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@dustygatrell-ru7tg
@dustygatrell-ru7tg 29 күн бұрын
People in benzo withdrawal need to start trying to get this done. Because benzos csuss nueropathy.
@tommyboywalker
@tommyboywalker Ай бұрын
I was diagnosed with CRPS in my right foot in 2008 after having 2 successful surgeries on that foot. Fast forward to June of 2024. Symptoms of numbness, tingling, sweating changes, dry mouth, dry eyes, bowel issues, heart palpitation, electric shocks (I call them zingers). After a skin biopsy confirmation, I was diagnosed with Small Fiber Neuropathy. Thank you very much for this video. I am trying to put all the pieces together and this helps!!
@LD-er5zy
@LD-er5zy 2 ай бұрын
was told Intravenous IV-IG can reduce Small Fiber Neuropathy via regular Intravenous administration. Recently I was introduced to a oral capsules by METACURE. The Revive Alpha Lipoic Complex with Curcumin is much faster than Intravenous IV-IG and ALA. The SEVERE NERVE PAIN, TINGLING AND BURNING are reduced about 90% to 100% in one to two weeks. The NUMBNESS is slowly going down though takes much longer.
@MYRIAMLATEUR
@MYRIAMLATEUR 2 ай бұрын
The first doctor who explained me exactly what i am coping with! Thank you so much!
@walkingtall6004
@walkingtall6004 7 ай бұрын
Is it true that one bad side effect could be permanent pain and or numbness in the biopsy areas? If so, that’s very disheartening. 😞
@teribaggett1595
@teribaggett1595 8 ай бұрын
Why is your lab charge $3000 to read this biopsy?
@susankapur4364
@susankapur4364 8 ай бұрын
Thank you. I have neuropathy involving my torso. Trying to find neurologist familiar with small fiber neuropathy.
@susankapur4364
@susankapur4364 8 ай бұрын
Excellent presentation! Thank you!
@jeremiemiller35
@jeremiemiller35 8 ай бұрын
Thank you for making a concise video without the extra rambling that I find in others.
@DrLivelovelaugh
@DrLivelovelaugh 8 ай бұрын
What if all 3 sites come up near zero?
@hawk28912
@hawk28912 9 ай бұрын
would the punch biopsy at the ankle pickup damage in ur feet
@Enjolez
@Enjolez 8 ай бұрын
I am wondering the same. Most of my burning and numbness is in feet too.
@michaelfraser6997
@michaelfraser6997 9 ай бұрын
ive had symptroms for 6 yrs from b6 and my results from my skin biopsy this past july are negative idk wat to doo
@B6Toxicity
@B6Toxicity 9 ай бұрын
B6 toxicity can create small fiber neuropathy.
@sandracanaspayton4322
@sandracanaspayton4322 10 ай бұрын
How could i get tested
@sandracanaspayton4322
@sandracanaspayton4322 10 ай бұрын
I have sjorens and have a lot of nerve pain pain
@sandracanaspayton4322
@sandracanaspayton4322 10 ай бұрын
I have sjorens and have a lot of nerve pain pain
@sandracanaspayton4322
@sandracanaspayton4322 10 ай бұрын
I have sjorens and have a lot of nerve pain pain
@sandracanaspayton4322
@sandracanaspayton4322 10 ай бұрын
How can i be tested
@citlalie9791
@citlalie9791 Жыл бұрын
SJOGRENS CAUSED MY SMALL FIBER NEUROPATHY
@nawluck
@nawluck Жыл бұрын
I have nerve pain in my hamstrings and hands .. should the Dr. Still do the punch test biopsy on the side thigh or should I have him do it wear the pain is?
@ddworsham
@ddworsham Жыл бұрын
Thank you, Dr. Levine. Very much appreciate the video. Would value seeing more content around SFN.
@nancylicho3538
@nancylicho3538 Жыл бұрын
Awesome video. I was an athlete, and I am 49 and feel 89. I just had my skin biopsy today. Can't wait to get to the bottom of my 4 year battle with devastating pain. 🙏
@1128tlcny
@1128tlcny Жыл бұрын
I was diagnosed with sjogrens when I started experiencing nerve pain, numbness, etc. A neuromuscular neurologist did a small punch biopsy. It was negative. My doctor did try though to treat symptoms, unsuccessfully. I pushed to have the biopsy repeated so that I could try ivig. The neuromuscular neurologist refused to repeat it. I tried getting into Cleveland clinic. They refused to even see me. I tried getting into Johns Hopkins. They refused to see me. Two years later, I finally found a doctor who would repeat the biopsy. It was positive for sfn, and quite severe. I was finally prescribed ivig. I have been on it for 6 months and feeling better.
