That's excellent 👍. Thanks 🙏

10 years from now it’s a long time! Prayers for making it happen soon! Lupus and APS are devastating 😢😢😢

Thank you for posting. In my experience, very fast and smooth to get diagnosis, hlab27 positive, crp elevated and mri positive for sacroilitis and peripheral arthritis. I hope they focus on a cure, I feel they have really nailed what to look for to diagnosis, great work over the last decade. Or focus on a treatment, not one drug has made it to market designed for axspa first. So many for RA and psoriatic, hope axspa gets a bit more attention, it seems 10 years behind RA and psoriatic.

That’s excellent thanks so much

Yo fui diagnosticada con still’s en diciembre 2023 y no hay mucha información sobre esta enfermedad es muy difícil pero creo h tenemos lo suficiente para vivir una vida normal si alguien más tiene esta situación me gustaría saver gracias ,

Finally! A comprehensive, educated analysis of PMR symptoms that describe my experience of the condition. Thank you. There are so many ‘experts’ that stick to the shoulder, hip and knee pain ONLY, or it’s not PMR stance, which is both lazy of them and unhelpful for sufferers.

Thank you for this recap. Super helpful.

Congrats Parmita for your Research over RA mortality.Wonderful presentation on RA. Wish you a renowed doctor in Future in this field.Keep shining and All the best for your future endeavours.😊😊

Afraid of sarilumab, after 2 years on prednisone, I think weakened tissues are causing diverticulitis, suddenly. Plus we can't see rheumatologists in our area anyway. Medicare won't pay for Kevzara unless administered in office. Either my PMR goes away or it doesn't. We added plaquenil and LDN but I don't see any real data on either one for PMR. MTX just shown to be worthless in a small study.

Real life, yes that matters. Gold standard is just nonsense. I'm on 3mg. after almost two years. I started on 20 for a month and absolutely had to split the dose. I had so many flares that I was able to taper by only 1mg a month and my CRP has done nothing but go up, latest 30. Sed rate always normal. I've never had "clinical remission." Maybe it will happen someday, or not. Reading thousands of forum entries by patients, Mayo Clinic, Facebook, quick remission and fast tapers seem to be rare exceptions. Seems men can get off faster.

Thank you.

What if someone is not positive for hla b27?

Thank you, any more current data?

Congratulations beta.

Congratulations Parmita.....you've worked so hard and definitely earned this. Keep on shining 👏👏👏

There have been some case reports of brain lymphoma with mycophenolate use due to T-cell inhibition causing Epstein Barr virus proliferation.

Many many congratulation to Parmita our lovely daughter(niece)🙏💐feeling proud of U for Ur nice nd amazing representation 👍👌God bless U lot🙏😇

My uncle suffered from Systemic Lupus Erythematosus for years, with no permanent solution in sight. Thanks to the natural treatments and personalized care at IAFA Ayurveda, he found complete relief. Their expertise and holistic approach transformed his health, and we couldn’t be more grateful for this life-changing experience.

Keto diet also improves PSA symptoms.

Hard to understand and the transcript doesn't help much. So IL6 inhibitor (sarilumab?) gets frail patients off GC faster than methotrexate? In another abstract MTX was shown to be of no benefit. Medicare won't cover Kevzara unless the doctor administers it, is my understanding. No wonder the new rheum side gig is infusion centers!

The medication you keep mentioning, can you please spell it? Also, how does it compare to Embrel? I’ve been on Embrel for two years and it’s definitely helping but not 100%. I still have some joint pain in my hands and some swelling.

Very interesting!!

Any data/info re reconstitution of eroded bone in RA?

What would be the correlation of urinary biomarkers of inflammation with SLEDAI 2k?

How the IA can help us in the interpretation of spondyloarthritis lession in MRI?

Do the risk factors for development of “some” cancers in RA patients have any connection to the treatments many RA patients are receiving long term- - like chemotherapy type medications and long term steroid use?

Thanks for that

hydroxychloroquine has killed thousands

Amazing

What about MS ? Will it help too?

Excellent.Thank you. Very wise words

I had to stop taking that in due to severe side effects that I was not ready to live with. So I am still waiting for the right thing to do. I take now 8 pills of Moringa and wow that does magic and other natural pills that help the joints

How can we try the therupy, all biological treatment dose not work for me, on rinvoq now and it seems to fail me again

Did you have more experince with leflunamide plus mmf combinitaion?

What abaout Rituximab?

So what did she end up on long term? IL-6 and leflunomide?

Mam mangayo ko # karong 2pm

Very helpful and informative thank you so much

Sir u used leflunomide for joint Symptoms only? Am I right?

Sir i had a patient , 37 years old female with multiple large joint pain swelling and stiffness , she had left uveitis , treated by ophthalmologists , this time she presented with above complains. There were no involvement of small joints , no promixal weakness , no rashes , no dry eye or dry mouth , though she complained of dry cough with mild sob . Chexy ray showed interstitial lung disease , esr was high with ra factor negative , ace levels result came after one week with high , diagnosis was made as sarcoidosis . My question is how should i proceed with pul sarcoidsis with dmards . I am an internal medicine physician working in a remote area of pakistan with a lack of facilities. Thankyou.

Have you guys tried to give them a parasitic cleanse

Dermatologists have to screen for PSA if 20% to 30% of their patients have/will develop PSA. My dermatologists never asked me about joint pains and it could have led to an earlier diagnosis. I'd even argue it is medical malpractice to not screen for PSA.

Prednisone should have a black box warning and only be prescribed by specialists who do extensive blood and other testing. An Urgent Care gave me a 12 day course going from 40 MG to 10 MG for a long gout attack. The drug caused a myopathy where I lost over 10 pounds of muscle mostly in my glutes. I also developed severe osteopenia (as a male in my upper 40s), destroyed my mental state and has led my psoriatic arthritis to flare like never before. I can't imagine how anyone would ever take this for months.

D3 and K2 at the same time every day is part of my regime fighting end stage osteoporosis. Thanks for posting this video. ❤

it's not surprising to me that the PASI score doesn't correlate with PsA overall impact: I have awful Enthesitis (ankles, wrists, elbows, chest wall, fingers) and arthritis (DIP's, toes) but very little psoriasis (thankfully!) It is such a heterogeneous disease! (no known fam hx, either, but I wonder if my dad had it...)

nov 1st, not 11th. thx for update!

Happy diwalisir

I got hyperpigmentation of the retina from using this drug.

Were there any predictors of who’s going to develop CTD? ANA titre?

Were there any predictors of who’s going to develop CTD? ANA titre?