Thank you Chase! Another great video for the CRPS community!

Great resouces🎉🎉🎉

I now was diagnosed with CRPS II eight months after hip replacement surgery. This is my 4th time. They have tried many different treatments and each time I got worse. The first PM didn’t want to hurt me anymore so he sent me to his partner in the clinic. I was in PT, but then they told me it’s best that I stop, thinking it was making me worse. I’m finally getting better, less bad flares. They want to send me back to PT. I’m only able to walk with a walker. I’m still on lots of meds, no opioids. My question is: This is my first time with CRPS II is there something different that should be done?

Thx! Very helpful!

I'm newly diagnosed, and I've never felt more devastated . 😢 I'm hoping these videos lift my spirits. This will not control me!

So I checked out your page and i watched the video about nerve stimulators, ketamine ect.. gabapentin is off the table I’m allergic, ketamine huge help but not covered by insurance, I want to have a professional explain my opinion with nerve stimulators is either valid or inaccurate. I’ve had almost 20 surgeries already and the idea of having a device surgically implanted which is a technological device, I feel technology not only is constantly changing and also has glitches. I feel the same way about my phone or software as I do a stimulator. I’d have implanted and then within a year or two it’s obsolete or needs upgrading. I also am not keen on anything involving my spine and I’ve had two spinal fusion’s through my throat. Distraction and focusing on others has been a huge help, music is my saving grace, and skating bc it’s like wheelchairs for my feet since my ankles are fused. So I have been as open minded as someone who has had to go through getting progressively worse and told it’s a functional disorder, ignoring my hands that didn’t open and my feet that were stuck completely at 90 degree angle and dragged on the ground. The Dr game is frustrating, u feel defeated and not taken seriously. For this reason I video recorded over 200 videos of my symptoms, photos, showed up any appointment with my entire medical history scan lab report, all my Apple Watch monitoring data bc eventually I was diagnosed with spinal stenosis cervical dystonia, herniated bulging discs multiple times, drop foot, ect.. years and money and irreversible damage done out of ignorance. And now that I’m all fused finding crps specialist is hard and most drs don’t take seriously. So I’m still recording every flare up bc if my feet are swollen 3 times there size and I can’t stand that’s not in my head

Shared twice. Getting the info out there is so important

Thank you Amy for sharing your story with us!

Shoutout to Amy - thank you for allowing this to be shared.

Charles is making pivotal moves in the entertainment industry. He’s been an inspiration ; in addition to willingness to go above and beyond to raise awareness about health issues🙏

Thank you so much for shining the light on this terrible disease. I've suffered for over 14 years! I had some hope until 2016 since they cut all our treatments and meds. They call us drug addicts and made Dr to scared to give us pain meds. It's getting worse for us! We're dying out here fast either from self harm or Dr abuse. Thank you for evening thinking of us!

Thanks Chase, for sharing with us all these helpful information. My name is Malou and I live in the Netherlands. I’m dealing with CRPS since I had a simple surgery on my right foot in february 2022. They removed a Morton’s Neuroma. I have often wondered since then if I needed this surgery, but it happened. Since then a lot of nerve pain and severe hypersensitivity. I can’t even tolerate socks anymore, to name just one example. I have consulted several specialist the last couple of years, but in the end and after trying a couple of things, they all come to the same conclusion, we can’t help you anymore. It’s just a matter of bad luck….most of the time this operation goes well, but unfortunately I'm one of that few people were it went wrong. And that’s it…I’m watching all your videos at the moment and there’s a lot of recognition. I’m already grateful to you for that!

I’ve shared 🧡🧡

Thank you for another informative and uplifting session Chase! AT

Do you know if Trigeminal neuralgia (due to dental nerve damage) could develop into CRPS? I seem to have all the symptoms of both, except there’s no swelling. I’m thinking what are the odds having two of the worst pain conditions…along with long term fibromyalgia. Glad I found you! I have Covid right now and I’m afraid it might make things worse. I feel a deep depression setting in.

I've had CRPS from 2013 (was not diagnosed till 2015) It started in my left pelives and hip. Then spread through the whole left leg. I know have it in my left wrist, left pelives, hip, leg, foot, spine, and neck. I have a DRG implant that controls almost all my symptoms. From pain, blood flow, and muscle control. But it's strange. My hip and leg have never gotten better. But my wrist, the pain is intermediate. Sometimes it's bad, but most days I don't notice it. My spine and neck are in pain, but my hip and leg are way worse. Is that normal? Why does part of my body not improve but other portions of my body do recover? I've been told it's because CRPS in my left hip/leg went years without treatment. Whereas my wrist and back were treated very quickly. Do you think that is accurate?

