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@MF-zq8jh
@MF-zq8jh 7 күн бұрын
Thank you for explaining this so clearly, it has helped me to understand follicular lymphoma in more detail.
@carisacarynaslund3381
@carisacarynaslund3381 13 күн бұрын
My mom just got diagnosed today with a relapsed MCL. And ive been crying my eyes out scared that this disease will take her away from me. This video helped me to look at this horrible situation in a little more optimistic way. Thank you for that. and to everyone fighting this disease and their supporting friends and family: bless you and stay strong!
@pegnash6374
@pegnash6374 15 күн бұрын
Thank you so much for this amazing information!
@patriciahorvath1137
@patriciahorvath1137 22 күн бұрын
My husband ,strong ,healthy, full of vigor for life,was diagnosed with MCL at 32 yrs of age in 1997 He suffered incredibly thru all of the aggressive chemotherapy treatments for 30 months! His 4 children and I miss him terribly, if only he could have lived to receive these life prolonging treatments!! SAD
@murrayroadstrong
@murrayroadstrong 23 күн бұрын
I’m a 5 time/20 year survivor of PCNSL. I had a ASCT at MSK 6 years ago for my 5th relapse under the care of Dr Christian Grommes. I’m 53 years old and I was 34 when Dx. This is no longer a death sentence!
@cassies6037
@cassies6037 26 күн бұрын
Do you cover LPL
@sal9113
@sal9113 Ай бұрын
thanks for the contents posting here its really helpful for many hematologist , do us a favor and please specify a webinar to Lugano classification of NHL in details here , its really needed to be covered by your team which is really we have many challenges in clinics for staging , evaluating involving organs , extranodal sites , ... and so on, thanks a lot !!
@therealsandraweise
@therealsandraweise Ай бұрын
I met a new friend that also has follicular lymphoma and has been treating her FL with medical ketosis for 6 years! Following Dr. Nasha Winters, Dr. Jason Fung, Dr. Boz, Dr. Ken Berry and following Thomas Seyfried PhD that scientifically shows how to starve cancer. Glucose (sugar) and glutamine are THE PRIMARY FUEL for all cancers. This shouldn't be so controversial, but please nresearch multiple treatments for what actually gets to the root of your cancer! You are worth it! American nutrition is abysmal and very sick. Nutrition must be addressed as a significant factor in a multi approach to treatment.
@AIRMANBEAR
@AIRMANBEAR Ай бұрын
thank you excellent information....!
@DogMama7777
@DogMama7777 Ай бұрын
My 21 yo daughter was just diagnosed with DLBCL. Her’s was in the bone.
@kathleen6349
@kathleen6349 Ай бұрын
You didn't address the subject of Refractory Lymphoma although it's referred to in your title.
@kristle_virgo-empathic4683
@kristle_virgo-empathic4683 Ай бұрын
Im over this condition. I know it can be worse, and Im very blessed, but Im always in the damn radiation department and now Im talking Bexarotene. I still get tumors. My doctor took me off Nitrogen Mustard. Now Im taking Valchlor topical gel. Itss been 20 years. Any advise?
@annemetzger1915
@annemetzger1915 10 күн бұрын
I have had this condition for 10 years and after researching online I found a study where Vitamin D3 helped some people but in big doses so I took a blood test that showed my D3 was very low and after taking 7000iu daily for a year my mycosis fungoides completely disappeared
@christismystrength6521
@christismystrength6521 8 күн бұрын
​@@annemetzger1915 7000 iu ( of vitamine D3 daily ) - daily for a year, does it mean each day during the year ? Please, would you answer me ? Greetings from France.
@annemetzger1915
@annemetzger1915 7 күн бұрын
@christismystrength6521 I take it on and off especially in the summer months but everyday in the winter when there is not enough exposure to the sunshine here in Canada. Make sure you Take D3K2 as you dont want the calcium going into your arteries. Also check your D3 levels to make sure you are taking enough. Hope this helps
@TheInnerPact
@TheInnerPact Ай бұрын
Thank you for working so hard to save lives 🙏
@cassies6037
@cassies6037 Ай бұрын
How is Waldenstrom related to a cell lymphoma
@cassies6037
@cassies6037 Ай бұрын
Where does Waldenstroms come from into the picture
@malcolmtottle
@malcolmtottle Ай бұрын
Am on the trial for the phase 3 Odronextamab here in the UK and commence treatment in a few days. Pleasing to know there are many people like your good self sharing and analysing results so as to offer the best treatment (if any) to patients in the future. Very assuring video, thank you.
@clarissahopkins1148
@clarissahopkins1148 Ай бұрын
Thank you for your dedication to help us live longer.
@kimberlysmith2400
@kimberlysmith2400 Ай бұрын
I’ve not been diagnosed with Lymphoma but have many symptoms related. Recently I have been doing research on Lymphoma. I have no medical background. This is all new to me. I listened to the seminar and say, as a patient, the best part was the progress research has come up with and is continuing to enhance, are tests. Not such intense testing to go through, to diagnose and treat certain lymphomas. For instance, some may not even need chemo, or radiation and esp bone marrow biopsy. I have literally procrastinated, in fear of all the testing itself. And I understand sometimes it does have to be done. However, it was good news to hear. On another note, I was hoping to get out of the seminar, more discussion on symptoms and when you should take it more seriously. I appreciate you taking the time to explain the illness; where does it begin and how was extremely useful to know also. Thank You
@luiscarlosrodriguezsancho1436
@luiscarlosrodriguezsancho1436 Ай бұрын
thanks
@StarleneAllego
@StarleneAllego 2 ай бұрын
My daughter suffering from anaplastic large cell lymphoma she is 2years old i don't know what to do and we dont have a lot of money to pay her laboratories and all please Lord🙏 hepl us.. i love my daughter so much why at a young age suffered this kind of cancer 😭
@SajidAli-qz6vd
@SajidAli-qz6vd 2 ай бұрын
Helo Dear i am sajid ali from pakistan . My father is seffring from SLL and CLL age 90 year old Massive splenomegaly Wbc 21000 Plates 72000 Only Plz advise treatment plz .