@citlalie9791
@citlalie9791 Жыл бұрын
SAME I got nerve pain from Sjogrens
@lesleysears9808
@lesleysears9808 Жыл бұрын
Thank you for a great class.❤
@gracerobertson8772
@gracerobertson8772 Жыл бұрын
why do you think small fiber neuropathy would relate to the symptoms of chronic fatigue syndrome?
@samoo8933
@samoo8933 2 жыл бұрын
Can SFN induced by antiboics regenrate ?
@sadieabbey3275
@sadieabbey3275 2 жыл бұрын
Can one have SFN that presents as just bilateral muscle pain in arms and legs?
@tarapolumbus5206
@tarapolumbus5206 Жыл бұрын
That’s what I have
@citlalie9791
@citlalie9791 2 жыл бұрын
Wear a mask 😷 lol
@freecat1278
@freecat1278 2 жыл бұрын
Well, that makes a lot more sense lying down than standing & bleeding all over yourself. Mine was about .45 caliber sized & required stitches.
@mgs783
@mgs783 2 жыл бұрын
Here it is 2021 and years of dealing with painful small fiber neuropathy and this presentation educated me more than any specialist treating me! Thank you for all the excellent explanations. This is incredibly helpful as a patient!👍👍👍👍👍👍👍👍👍👍👍👍👍
@lindadowling4572
@lindadowling4572 2 жыл бұрын
Excellent presentation lots of interesting information and help for people out there who might be recently diagnosed with this condition or who night need support in getting the right people to help them.
@dawnlong6493
@dawnlong6493 3 жыл бұрын
I have connective tissue disease, fibromyalgia and was just diagnosed with SFN. Everyday is a challenge getting dressed, going to work, smiling, being optimistic. I try. I used to be a very positive happy person. These diseases are ruining me. NEED ANSWERS, NEED HELP, NEED TO FEEL GOOD AGAIN>
@engageonline9912
@engageonline9912 2 жыл бұрын
Look into IVIG and steroids...also new drug in late stage trials called ARA290
@kittycunningham7447
@kittycunningham7447 Жыл бұрын
I am suffering for 30 years. Get a bit relief from taking magnesium, vit d and c daily. Also trying to exercise daily, even at a slow pace. Water aerobics help
@margysfavourites8444
@margysfavourites8444 3 жыл бұрын
Excellent
@maggiefu1672
@maggiefu1672 3 жыл бұрын
@corinthinlab i just had genetic testing. I have SCN10A. Apparently nobody else does, with genetic testing.... yet? so they cannot confirm this is my reason for having dysautonomia/POTS. This research is the closest to answers i have found.
@margysfavourites8444
@margysfavourites8444 3 жыл бұрын
Thank you for this very very informative video .
@philipshutovsky3682
@philipshutovsky3682 3 жыл бұрын
if i have symptoms in my feet with vibrating and my fingers started vibrating a bit too and arm went a bit numb is it okay that i got the skin biopsy in my hand?
@HeatherBDentureDiVa
@HeatherBDentureDiVa 3 жыл бұрын
I have 5 autoimmune including scleroderma lupus many others also was diagnosed late for small fiber neuropathy. How biopsies at once one on my left wrist the other right ankle. SFN os threw out my entire body and its effecting my brain now. Its super hard. I have a severe case but their are no meds except nerve pain meds bc no ked can regrow nerves back.
@engageonline9912
@engageonline9912 2 жыл бұрын
There are treatments that can work including IVIg
@momentosvirales2023
@momentosvirales2023 4 жыл бұрын
Kudos for the Video! Sorry for the intrusion, I would love your thoughts. Have you ever tried - Taparton Sturdy Nerves Takeover (just google it)? It is an awesome one off guide for Getting rid of Neuropathy without the normal expense. Ive heard some great things about it and my GF got astronomical results with it.