Thank you Chase and Charles for all that you are doing for the CRPS community! Thank you for bringing back the hope for us. ❤

This is so inspirational! Very touching. You are making a difference in people’s lives. May God bless you both. 💜

Thank you gentlemen! Makes me cry with happiness for our remarkable journey. If you’re hearing this video, please share this, Ty 🙏♥️

Thank you Chase and Charles!

Thank you, this was a great interview. Donna and I are hopeful that Trial by Fire 2 brings the national exposure and funding for research that CRPS deserves.

I'm bawling! please help me! help us! suicide ideation is a scary and far too comfortable song.

This is amazing and gives people so much hope. Thank you both so much!

Thank you Chase and Charles!!

❤Thank you gentlemen!

I was in the same situation as you were when you were fed up with the healthcare failures that I stopped 165mg of IR/ER morphine a day cold turkey… I was naive about the distinction between psychological dependency on meds and physical dependency - and for anyone contemplating stopping pain meds cold turkey: I cannot stress enough how agonizing the situation was for me for at least 4-6 weeks. A healthy fear of addiction, I was hyper vigilant about checking in with my loved ones and ensuring that the moment the medication was suspected of altering any aspect of who I am - I stop taking them. In hindsight I am far too intelligent to have overlooked the compounded pain of CRPS and nearly five years of my body’s dependency on pain medication. Only after I survived the physical withdrawal symptoms, I was informed of the health risks that come with a cold turkey situation. ❤️‍🩹 Be safe!

I’m into year 15 of crps bilaterally in my upper extremities and it’s spreading down my back. I’m watching your video and wondered if the daily routine for desensitization should be done on both arms or if only one and alternating is appropriate? My pain originated in one arm but hurts most in my upper back, if that’s relevant. Just unsure whether the back should be considered a separate region/“limb” in the recommendation you made about alternating etc. And tysm for sharing this!

What about how to stop the swelling and colour changes and freezing cold pain

This is so great tysm for sharing and your lovely student! I personally love the Recognise App. A few things, we have to start on my back opposite to my left foot for desensitization. Its not necessarily pain but other over active sympathetic nervous system reactions- severe nausea, spasms, etc. So strange but slowly its helping! Ty again for sharing with us!

This is such a helpful video I wanted to start desensitization for the allodynia- I have CRPS in my left foot and spread to my upper legs. I just didn’t know where to start but now I do. I know that in time I will be able to wear certain clothes and shoes again. Thank you for these amazing resources Chase

Another fabulous vid! I have desensitized myself over 4 years with the help of a great PT. I started out with just air on my foot causing extreme pain too being able to wear and walk in a soft clog. Working on being able to leave a tie athletic shoe on for an extended period of time.

I have been trying desensitizing myself. My hypersensitivity seems to be less sensitive and i tolerate it better.

What if you can't get any medication (opioids) because that's a taboo medical subject today? Not implanting an electrical device. We've heard those horror stories. That seems to be the ONLY offer from the established medical community 🙄

Hi Chase. Once again one of your videos has sparked more questions I have. And I apologize if I have missed an answer to any questions I may ask. I’ve been taking notes during your videos, so my first question is, with the methods you discuss such as the desensitization, should we slowly get rid of preemptive practices in anticipation of pain for example, I often put on my compression socks before I go to bed because I am anticipating my nighttime bad pain, flares? My second question is and this is a biggie, you talked about the alarm system, and how procedures and things we do from a medical standpoint can often raise our alarm system so to say. In my situation when I finally agreed to get the spinal cord stimulator, within a week, it had quadrupled my normal nerve pain in my feet and legs. My pain doctor after a month told me to turn it off and keep it off and we are discussing the removal now however it’s been turned off for several months and this increased pain has not gone away. Is there a way you can explain this to me, it can’t just be psychological because I had high hopes and positivity for the spinal cord stimulator to relieve some of my pain, when essentially all it didwas make my pain much more intolerable, why has this happened?

