My 82 year old father in law would be stage 5. This video is a very good one. Doesn’t mince words.
@MaryMcclain-jm8heКүн бұрын
Can you tell us the criteria for hospice...thank you!
@alexanderbhartley55492 күн бұрын
This is very good. Thank you. A couple of complications that were/are there with my loved on is: On hearing she' had an hereditary bone growth that kicked in after 1968. They'd done surgery before '71 on one ear. She could hear a pin drop for one night, then it was gone, I was told by her. There was very little hearing left in the one ear she had left but she wouldn't allow surgery on it taking what she had left; In 2019 after an hearing test we were told, she and I, that she had 18 % hearing left at best, in one ear, nothing in the other, which we already knew that the one was dead. In 1970 she was in an head on collision, she was not the driver, which practically tore off one foot, they didn't expect her to walk again, thought they were going to have to amputate her foot, plus she'd had a pelvic fracture from that, also a compound fracture in the opposite leg as the ankle/ foot injury however she continued on walking until 2022. At that time, on the record, it was the worst wreck in that county's history. What I needed was for someone to clear the complications out of the way so that I could see what the vascular was causing. I had tried to tell the doctor, out of the literal less than 10-15 minutes he gave me in the hallway of her history because she had quit walking. She would go to the floor and scoot when she was in her 20's and 30's after that wreck because her ankle would be in enough pain it would not hold her up and rather than to fall, she would take to the floor. I'd seen it most all my life. What I got from that doctor was, She has dementia, that's what people with dementia do! Well, that's also what she would do 20, 30, 40, years ago if it hurt too much to stand, or she might fall; precautionary... no one heard me... Of course she misunderstood because of the hearing deficit, and many people speak much too speedily and run their words together and speak as if they have mush in their mouth. I'd seen how this hearing impairment works specifically with her 40 years plus. Her gait changed a bit, she was a little more unsteady? of course, 52 years worth of damage built up from the accident. She only wears one hearing aid, there's no point in putting an hearing aid in a dead ear. It's always been difficult for her to distinguish when some one speaks mush mouthed, too speedily, and if there are too many sounds going on in the room all at the same time. As far as "socializing", she is an introvert personality and had preferred her own company from childhood; so that was no sort of "marker" for her either... I remember her Grandparents telling of her going off and playing alone, just being by herself. 3 big things, I think, that were garbled because of preexisting conditions. Folks just don't understand, and very few care to. By the way, this woman is my Mother...
@zulmamcarthur250811 күн бұрын
Gracias por sus aportes. Great.
@D.Kimble-nb8ec23 күн бұрын
It's a very long difficult Journey pray 🙏 ❤ 🙏
@Nmelys25 күн бұрын
The value of Dr.Tam Cummings information should not be underestimated. I share your name, KZbin and website with anyone who ask or I think would be interested. This one has helped me not only information wise but has inspirational. Thank you so very very much.
@ralphpussilano28 күн бұрын
My wife passed away on August 11th 2024, we were married for 50 years she was on home hospice and I was her caregiver at times I was angry at her I had things that I am now ashamed of. We did have a lot to talk about before she passed away. Told her that I was sorry for the things I said to her.💔💔
@CatherineLong-d3uАй бұрын
Incredible story of life, love, and faith. Wht you were able to give each other, caused me to weep for ourselves and society. This kind of dedication and commitment is passing away. I know it is an uncommon, life affirming jesture. An honor to witness. I'm am thankful you shared your story. Our best, HB and Honey
@paulahillАй бұрын
Thank you for the opportunity to talk about this important topic. #nationalcaregiversmonth
@s.lass-hill4467Ай бұрын
I just love these podcasts. My husband has mixed dementia with mainly Lewy Body. He is late stage 6 in MC. He recently has started spitting on the floor, on himself, on the table, wherever due to high saliva. I never realized it was a symptom of LBD. I spoke with the nurses at MC to have this evaluated by the nurse practitioner and they will see what meds might help. I'm glad to know it's a symptom and not just another bad behavior! Thanks so much!
@penniewyatt9391Ай бұрын
Accept any and all offers for help. I also set arrival and departure time for gatherings. Like 5-7pm. Because he gets agitated at night.
@elaineosteen7935Ай бұрын
how do we get a copy of the Staging Tool?
@pamelaenfield8660Ай бұрын
How can we join live for these "ask Dr. Tam" sessions?
