I was diagnosed this month with AS, I have suffered for years but no diagnosis. I am looking for a way to help through food and exercise.

Biologics have TERRIBLE side affects :( basically suppresses your immune system

💗

I had 3 injections in my eyeball because of uv'itis.

The only grain I touch is steel cut oats (0 gluten)with water and Brazil nuts . 🌰 Oats are great for satiety plus I throw a green banana 🍌 in there. I don’t touch booze and been dry for 3.5 years after hitting it heavy in the past ! Never touch nightshades whatsoever and I find they are the absolute worst for inflammation ! I do touch cheese, usually Emmental and Gouda but I usually pair it with a salad 🥗 of spring greens, onions, cucumber,avocado,spinach, all soaked in ACV and white vinegar too (delicious)…. I occasionally drink coffee but mainly tea 🫖 other than that I only drink water and no soft drinks or juices ever. I do occasionally put Greek yoghurt (a spoonful) on my steel cut oats but not so often. AS is a miserable disease 🦠 but you must control it and not let it control you ….. Great video, lovely paisley shirt, you’re a nice looking woman. Good Luck 😉 and all the best with your AS

Hi, I have RA am in Canada and on prednisone and Sulfa. What Biologics do I switch to?

Ankylosis is the men kind that’s what my Rumotologist said to not say that as a woman

Are Biologics the solution? Absolutely! I’ve been on a biologic for 5 years now and have gone from having to use a rolling walker with the padded seat and basket (called rollator in Canada) for any amount of walking I had to do and on a slightly better day, I would ambulate with the use of 1 or 2 canes. I feel like I now move much like I did 30 years ago, when AxSpa and Peripheral Spa were just beginning. They have been a miracle. I’ve had 0 side effects. ZERO side effects! I’m so very grateful to have found a doctor who actually listened to me about my pain and ever increasing lack of mobility without saying, “Go to physio and get more exercise.” Biologics were a game changer for me (I CANNOT use any NSAIDs due to another medical condition. ❤❤

Can you do a follow up video please . Its been 3 years since you posted

Thanks , i am Endocrinologist from Egypt, 38 yrs I am suffering from low back pain for 4 yrs Recently diagnosed AS Neck pain, Lt SIJ pain morning stiffness I will start Biological ttt inshaAllah next month

Great post! I've had AS diagnosed for at least two years, but symptomatic for over eight. I've had the most success going gluten free, and am an odd situation in that I don't have a great amount of pain, but have through the roof inflammation. Low starch is so danged hard to follow. I've had some success with autoimmune spinach drinks (Dr Brooke Gloldner) but those are tough to stick with too, and I fear I may have to eventually give up dairy but have not worked up the courage to do that. Anyway, I enjoyed your vid, thank you!

I have been trying to get on them for over 16 years 29 after second high risk pregnancy and septic infection started a slew of autoimmune disease that has been causing me to become a bed hermit and I finally got approved to start humaria waiting for delivery to start I am actually excited for the first time in ten years to have hope again

Oh no you need to be on a new diet for 3-6 months just to get it out of your system and then inflammation will come down If it is the right diet for you

Has anyone looked into the cancer risks of these anti immune injections? I have been offered this course of action however when you read about the risks, it shows the potential of several cancer related issues. On one hand without medication we are open to cancer but with medication it will risk even higher so it does not feel like a good compromise. Interested to know how this has progressed? How has it been Dasha?

Get off it quick. I was on humira trials several years ago, Humira made me sick and depressed and getting off it I had the worst flares of my life for several months. I 99% got rid of my A.S with diet. A lot of the diet advice out there is bullshit. Carnivore/animal based, organic whole foods no processed foods sugar or chemical additives colour flavor etc. Is the way. You will need to experiment for yourself, even start with nothing but beef(grass fed) and water and add other foods 1 at a time to see what happens.

You have to be STRICT for diet to help! Also dont be scared of fatty meat...... i eat about 1kg fatty beef a day. No more humira for me.