Thanks Chase. I have many questions on some of the things you said . I’ll ask here and in the group in hopes of an answer from you. First off, you said things like muscle atrophy is not a direct result of CRPS that it has more to do with a person feeling the pain thus being less mobile. But with me when my pain started in my lower legs and feet I had no choice, but to continue being mobile yet I saw rapid muscle deterioration in my lower legs. i’ve noticed as the years have gone by when my pain levels jump to a higher level I see even more muscle loss even during times that I’m pushing myself to be mobile. What is this all about? Which leads me to my second question, this was originally diagnosed as L5 nerve damage to my feet and legs so a multilevel fusion was done, supposedly the L5 was relieved yet a full fusion was not accomplished. The end result is that I have been diagnosed with both CRPS, which my pain doctor suspected from the beginning, and l5 nerve pain still even though scans show that the nerve is not under pressure anymore. The methods that you give for CRPS, with those remain true to also dealing with L5 nerve pain?

If you have a well balanced diet, what are your thoughts on additional supplements? Do you feel Vitamin D supplementation is necessary in colder climate winter weather where one may not get as much sunlight daily?

You must not have serve pain from your CRPS! Your talking about a stupid lemon and chicken wings that thinking of this can help your pain and anxiety! This is why we're not getting proper treatment cause you believe I can think of a lemon and my pain and anxiety will go away! When I'm in pain and my anxiety is high I can't even think so you expect me to think of a lemon! I've had cross since 09 and it's done nothing but stopped my life and constant pain that's so extreme I can't even breath. I had to end up amputating my leg! I've done every med or theory these dumb Dr's have come up with! Your advise is crap it don't work! CRPS is more than think of a lemon! I can't do anything eat, cook, clean, be a mom be a grandma, a wife, get out of bed, sleep wear clothes! I don't know what your talking about CRPS is not just as easy you wanna make it sound! CRPS is straight HELL!!! 🤬🤬🤬

Question Chase....If you take a medication like Gabapentin out of the equation would there still be a symptom of brain fog? I have been told by medical professional that difficulty with cognition will always be a part of CRPS-Amy T.

I live in Austrlia and I have CPRS/ Allodynia and now Dystonia, I have been tried on many different medications, a week of ketamine, a nerve blocker and lydocaine patches. I was kicked severely in my left ankle which led to a severe sprain almost 3 years ago. I have not been able to wear a shoe as each time i put it on it hurts like hell. I m stuck as to what to do next. I used to be fit and a fire fighter but I can no longer do any of those types of things. Cramping then sets off my crps but I can't stop the cramping. Do you know much about dystonia and crps and how to control both?

Great presentation, thank you 🙂

Thank you Chase! Excellent!

Great info thx!

Dr. Chase, did you use or recommend any supplements that may reduce cortisol?

There's no cure stop saying you can cure it.

Faith has been so important. It gave my suffering purpose. Offering the pain for the salvation of souls was a very powerful and uplifting way to live.

24 1/2 years ago I was attacked by a patient on my unit and I went home shaking off the incident because that is what you do working in a Nursing Home dealing with difficult conditions. But the incident didn’t shake me off. The pain didn’t go away. It continued to get worse and a month later I was diagnosed with CRPS. I was told I would never work as an RN again. I lost my identity as an RN, wife and mother of 3 young children. I remember a couple of years in I was laying on the couch with children playing on the floor near me. I looked up at the ceiling thinking is this the rest of my life? I was in my 30’s. What kind of life is this? I decided right there that I was going to fight back. I was going to live my best life in spite of this. That started me on a journey outside of what the medical profession was offering towards healing. I kept telling myself if I don’t use it I will lose it. I would set a timer for 3 minutes and do something and gradually increased to 4 minutes. I have to say my faith played a huge part in giving me purpose too. That decision changed everything for me. I very much relate to your story and what you are telling people because it is exactly what I did to get better. People need hope, that is the start to healing. Thank you for sharing your journey

If you think you have it bed in the USA with Doctors not knowing anything about CRPS . Here in Canada there is no knowledge of CRPS by the medical field.

Great Zoom Chase! I do have a question. I’m learning more and more everyday what my triggers are and obviously I can redirect from food choices or emotional triggers but how do you suggest from a mechanical trigger? I think I know the answer but I’d like to hear what you have to say. I’ll send this in messenger also. If I don’t hear back I’ll make sure to ask in the next zoom! Thanks again!

Fabulous session today! Thank you Chase!

Thanks for your videos and info. Many Workers Compensation Boards do not recognize CRPS and do not have policy's to rate CRPS. For some reason the Workers Comp. Boards do not know anything about CRPS and rate it as Chronic Pain Disability. Couple you explain the different between CRPS and Chronic Pain Disability? Thanks