So glad to hear you are NED - we're hoping for the best alongside you! 🧡

Hey there, thanks for your comment. He meant, "This is what we know right now", not that he did not know that in the past. Hope that helps.

Hey there, thanks for your question. We are a non-profit advocacy organization and are not staffed with clinicians, so we are unable to provide medical advice. We recommend asking your Healthcare team and also getting at least one other opinion from a doctor experienced in treating Appendix Cancer. You can use our Find a Specialist Tool to find someone near you: acpmp.org/patients/find-a-specialist/

I found out December 23rd, 2023 that I have stage 4 appendix cancer . I do chemotherapy every other week supposedly the rest of my life . I’m going to St. Louis this Wednesday August 21, 2024 to talk to a specialist about the hot chemo wash . I might be too old for it, I’m 71 years old . We’ll see ?!

Hello! Thanks for reaching out. These are both great questions. We recommend consulting your medical team for any specific, relevant data they may have.

Hi Musashi, unfortunately, we have all been waiting for the BroMac trial to come over the US for about 2 years now... I would reach out to Sarah Valle, RN to see if there is a recently updated timeline for the trial -- Email: [email protected] and phone #: (+612) 9113 2070. In the meantime, I would highly encourage you and your uncle to consider looking into other clinical trial options. ACPMP's Executive Director, Deborah Shelton, works with patients to help them figure out if there are any trials that would be worth pursuing. You can reach out to her directly at [email protected] and see a list of current trials at acpmp.org/patients/clinical-trials/. There are lots of tumor agnostic trials based on genetic mutations that Deborah is following, so if she has the genetic testing results, she may be able to identify something worth checking out! Also consider reaching out to Dr. Raoof at City of Hope to learn more about the PIPAC trial happening there (available in California, New York, Florida and some locations in Europe) as it is available to appendix cancer patients: clinicaltrials.gov/ct2/show/NCT04329494. Link to the webinar with Dr. Raoof presenting about this trial: acpmp.org/webinars/. You would need to reach out to Wake Forest about your question above.

When I think of pineapple leaf tips exposed to the sun, can’t help but think pineapple tips, vitamin C, and grapefruit seed to combat covid symptoms.?

Please send us or have your brother send us an email to [email protected] so that we can provide further guidance, information and resources.

There is currently no known cause for appendix cancer/PMP, therefore there are directly no known linked reasons related to recurrence. Recurrence rates can be based upon a patient's tumor type, success of their CRS/HIPEC surgery, and other factors. However, we do encourage you to watch this video which you may find helpful regarding nutrition: kzbin.info/www/bejne/ep3Ylap5m9eCpcU. We also recommend reaching out to your specialist's care team to discuss any of this in more detail!

@@pmprf I have this disease. I have a question. When u have a mucin producing tumor what is actually growing that kills you? The tumor itself is growing, or does the volume of mucin kill you? How does the rate of growth of the actual tumor compare to the rate in mucin accumulation. From my understanding not all mucin is cancerous, it depends case by case. I have had this for 15 years, appendicectomy was done in 2009. Found out i have pmp in 2020. So 11 years had no idea. Now watch and wait as its growing extremely slowly.,

We are a 501(c)3 nonprofit therefore we do not treat any patients. But you can reach out to the Huntsman Cancer Institute to see if they do if that is what you are asking. Thanks!

Prof treated my dad 2002/2003. What a remarkable man! Dad was diagnosed at 48yo, he got an extra 2.5 years which was a lot longer than the 3 months he was told at diagnosis! I remember Prof Morris so well; he is certainly an amazing man ♥️🙏🏻

if they remove all the mucin and cancer and do HIpecc many people have no existing disease for years. ive seen 20 years and no reoccurence. Most important thing is to SEE AN APPENDIX cancer specialist. This is not like other cancers it acts very differently and usually doesnt spread out of the abdomen area into the blood.