Birth control pills dont usually work for people with triple x.they can still get pregnant.

Your a tough girl dont be hard on yourself ok.

Trisomy x and triple x are two different things they are not the same.

First off triple x is not inherited its a flook from a sticky gene when lining up to devide cells. And it can cause dentin problems in teeth so some people lose all their teeth before age 20. Actually triple x in a baby can be caused by the mother over 35. Or if the mother was exposed to lead paint or tadiation xrays early in life. But its mostly caused when chromosones divide and when they face each other in the early formation of a baby. Sometimes the chromosones line up and face each and stick together by accident causeing them to make exstra copies of themselfs . Each copy could have more than one copy stuck to it causing triple x syndrome and the child could bw born with medical issues, like heart or lung problems or learning disabilitys speach problems scoliosis back problems . Thick neck, tall stature ect.

its just something with no mic asmr's, there's like a white noise in the background

Thank you very much for sharing your story! I wonder despite all your struggles with your health, are there any strengths that you have, like something you really like doing and you can do well?

I have it too. Diagnosed before I was born through amniotic test. As you said there is so little research as it's pretty rare, it's nice in the sense to know there is someone out there who knows what it's like. Thanks for making the video.

I have triple x syndrome and my only baby was took away from me personally because his dad didn't want to be happy with me anymore 😢😢😢

Well, you're awesome. I hope the bladder will settle down. Chin up, you're doing great!

Bonjour, nous habitons à Paris, ma fille de 6 ans a le syndrome du triple x, et malheureusement sur ma fille ya énormément de retard, quand je veux faire des recherches sur internet il n y a pas grand chose c'est vraiment dommage, jaimerai tellement être rassuré pour son avenir, est ce que ce retard sera toujours la? En tout cas merci pour votre vidéo

Thank you so much, lots of happiness for your present and future ❤️

I’ve had a child and they said I don’t have that nor do I have the seizure disorder, I have the forgetfulness, irregular periods, slight ADHD, I’ve been getting some random chest pains suddenly, they’re doing a whole bunch of tests still.

I don’t have all of the issues, I’m borderline which I’m grateful so I keep encouraging myself as much as I can to improve even if there’s no cure.

I’m now turning 44 years old and recently got tested for learning disability only to find out I have triple X which has made things worse emotionally but finally an understanding of what’s been going wrong all my life. ❤️

We just discoverd that our 5 years girl has tripoli x ' it was so hard to know 😥 she can't speak just few words and it seems that she is behind her siblings and other issues, God helps us

Research skills are CRITICAL to learning, so you are way ahead of most people. Don't give up Sarah. You're very good in this video, too. My niece has trisomy X - she is also tall and beautiful.

I have some things you get I am mentally retareded, , other seizures ,

This is a huge opportunity wasted for naming this syndrome, the Xander Cage syndrome.

This sounds similar to Fragile-X, but Fragile-X effects males, too. Also, it seems XXX is more common than Fragile-X. But Fragile-X is easier to Google without getting porn thumbnails. Sheesh. Now I have to parse all my Google histories. I'm wondering if a fibromyalgia diagnosis should be renamed "X Chromosome myalgia" or XCM. FX has fibromyalgia, too. And ovary issues, developmental delay, etc. But we get the big ears. I guess I could say "I have the earmarks of Fragile-X". 🙂 Thank you for sharing. I'm female, also. I watched this looking for a differential diagnosis of Fragile-X.

Autism is better

you are awesome girl

I was diagnosed when I was a baby with it. I have the trait of long legs and some of the other stuff. The learning disability that flows witch it’s tons of fun, learning to under people and having slight autism as well

I was diagnosed with triple X in 2012. But it has now taken a hold of my life and there's not really anything on it. Thank you for bringing attention to it. It has helped my boyfriend understand that I can't control myself that there's something out of my control. I have some of the symptoms you mentioned and throughout my life I felt an outsider and now as I try to live my life I understand I'm different that makes me unique.

Hi Sarah We just discovered my 26 yo daughter has Triple X. She is pregnant and initially they said it was the baby, but then determined it was my daughter. This diagnosis makes so much sense about her struggles as a young child and adolescent. I came searching in hopes to find support for her as she feels like she’s suddenly defective or broken. The diagnosis came as a real shock to me as her mother because we, like many other families, went undiagnosed all this time. Fortunately she hasn’t experienced any major medical issues up to this point in her life. God willing, she doesn’t experience anything major going forward. Thank you for sharing your experience and bringing awareness to this issue.

