. But he ended up being diagnosed with a giloblastoma tumor in his temporal lobe. He would say that he would feel like he was crazy about the song part - it was very comforting in a weird way to have an answer possibly to his song riddle. Thank you for your video

My doctors tell me it’s panic attacks and nothing has shown up on an EEG. I get them for about 5 days every 8-12 weeks. So, after doing tons of research, I self subscribed myself Levetiracetam, or generic Keppra. I use online doctors to write my prescriptions and the seizures have dissipated.

I was diagnosed with TLE when i was fifteen, in a highschool class i suddenly felt something I'd never felt before, it was deja vu but the stonger it got the more it felt like a dream. I was led to the school nurse and tried to explain to the best of my abilty the feeling, the taste of blood in my mouth and a raging headache afterwards. Fast forward! A couple MRI's later i found a tumor in my brain. I went six months without meds, i didnt even know WTF i was supposed to do. The stronger they got, the more hallucinatory it was, visons of a runaway freight train, for some reason! a claw machine (for stuffed animals) from the inside, and id hear the commotion of young children, kimda like from "The Polar Express". I am now twenty, i have gotten the tumor removed, ive had to put up with big pharma and the inability to do schoolwork. I dont know why this happened but i know one thing. Fuck tumors

I told friends about my seizures. I don't know how serious they took it until I had one in front of them. I always worried that I would find it embarrassing, but I felt so relieved that they saw what I was going through. 0:06 ❤❤ Take care!

Ive been trying so hard to get my doctors to listen to me. Ive seen 3 PCP's in the last 5 years, and no one has taken me seriously. I had 3 of these "episodes" today, one I just finished. Does it happen multiple times a day for a while and then vanish? Ive been documenting every single one. They mainly happen twice a day for a week and then vanish for a month. My right arm tingles, the back and sides of my head tingle, the deja vu (which feels like a dream literally coming to life), I KNOW im going to get it hours before it happens, too. The nausea rises and falls, rises and falls and I just feel like crying. Thank you again, Its really heartening to know that someone else feels the same way you feel. No one in my life has ever experienced this.

Good morning, Kyra. I’m a 73 year old woman with a long ago (age 19, second year of nursing school) history of waking up in my dorm room, feeling cold and had a sore tongue. I was on the floor! Picked myself up and got back into bed, thinking ,WOW, I must have had one heck of a dream! A seizure NEVER occurred to me. No history of fainting, passing out, or even dizziness. Several days/weeks later I had a very strange version of deja vu. No aura. It passed after about 30 seconds. My classmates stared at me, one asking me if I was ok. I had continued to talk throughout the seizure (I rapidly came to the realization that it was a seizure of some type and from this day, the deja Vu experiences increased markedly in occurrence. And so did my efforts to finish speaking if I had been. Friends and classmates started giving me looks each time I had an episode. One nursing instructor reported to the RN who was in charge of student health, that I appeared euphoric and she wondered if I was on drugs. That RN wanted to see me in her office. From there I denied drug use and proceeded to tell her what had been happening to me. She immediately called the hospital chief of neurology and an appointment was made. This was 1969.The neuro m.d. had an EEG done after hearing my story. It showed hyperactivity of the left temporal lobe. And diagnosed a generalized seizure was what had happened months back when I had found myself on the floor of my dorm room with a bitten tongue. Life went on. Finished school, passed my boards despite being heavily medicated with anticonvulsants (it took more than a year to find the right combo to stop most of the seizures. But my career was difficult to establish. After four years I found a unit where I was accepted and professionally I began to flourish. I soon fell in love with a great guy who loved me, seizures and all. We got married, I stopped having seizures, stopped seeing the neuro, had three daughters….life went on…it was like I outgrew the seizures. Around the age of 60, strange sensations began to occur periodically . They were somewhat similar to the deja vu of my younger days. Death had claimed my neuro years earlier. I consulted with another neuro, EEG “normal” so no meds. But these episodes, though less frequent than those of my youth, continued and worried. My once great memory began to fade. I retired at 64(that’d early in the USA) and I greatly feared causing harm to a patient. Many colleagues wondered why I was hanging up my stethoscope. My husband had retired five years earlier and my now married daughters were begging me to retire so that I could know my grands better. Beautiful babies, three boys and two girls. I was already suspecting dearly dementia so retirement was really the best . I did my best to ignore the slowly increasing cloudy memory. I never told my colleagues. Now I’m waiting to see another Neurologist, but I’m preparing myself for a definite diagnosis. My mom died after a 13 year battle with Alzheimer’s, and that hanged heavily on me. There is a connection in reverse …….studies have shown that late in the course of Alzheimer’s patients who never had seizures may begin to have seizure activity. So all of you, who like me, had seizure activity well before old age, likely won’t have this happen. Unfortunately I had several other health issues occur that have contributed to the loss of short term memory. God bless all of you and cling to happiness, it is the best revenge against things that we fight against. 🙏🏻✝️❤️

