CF Week 2024: Stuart's story
1:40
CF Week 2024: Thiago's story
1:56
Пікірлер
@SulfuronBGS
@SulfuronBGS 8 күн бұрын
THERES NAE PORN ON IT
@7thCruisader
@7thCruisader 15 күн бұрын
I have CF, I’m about to be 26. 💪 can’t stop won’t stop fighting the pain
@TTEBHealingconnection
@TTEBHealingconnection Ай бұрын
👤
@CooperArmstrong-y4m
@CooperArmstrong-y4m Ай бұрын
Harris George Clark Jason Davis Jason
@AdityaRawat-g6g
@AdityaRawat-g6g Ай бұрын
K
@heatheryearwood9199
@heatheryearwood9199 2 ай бұрын
Oh God why?
@YreneYuhmi
@YreneYuhmi 2 ай бұрын
Thank you so much for sharing this chat. Very important...much love from Spain ❤
@markcampion1029
@markcampion1029 2 ай бұрын
Ima cf in ireland 37 tabs per day. Fuk them its mental strength my friend. We'll break barriers.
@markcampion1029
@markcampion1029 2 ай бұрын
I'm a cf lad from Ireland. 1 in 19,highest in the world. Been told all my life u have cf bla bla bla. Fuk off. 44 n only getting better. God bless us all. Mental strength let's go..
@RohitSormaes-t6j
@RohitSormaes-t6j 2 ай бұрын
Hall David White Timothy Taylor David
@krugmeister7301
@krugmeister7301 3 ай бұрын
What ever you Do ..Don't SMOKE 🚬..Even if you have CF..
@krugmeister7301
@krugmeister7301 3 ай бұрын
My Late Father Died of IDIOPATHIC FIBROSIS...He was 59...And I'm worried about me having this Horrible Illness...And I'm only 51..
@PeoplesGovernments
@PeoplesGovernments 3 ай бұрын
Hello🤗
@thetaylorfamliy2099
@thetaylorfamliy2099 3 ай бұрын
I’m the healthiest kid in the world with it
@azukarzuchastux8066
@azukarzuchastux8066 4 ай бұрын
1 Corinthians 15:3-4 KJV 3 For what I received I passed on to you as of first importance that Christ died for our sins according to the Scriptures, that he was buried, that he was raised on the third day according to the Scriptures John 3:16 16 For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life Ephesians 2:8-9 8 For by grace are ye saved through faith; and that not of yourselves: it is the gift of God: 9 Not of works, lest any man should boast ROMANS 10:13 For “whosoever shall call upon the name of the Lord shall be saved.” 
Acts 2:38 - Then Peter said unto them, Repent, and be baptized every one of you in the name of Jesus Christ for the remission of sins, and ye shall receive the gift of the Holy Ghost
@azukarzuchastux8066
@azukarzuchastux8066 4 ай бұрын
1 Corinthians 15:3-4 KJV 3 For what I received I passed on to you as of first importance that Christ died for our sins according to the Scriptures, that he was buried, that he was raised on the third day according to the Scriptures John 3:16 16 For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life Ephesians 2:8-9 8 For by grace are ye saved through faith; and that not of yourselves: it is the gift of God: 9 Not of works, lest any man should boast ROMANS 10:13 For “whosoever shall call upon the name of the Lord shall be saved.” 
Acts 2:38 - Then Peter said unto them, Repent, and be baptized every one of you in the name of Jesus Christ for the remission of sins, and ye shall receive the gift of the Holy Ghost
@azukarzuchastux8066
@azukarzuchastux8066 4 ай бұрын
1 Corinthians 15:3-4 KJV 3 For what I received I passed on to you as of first importance that Christ died for our sins according to the Scriptures, that he was buried, that he was raised on the third day according to the Scriptures John 3:16 16 For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life Ephesians 2:8-9 8 For by grace are ye saved through faith; and that not of yourselves: it is the gift of God: 9 Not of works, lest any man should boast ROMANS 10:13 For “whosoever shall call upon the name of the Lord shall be saved.” 
Acts 2:38 - Then Peter said unto them, Repent, and be baptized every one of you in the name of Jesus Christ for the remission of sins, and ye shall receive the gift of the Holy Ghost
@MrChangeordie
@MrChangeordie 4 ай бұрын
They be so quick to tell u so much about diseases but never do they have a cure...yeah here take medication 💊💊💉💊
@lesleyblaikie7031
@lesleyblaikie7031 4 ай бұрын
Thanks for sharing your story
@gamerswebUK
@gamerswebUK 4 ай бұрын
My amazing granddaughter Naomi was only 13 when she took part in this awesome video and is still singing loud and proud❤
@tracysue1747
@tracysue1747 4 ай бұрын
Awww so SO sorry to hear that. God bless you sir. ❤️🙏🏻
@kaylienicole69x3
@kaylienicole69x3 4 ай бұрын
😮 we we q m
@nev3i
@nev3i 4 ай бұрын
Baby Thiago will be just fine 🥰 I am 22 and living a normal and full life, my parents tried to keep things as normal for us as possible and im so grateful for that
@stefanabaseaca9393
@stefanabaseaca9393 2 ай бұрын
Hi,my baby girl was diagnosed 3 days ago wit cf,and we are devastated, can you share with us same of your experience 😢
@HelenAngelo-pc7nw
@HelenAngelo-pc7nw 5 ай бұрын
Best regards to you drosuma I'm permanently cured from pulmonary fibrosis all thanks to your herbs ..
