Hi

my Daughter has TS she 43 has brain Tubors kidneys eyes white patches on skin cant Talk or walk on her own seizures we had surgery on her brain for seizures last march she was a 10 pound baby and had seizures at 2 weeks old

My son have tsc 😢

Thank you so much for this video, it's been very informative to us, non-medical folks.

Thank God god bless you mam

Infantile convulsions 🤔

Can TSC baby live normal life

I have this condition

Hard to find quality informative videos on TS it seems. Thank you for sharing

I have totally lost faith in a paediatrician who is too important to be contacted by email.

Pls send any information because my daughter is same problem How improve my child behavior , send any information pls..........

TSA was fortunate to have Clare Stuart as CEO. This interview highlights the benefits of working collaboratively with families, health professionals and international TSC groups to advance the care, research and knowledge of all aspects of TSC. Congratulations on co authoring this paper. I commend your encouragement to TSC affected families to support TSA.

😍😍😍

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my son have TS he have skin lesion on face i hope how to treat for him

My niece diagnosed with TSC and believe me I am literally crying ...we don't have any idea how it will going and how she will handle this things... 😭😭😭😭 God bless her 😭

Please write name of medicine and can I purchase online.

Can radiation exposure cause this?

Sir mne ne mara chokra ne bne ne che pan sarkhi dva nathi karavi sakta plz kak upay aapo

my son have ts he have lesion on face we live in thailand we want to know how to treat by rapamycin

my son have ts he is 7 year old we live in thailand

my son have ts

Bruh

Wooo. Go Helen! From a fan

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Thanks to everyone who is taking their time to read this testimony on how my son was cured from Autism, he was diagnosed four years ago, and he is now 6, I have tried several treatments and medications on him, nothing is working out and I am so frustrated. I keep praying to God and finally God answered my prayers, someone from no where walk to me and told me he want to tell me about this doctor he gas knew for years now from his own country, after everything I took the contact of the doctor and called and I was so surprised it was a female and I explained my son condition to her, she asked for my home address and the next day I got a tracking number or a parcel sent to me through dhl from Doctor Stella, after four days I received the parcel, I opened and found a liquid herbal medicine and some herbal medicine grinded and I found a letter containing the instructions on how to use this medicine, I called her and thank her so much and she told me we should thank God for everything, the next morning I started giving my son the medicines and after one week I was seeing a great changes in him and I continue until the medicine finish and everything last for just one month and a week, now my son is free from Autism, he can now talk clearly, behave normal and no seizures anymore. Help me thank Doc Stella for this and you can also connect with her on [email protected] and [email protected] WhatsApp number is +2348157471852.,.

Dr. Nze has done it again for me and my family. My son who has Autism was cured totally after 14days after he finished taking the herbal cure medicines which Doctor Nze has prepared for him. I never believed there is cure for Autism and never believed herbs can cure it. Today am a living testimonies and witness and I can boldly stand anywhere and testify about the marvellous work of Doctor Nze. People are out there discriminating all the traditional doctors and saying there is no cure for Autism in life. Whatever [email protected] are doing you have to apply faith and focus on what you are getting in return. Write her on her email and wait for her response,Dr. [email protected] or Whatsapp 08116004247. Thanks for taking your time to read this ....

Kudos for the video content! Forgive me for chiming in, I am interested in your initial thoughts. Have you considered - Lammywalness Huge Victory Guide (should be on google have a look)? It is a great one of a kind guide for discovering how to quit smoking minus the normal expense. Ive heard some interesting things about it and my cousin at last got great results with it.

My daughter is too old for headspace, but I need to find a psychiatrist for her in Adelaide. She is 37, has TSC with intellectual disability, epilepsy, brain (SEGA). Renal (AML’s) & lung (LAM) tumours. Over Christmas & New year, she spent 3 weeks in hospital (RAH) with psychosis (delusions, audio hallucinations). On discharge she was referred to community mental health, I was told we would hear from them within a day or so. It’s now been 6mths but we have yet to hear from them. Her GP has sent a 2nd referral & I have phoned them, but we still haven’t been able to make an appointment to see anyone. Each time I call I’m told someone will call me back but that never happens. I’m wondering if we are being brushed of because she has TS. How can I find mental health treatment for her?

If this was a realistic option for me I would do this topical cream but I would rather have laser treatment that will actually address them. Yeah it would be more painful and a bit of a drive to get to where the laser is available with whoever is in charge of my transportation since I don't drive. But I'm looking for a treatment that doesn't just touch the surface because I believe that I would at the very least be able to prevent the bleeds and get the growth of these angiofibromas under some control. They do get irritated and yes they make it difficult to clean my face especially around the nose. I see a new dermatologist soon.

My unborn baby has a prognosis of TS he’s due in 8 weeks. I’m terrified but hearing stories like yours gives me hope that my son can grow up to become a kind man. That’s all I hope for.

Is this available in the U.S because im interested as well

Massachusetts is home to the ESTABLISHMENT --- look at corporate OBAMA CARE --- it sucks. It is Romney CARE ---

Fasting has been around for thousands of years and it is amazing at helping for inflamation -- another thing big Pharma does not want you to know about. Our government worked with big Pharma to get American people using synthetic dangerous drugs that this disgusting industry uses --

Thank you all for sharing!

I definitely have TSC. I am a Mechanical Engineer in California. No seizures or mental, however, I do have al of the classic skin manifestations, dental pits, and periungual fibromas. Thanks for posting this.

I have tuberous sclerosis. I have absent seziurs, not grandmal seizures

Best presentation of the clinical manifestations of TSC I've watched on the www.. Thank you.

Hi I am also one of the tuberous sclerosis patients from Denmark and I have that skin disease as well.. But I want to get rid of it and can I buy the medicine for skin plz?

Good day, how do I get in contact with your organization? Please respond...

That's my DOCTOR! HI DR SARKOZY! YOUR FAMOUS!

هل يوجد علاج

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