Idk what is going on but I have that episode but hours. Seizing over and over: jerking limbs, tremors and confusion. I am losing my memory and confused. The doctor saw my mri and said I had brain damage on my temporal lobe and is likely progressing. So diagnosed with epilepsy. So I just sit there shaking and seizures in my limbs, even my neck. I look like I'm being electrocuted over and over. For hours. I get so exhausted. I have aggravating triggers, like heat, etc. But sometimes I'm chilling and it starts slow and just keep increasing until it plateaues and sits there for hours like that. I feel like I'm have have mini clonic tonics for hours. Whew. I'm trying to find anyone else who goes through this

I just found out im having siezures, i thought this developed out of the blue , doc said ive probably had siezures and it went un noticed or i dismissed the symptoms, hearing what ur saying ive 100 percent been having siezure that i have dismissed ... The only reason i know now is because ive started having feelings of passing out and although i remain awake my body shakes

What medication worked for you?

They could never make me have a seizure with sleep deprivation etc. It just wouldn't happen, and I also went a good while without any and thought that whatever it was I didn't have to deal with anymore. I was lucky that my neurologist believed me and gave me medication. Long story, short.. I'm off the meds and have been having seizures again, more often but not daily, and not enough to make me go see anyone about it. Sadly, the doctor who believed me is no long practicing in the state, so that's depressing considering the previous one didn't believe me and was basically a jerk about it all. I'm glad you got a diagnosis and the medication is working for you. Thank you for posting this.

Was just diagnosed a week ago after having two clonic tonic seizures in my sleep. My focal seizures are very similar to yours, the weird music is also so strange during my focal seizures, very very scary stuff. I fucking hate it. Love you ❤️

Let’s talk about that burning smell of rubber

Nice vid. Thanks. Can we know which medication stopped your epilepsy? And why did you have to change your meds if they were working?

To me it happens only in spring and summer

Deja vu,dream,nausea,difficulty breathing….

I have the temp lobe epilepsy due to infection in the brain 🧠 and causes complex partial seizures just like one person who has a daughter is near my age.

Roses are red violets are blue I live my life happily dressed up as a crab watching people devour my family

I wish i could be fastidious about my deja vu episodes. But I always get stuck in the moment and in how weird the feeling is

This is me but an hour

Shit spot On

They think we crazy. Temp lobe epilepsy is touching angels. Scary af, wouldn’t wish it on anyone.

Thank you for this video. I'm waiting for my appointment with a specialist and there isn't much on KZbin about this subject. Of course I've read a ton online but it's nice to hear someone describe their experience. Especially during a strange and lonely time like this.

Thank you for sharing. I’m waiting for diagnosis after having very similar symptoms for the last year. An MRI has shown I have some cavernomas, with the biggest one in my temporal lobe which might be causing mine. It’s so interesting here you describe the feeling, I really struggled to describe the symptoms but they are really similar

My aura is typically starting with a smell, but its not really a smell. Im told its from the pituitary doing in my seizure, because i will also "taste" the smell. And to top off the weirdness of how that sounds, it is like im experiencing it in the middle of my face, like halfway in my head. And for me, it is not a pleasant smell/taste, and i will do the lip smacking, but in my mind, i was literally trying to get the taste out of my head...so i felt like i was concious. I started thing about a particularly strong one i had while washing dishes. I'll narrate like I'm having it right now... suddenly the dejavu feeling of "oh, i remember this moment, standing here, i know something is going to happen"..and simultaneously, "God wants me to.." i don't remember what i did for the next few moments. Its like i would get far enough into it, to lose awareness, im back POW, i am realizing something really weird just happened, im SO tired, i left the sink and went and sat down. That one was when i first started having them as a 25+ year old. They are different at times, in the moments of the intense "I've been here before" i might feel like "i HAVE to say this word" or sentence, just a few moments of going totally batshit crazy quite frankly, speaking jibberish, calmly, then as years went by, i could (and years of meds) i could control myself somewhat. No speaking outloud for example. I still have to move my body. Its a compulsion. I tell you your video, and others like yours, and even comments. I value them so much. Before internet, i was just crazy. My ex husband was ashamed of me. I was no longer his "trophy" wife. Its alright though, God became my true friend, as i turned to Him. And i am a better person for it. I wonder though, does anyone else feel like they may have a different brain now? Like your very being has changed? Personality etc? I almost feel like i have brain damage quite frankly. Well, anyway... God be with you! May we all love our little unexpected "trips" as much as we can. Its all we can do.