@重重-s5xАй бұрын
thank you , you truly described what happened to my husband’s situation .
@JulieBlackwood-r2tАй бұрын
I wish I would have found this sooner and would love to know how to participate in real time. Not sure what next best steps are for mom as we think she's in stage 6 and not sure what direction to go.
@CatherineLong-d3uАй бұрын
How can I participate in real time?
@CatherineLong-d3uАй бұрын
My husband has both VD and Lewy-body. He is now enrolled in home based hospice. I am his sole caregiver, with no family participation. After listening to the current session, I guess he's in stage 5. I can keep us going as long as I have someone to brainstorm w me for solutions and recognize the daily grief that threatens my wellbeing. My therapist tries to help; I had to tell him yesterday that the positive reframing isn't working for me right now, I know how to do that really well. We have our faith as well that I lean on. Right now I need somehow to address the grief not of his dementia, I've being living with that a long time, and accept this is the end for us, but the abandonment of family. I'm having a really hard time letting go of them so I can stop looking to them for help. I never imagined being alone with this and consequently know my future will also be alone. I'm terrified of that.im grieving my own demise. I've never heard anyone talk abt this. Thank you for you time.
@WellMedCharitableFoundationАй бұрын
To view upcoming teleconnections, visit www.wellmedcharitablefoundation.org/caregiver-support/caregiver-teleconnection/
@D.Kimble-nb8ecАй бұрын
Dementia what ever the form is a very long Arduous Journey ❤ 🙏 Appreciate all of your information on the subject its mist helpful.
@FuzzypegАй бұрын
So very helpful, as ever, thank you so much. Keep going and every blessing for Christmas to all of you❤
@sakibulsahan-u5mАй бұрын
hello mam Thank you and hope you are well. I visited " WellMed Charitable Foundation " KZbin channel Your youtube channel idea is great. Also, your channel content is really excellent. But I noticed some important mistakes in your channel. And no more subscribers, views, comments, likes etc on your channel and you can also add a beautiful video banner. Then you can grow your channel and monetize it very easily and soon. But I can help you grow your channel. And ask me for more information. I am waiting for your valuable feedback. Digital Marketer and SEO Specialist. Sakibul Hasan thank you
@gladysarmstrong889Ай бұрын
Thank you Dr Cummings so much, It is wonderful to be able to follow your talks and I am so grateful to have found you. 🙏🥰
@24bellers20Ай бұрын
Best update I have seen. My wife was diagnosed 10 years ago and has slept for 24 hours now. I can see now that she’s in the last stage or so.
@heidijudd86972 ай бұрын
How do I become aware of these talks and get a hold of a schedule so I can participate with the live events? This is so very helpful!
@WellMedCharitableFoundationАй бұрын
Glad to hear that! To attend a live teleconnection, please visit: www.wellmedcharitablefoundation.org/caregiver-support/caregiver-teleconnection/
@jameyfracz80722 ай бұрын
Where can I get this checklist tool?
@Nmelys3 ай бұрын
Most excellent information. Realistic, helpful and something you can take away and use today. Thank you 🙏🏽
@krisbandle39893 ай бұрын
My wife is in stage 6 and has been crying several times an hour for three days. At first I thought it was a med change but watching this has reminded me that it’s very likely a UTI which can be pain. She has urinary and fecal incontinence daily and showering is a battle. Dr Cummings is so helpful. Thank you for having her on. I’ve spoken to Dr Cummings, read her materials, used her tools, but just watching this has helped me zoom in on a likely source so I can discuss things with her gerontologist Monday morning.
@D.Kimble-nb8ec3 ай бұрын
Appreciate your videos filled with information that is most helpful....❤thank you 😊
@krisbandle39893 ай бұрын
Dr. Cummings is fantastic!
@dinahdeuel5253 ай бұрын
Thank you so much for these programs. I’m also happy to see when you have a new video! You are so helpful to me
@ChilledOut3 ай бұрын
Hello from Australia. Thank you for your videos, they have really helped me navigate the carer journey with my dad who was diagnosed stage 5-6 in April this year.
@RuthEarle3 ай бұрын
I can't believe this content doesn't have more interaction. Fantastic resource for us caregivers. Thank you.
