6 ай бұрын
7 ай бұрын
8 ай бұрын
8 ай бұрын
8 ай бұрын
Пікірлер
@ybarden2491 Ай бұрын
How can a person who exhibits many symptoms of bvFTD and needs help getting a diagnosis do this when insurance does not cover the more precise PET scans or genetic testing? Can he volunteer to participate in research ?
@ybarden2491 Ай бұрын
How can a person who exhibits many symptoms of bvFTD and needs help getting a diagnosis do this when insurance does not cover the more precise PET scans or genetic testing? How can he volunteer for research ?
@TheAFTD Ай бұрын
Hello! We encourage you to contact AFTD’s HelpLine for guidance on navigating the diagnostic process, exploring options for accessing tests, and learning about opportunities to participate in research. You can reach the HelpLine at [email protected] or call 1-866-507-7222.
@janegefell6502 Ай бұрын
His Sister has Cerebral Palsy and I WAS BORN THIS WAY
@janegefell6502 Ай бұрын
This is very interesting. My BROTHER WAS JUST DOING WITH THIS FTD 😢
@janegefell6502 Ай бұрын
Now I am aware ftdd
@LauraMorrisrnmd Ай бұрын
In 2019 I was told I had FTD. I was misdiagnosed . I am still alive though I never recovered all my memory. It turned out memory and speech deficits were caused my excessive electroshock treatments for depression. I am so grateful to be spared this horrible disease, even though I had to live for two years in a nursing home before my brain recovered.
@AnneBarnes-z9b Ай бұрын
What are the symptoms of bvftd,?
@TheAFTD Ай бұрын
Hi Anne! Click here to learn about the symptoms of bvFTD: bit.ly/49GahtC
@tippimaravala Ай бұрын
A sri la kan gang with 2 uk celebs are taegetting me 4 money and using microw weapons on me via nx door and have houses nearby and been using some nejghbours and tbis amazon dubs
@janegefell6502 Ай бұрын
Thank you for sharing the video,I know more about my brother who has this issue.
@janegefell6502 2 ай бұрын
Even with Cerebral Palsy we fisted hands. I have a kin’s of all kinds of equipment 😊
@janegefell6502 2 ай бұрын
I have cerebral palsy and I have speech dysplasia. It’s similar Jane
@peterlelievre 3 ай бұрын
Wow. A great presentation which helps explain a disease that has been running in my family.
@robertspencer3694 3 ай бұрын
Utilization behavior is using a tool or object when it is seen, regardless of whether it is the right circumstance to use it. See a glass, take a drink.
@PatriciaWilliams-s3q 4 ай бұрын
Martin Mark Clark Anthony Lopez Mary
@elainerose1046 5 ай бұрын
Dr. Ghoshal describes FTD, a very complicated disease, in clear, concise, VERY understandable language that family members and patients alike can hear. An excellent foundation for those having to navigate this difficult illness.
@tinafasce3006 6 ай бұрын
My husband passed FTD and at the time I didn’t even think to donate his brain. I am so sorry. I wish I had but I love this website and will continue watching it.
@TheAFTD 6 ай бұрын
Tina, we are deeply sorry for your loss. Please don't feel bad about not donating his brain; every person's journey with FTD is different, and decisions are made with the best intentions in mind. We appreciate your kind words about our website and your continued support. If you ever need anything or want to talk, our HelpLine is here for you at [email protected]
@tinafasce3006 6 ай бұрын
@@TheAFTD thank you so much
@deannabynum754 6 ай бұрын
God Bless your two families! I was just told 10 years ago i was diagnosed with ftd but doctors never told us . Just said i was depressed. Its got worse the last 6 months and we went to a hospital that does research and they said right away what it was. We fought so many years saying i cant drive and get lost and have trouble with my words. Because doctors never saw the dad days... they said i was just depressed and put me on mefs that flipped me out. Its been so hard but even learning what it is was the hardest. Thank each of you for sharing
@TheAFTD 5 ай бұрын
Deanna, thank you for sharing your story with us. We're deeply sorry to hear about the struggles you’ve faced, both with the diagnosis and the years of misunderstanding from doctors. It must have been incredibly frustrating and challenging. Please know that you’re not alone in this journey. We are here to offer support and guidance. If you have any questions or need someone to talk to, our HelpLine is always available at [email protected]. Sending you strength and compassion.