Grown on trees Red and sweet Drawn by hand Not a tasty treat

I just don’t know how to get diagnosed. I’ve been having it for 4 years, i tried going to the doctor for it but he made the whole appointment about my weight. And he LIED to me saying there is no such seizure as I was describing.

Had to come back to this video that was the first time I realized what my symptoms were. Fast forward, I had a Craniotomy to remove a brain tumor in my right temporal lobe 3 weeks ago. Still on Levitriacitam but now starting to reduce the dosage gradually as my seizures are still happening but less intense, it's more like constant Dejavu, but without all the other "oh no" symptoms so I'm optimistic that because the source has been removed, the TLE may have gone with it. So now it's a case of are my symptoms residual, post surgery effects? I'm I now overdosing on Keppra and it is actually inducing seizures not stopping them? Or am I gonna need to try new meds. Anyway it's been a long journey but I'm grateful I watched this video when I did because it kicked everything off and lead me to find the Tumour.

My coworker has a pretty bad form of TLE and has mixed partial seizures and generalized. Whenever he has an "aura" at work he gets the epigastric rising sensation and it makes him vomit and he starts pouring sweat. We always try to convince him to go home and rest but he usually doesn't want to.

Hello! Two years after you posted this vid, I find it :) EVERYTHING you described is exactly what I have experienced, and I thought I was weird. Mine started when i was 10 and were actually pleasant enough to experience. Once I hit 18, they would come out of nowhere again and come in clusters. They drained me. Moving forward, I began to have them of a nighttime also when sleeping. It was terrifying. All scans were clear - finally diagnosed with TLE last Oct, (at age 45), and was told that it doesn't show up in scans unless there has been damage done to the brain and diagnosis is through consultation with the patient. EEG picked up activity to back up proof of seizures and a recent MRI is showing possible damage. My meds have been great and i haven't had one in 6 months! I hope 2 years on, you are doing well on your medication and in life :) Thank you for sharing your story. Mel

I had fever seizures as a kid that were full on convulsing and unconscious ending up the ER that I grew out of at 6. I’m now 20 and The last 6-7 years tho been having a strange smell kind of like a dirty vacuum? in my nose every few months that within seconds turns into me basically going to a place/places in my mind with people I’ve seen before (not in real life) and see a place I always see every time it happens... It’s not people or a place that I can remember in detail afterwards or people or a place I cant explain but everytime it’s the same place and I remember and feel the Deja vu in the moment. I explained this to a doctor at 14/15 years old and she seemed very confused and they did brain tests but nothing was going on in my brain at the time of the tests so they found nothing. I get terrified and shaky and know it’s happening again then I panic and feel like I’m going to vomit or pass out. I never had any idea what this is. it’s usually every few months or a couple times a year but I’ve had three so far in the last 24 hours so I’m very nervous. I went to the doctor years ago the first time I experienced this and they just called it an absence seizure and brushed it off but my symptoms didn’t add up with that diagnosis. I need to go to a dif doctor asap now that it’s happening more often. I’ve been searching and searching to find someone with the same experience and answers for years. This video you made actually is helping me make some limelight and feel heard and I might have an idea of what’s going on to suggest to doctors. I’m PRAYING that the doctor can properly diagnose me next time and help me. It’s an embarrassing thing for me that makes me act slightly crazy out of fear for the rest of the day when one happens. You can not understand how thankful I am to come across this video and finally feel like I might know what’s going on and to see another beautiful young woman going through the same thing so I don’t feel alone anymore.

I'd like to give some advise which can be useful for epilepsy Always: - Drink cold water immediately after having a partial seizure as this will cool your brain and body immediately - if you are still unwell or weak throughout the day, drink a frappe or something ice blended as this will further cool the brain and body - watch comedy programs to reduce your stress - make sure to eat a full day meal. - always keep a cold water bottle with you wherever you go especially when going out for a walk or drive You should avoid: - smoking or anything that affects the brain - being around Chemical factories as the smell can worsen breathing - very bright lights - amusement park rides as this can worsen seizures I'd recommend a medication called Lamictal or lamotrigine as this medication is more effective to reduce seizures. Good luck and I hope you all stay well.

