Dystonia Europe

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@lvelez1999 17 күн бұрын

I have a hard time taking a breathe when I sing and speak. I've sung for many years. I'm so sad 😞 I have a hard time reaching notes I once did

@robertpedersen7486 26 күн бұрын

What medications cause dystonia? Can Sertraline cause dystonia?

@OlaleyeHammed-vh1eh 27 күн бұрын

Hi, I can't find an option in the dystonia type selection while signing up on the app.

@julieschwartz2135 Ай бұрын

I went to so many doctors, some even suggesting the inability to control my mouth movement was in my head. After approximately two years of horrible suffering I was finally diagnosed, and began getting injections from a movement disorder neurologist. My hope for people currently misdiagnosed is that there is more attention brought to this particular type of dystonia so they don’t have to endure what the rest of us have gone through in the initial stages of this disease.

@sylwiabalcerek7181 Ай бұрын

Dziękujemy za wszystko czego dokonałeś dla innych chorujących na dystonię. Tak mi przykro, że już nie ma cię z nami. Odpoczywaj w pokoju ❤

@crayzeeCrystal21 2 ай бұрын

My hands cramp when I clean or cook sometimes flares up when I'm trying to write or type but its usually just cooking and cleaning mostly. I had an emg and nothing shown on my right arm or hand. Dr said something was wrong with my left elbow but because it happens equally in my left and right hand she wants me to do an mri but I can't afford one right now.

@paulekmikolow 2 ай бұрын

Ja, leider ist es so. Meine Spitzname in der Arbeit - "Wackeldackel" 😅

@scorpiocyn524 2 ай бұрын

I have throat dystonia. No one is listening. I've had this for 16 or maybe 17 yrs. I have quit breathing multiple times. I wish someone would listen to me. This is not anxiety. They keep giving me anxiety medication. Where these meds are awsome, they do not help. I just recently found. A. name. Alcohol helps very much.i do nor like drinking. I wish someone would listen. I've starred to quit breathing when I sleep. I wish.someone would listen. I just want someone to listen

@HettiedeKorteDiplomaat 2 ай бұрын

I really would like to know what it is exactly what you do with this tool. Rubbing one neck muscle? Does the tool have a name. Is there a video with those exercises? Thank you for your story.

@FullTimePatient37 2 ай бұрын

I started this yesterday, I pray it works ❤

@colinwhitehead7889 2 ай бұрын

Waking Famagusta

@TheNinjaprof 3 ай бұрын

superb summary!

@freemebaby26 3 ай бұрын

You need to talk about medications that people have taken from the doctor like Metronidazole ,that causes Dystonia in people ,also could be genetic!

@user-xy5wh7bm7t 4 ай бұрын

Why you didnt explain mechanism of development od dystonia? Why dbs helps, why should be dbs of gpi not thalamus?

@MsGinaKP 4 ай бұрын

I’m very curious what your thoughts are on “serial casting” for foot dystonia. My daughter was recently diagnosed with generalized dystonia and doctors have done 2 rounds of serial casting on her feet. Both times have disabled her completely. First time took at least 6 months to learn to walk again. This time she has yet to walk since I demanded they remove the casts. Starting Botox injections next week then they want to continue casting her feet. I don’t want this at all. But I need a dystonia doctor to confirm my belief that the casting is making her dystonia worse.

@dharmajoy938 4 ай бұрын

I went to 35 medical professionals, including 4 speech therapists and 8 neurologists. I diagnosed this myself after 4 1/2 years. It is only treated correctly by a movement disorder neurologist specializing in dystonia such as at northwestern in Winfield, Il. Dr. Gera gopal. The general and even a couple movement disorder neurologists had no clue. Good luck to you!

@katerinaberhami3770 4 ай бұрын

I’ve have lower limb Dysonia one foot and leg had it since 12 I thought it was normal and only started research it cause it has increased in episodes that it takes place it randomly happens when I lay down or sat down….. but I’m not aware of it being related to Parkinson’s I need to ask my doctors cause I always thought this was normal infill I started having contractions 2-3 days and my toes curl and fold on top of eachther

@marieferreira5250 5 ай бұрын

Tellement difficile

@barnettajohnsonthepancakem3792 5 ай бұрын

hardly ever included with fibromyalgia and never treated for the pain with actual pain medication. Treated with literally anything else is a wide open doorway to patient abuse by undermedicating the patient. its cruel behavior by NPs and PAs to ignor patients pain.