Thank you so much for the step by step video.

I live in Rome and I get Prolastin infusions every 2 weeks paid for by our National Health system

Well, crap, I'd be using it upside down. Sure was a lot easier and way less awkward

Horrible device! You will waste doses without realizing it.

Glad to see you.

Thank you

Ferry Mill

It’s awful that you’re limited to 14 hours outside of your house a week!

Thank you Colleen and COPD Foundation for making this vital video! It’s awful that liquid oxygen has been made unavailable to people who have high oxygen flow needs. It’s really unfair! Thanks for taking up this critical issue!

I feel for you,makes mine look super easy. Gotta say, gives you a different outlook about things. Hang in there, keep smiling and laughing,it helps!

Emard Views

Kristoffer Valleys

I had a really difficult time hearing clearly. The video was not clear

What if you pull the lever twice without inhaling? It was my first time and I didn’t know what I was doing lol

Thank you!

This surprisingly worked each time I tried this exercise! I've been diagnosed with COPD @ 36 yo (asthma), and came down with a cold that likes to settle in my lungs. Tried this to break it up - and even if it was just a little bit, I got phlegm to come up! Thank you!

Airway clearance is futile when you don’t have mucus

Hi i have symptoms like food get stuck and takes forever to go down, slight chest discomfort, ecid taste in my mouth and I've been coughing up about 100ml of blood for almost 3weeks now. 😔

❤

Interesting

Great instructional video but has a tiny flaw. In the video, the lever is clearly in the closed position when the mouthpiece cover is closed. That's confusing since when you close the cover, the lever is in the open position, and the cover also closes the lever.

I’ve been diagnosed with NTM and BE. I take 3oral antibiotics and Arikayce. Can’t do airway clearance because of bleeding. I can cough up blood on demand.

And taking Arikayce which also causes bleeding

TOO NOISEY. STOP IT. AND THE DRAWING IS MIT FUN TO WSTVH. Together with that SO CALLED MUSIC. It’s HORIBLE!!’

Thank you so much, Jeanne, for your presentation; I just started on a nebulized medication and you told me a couple of things that my doctor had not mentioned -- like trying to breathe the medication as deeply as possible. I wasn't told anything, basically, just given the equipment and medication at the pharmacy. Why does everyone assume that people can figure out these things without some guidance? And, yes, of course I understand that healthcare providers are over-worked but it is frustrating. Your video and attitudes you expressed helped me a lot.

Great video

Hello I hope I'm in the right place. I have a situation. 2 and ½ years ago I quit smoking due quitting smoking I have suddenly started having shortness of breath even when just sitting down my doctor put me on an inhaler but it does not seem to be helping. could my problem be due to the weight gain or the copd?

I found out about my COPD in 2009. Keep taking care of yourself 👍🏻

That’s nice but what is the name of the medication you use?

Thankyou for sharing. I learnt a lot from your experience. I can understand as I am one year down with COPD. Appreciate your courage. From India.

This is the worst thing I have ever tried to use. I have used Advair and Trelegy and could not get them because this current administration has decided to do as little as they can for veterans and their families. So we are stuck with this junk. It is the most awkward thing I have ever tried to use. It should be banned.

Awesome post and well said….Thanks!

How long do I inhale the medicine when I first put in on my mouth?

I'm grateful I can provide my own comic relief, as I do at least one thing a day, that prompts me to laugh at myself. 🙏 Persevere🙏

I got copd had no covid jbs. They to pushy with it. Im not anti vaxxxer ive had menajitus typhoid etc west africa. Wouldnt take nothing off them now. Wont take flu jab now dont trust nomore!!

Doctors laugh at old people . They actually wish we would just go away and die . Spoken truly from one that knows .

I believe I had RSV and none of my doctors caught it. For a good month or more , I was coughing almost constantly day and night. My nose was constantly running. I felt drained all the time. It was rough on top of having very severe COPD. I believe years ago when we got vaccinated to go to school , they were real vaccines. People today are just not sure what's real and what's hype. I've had COVID 4 times since being vaccinated for it and 3 boosters.

Very helpful

"PromoSM" ❤️

Great information

Hospice nurses say copd is the worse disease to die from .

About time someone cleared up this "2 ltr/min" myth. But still doctors will raise an eyebrow when you tell them that you/me (at times) adjust the flow rate above their (apparently) sacred '2 ltr/min' proclamation to maintain adequate O2 levels.

Good job Jean

You always do a great job of explaining oxygen therapy. I have heard patients say they work with NASA and testing new equipment

Great job! I play Harmonicas For Health here in Florida. Such fun. We’re all terrible, but a good time is had by all!

what can i do as a caregiver for my husband who has bronchiactisis pseudomonus arg? we typically have multiple hosps and each time he gets more and more sad about the outcome. tu

Wonderful. Looking forward to joining this group!

Awesome ❤

I need oxygen at night but my so called lung doctor ignores me when I tell him I’m struggling at night because he goes by the pulmonary testing

Great job, folks! 😊