When mine hit, it's instant deja vu and strong nausea. They last about the same as yours(30sec-2mins), strong fatigue afterwards, I can tell what people are going to say, who will say it and how I react to it. I also HAVE TO STOP whatever I was doing beforehand; even if I was just watching TV or using my phone, which is why I don't drive(huge hamper on my life, sadly). When I'm grocery shopping with family, I can still walk around, and don't have to sit down(I don't know why...🤨). I think I have drug-resistant epilepsy as well, because I still have the same amount or more of those seizures, even being on 3-4 seizure drugs.

Just got diagnosed with tle today spent 7-8 years (since i was 13) similar effects not the de ja vu part but before this it was getting parred off as mental health or panic disorders so im kinda happy i have a word other than “episodes” for what im actually going through. Watching this video just feels crazy knowing there’s people like me. Gives me so much hope, feel like there’s a chance for me to be normal . Thanks for this amazing video, really helping so many people by just posting this ❤️

Thank you so much for posting this. Did you ever have feelings of being terrified like something really bad was going to happen, was happening (especially if you were alone) or that you were in a dream, or smell something strange like a burning smell or ionization? Thanks again!

Thank you for your information. What medications have helped you?

I hope I’m not being too nosy, but I would love to hear what med is working for you. I’ve always been told that they did not believe I had epilepsy even thought my EEGs all show left temporal lobe slowing (sometimes reaching into the right hemisphere) right before I actually begin to convulse. My symptoms are very similar, I’m looking into a new neurologist and I have other symptoms as well that could be pointing to something larger in conjunction with this. I see on here how many others are saying they have felt mystical or magical energy and thoughts surrounding these episodes and the same has happened to me. Im unsure if I am a good candidate for meds and if it would be worth it for me to try, but I’d love to hear what works for TLE when they don’t even entertain that I could possibly have epilepsy right now.

If doctors blow you off keep looking for a new one until they listen. I got ignored and blown off for years so I sucked it up like the doctors told me and tried to live a normal life. Now I no longer get partial seizures. My brain goes straight into tonic clonic from having so many and not getting the proper treatment. Epilepsy is no joke. SUDEP is no joke. I have stopped breathing. My heart had gotten in the 200s while my blood pressure read 70/30 making me pass out. Keep fighting to get heard whoever is reading this.

This is ME! Finally semi diagnosed @ ER yesterday after having these happen for 16 years. De ja vu, doom/fear, stomach uprising, disorientation after. Then crying right after! 90% are when I’m about to nod off to sleep or in sleep/nap. Involves ❤ too. Have pacemaker from 2009. Thank you for your video. The best yet that sounds like me❤

I have temporal lobe epilepsy and have tonic clonic seizures..They found lesions on brain on temporal side and hoping to have brain resection epilepsy surgery..

Hello, I have focal seizures. Ya that music thing I have and no you can't ever make it out but I think I recognize the song. I have no memory of my seizures my husband tells me what I do. This might sound crazy but during my seizures I see people and talk to them I describe them to my husband I even made food for them. Maybe I'm not alone I don't know. Prayers for everyone. I'm not able to work because of it i just pass out and I was told I'm a liability however I am on disability. I did have one driving and I wrecked, luckily I went in ditch.i was not hurt. I won't drive at all.that really scared me.please don't drive.I've been accused of being on drugs. Because I had a massive stroke 2 years ago so now when I have a siezure it hits that spot where I had a stroke. I loose the ability to walk and my speech is slurred. It's a lot to handle. Thanks for sharing.

Thank you for sharing your story. Do you find that most doctors do not understand an Aura and that an Aura is an actual seizure? I've experienced many Auras but people think it is an anxiety issue or that you're going crazy ☹️ Its hard to describe it to people who haven't experienced one. I usually feel like I'm in a trance like state or in a dream and I'm losing touch with reality. Like I am going to loose Control. I don't like if someone looks at me because I worry that I'm doing something stupid and not aware of it. But, it last much longer than a few minutes seems like hours and I'm exhausted after it

I have this but it usually becomes tonic-clonic within about ten seconds if i don't radically distract my brain from it.

I also was told I was having migraines and nothing was done by either my GP or neurologist until I had a massive tonic clonic seizure and almost died. Still nothing is being done, I am also scared as 5 days a week I am alone. I am wrong I have been given anti seizure medication, which makes me feel terrible I had been having focal unaware seizures for 2 years until they turned into tonic clonic seizures Also had 3 EEG's that showed nothing, but they don't tell you 20 percent do not show epilepsy Here in Canada our medical system is a mess, I don't think my GP has read a paper on epilepsy since grad school Good luck to you