@Izaachou
@Izaachou 5 ай бұрын
i really hope there will be more research done on how to improve gut microbiome in CF, i really feel this is the key to loads of issues we face, mental and physical!!
@bobrushing1085
@bobrushing1085 6 ай бұрын
To all sufferers of CF , friends and family of sufferers, love you all . I was diagnosed in 1964 and just turned 60 last month.
@OracleTheRonin
@OracleTheRonin 6 ай бұрын
Sometimes I can’t understand the Geordie “people”
@srishtisrishti6281
@srishtisrishti6281 7 ай бұрын
Hiii My name is Ankit kumar I am Indian I am all Cystic fibrosis I live in Delhi I am 32 year old
@rammohanrao603
@rammohanrao603 7 ай бұрын
My beautiful son Kalyan 15/03/1997#07/03/2024 at the age of 27 years old died from cystic fibrosis complications of post Lungs transplantation operation at yashoda hospital secunderabad May he rest in peace and Love ❤️🙏 my son Kalyan
@rammohanrao603
@rammohanrao603 7 ай бұрын
My only beautiful son Kalyan died cystic fibrosis and after that both Lungs transplantation operation may he rest in peace at age of 27 years old boy
@paulwarren8832
@paulwarren8832 7 ай бұрын
Amazing video - wonderful to hear these personal accounts. Thanks for sharing.
@celycute1
@celycute1 7 ай бұрын
Why is there no surgery? Like CARDIAC BYPASS SURGERY
@charmainede-bell8763
@charmainede-bell8763 8 ай бұрын
I just found out that my adult child's CF team has mentioned CF STORM to him. I do hope he gets to take part
@charmainede-bell8763
@charmainede-bell8763 8 ай бұрын
Thanks, I'm finding this very interesting as a parent of an adult with CF
@VivianUwakwe
@VivianUwakwe 8 ай бұрын
This was an amazing video
@alaina2501
@alaina2501 8 ай бұрын
I began working in the healthcare field a few months ago and I'm glad I overheard my clinic manager mention CF. Thank you Emma Lake for sharing your feelings about CF and spreading awareness! I hear you and I see you. 👏💜🎗
@TheRamymohamed
@TheRamymohamed 8 ай бұрын
😢 i saw this video 3 years ago now am using this creon like u brother stay strong❤❤
@idelphoseakodomon2773
@idelphoseakodomon2773 8 ай бұрын
How much is a price for Creon 10,000
@محمدهاشم-ع3م
@محمدهاشم-ع3م 9 ай бұрын
I hope to you good health and You should be Muslim
@nidgeb2256
@nidgeb2256 9 ай бұрын
"So he flips him over and he ffff....funnily enough it lands on its wheels and drives away"
@AWayOfLiving84
@AWayOfLiving84 9 ай бұрын
Does your family care for you? If they do that's a good thing. As long as they don't overcare. I've noticed families with no money problems care more. Is that because I have no money problems?
@AWayOfLiving84
@AWayOfLiving84 9 ай бұрын
👣🌍☯️🤷🏻‍♂️ I am healthier than most. But I still get sick a bit. At the moment it's as bad as it's been in a while.🫣 I will have some money to get a nebuliser soon. Saving. Usually I'd go to hospital when I'm this bad but I can't. Believe what you want to believe. Cause that's what people do
@AndreaAlcaldeGonzalez
@AndreaAlcaldeGonzalez 9 ай бұрын
Melanie chisholm is asome woman l feel exercise again
@adedamolaadeleke6228
@adedamolaadeleke6228 9 ай бұрын
Well 19th march another young ade's birthday he's my cousin
@adedamolaadeleke6228
@adedamolaadeleke6228 9 ай бұрын
Well done ade.
@michaeleinstein7097
@michaeleinstein7097 10 ай бұрын
I'm so grateful for the incredible progress in CF treatment! Kaftrio and Kalydeco has been a miracle for me for the past 3 years, thanks to the dedication of researchers like Dr. Nick Simmonds. While his talk highlighted the challenges faced by those not suitable for Kaftrio, the HIT-CF project offers immense hope for those who haven't found their miracle yet. Thank you, Cystic Fibrosis Trust, for supporting Dr. Simmonds and other researchers in their quest for a cure for everyone! I'm beyond excited to see what the future holds for personalized medicine and can't wait to hear more about the next steps for HIT-CF."