My 15 year old has Tri-X, she’s such a sweet and loving girl but as she gets older she’s experienced more issues. Sadly doctors know little and have little help to offer. Currently she has anxiety and depression, and some learning difficulties. My daughter shows signs of being on the autism spectrum, but the doctor we saw would not diagnose her. This doctor said “ her behavior is due to her Tri-somy”. True! doctors are ignorant and don’t seem to care. So we try to get by one day at a time. Blessings to you and other girls with Tri-somy

That flower case i have it it is my phone case

Nondisjunction💘...

Thanks for sharing! You’re a beautiful girl 💓

I’m happy to find someone else has this

Can you have Triple X Syndrome when you are not Tall, I’m actually quite Short & I also don’t have Diagnosed Heart Palpitations, but I do have Autism, ADD, Global Developmental Delays, Dyslexia, Irlen’s Syndrome A.K.A. Scotopic Sensitivity Syndrome, Dysgraphia, Dyspraxia & Dyscalculia & Sensory Processing Disorder & Dysthymia, Generalized Anxiety Disorder, Panic Disorder, Obsessive Compulsive Disorder & My Counselor in University though I had Social Anxiety Disorder, Dissociation Disorder Most Likely Depersonalization\ Derealization Disorder & Borderline Personality Disorder Traits, as well as Bipolar 1 with Psychotic Features or Schizoaffective Bipolar Type, for physical issues I have G.E.R.D. & Polycystic Ovarian Syndrome & Hashimoto’s Disease, but I think that one’s unrelated!

I just came across the video when I was actually studing about the syndrome in my biology book.U r so strong and I'm proud of you.

I have triple x syndrome. I'm 31 now and my mom found out when i was 4.

Thank you for sharing <3 my baby has been diagnosed with xxx and I’m trying to learn anything I can. Information is scarce so this is very valuable for our family.

youre really pretty

❤️

Thanks!

I was diagnosed before I was born, my mom created a website for it and has tried making more awareness about it here in Denmark

My ex girlfriend Kerry from high school also has triple xxx syndrome and she was always doing research on it

I’m getting checked for trisomy X tomorrow because I think there’s a possibility I could have it. I was diagnosed with Autism, but there’s a possibility it might be something else...I do have a couple of symptoms of trisomy x.

XX and XXX humans have a variant mutation. Apparently one or both of their Parents are not from here.

We were just told my daughter (18 yrs old) has trisomy x. Reason doctors pushed for testing is her cognitive decline and toes turning almost black when she stands or sits. She is smaller in stature and never went through a growth spurt until she was 16, has had speech and low muscle tone so received speech, PT, and OT in elementary. She started cycling at 10. She gets her cycle every 19 days. She has been labeled as Intellectually disabled w/anxiety but no other known issues (dyslexia/adhd/autism). Her doctors never did further testing. She was very sick from 1 yr old until 3. She was a little delayed from her older siblings but nothing that would have made anyone concerned from birth until 3. Actually she was only a month behind her older siblings. We always thought it was vaccine injury because she couldn’t receive her 12 month vaccine until she was 3 yrs old. She was on antibiotics for an entire year because she developed juvenile asthma at 1 yr then we spent every cold in the hospital because it turned into pneumonia. Doctors put her on amoxicillin from 2 yrs old until 3 then said she was good to go for her 12 month shots. As of now, her reading level is at a kindergartner.

I just came here from my biology book.Thanks for informing us firstly and secondly I am sorry that you guys have to go through all of this.I hope this condition will start to get recognized more medically.Stay strong <3

I think I may have this. How do I know? And how do I approach my health care professional with this?

I am a medical student . I admire you for opening up thank you for telling me how you feel.

Hey what's the name of the fb page plz

I have triple x my parents told me when I was around 10 and I couldn’t relate to anyone more then I can with you❤️

You are not alone ❤️

My 10 year old daughter has Triple X Syndrome but she also has 1q21.1 micro deletion (after genetic testing found out I have 1q21.1 micro deletion to and passed it onto her). She has a learning disability (intellectual disability) and sensory issues, she has expressive and receptive language ability of a 5 yr old level, she’s impulsive and has difficulties in maintaining focus, is emotional and socially immature and has meltdowns and agressive/challenging behaviour and disruptive sleep pattern. other than an EHCP in place and speech and language therapy from 2-7 we’ve had no other help. we’ve just been kinda left to just get on with it. x

Hi

You are good person thanks to sharing i læring more thinks❤