I hope you are doing ok. I believe we are the same age. Less than a year ago I became a dad for the first time. What a feeling! Much more intense when just after a few hours of the baby just being born he colapsed and had to be moved to the NCIU. Just like you, he is a fighter and was able to come back like a fenix , even after spending a month in the NCIU and almost 2 weeks in a coma , he is now around 9 months old and you would never be able to tell that something like that happened to him. In the slight chance that you would get to read this bottled message… Just like you I was born with posaxial polydactilia, baby only got 5 fingers but with hypttrsm … c’est la vie. Poetic coincidences. Do not give up. Probably you know much more than I do about this stuff, but if you haven’t done a DNA analysis test , I think having one done will make you understand a little more why you are so special. Gli2 mutations. Please take care. -New dad
@saintdenis32383 жыл бұрын
you know i have a problem which is untreatable that is psychopathy a fatal and dangerous personality commom in prison population these people can cause serious damage to society
@saintdenis32383 жыл бұрын
yo hellow
@Sprouht4 жыл бұрын
Hey Anne! I came across your feed from the Yes Theory channel/groups! Your videos are awesome! I can’t tell you how much I love and appreciate what you do. People who devote their lives to not only bettering themselves but bettering others are the most admirable in my opinion. Keep this up PLEASE! As for a bit on myself (my name is William!), I started making content with the aim of teaching people to break free of societal norms by seeking discomfort & testing their own limits! A few months after starting, my friends told me to check out this channel called Yes Theory as they said my content reminded them of it.. and like you, I’ve been so inspired by the lifestyle they preach!! Hope you have an awesome day and you are awesome, keep being you! 😁☝🏻
@andreearooney7684 жыл бұрын
Can we talk please?
@mohanbodkhe23594 жыл бұрын
Hi madam I have hyposecreation of gh harmone advise me how to cure it
@krew11uvtoo235 жыл бұрын
Hi kiddo. Sorry that you've had it soooo rough. I came across this video by pure accident. In either case, my aunt had various cancers ( well my aunts, mom, lil bro). One of which was a blood cancer. She went through a shit load of chemo and treatments. Lost her hair, and a bunch of really sick spells. That said, she survived, is still alive. I am not sure how you will fair and to be honest, no matter how it ends, the journey will be rough. I wish I had the power or money to give you the well deserved break you need. And if I ever do get either, I will make sure to do so. I know right now you are scared, feeling hurt, confused, and more. It's okay. You will feel like this again. We all do. It's what happens when big shit hits the fan. And life is a big messy, stinky fan just waiting to happen. That said, none of know when we will die, no mater what. Most people take life for granted. I can get hit by a truck today and die. My youngest brother did at 21 years old. So do me a favor. Just live. Do let anything or anyone stop you from living. Do you. Go out. Dance. Act silly or serious. It doesn't matter. Life isn't guaranteed for anyone. So now you have more shit to deal with. We all do, always. Just know that you are not in this alone.
@brialynn6675 жыл бұрын
I have panhypopituitarism and I had hypoglycemic seizures a lot when I was younger did anyone else have those?
@annelycecain5 жыл бұрын
Not seizures, but that is a side effect of having low blood sugar
@orlybabe5 жыл бұрын
I have hypopituitarism too. I was diagnosed with a benign brain tumor (pituitary adenoma) when I was 15, had surgery and radiotherapy and ended up with hypopit. I take cortisone, thyroxine, estrogen, GH. I feel very lucky that I have normal height, i look very young for my age but look basically normal, have good health in general. There are always challenges with hypopit, like puffy face, eventually when you want to have babies, fatigue, balancing all the hormones and so on, but I am working through it all
@annelycecain5 жыл бұрын
Glad to hear. You are like the first person I've heard of to have or they for a baby with this condition. How often did you have to check up?
@orlybabe5 жыл бұрын
AnneHC lyce hey nope I haven’t had a baby yet, I meant in the future when you want to have one. I was told it’s not hard, it requires taking a different type of estrogen that causes eggs to be dispatched, and there is a very high success rate. Fingers crossed!
@annelycecain5 жыл бұрын
Oh ok I totally read that wrong. It looks like you did a bit of research or talk to a doctor.