I live in TX and it has taken a couple of months to get approved for biologics. My doctor had to switch to 2 others. The 3rd one was approved when I switched to another insurance. Waiting to start. 🎉

I have recently been diagnose w AS I dnt have the gene but MRI and Xray show inflamation in my SI joints and hips 😢 it is very painful. Waiting to begin Avsola infusions. I have issues w my liver so NSAIDS are not an option. It started w L hip pain but it was coming and coming for about 5 years and my work involved walking alot ar that time so I assumed it was that and my scoliosis. But 6 months ago the pain has gotten very bad in my spine hips hands ankles knees ribs shoulders well everything really 😐. Hoping infusions start soon. Ty for your videos ❤

I'm currently on the GenoType Diet for my symptoms. I had a huge amount of leg pain lasting days affecting mobility, and intermittent throbbing back pain that would occur a few times a year. Reviews seem to indicate it's good for autoimmune diseases. Previously i was on the author's earlier work with the Blood Type Diet, that helped solve the biggest pain symptoms mainly in my legs first upon exercise. I found out that seemed to be related to potatoes and possibly wheat Lectins as it would be the worst after consuming them in a similar time frame. That was 2021, the tremendous leg pain still hasn't returned. Stamina up. Since moving to the GenoType Diet, haven't had any further back pain since the end of summer last year. These two videos by Louisa do a good job of summarizing both if you find them helpful: kzbin.info/www/bejne/h6uQg4yubqmsY9E (BTD) kzbin.info/www/bejne/l4bHmqmcp5d7l5Y (GTD) Regarding the Swami and Opus23 software mentioned in the GTD video, you can speak to the guys at the Center for Generative Medicine for what approach to take for you based on your unique needs. Some require further tweaking specifically tailored for your genetics or if the previous earlier work approaches doesn't quite do the trick. I've spoken to them a few times. Good people. This video provides further information regarding what they do and for how to get in touch: kzbin.info/www/bejne/pYi5p4iHqM2Ajbs

Hi enjoyed your blog. I have been on Etanercept for about 4 years now but I think my body has got used to it, as the pain has especially in my hands and wrists has come back. I’m going back to the hospital next week to talk about trying a different drug.

Hi B&B.. First, THANK YOU for your videos. I am 58 and have AS that was only diagnosed 5 years ago. My entire spine is involved (“bamboo spine”) as well as my hips (since age 27) and both shoulders m knees and elbows now. That was only after so many years of disc surgeries and “procedures” (highly profitable injections of whatever). I am HLA-B27 negative and have been on 6 separate biologic drugs with no help. I’m at the point where I can’t move around without the use of a cane or walker. The pain is completely indescribable and the pain mgt docs who used to hand out sacks of SACHLER CANDY back in the early 2000’’s and now says “the opiod wars … overdoses, insurance crap, etc” and won’t prescribe anything stronger than aspirin. I’d love to find a great PT near me, FAMILIAR with AS and with in home treatment a big plus. I’m in Morris County NJ. Any suggestions? Thanks to All!

New game. Take a drink everytime she says "um"

In the US, If you search out a rheumatology clinic with their own infusion clinic, The Cost can be pretty reasonable. I have been spending about $50 perinfusion, Between insurance coverage and prescription coverage card from the manufacturer. The clinic I use is very concerned with patient access to medication and works hard To find all resources to make the cost doable.

Hi Dasha, any update you are doing better 2 years later? Thanks!

What’s the name of the meds? Thanks . Love the earings

Please give us a update. On how are you are doing

been on Remicade and Humira for 15 years, Remicade deliver me from serious pain back then. I was in my half twenties. 48 now, i don't take no more medication. Pain got away. Sure i still stiff and my back and neck are soldered. Stopped taking those due to flesh eating bactéria, sceptic infection.

Goos video. I really feel that people need to know that the spectrum of progression, and experience generally, for AS is very wide; many people live completely normal lives with the disease if they focus on their health (eat well, stay a healthy weight, don't smoke, stretch, lift weights and exercise generally). I was diagnosed 3 years ago, am 36, and am absolutely fine. I have a flare up once or twice a year which, whilst painful, is manageable. I dont need any medication. This is the case for many people for the whole of their lives. So many of these videos and articles focus on people with severe versions of the disease and it can be very daunting and unhelpful for people to see this, particularly if newly diagnosed. Its really quite possible that you have a mild form of the disease which you can successfully control and manage. Why is it we only see the worst of AS online?

