What’s Up with Long-Term Follow-UP? Ethical, Regulatory, and Operational Challenges
1:12:35
What’s Up with Long-Term Follow-UP? Ethical, Regulatory, and Operational Challenges
21 күн бұрын
Ethical Questions in Genetic Screening and Testing
1:11:03
Ethical Questions in Genetic Screening and Testing
21 күн бұрын
Balancing Risks and Benefits: Gene Therapy Across Diverse Diseases
1:14:11
Balancing Risks and Benefits: Gene Therapy Across Diverse Diseases
21 күн бұрын
The ABCs of Genetic Medicine: What's an AAV Anyway?
1:10:27
The ABCs of Genetic Medicine: What's an AAV Anyway?
21 күн бұрын
Fetal Gene Therapy
1:00:51
Fetal Gene Therapy
Жыл бұрын
What Are We Talking About When We Talk About Risk?
1:00:30
What Are We Talking About When We Talk About Risk?
Жыл бұрын
Trial on Hold: Balancing Expectations and Understanding of Clinical Investigations
1:00:19
Trial on Hold: Balancing Expectations and Understanding of Clinical Investigations
Жыл бұрын
The Antibody Question: How Does it Impact Trial Enrollment?
59:02
The Antibody Question: How Does it Impact Trial Enrollment?
Жыл бұрын
The Ethics & Science of Controls in GT Studies: Placebos, Shams, Natural History & Delayed Crossover
1:03:29
The Ethics & Science of Controls in GT Studies: Placebos, Shams, Natural History & Delayed Crossover
Жыл бұрын
Antibodies to Viral Vectors in GT Research: Best Practices for Sponsor Policies & Communication
5:39:55
Antibodies to Viral Vectors in GT Research: Best Practices for Sponsor Policies & Communication
Жыл бұрын
(2022) Day 5: Ask a Family Member
1:03:51
(2022) Day 5: Ask a Family Member
2 жыл бұрын
(2022) Day 4: Ask an Industry Member + Regulator
59:28
(2022) Day 4: Ask an Industry Member + Regulator
2 жыл бұрын
(2022) Day 3: Gene Therapy for Sickle Cell Disease
1:00:09
(2022) Day 3: Gene Therapy for Sickle Cell Disease
2 жыл бұрын
(2022) Day 2: Unrealistic Expectations and Decision-making Support
59:20
(2022) Day 2: Unrealistic Expectations and Decision-making Support
2 жыл бұрын
(2022) Day 1: Pediatric Gene Therapy: State of the Field and Future Directions
59:12
(2022) Day 1: Pediatric Gene Therapy: State of the Field and Future Directions
2 жыл бұрын
World Congress of Bioethics - A Briefing of the Ethical Landscape of Pediatric Gene Therapy Research
1:07:29
World Congress of Bioethics - A Briefing of the Ethical Landscape of Pediatric Gene Therapy Research
2 жыл бұрын
The 'Lived Experience' of Pediatric Gene Therapy - A Scoping Review
19:20
The 'Lived Experience' of Pediatric Gene Therapy - A Scoping Review
2 жыл бұрын
Day 5 - Accountability and Collaboration with Patient Communities
1:30:14
Day 5 - Accountability and Collaboration with Patient Communities
3 жыл бұрын
Day 4 - The Lived Experience
1:24:16
Day 4 - The Lived Experience
3 жыл бұрын
Day 3 - The Many Facets of Hope
1:27:40
Day 3 - The Many Facets of Hope
3 жыл бұрын
Day 2 - Trust and Transparency for Trial Participants and Families
1:30:58
Day 2 - Trust and Transparency for Trial Participants and Families
3 жыл бұрын
Day 1 - Pediatric Gene Therapy Research in the Context of Uncertain Risk Benefit
1:30:18
Day 1 - Pediatric Gene Therapy Research in the Context of Uncertain Risk Benefit
3 жыл бұрын
Julia Vitarello's talk with PGTME
1:16:06
Julia Vitarello's talk with PGTME
3 жыл бұрын
Equity Issues in Pediatric Gene Therapy Research
1:10:12
Equity Issues in Pediatric Gene Therapy Research
4 жыл бұрын
Ethical Challenges of Immunogenicity & Toxicity in Pediatric Gene Therapy Research
56:51
Ethical Challenges of Immunogenicity & Toxicity in Pediatric Gene Therapy Research
4 жыл бұрын
Lived Experiences The Personal + Family Impact of Participating in Pediatric Gene Therapy Research
59:42
Lived Experiences The Personal + Family Impact of Participating in Pediatric Gene Therapy Research
4 жыл бұрын
Risks & Benefits in Pediatric Gene Therapy Research
1:08:44
Risks & Benefits in Pediatric Gene Therapy Research
4 жыл бұрын
Operationalizing Informed Consent in Pediatric Gene Therapy Research
59:49
Operationalizing Informed Consent in Pediatric Gene Therapy Research
4 жыл бұрын
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@anthonydonald7644
@anthonydonald7644 3 жыл бұрын
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