@snrnsjd
@snrnsjd 3 жыл бұрын
Astronomical results? 🤣
@stevenhartlaub4557
@stevenhartlaub4557 4 жыл бұрын
Interesting. Could decades of phenytoin use lead to SFN?
@sillysgood
@sillysgood 4 жыл бұрын
This has been so helpful. Thank you. Empowering!
@unsealedhades76
@unsealedhades76 4 жыл бұрын
When i get my biopsy I get it in my arm. I got numing cream that did not help. I felt everything they did they left it on for an hour. I've never had it in my leg.
@LisaRichards_123
@LisaRichards_123 5 жыл бұрын
All these videos with $10,000 words telling us what small fiber neuropathy is, but no one tells how to treat it.
@creativegirl9710
@creativegirl9710 4 жыл бұрын
he is talking about one option which is IVIG
@annannb6514
@annannb6514 5 жыл бұрын
Your skin biopsy test is not very accurate. As I have demonstrated. Had to have john hopkins to get an accurate skin biopsy to prove I had SFPN S
@beratsezer3353
@beratsezer3353 5 жыл бұрын
Congratulations. I live in Istanbul. Nobody here can do the biopsy. Nobody knows. Please help me. This is my number. I'm in so much pain. +905344853093
@CarolineATorge
@CarolineATorge 5 жыл бұрын
I can't thank you enough for this very informative video. I went undiagnosed for Lyme disease for over 11 years and can't begin to describe the debilitating pain I have experienced the great majority of these years. I was just diagnosed as having small fiber neuropathy, and the information you shared certainly fits. As bad as the pain was, what was almost just as bad if not worse has been doctors misdiagnosing me or simply labeling me as drug seeking or passing the pain off to psychological issues. Much of what you mention (especially related to muscle cramps) describes my experience. Thank you again.
@creativegirl9710
@creativegirl9710 4 жыл бұрын
Did you find relief for neuropathy? I have it to and it seems I've tried everything--going on 4 years now.
@infinera06
@infinera06 6 жыл бұрын
I experienced the onset of neuropathy in my right foot 4 months ago with all the classic sensations. I am not diabetic nor do I drink. NCS/EMG was normal. Drs have not shown to be very interested in finding the root cause. I suspect its the statin that I have been taking for almost 2 years. But the drs don't think statins can cause neuropathy, contrary to what I have seen online. I discontinued the statin almost 4 weeks ago on my own. Seems to be getting better, but I am also taking gabapentin. Only time will tell. Any opinions about statin induced neuropathy?
@philipshutovsky3682
@philipshutovsky3682 3 жыл бұрын
any update?
@suewatters1
@suewatters1 6 жыл бұрын
I have CIDP but was yold a few years back I also have SFN. But my Dr doesn't believe in the accuracy of the test and since my motor nervewhich are not perfect is not worse she says I am fine. But I complain of sensory problems all the time. It affectd my ears and other female parts with lots of Swelling. I know IVIG helps me but my Dr doesn't see the Sensory nerve damage. Help How do I convince her that what happened to me 11 years ago is happening again with the sensory feeling affecting more then the motor nerves. I HATE FEELING THIS WAY 😭
@engageonline9912
@engageonline9912 2 жыл бұрын
How often do you have IVIg and how much does it help you?
@kristicabana5004
@kristicabana5004 6 жыл бұрын
I have lupus and fibromyalgia plus the ten million symptoms that come with them. I am just learning about small fiber neuropathy after suffering with this illness for 4 years now and after 2 attempts to end my life. I feel something I've never felt before...hope.
@GoldPeakLLC
@GoldPeakLLC 5 жыл бұрын
Hey Kristi glad this provides hope. But why? Is it cause this can possibly be cured in the future?
@Michael-ew5my
@Michael-ew5my Жыл бұрын
I struggle daily with going on.. this has been my life for the past 17 years.. I have tried so many meds and different treatments to find relief without an answer.. im totally losing hope again 😔
@abhijinu6428
@abhijinu6428 6 жыл бұрын
I have spent months investigating best natural remedy for neuropathy and discovered a fantastic website at Gabs Neuro Guide (check it out on google)
@medisco10
@medisco10 6 жыл бұрын
Thank you. Great information and very informative