I worry about the parts like if i nick my leg in the shower while shaving, that can get infected, and dont eat blue cheese because you'll get mold in your intestinal tract and oooo so many more warnings 😮😢

Hi Dasha, very useful info. I was diagnosed at 13 and my spine has been locked since 27 and I’m now 55. I’m just making some adjustments to my diet and came across your video. Keep up the good work it’s very inspiring but it looks like you might be neglecting your guitar, I notice that the bridge is not happy😬

Apin medicine. Is weiv

Apin medicine. Is weiv

Noooo please don't take drugs for AS!!! Two years too late😢

I get all this with serious pops and cracks

You're beautiful

How are you holding up?

How r u now How is your health now pls reply I also suffer from this

I have ut and do a low starch duet with low histamine....i feel they are connected and helps greatly. Been on pycnogenol and high vitamin c , Quercitin for decades. Last year started NMN, resveratol, tmg, Urolithin A, hyaluronic acid . Hyaluronic acid stopped my dry cracking joints but the biggest star is Urolithin A supplement.... unbelievable antiinflammatory. My pain is gone. NMN resveratol bith fantastic fir repair, reduce inflammation and orotect your immune system.

Thank you

I've just had my diagnosis of AS 3 weeks ago as a 42 year old male, i have been given Etoricoxib for pain but it doesn't touch the sides. The Rheumatologist mentioned that if these don't work which i don't believe they are then i could have injections. Is this what she is speaking of do you think? I would do literally anything to be pain free right now. I tested positive for HLA-B27 after 2 uveitis attacks and a history of back and neck pain which causes constant headaches.

Hi Dasha, my mother is being suggested Biologics for an inflammatory arthritis condition in her sacro iliac (lower back) joint. It would be tremendously helpful to know how this treatment has panned out for you and where you are currently with respect to sustained wellness, outcome and opinion regarding Biologics. 🙏🏻🌻

You can reverse your Ankylosing Spondylitis by changing your diet which involve stop eating gluten foods like wheat, rye, barley, stop eating grains like rice, corn, oath, stop eating night shades like pepper, white, red or yellow potatoe (you can eat sweet potatoe), stop eating vegetable oils, peanut, stop eating fried foods. stop eating processed foods, stop eating white sugar, stop eating pasta, bread, dairy (milk), eggs, chicken. You can make smoothies like blending green vegetables like kale, spinach, cucumber, you can also cook vegetables, eat a lot of vegetables, eat coconut, avocado, eat home prepared/made whole foods like sweet potatoes, yams and beans. You can also do exercise like walking, cycling.

Come sta andando la cura ?

Thanks for sharing Dasha! My wife were diagnosed with AS almost one year ago, but just now I'm searching for more information to understand her and help her to improve her daylife quality. Would you make another vídeo to share how are you doing with AS, what medicines do you take or life style have u change to control the AS and be able to live quite normaly? thanks again!

HI! DO YOU TAKE HUMIRA IN ADDITION TO ANOTHER MEDICATION OR IS HUMIRA YOUR ONLY TREATMENT? ❤

It’s been a while now…I’m really keen to know where you are at with your condition and how the meds are working?

I wouldn’t bother, I’ve tried every single one and every one makes me sick. I’ve just accepted that I can’t take any of them, and it’ll be a slow decline into disablement.

Different types of arthritis have different symptoms. They can be mild in some people and severe in others. Joint discomfort might come and go, or it could stay constant. Common symptoms include: * Pain. * Redness. * Stiffness. * Swelling. * Tenderness. * Warmth. * Mine was so critical that i tried different kinds of medication but none avail.But with the help of dr aloma herbs my 7 years arthritis was cured without any delay,If you wish to help yourself reach out to dr aloma on KZbin. For permanent solution

Different types of arthritis have different symptoms. They can be mild in some people and severe in others. Joint discomfort might come and go, or it could stay constant. Common symptoms include: * Pain. * Redness. * Stiffness. * Swelling. * Tenderness. * Warmth. * Mine was so critical that i tried different kinds of medication but none avail.But with the help of dr aloma herbs my 7 years arthritis was cured without any delay,If you wish to help yourself reach out to dr aloma on KZbin. For permanent solution

I have had Seronegative RA since 2019, fortunately for me the base level disease modifying drugs have worked very well after initially using prednisone in the early stages. In Australia Biologics cost 18k per injection, the government will only pay for it if Biologics is a last resort.