@proadam6496
@proadam6496 2 ай бұрын
Şu an nasılsın?
@LalisaKadir-z9h
@LalisaKadir-z9h 2 ай бұрын
All tha time tha complain hestore off my family becod thay kiil
@LalisaKadir-z9h
@LalisaKadir-z9h 2 ай бұрын
Many off than da Dadi by game many off them Dadi by nife like musan gamada like mome all I well name fore you many off tham by eletirist
@LalisaKadir-z9h
@LalisaKadir-z9h 2 ай бұрын
I well name f ok re you hose dadi
@LalisaKadir-z9h
@LalisaKadir-z9h 2 ай бұрын
I'm lalisa kadir from ethopia becod off my family dadi fore long Tim please off tham Bale goba rira qabale like 100 dadi my family so can you xsapet tham to Cam usa
@tlcustard69
@tlcustard69 2 ай бұрын
Possible non invasive cure. Here is your Sign. kzbin.info/www/bejne/n5y2nYCigquGba8si=MbLXCN0QFFpqaSZE
@hyacinthcastelino7426
@hyacinthcastelino7426 2 ай бұрын
Thank u doc. God blessvu!
@hyacinthcastelino7426
@hyacinthcastelino7426 2 ай бұрын
Thank u doc. God bless u! I am also a follicular lymhoma patient from four years. No treatment so far. Just wait n watch n I am careful about my diet. No sugar exercise,sleep well drink plenty of water.
@kdo8208
@kdo8208 2 ай бұрын
I have similar symptoms. Can anyone recommend several hospitals in USA for such a diagnosis and treatment? Canada seems take this diseases very lightly.
@DutyRon
@DutyRon 22 күн бұрын
Memorial Sloan Kettering Cancer Center in NYC
@SimirJohnson
@SimirJohnson 2 ай бұрын
Was diagnosed with Waldenstroms 2 months ago. I appreciate your insight and encouraging words.
@hemasiranjeevi3584
@hemasiranjeevi3584 2 ай бұрын
Well explained
@crmbonnici
@crmbonnici 2 ай бұрын
what couse limphoma?
@GeraldineKraushaar
@GeraldineKraushaar 2 ай бұрын
Now successfully will these drugs work for stage 4 dlbcl
@StellaBloise
@StellaBloise 2 ай бұрын
3227 Pedro Causeway
@LaurenRandolph-m2z
@LaurenRandolph-m2z 2 ай бұрын
Swift Track
@DonnaWhite-z8d
@DonnaWhite-z8d 3 ай бұрын
Jamar Rapid
@kevanhubbard9673
@kevanhubbard9673 3 ай бұрын
I have stage 2B Mycosis Fungoides T Cell Lymphoma and got tingling in my fingers and toes from Brentuximab which hasn't gone 6 months later plus it didn't work!Now a Stem Cell Transplant looms.
@TomlinsonCyril
@TomlinsonCyril 3 ай бұрын
8388 Corkery Courts
@deusexmachina1421
@deusexmachina1421 3 ай бұрын
My mom started to have tingling in both her feet & calves after her last hematology appointment. Dr perscribed her with calcium tablets but the pain won't go away (only getting worse according to mom) could that possibly be something to worry abt?
@kimberlybegonia2869
@kimberlybegonia2869 3 ай бұрын
My husband just passed away from MCL after 10 years of treatments. First tumor was at the base of his tongue 😮 then 5-6 years later relapse was a tumor in his upper R lung hilar region. My only advice is after you gain remission first time just live your life because this is incurable and it is unpredictable. 🙏🏼💜
@louclarke2338
@louclarke2338 3 ай бұрын
Looking for the English translation. Is one available?
@zippyustar6350
@zippyustar6350 3 ай бұрын
What is follicular lymphoma? Symptoms? Where does it show up? Scalp chest shoulders? Is thrush part of it? How does sugar affect the body?
@tomjenkins8817
@tomjenkins8817 3 ай бұрын
Thanks for the great information.
@at6969
@at6969 3 ай бұрын
Awesome
@gudmundurgaukur282
@gudmundurgaukur282 3 ай бұрын
<3
@indefat
@indefat 4 ай бұрын
Really good lecture.
@LeoLover-l9e
@LeoLover-l9e 4 ай бұрын
Just had a biopsy. Waiting on the results. Been 24 days so hoping no news is good news.
@jennas17
@jennas17 4 ай бұрын
My mom was just diagnosed with B-cell follicular lymphoma grade 1.
@giannimolluso5846
@giannimolluso5846 4 ай бұрын
Im 55 years old and I was diagnosed with Stage 3 Follicular Lymphoma. I had 4 treatments of Rituxan only and going for my follow up PET scan soon.