I would not do that to a child, Reagan. The grief and memory is the parents alone. This little girl and her life should be celebrated and not in the shadow of her sister. They're doing this to her and one day they will regret it

Thank you for this video ❤

In tears.....Ava for Sure had a reason to be your girl. She had Thee Best Parents and because of that, her blessings continue on and on. I can't wait to meet her in heaven, if I am so lucky ❤❤❤

Absolutely heartfelt ❤ watching Ava journey through her amazing parents and grandparents was just ever so " Powerful " Such a " Blessing " for every day and night , being there for Ava giving her love and warmth, she knew in her heart that being around her family and baby sister and furry baby 🐾 gave her strength and courage to conquer her sickness.RIP 👍🏼 beautiful little Angel Ava 🌹

Ava is a gorgeous girl.. What a beauty. God bless this amazing beautiful girl xoxo

We had a couple that owned a small cafe that had both beautiful daughters die of this disease! They were in the cafe everyday in playpens and in their high chairs! They got the awful diagnosis and closed their business! The girls died months apart! They were the nicest couple and it was so sad to lose both children! They said they wanted to spend every second with them!

Longest I’ve spent on KZbin but so worth it. I heard about your family through my family (we went to school with you). Thank you for sharing. You are a very talented director. Your family is so strong.

She was such a a beautiful child. She does look like an angel. God bless your beautiful family 🙏🕊️🙏

Beautiful

Amazing documentary!! I must admit I usually stop watching but yours kept me interested and wanting more. My heart is with you and your loss but mostly with your love of life!

Bless your hearts, you’re such wonderful parents. My daughter had Aplastic Anemia/Myelodysplastic Syndrome and she was dependent on blood transfusions twice a month. I also have a son and I can appreciate how hard it is to trying and being in the moment for both kids and I don’t know that people can fully understand what that means. Heaven sure got a sweet, beautiful angel and what touched me most was her laugh, her joyful spirit!😊

My friend at church, by a miracle had one just like her pass away a few weeks ago. She by a miracle humbled us all and fought every day, She spoke a few words before passing by miracle in her sleep peacefully at age 10. She outlived just being a fighter. never left her wheelchair, was always tube fed in the stomach. But, her smile is what I will always carry in my heart. Reagan and Ava are beautiful together. it was hardest on her little brother who is 8 years old. He cried for his big sisiter

Thank you for sharing this journey with us. Ava is beautiful. My 35 yr old daughter, Shelly, is entering the last stages of Tay-Sachs right now. It is a rotten disease. I will miss her dearly but will have lots of wonderful memories Including a Make A Wish trip when she was a teenager.

What lovely parents you are 🩷🩷💙❤️

You are beautiful amazing parents God sent Ava to you..he know how you could care for her❤❤❤

A beautiful angel called Ava.

Heartbreaking. You did everything you possibly could. 💔💔💔🙏🙏

You are all a beautiful family, even though I’m sure Ava is a Angel looking down on you and you carry her in your hearts daily. I suddenly lost my son to a aneurysm in his brain stem that we knew nothing about. My niece Rhianna Eve has a variety of differences as well, the main being a rare brain disease called lissencephaly. She was also born with Pierre Ruben syndrome, causing a cleft palate. The doctors gave her two years or less. She has many seizures every day and as a toddler one so bad that she broke her femur. She takes medicine by feeding tube, but we feed her smooth foods by mouth because she smiles so we know it is enjoyable for her. she of course is wheelchair-bound. Also being diagnosed with muscular dystrophy and several others that really don’t make a difference at this point when she was six years old. She was given a Make-A-Wish trip to Disney and stayed in the village. They made beautiful memories as well. She turned 25 years old in August. She’s our miracle though it’s a lot of work to take care of her. She is a blessing.

Ava couldn't have had better parents or family altogether. So much love! Thank you for sharing your heartwarming story and I'm so deeply sorry for your loss. Born and Angel, survived an angel and now your guardian angel!

1 beautiful family ❤

You could see how happy she was with them beautiful smiles ❤

🙏❤️

As a mom you never find that you ever think you are anything special doing everything you need to do because you love them more than any obstacle that hits you.Your love for your child gives you direction on what you need to do and you just do it with super human strength never thinking you cannot .

Wow amazing eva really lived in her short and inspiring life❤

Amazing amount of LOVE…❤

I cant emagine🥺😣😣💔

Such a beautiful little girl, so sweet. Horrendous disease.

Thank you for sharing ava..I wish yr family love and joy and peace. Xxxooo

Thank you for sharing your family's journey... Love to you guys! 💕

Thank you for sharing the story of your beautiful Ava so glad you got the camper for Ava to enjoy and make these beautiful video's Ava really looked happy outdoors, with the family. She really loved her sister. You as parents did an awesome job making her last years enjoyable for her, so glad your other children didn't have the same problems. So sorry for your loss of Ava.

Love Ava’s bubbles

Off subject… The Mom is so so STUNNING to me. Her hair is just AHHHMAZING!!!

Heartwarming Heartbreaking

Ava is absolutely gorgeous and has beautiful blue eyes. I’m so sorry for your loss. I’m sure y’all miss her greatly. Thank you for sharing Ava’s story and have a blessed evening. I lived in Alaska when I was a toddler. We had a camper and camped a good bit. I remember camping with snow on the ground. I’m sure Ava loved all of her adventures. My family and I were there March 27th 1964 during the 9.2 earthquake. 😘❤️🤗🙏🏻 Lisa lower 48 Florida.

It seems to me that Ava experienced more love and joy in her 4.5 years on Earth than most people do in 4.5 decades

❤❤❤

beautifully expressed

These is sweet😊😊😊

I’m so happy that you had Ava in your life. But I’m sorry for your loss. The most difficult part of life is losing a child. But Ava brought your family together and that’s a good thing ❤

I get it.. this was make a wish for the family.

You did a great job giving Ava a great Make-A-Wish. I remember camping with my family and your other daughter will have these memories to look back on for the rest of her life.

You are an amazing family.❤

I think helping to take care of my MIL in the late stages of Parkinson's has helped me read the tiny expressions better than some. Her parents obviously saw those moments of joy, twinkle and relaxation but they were my absolute favorite parts of the video ❤She was loved and at peace during her short time here

R.I.P. beautiful little angel 💔

A totally beautiful story. You are amazing people!

I went through the same thing when I was young I had brain cancer when I was two years old and I wasn't supposed to survive but I'm still here today and I will be 21 in June god bless ❤

Absolutely the best. My daughter has 2 little ladies who were gifted with the superpower of autism. It has been a pleasure and challenge but all three of my little granddaughters are superheroes and we would never want them any other way. Thank you for sharing your story ❤

god seeing her little sister giving her kisses...reagan will certainly be a wonderful kind and gentle woman. i bet you she might even be a doctor because of her sister Ava. I just love this family...it makes me sad but i love them.

Thankyou for sharing your amazing story! What a awsome family !

Aww this was a heartfelt story and I'm so happy that Ava's family took the time to share their adventures with us . Ava I know you are finally free to play in heaven with all the other little angels , free from all restraints and pain. God Bless your family for loving you with so much love.Even your little sister enjoys watching the memories of you being out at parks with a beautiful smile . So sorry for your lose and yous did your best to make sure Ava was a happy little girl. RIP Ava ,God needed you in heaven and now you are looking down on your family with that smile and laugh of yours. 😇😇😇😇😇😇💓💓💓💓💓💓