Analogy of " distraction therapy" using cell phone towers: Imagine your brain is like a cell phone, and it relies on two different cell towers to send signals for movement: The Direct Tower (like the somatic nervous system) is what your brain normally uses for intentional, conscious actions. It’s fast and strong, ideal for direct commands, like moving an arm or taking a step. But in people with FND, this Direct Tower is glitchy-it has poor reception, causing signals to drop or get delayed when trying to send commands. The Backup Tower (like the autonomic nervous system) is a secondary signal path. It’s typically used for automatic processes-things you don’t need to think much about. While not as direct, it’s reliable and handles basic tasks like balance or reflexes without needing strong conscious signals. Distraction therapy works like switching the phone from the glitchy Direct Tower to the Backup Tower. When you’re distracted (engaged in a different task or mentally focused elsewhere), the cell phone’s signal is rerouted to the Backup Tower. This alternate path sends the movement signal more smoothly, bypassing the issues of the Direct Tower. Over time, by using distraction techniques, the brain learns to rely on the Backup Tower more confidently. This process can gradually help re-establish and strengthen the connection to the Direct Tower ( the somatic nervous system) allowing smoother, more reliable movements.

I don’t have diabetes, but I have neuropathy in my feet. I finally have my first appointment with neurologists this November. I really hope they can find out why I have neuropathy. My podiatrist just ruled out Charcot, but I have the risk. I have had two toes amputated so far with the most recent causing hospitalization for a week because I was in septic shock.

Brilliant Miranda! Very informative and engaging presentation

Please go to Dr Duddy, he has mastered the art of racism. 🎉🎉🎉🎉🎉 He really hates Indians. That’s his special interest.

In QLD Australia an FND diagnosis by a public neurologist ends with just handing the patient the FND Hope website address and the Neurosymptoms app. "See ya, wouldn't wanna be ya" is the standard procedure. No professional treatments and no assistance through the public sickness system. You don't get help unless you are rich. #fndaustralia

Take a very good look at Dr Martin Duddee, this is the face of a highly racist man.

To everybody diagnosed with FND here, was the symptoms sudden or increased over months? I’m not diagnosed yet with FND but some doctors started mentioning the notion of it just because they couldn’t diagnose me with anything specific other than fibromyalgia which didn’t explain the significant symptoms, like they are using it as an exclusion diagnosis.

I have a neurological movement disorder called cervical dystonia (23 years). I do not have any genetic or physical abnormalities that are known to be causing my symptoms. This is the case for almost everyone I know who has dystonia. I have experienced minor trauma throughout my life but nothing I would point to as significant. I'm wondering, based on the criteria used to diagnose somebody with FND, if most people that have movement disorders do not have any structural damage causing their disorder, and since all of us have experienced varying forms and severities of trauma throughout our lives, it would seem to me that almost all of us fall under the FND umbrella rather than straight up cervical dystonia or other forms of dystonia or other movement disorders. Could you please clarify that for me please? Thanks very much!

I have driven down my LPa with Magnesium Glycinate and Liposomal Vitamin C at 10 grams

Farxiga also increases ketones which is very bad for kidneys and can also cause ostheoporosis!

There's a bit of incongruence in this video. At the end he says that diet and exercise "alone" don't work. But his earlier slides on the biggest loser studies show that diet and exercise are positively harmful and just make the problem worse in the long run.

if diet and lifestyle have no effect I should stop exercising and eat what I want this doctor is a nutjob

they wont be happy till everyone is on statins all doctors are is drug pushers

If the patients prefer the title FND rather than Conversion Disorder but both mean the same why does no one ever mention the MIND/BODY connection?

This was an excellent presentation. I learned a great deal!

Any research on fasting and SGLT2 Inhibitor?

Any research on zero carb with SGLT2 Inhibitor?

Good to hear your comment.