@KSalsfighter 6 ай бұрын
Thank you for all you do, Esther!
@djalbums37 6 ай бұрын
Thank you for all the work you do!
@AhmedIislamRevertPunjabiMuslim 7 ай бұрын
my father was suffering from dementia. This year he passed away on 12th January 2024. This is a very painful disease. bvFTD Means Shrinkage Of Front Side Of Brain bvftd symptoms are personality changes, patient loses weight, has memory loss, cannot eat on his own, cannot wear clothes, cannot walk and has sleep problems In frontotemporal dementia, the patient also suffers from #apahsia Means loss of voice.he can't speak Science has just found out that there is no cure for this disease, why this disease occurs, science still does not know. Quran had told about dementia 1500 years ago. This is one of the signs of Allah See video-kzbin.info/www/bejne/Y36rg5V_ms-sqKMsi=gq7YIGRXD7INM6g_
@LoveAboveAll4 7 ай бұрын
My hope is Tom Nash Jr. ❤❤❤ thank you both so much
@robinberkley8193 7 ай бұрын
Thank you, you are all selfless in this battle.
@debbieelkins5100 7 ай бұрын
Amazing sisters. What’s beautiful way to honor your mom. She’s so proud of you, I know it.
@sandiwong9836 7 ай бұрын
Thank you all for sharing your stories. I agree with Bob, the word “dementia” is misleading. People “think” they know what dementia means, i.e. forgetfulness, child-like, unable to answer questions, etc, and they make assumptions about what you can or cannot do. I wish they understood that brain cells are dying, and its a terminal disease.
@keitymarley733 8 ай бұрын
My prayers are with you all and I know how you all feels, my Dad suffered same illness for 13 years until madida herbal center came to his aid and cured him with their natural PD herbal medicine, Click and search #DrMadida, and let your Parkinson Disease be taken care of and be cured just same way my Dad’s own was taken care of and cured👌👌👌
@keitymarley733 8 ай бұрын
My prayers are with you all and I know how you all feels, my Dad suffered same illness for 13 years until madida herbal center came to his aid and cured him with their natural PD herbal medicine, Click and search #DrMadida, and let your Parkinson Disease be taken care of and be cured just same way my Dad’s own was taken care of and cured👌👌👌
@lizgeorgebarker3873 8 ай бұрын
Is there any hope for treatment or recovery or is it a one way train to demise? 😞Is FTD being researched?
@TheAFTD 8 ай бұрын
Scientists are closer than ever to breakthroughs that will bring meaningful change to families facing FTD. Participation from the AFTD community makes their work possible! Learn more here: www.theaftd.org/research-clinical-trials/ways-to-participate/
@tanishafoxworth8328 8 ай бұрын
I just lost my Dad to this 7 days ago 💔😭🙏🏽
@TheAFTD 8 ай бұрын
Tanisha, we are deeply saddened to hear about the loss of your father. Please accept our heartfelt condolences on behalf of all of us at AFTD. Losing a loved one to FTD is an incredibly challenging experience, and we can only imagine the pain you must be feeling right now. During this difficult time, please remember that you are not alone. We are here to offer you support in any way we can. Our HelpLine is available to provide assistance and comfort whenever you need it. Whether you need someone to talk to, information about coping strategies, or resources for dealing with grief, please don't hesitate to reach out to us at [email protected] Please take care of yourself, and know that our thoughts are with you during this time ❤️
@cathchapo 8 ай бұрын
I'm sending you some love, dear Tanisha. I lost my Dad a year and a half ago too from FTD. <3<3<3
@KSalsfighter 7 ай бұрын
I am so sorry. It is awful....
@tomemberley 8 ай бұрын
Thanks to all of you for sharing your thoughts and experiences. Thank you for educating us on what you experience daily and how we can all become better listeners and minimize the stigma associated with FTD. @KevinRhodes, thank you for continuing to educate me and for all that you do.
@robinberkley8193 8 ай бұрын
Thank you so very much for sharing this information. I praise all of those on the council for their courage.
@LoveAboveAll4 8 ай бұрын
❤️❤️❤️❤️
@SomeBuddy777 9 ай бұрын
I'm still here... but I can't remember me... or why... 😮💨
@SomeBuddy777 9 ай бұрын
Sdaly encouraging...