@gioharrell79913 ай бұрын
As hard as it is to accept the reality and the new normal. The truth is that Alzheimer's gradually takes away the person you know and love. As this happens, you will mourn him or her and may experience the different phases of grieving: denial, anger, guilt, sadness and acceptance, your grieving process starts already and its heartbreaking to go through this process while your love one is still alive . The only thing that helps is to embrace what she / he has left. Don’t focus on what it was , because it will never be again. Focus on what is and try to make the best of it. Be creative to handle delusions. Remember they are no accusing you of stealing, cheating, hurting them. It’s the disease. They wouldn’t if they were not sick. Delusions are tough sometimes they remain for a day, sometimes a week and sometimes never go away. Please don’t personalized nor question their reality, don’t try to make sense of it, don’t argue, don’t try to make them understand. Please go to their reality they can’t be in yours. What you can do is assure them how much you love them and how safe they are with you. They are humans who hast lost their brain and its functions and what they have left is malfunctioning. Embraced their reality and love them until their death. They do need you. They do love you. Love is not a memory it’s a feelings that never dies.
@paulabanta5864 ай бұрын
Thank you, Sharon. You make it easier to remember and understand. Gives me some insight of the reality of FTD and how to appropriately handle situations that we may experience along the way.
@stabthingsintoexistence4 ай бұрын
Oh, I have so very many things to say in response to the first part of this webinar...and none of them are positive. I've been adjusting since moving in with mom over a year ago. This presentation feels like a slap in the face to me. It makes me wonder how much assistance this presenter has available to them, because this does not sound like the caregivers I know, and certainly not my experience. I can't even finish the seminar-the patronizing is not appreciated at all.
@kristinemargaritis79954 ай бұрын
My mom is 76 . She’s incontinence, hasn’t bathed in a year , mobility is extremely difficult, eating very little , UTI , always cold , shuffling, denies medical care , paramedics won’t take her as she refuses, she smells and hoarders . I am literally stuck as her primary who is now retired told me I have to wait till something bad happens because I can’t make her do anything.
@veronicaweaver45234 ай бұрын
I have listened to SO MANY videos about this subject, and this is the most informative one that I have listened to yet. Thank you so much for this! I am going back at least once more in case I missed something. After a forty-nine year marriage, my SIL was left in our care a couple of months ago. Doctor advised my husband she is moderate to severe at this time. It definitely is a new experience for us. Especially since we had no contact with her for years prior
@corinaalmaguer24544 ай бұрын
Thank you!!
@nothabomthethwa74914 ай бұрын
Hello Dr Cummings,pls email me questions about Dimentia,am a nurse/ caregiver,my patient has Dimentia.i want to know more about it,and learn more.. please.Miranda Thabo
@christylovecory4 ай бұрын
THANK YOU. Thank you so much for this information. I was beside myself trying to figure out how to care for my dad. This information describing the difference between these levels of care is exactly what I needed to make the right decision for him. This is life changing for him and me. God bless you. ❤
@MaryMcclain-jm8he4 ай бұрын
Yes to all!
@jakobausterlitz81024 ай бұрын
I'm 59 and male. 16:58 I have small vessel ischemic disease. I feel that frustration. I cannot find the rights words or I forget - leads to frustration. People around me sense it.
@heidikeeney52184 ай бұрын
Nice! Easy, was getting ready for work & joined in with you!
@sroher15 ай бұрын
thank you so much for this!!
@maggiecpalmer5 ай бұрын
You are a Godsend. Thank you so much for these videos. They are such a comfort. It is stress relieving to listen to someone who actually knows what they are talking about.
@GaryPack-l4u5 ай бұрын
Really well done. I have LBD, probably in stage 5. Drawing extensively from “cognitive reserve.” Consoled because I have a relationship with God.
@Fuzzypeg5 ай бұрын
❤yes, thank you, thank you thank you from me too!! I pass n to others much of what you say and I know it makes a difference to them too. Can’t express how grateful I am. 👏
@paulabanta5865 ай бұрын
What is the difference between bvFTD and FTD for someone who has a VCP gene mutation of Inclusion Body myopathy? And are those that do, have a tendency to be angry and aggressive?
@D.Kimble-nb8ec5 ай бұрын
Suggest a Dementia Callender...as things change
@D.Kimble-nb8ec5 ай бұрын
Learn all you can about Dementia and adjust each moment and 🙏
@Lauradeanne5 ай бұрын
List ingredient quantities, so I can copy and follow. Thanks.
@elisegreene75475 ай бұрын
Again thank you, thank you, thank you so much. You helped me understand the disease of dementia my mum had. She passed away back in December but I still listen to Dr Tam and learn something new every time.