This is an excellent discussion. I wish economist, administrators and policy makers would listen carefully to professor Leary. Frontline healthcare providers are increasingly forced to check boxes to support billing (isn't that what the EHR is designed for?) rather than being supported and recognized for the humanistic care we are ethically compelled to provide, the best we can under the limitations of case load and that 15 minute office visit (care episode). Professor Leary articulates what's important clearly and succinctly in ways that the legions of health administration experts do not. Excellent.

I want cardiac arrest...so I can die ..thank you I love you Jesus 🎉❤😊

My diagnosis came after failed spinal fusion and the shock that came with increased chronic pain and disability leading top drop foot twitcing sensory pain and overload. My treatment was a website and cbt I try everything medication for pain and depression got me out of bed with some ability to face being like this but nothing to really help me and its cost me everything I have a 7 year old son so i continue to fight for him. i cant imagine this going on much longer its been 5 years now and im giving up.

Strange! Why statins raise lipprot*a? Mine goes down- 10 points in one year.

😢

I wish all doctors had his pleasant manner

Alot of woman have been sexually abused and DONT HAVE FND, most people have gone through trauma at one point in their life AND DONT HAVE FND. Of course if you gather fnd patients and RESEARCH them that they have had trauma and or sexual abuse, why? because you will find this with ANY group of people! Yes trauma can trigger it but it has nothing to do with fnd. I wish they would go beyond talking about this as mental health problems, its so repetitive and going around in circles. So many research papers with 'fluff' and the same information. It's like a dog vomiting and eating his own vomit again and again. Yes, I have FND.

Everyone Lied, Organisations let me down, I panicked and got FMD, I was, and still am fighting dental fraud

GABA increases Klotho production at a very low dose 6mg/kg mice, human equivalent dose is .48mg/kg mixed with water and drunk throughout the day.

❤ Love you, Fredrik ! ❤ Tank you !

You mention relative risk reduction, but not absolute risk reduction. Why?. Also, this all asumes that all Ldl is bad. If it is that bad, then why do we have it in the first place?

I was diagnosed with FND on Wednesday, this video has been so helpful. Thank you

very informative sir. Thank you!

And then theirs me! Diagnosed with FND and yet over ten years later diagnosed with PSP! Thank you!

Fascinating. Thank you for uploading this. I found Professor Raal's presentation very compelling.

This video was quite helpful and informative however functional symptoms don't always require attention. Especially considering the fact functional symptoms can impact a person 24/7. A functional symptom has no known physical cause and refers to abnormal functioning of the body. Functional symptoms also aren't caused by physical and/or psychological risk factors, those risk factors simply increase the chances of you developing a functional disorder. If those physical and psychological risk factors were truly the "cause" everyone would have functional symptoms. "Psychological trauma is to FND what smoking is to stroke, a risk factor but not the cause." - Professor Jon Stone, Consultant Neurologist and Honorary Senior Lecturer at the dept. of Clinical Neurosciences, University of Edinburgh

My hand shake alot

I'm 69, became disabled from FND at age 62 but it took years to figure out this diagnosis. My symptoms are textbook FND. The more I've learned, the more I've been able to improve my quality of life. I'm a veteran so I've had access to lots of programs and services, mostly focused on PTSD. I wish we had FND informed providers near me like you do in UK. Throughout my ordeal I refused opiates and benzo medications, thankfully. My best results have been from Biofeedback and gentle yoga. Especially the yoga. It was a big leap forward when I realized my body can operate well when controlled by habit thinking, just not with conscious focus of thoughts. Frankly, i thought I was nuts untill I saw some wonderful videos like this one to enlighten my point of view. The more I've learned and thus acquired more of a sense of control, my anxiety levels decreased which lessen the conscious focus. When I can stay calm, my habit thinking controls my movements, at times surprising me. :) It may be controversial but I think cannabis helps because it calms me and distracts my conscious focus. Thank you for this video and reading my comments.

Chronic fatigue syndrome/ME is not a psychiatric illness, it is a complex neuro-immune disorder! Chronic fatigue might be a symptom of a psychiatric illness. Please make this difference in your next lecture? Thanks

incredible talk, wow

Wow, what an amazing presentation!