@orlybabe5 жыл бұрын
AnneHC lyce yes I did, i attended a hypopituitary conference in Sydney, Australia where there were some fertility experts there. They said if you get your period when you take estrogen pills, conception shouldn’t be a problem. How are you managing your hypopit?
@annelycecain5 жыл бұрын
@@orlybabe what that is crazy I'll have to see if the US has something like that. I take pills and humatrope
@iindiar5 жыл бұрын
sorry for another question, what kind of schedule are you on for hydrocortisone? i am thinking i have cushing's from the hc even the dose is low.
@annelycecain5 жыл бұрын
2 in the morning and1& 1/2 at night
@annelycecain5 жыл бұрын
I would talk to your doc if you think it's CD
@iindiar5 жыл бұрын
grapes and dr. pepper
@iindiar5 жыл бұрын
i have php...not sure if i can without meds. well , i mean, help create a child hehe....the condition does suck
@iindiar5 жыл бұрын
do you take gh?
@annelycecain5 жыл бұрын
Growth hormone, yes I do.
@NullaNulla5 жыл бұрын
Can't speak for the female side but from the male side I had to have some injections and as a result we have 2 strong boys.
@annelycecain5 жыл бұрын
Nice
@iindiar5 жыл бұрын
your face isn't round like a lot of people with php or hp have. i wonder why some people have the roundness and others don't
@annelycecain5 жыл бұрын
You know I don't really know.
@angie13295 жыл бұрын
My son is 6 and has autism. He was just diagnosed yesterday with this and a small hippocampus I was not told yet if he was born with it or if he got it later on. I am seeing a special doctor for him soon. I'm still scared about everything
@annelycecain5 жыл бұрын
Well, if you have any questions I can help with, I'd be glad to help.
@caligirlmarti5 жыл бұрын
I'm 46 years old and I'm 4'11. I had to have growth hormone injections from the age of 3 until I was 16 3 times a week. It sucks being short. You need help getting things off of high shelves. Guys made fun of me when I was in high school telling me to go back to grade school.
@caligirlmarti6 жыл бұрын
I was born in 1972 with Hypopituitary Dwarfism. I had to have growth hormone injections 3 days a week. Mondays, Wednesdays, and Fridays from the age of 4 until I was 16. I am now 46 years old and 4'11. I have a lot of things wrong with me. Many health problems.
@TanvirSingh5006 жыл бұрын
Hi. I've never contacted anyone who also has Hypopituitarism, I'd really like to talk to everyone, shoot me a message by replying to my post, I would love to speak to everyone.
@annelycecain6 жыл бұрын
Tanvir Singh how are You? And welcome!
@annelycecain6 жыл бұрын
Annikki14
@christian56206 жыл бұрын
Remember me? 😂
@annelycecain6 жыл бұрын
Sillyasiankid nope
@christian56206 жыл бұрын
Wow..
@whowherewhenwhatwhy6 жыл бұрын
Wait so there is more than just levothyroxine?!
@joshwhitney74634 жыл бұрын
Cytomel and NDT. Levothyroxine is absolute garbage.
@whowherewhenwhatwhy6 жыл бұрын
hypopituitarism
@kiaranichole89067 жыл бұрын
Oooo yeah tats and piercings here we go!
@ricky56807 жыл бұрын
I have hypopituitarism I was diagnosed pretty much as I can remember at the age of 1 or 2 I don't really remember but I do remember all the treatment I have gone through my entire life all the crappy shots and all the pills I also have optic nerve hypoplasia and septo-optic dysplasia I live in California where are you
@andreearooney7684 жыл бұрын
Can we talk please.. my son has Hypopituitarism and optic nerve hypoplasia and id like to ask you a couple of questions
@sklenotic7 жыл бұрын
Hola Esse
@NullaNulla7 жыл бұрын
Muesli bars chock bars, water bottles, Powerade, sausage roll for lunch on the go, coffee coffee and more coffee. My 2 way radios keep me fairly occupied if in my car else I'll pull out the tablet or laptop. Heaps of vids on USB stick with adapter for tablet. Come to Australia and meet a few more of us :p
@sceanlyonz45717 жыл бұрын
How was or is the trip??