@Sushi2735 10 ай бұрын
This and ALS, simply a nightmare straight out of hell. 😢
@TheAFTD 9 ай бұрын
AFTD is here to help! Call the HelpLine 1-866-507-7222 (toll-free) Monday through Friday from 9 a.m. - 5 p.m. ET or email us with a question at any time at [email protected].
@lauralaplace9945 10 ай бұрын
I’m 59 and going to see a Neurologist, I asked my Dr a few times about Dementia and Frontal Lobe and also Vascular Dementia. It’s been a back and forth journey therapy partial hospital program medications 💊. I have had brain fog and TBI’s . A lot of what was said . I will see what the Neuro says.
@TheAFTD 10 ай бұрын
The AFTD Helpline (1-866-507-7222 or [email protected]) can provide more information on subtypes of FTD, give guidance on managing a new diagnosis, and help connect you to resources and support.
@lauralaplace9945 10 ай бұрын
🙏🥀🥀
@mariabumbar5180 10 ай бұрын
I have enrolled myself for this webinar, but I could not attend it because of illness. I have watched it offline, here on KZbin. May I still receive an attendence certificate?
@TheAFTD 10 ай бұрын
Hi Maria! Yes, you may still receive an attendance certificate. What is your email?
@robinberkley8193 10 ай бұрын
How long can FTD symptoms last? 1 to 20 years?
@TheAFTD 10 ай бұрын
The decline happens slowly at first and the length of progression ranges on average from 7-10 years.
@robinberkley8193 10 ай бұрын
@@TheAFTD is it possible to go longer than 10 years?
@TheAFTD 10 ай бұрын
@@robinberkley8193 Hi Robin! For more information, please reach out to our HelpLine at 1-866-507-7222 or [email protected]
@BackyardButcher 10 ай бұрын
This looks like a "rich person" problem 😔
@laurawilliams9338 10 ай бұрын
Thank you for sharing this.
@ايهابفضلاليمني-ب8ه 11 ай бұрын
O was unaware i was only a child with it
@josho_reacts2.0 Жыл бұрын
I am struggling
@TheAFTD Жыл бұрын
Hi Josh. We're really sorry to hear that you're struggling. It's important to remember that you're not alone. If you need someone to talk to or support, our HelpLine is here for you. Reach out to us at 1-866-507-7222 or [email protected].
@SR-bw3sc Жыл бұрын
So sad: so many misdiagnoses! 😢Tragic really.
@Tina.Mindful Жыл бұрын
Thank you for having you 🙏👍 Already watched some WBT's. Greetings from Germany 🫶
@jodyblack7951 Жыл бұрын
I have temp guardianship of my 32 yr old son. How do i get him evaluated for bvftd? The Dr's keep turning him to mental health. He currently lives with me and we struggle with everything mentioned in this video. We are in zip code 48766 Can you please refer us to a specialist in bvftd?
@TheAFTD Жыл бұрын
Hi Jody! We're sorry to hear about the difficult journey you and you're son have been on. Please get in touch with our HelpLine for more information on research and medical centers with doctors most experienced in diagnosing the disease. Our number is 1-866-507-7222, or email [email protected].
@susanhoran6576 Жыл бұрын
Thank you for making this movie it’s very helpful to understand what is happening to my sister.
@karinparsons1465 Жыл бұрын
Thank you for this.
@Bkerrick100 Жыл бұрын
I wish I had known this was going to be on. :(
@TheAFTD Жыл бұрын
Hi Barb. We're sorry you missed our AFTD Educational Webinar on Monday, October 2nd. We understand how valuable these webinars can be for gathering information and support. If you have any questions or if there's anything specific you'd like to know more about, please don't hesitate to reach out to our AFTD HelpLine. We are available to provide you with information, resources, and support related to FTD. You can contact our HelpLine at 1-866-507-7222 or [email protected], and we will be more than happy to assist you. Thank you for your interest in AFTD's resources and programs, and we're here to support you in any way we can.
@Piscesqueen1 Жыл бұрын
Do BVftd patients feel & know their symptoms on early onset? Please answer😊
@TheAFTD Жыл бұрын
Hi Insha! If you have any specific questions or need guidance, don't hesitate to reach out to AFTD's HelpLine. We have a team of trained social workers ready to assist you. You can contact them via email at [email protected] or by calling 1-866-507-7222. They're here to support you!
@annierotberg8861 Жыл бұрын
I noticed my brother having communication issues asap before others. I work as a speech and language assistant. I wish I found this when my brother was going through it. He since passed.