How do I find out if I am Lp(a) null? I have done a DNA test through 23 and me. Is the data already in there to be found? In my case I have good reason to doubt my non-detect Lp(a) level is genetic as the literature states. I am wondering if my non-detectable level Lp(a) might be an epi-genetic effect of my rare combination of diet (low carb/carnivore and OMAD) and exercise metabolic regime (long distance thru-hiker who spends months on-trail hiking 10 to 12 hours per day). None of my 3 siblings have Lp(a) levels that are non-detect. With respect to Lp(a), the literature does not speak to the effects of a zero carb/carnivore diet or daily high intensity long duration exercise. From what I have been able to discern, my combination of diet and exercise constitute a metabolic regime for which there is no published data or research. My Lp(a) is non-detect (<8.4 nmol/L). The lab flagged the non-detect result with an * asterisk footnote stating "Results verified by repeat testing". Small LDL-P is also non-detect (<90 nmol/L). Large HDL-P = 14.5 umol/L HDL-P = 36.9 nmol/L LDL-C = 126 mg/dL HDL-C = 90 mg/dL Triglycerides = 37 mg/dL Cholesterol (Total) = 222 mg/dL Fasting Insulin = 2.6 uIU/mL C-Peptide = 1.5 ng/mL In my case, I am 59 with a history of insulin resistance and a host of associated metabolic problems. I now live on a zero carb/carnivore diet and eat on a One Meal A Day (OMAD) intermittent fasting schedule. I am now insulin sensitive and all metabolic problems have been reversed. No medical problems. No medications. Blood work and vitals are all very good. I had my blood work done after 3 months on-trail hiking the Appalachian Trail (2,200 miles) from Georgia to Maine. I maintained my zero carb/carnivore diet and OMAD eating schedule (with no snacks) on-trail. I hike 10-12 hours per day covering 12 to 15 miles carrying a 35 lb pack over hilly steep mountainous terrain. Heart rate is near maximum for several hours a day during ascents. My resting heart rate is in the 40s.

This is very helpful, I’ve been diagnosed with fibromyalgia and I have spinal cord injury, thats more than 20yrs old. I often wondered if some of my fibro symptoms were FND related. I get sudden headaches that trigger bad shaking of my body, I loose control of body function of my legs to the point of falling down, and sometimes bladder. MS and epilepsy have been ruled out. And talking at times I trip over my words, my fibro fog gets extremely bad. My whole body gets shuts down. Full total system overload. And stress is a huge trigger for the tremors I experience. I’d like to make comments on the Australian FND Hope, but they’ve disabled their comments. Can a GP diagnose FND, or does a Neurologist need to. Our hospitals are back logged with a 18mth to 2yr wait to see a specialist. You’ve provided a plethora of crucial information on this vlog. Thank you.

Very good talk.

Very interesting, and as someone who is still waiting to see cardiology, reassuring. Thank you

He is lip smacking.😟

Thanks awfully.

excellent lecture Thank You..

Thank you for this video and to Dr Glenn Nielsen particularly. I have diagnosed FND for 14 years and as with most with FND my symptoms have progressed and evolved. I started with paralysis (waist down), and gait issues. This has evolved to less of these symptoms but, more to speech, tremor and facial paralysis. Both before and current problems also affect excretory systems too. Given that I know is that flickering lights and bright white car headlights (or bright white lights in general), trigger my facial paralysis, cognitive reasoning and the closing of my left eye; I have often wondered if a clinically introducing a flickering or white light whilst undergoing a fMRI may help to distinguish what is going on neurologically in greater detail. I also know that heat, inability to take breaks when needed and high stress affects my gait and speech and cognition. I am sure these have already been extensively studied explored but, I am very interested in helping others with FND and helping the advancement of treatment and education. Best wishes and once again, thank you. Dan

My mother's lp(a) done after she got MI(2006).. Was17mg/dl!

There is no mention of severe and enduring mental illness and the risks of CVD. This is shocking considering those with SMI have a reduced lifesoan of 10 to 20 years.

Slides are not clear