@kiaranichole89067 жыл бұрын
Lots and lots of anime and dr pepper
@DroppingLoads7 жыл бұрын
Hey Anne I've been diagnosed with Hypopituitarism a few months back at age 29. Thanks for making this video.
@annelycecain7 жыл бұрын
Dropping Loads well I hope you don't feel alone.
@DroppingLoads7 жыл бұрын
thanks! I don't. I have great people around me.
@doghound.7 жыл бұрын
lolis be like
@alexanderbolivar21407 жыл бұрын
I'm not the only one!
@jokubasrucinskas81127 жыл бұрын
alexander bolivar yes. We are all together now!
@INDKFGC7 жыл бұрын
you look lively and healthy. your hair looks great. glad to see your doing fine.
@annelycecain7 жыл бұрын
AdrianINDK thank you
@INDKFGC7 жыл бұрын
i know i have it. i suffered head trauma 10 years ago and ever since I've had all the symptoms. i use to be somebody. now i don't know how much longer I'm going to be here. finding healthcare is such an obstacle.
@aiydanf7 жыл бұрын
nice body though :)
@slime_dropz_bodies11137 жыл бұрын
Wtf that's crazy
@kiaranichole89067 жыл бұрын
Your crazy 😂
@annelycecain7 жыл бұрын
Kiara Nichole it felt so warm
@Unknown-up2re7 жыл бұрын
Happy new year!
@christian56207 жыл бұрын
I hope I get picked!!
@annelycecain7 жыл бұрын
Sillyasiankid hieu, I just gave you one yesterday!!!
@kiaranichole89067 жыл бұрын
👏🏻👍🏼😂❤️🎁🎁🎁
@kiaranichole89068 жыл бұрын
Wooooo!
@kiaranichole89068 жыл бұрын
Woooo!
@christian56208 жыл бұрын
Hai Anne
@skyq52978 жыл бұрын
I am from Saudi Arabia I have hypopituitarism 20 years ago I was 40 Yrs pituitary gland stalled and used drugs 1 / Desmopressin 2 / Thaaroxan 3 / PREGNYL 4 / FOSTIMON 5 / GH Sometimes growth hormone and then cut him I have a general weakness in the bones and muscle relaxant to a degree not worked exercises do not appreciate the heavy exercises
@angelicarosa49968 жыл бұрын
Thanks for the video. I'm dealing with Hypopituitarism with Pologlandular (type of Addisons disease) I'm having a hard time finding a good Endocrinologist. I've been on 30mgs of Cortef for 17 years...but I'm always tired and fatigued and problems caused by the cortisteriods. Again thanks for sharing your story. Take Care.
@annelycecain8 жыл бұрын
wow, we'll I'm glad I could help. I haven't heard of polyglandular and I just looked it up, and all I can say is holy cow. if you look on vitals.com they can tell you where doctors are and the have people who comment on how they like that doctor. wow, seriously your strong, kudos, you should make a video about polyglandular addison's disease.
@treymolly19768 жыл бұрын
i have hypopituitarism too it sucks haven't seen anybody else with it good to know im not the only one also whats your zodiac sign? Im a taurus
@annelycecain8 жыл бұрын
It's unique to be able to chat with people who have it, and hopefully amazing to meet people with the condition. haha I'm a aquarius
@NullaNulla8 жыл бұрын
Take a look around on facebook, there are a few pituitary groups I'm a member of including something to do with the magic foundation I believe they are from America (I'm not American but it's more contacts to share things with).
@kiaranichole89068 жыл бұрын
Yay you're back on!!! I'll talk to you soon bc I right now I don't have wifi😢😭😭😘😘🦄🦄🦄🦄🦄⭐️⭐️⭐️⭐️⭐️⭐️
@annelycecain8 жыл бұрын
yah I've been trying to talk to you
@reinplat8 жыл бұрын
The video would be more compelling if it showed not only the effect but also how you smoked the stuff in the first place.
@aceofspades028 жыл бұрын
That would be nice. Can I add thee there? (Keep in mind my profile picture there is the very same as I use here. This "Spades suit") But in case of thinking I'm a fake guy, just open my photo albums there and thou wilt be able to see that the guy in most pictures is the same guy in the videos of this channel here. So. Can it be?