FTM: Fighting Major Health Issues
15:00
FTM: Big Coming Outs! (TW)
25:16
10 жыл бұрын
Starting Over and Finding Me
15:01
10 жыл бұрын
FTM: Crying and Hormones
3:13
11 жыл бұрын
FTM: 2.5 Years on T - Major Updates
15:04
FTM: Liminal Landing
6:02
12 жыл бұрын
FTM: Liminal Awakening
6:11
12 жыл бұрын
FTM: It Is What It Is
12:53
12 жыл бұрын
FTM: A Coming Out Story
9:36
12 жыл бұрын
FTM: 18 Months On T - Life Update
16:41
FTM: Introducing My New Name!
5:43
13 жыл бұрын
FTM: Final Name Change On The Way!!!
9:39
FTM: 1 Year 2 Months T Update
17:46
13 жыл бұрын
FTM: TransLife Tattoos and Stories
24:05
FTM: 1 Year On T!
2:46
13 жыл бұрын
FTM: I'm a Proud and Joyful Daddy!
6:41
FTM: 11 Months On T
12:19
13 жыл бұрын
Meditation
1:01
13 жыл бұрын
Bye Bye Bipolar Meds!!!
3:06
13 жыл бұрын
Пікірлер
@shemikia6936
@shemikia6936 5 ай бұрын
I had mine put in Wednesday today is Friday the pain um feeling now is way worse than the pain I was having that led me to getting the implant😢😭😭😭😭😭
@quinonessantello1819
@quinonessantello1819 Жыл бұрын
Aloha my bruddah 🤙 I just had to stem surgery 6 days ago and I'm still a lot of pain too bruddah 🤙 stay strong Mahalo 🤙
@mariestick6636
@mariestick6636 2 жыл бұрын
Cute
@lamonteellison6040
@lamonteellison6040 2 жыл бұрын
I have the same stimulator and I had 3 battery replacements within 6 years. They say the batteries supposedly last for 5 years each,strike 1. Strike 2 it causes me to have strong spasms in my body. When this battery dies I’m having the system removed.
@QWERTYUIOP-wu6ht
@QWERTYUIOP-wu6ht 2 жыл бұрын
Hi Gabe! How are you doing now? I hope you're well
@stevetillman602
@stevetillman602 2 жыл бұрын
Did have to stay in hospital
@mariahhaarstick591
@mariahhaarstick591 2 жыл бұрын
Cute
@marycausley9363
@marycausley9363 3 жыл бұрын
I just had my spinal cord stimulator in today and im in alot of pain i had a lamatamy with it how do you get through the pain the trial worked awesome for me so im just hopeing. In the next few days to get through the pain
@psi-ops1397
@psi-ops1397 3 жыл бұрын
hmmm, I've seen people say that their implant surgery went great and they had little to no pain just days later. I had my Gallbladder removed with zero medication, but tons of meditation. So what's the follow up on this? How did it all pan out?
@petramajernikova3260
@petramajernikova3260 4 жыл бұрын
You can definelty feel mine and also see it which I hate. I am quite slim so it's even more visible
@petramajernikova3260
@petramajernikova3260 4 жыл бұрын
I had it done 5 days ago. I fully agree, it hurts like hell, no pain meds for me tho only over the counter. Wish they gave me morphine. They would never give me that over here. I was very surprised how much pain I was in, had 2 panic attacks just after the surgery coz Of pain then it started bleeding thru, nurses asking me why in crying? Now I have second thoughts why I had it done. I talk about chronic pain on my channel
@francisphillips53
@francisphillips53 4 жыл бұрын
Damn Gabe.. I'm sorry you are going through all this. Thank you for sharing your experiences with us on KZbin. Hope you get to feeling better soon.. Take care.
@MusahehGhost
@MusahehGhost 4 жыл бұрын
Please make another update>
@romanmurray9489
@romanmurray9489 4 жыл бұрын
How are you doing now ?
@jackattack9799
@jackattack9799 4 жыл бұрын
how is you back? and the scs update??
@angelahill7040
@angelahill7040 5 жыл бұрын
Gabe, hi. I had the Nevro stimulator put in Dec.28 2018. The pain that came after was not explained to me, I was really shocked by how much pain I was in. It took a good 3 or 4 weeks before the incision in my middle back felt just a little better. I had to accept the fact that it was going to be a while before I could focus on something other than the pain. I hope you find that it helps with your issues. I wanted to tell you, your not alone.
@hollyrosenbrock7764
@hollyrosenbrock7764 5 жыл бұрын
My SCS surgery is in October. I had back surgery so I’m expecting some post surgery pain
@Deba7777
@Deba7777 5 жыл бұрын
Hello~ now that it's 2019 - how are you? Did you continue the use of the same device? Would love to know your latest status with this device.
@dottie8115
@dottie8115 5 жыл бұрын
You didn’t get the Nevro Stimulator right?
@anniemckenzie6216
@anniemckenzie6216 5 жыл бұрын
Hello Gabe and others. I just had a Spinal Cord Stim implanted 6 weeks ago and yes the pain after surgery was horrible! I think it was so bad because I had been on a lot of pain meds before the surgery, so what they gave me for pain after the surgery just couldn't work. I had asked the doctor about this before the surgery and if I should try to taper off a bit before the surgery and was told "oh no, don't worry about it we will be able to control your pain." Well that was total BS. I do have a question, however, for those of you that have a stimulator implanted and these pains that I am still having that I know I directly related to the surgery because I never had this before, but they are so strange and I cannot get any answers from my doctor. The serious pain I am having now, 6 weeks after the surgery is this pain in my upper back. It is like the worse muscle spasm in the world. The pain sometimes goes from that shoulder and spreads around under my ribs. My stimulator is on the left side and on the flank area of my body, but this is my upper back. Has anyone experienced anything like this? Or am I just a nut case who is afraid to call my doctor because I know he will just tell me it doesn't have anything to do with the surgery and I should talk with my PC doc, which I have done and who tells me he doesn't have a clue! Anyway, sorry for the very long post.
@JayMart84
@JayMart84 5 жыл бұрын
History in the making 💚🐢
@Mr.AndresAlmonte
@Mr.AndresAlmonte 5 жыл бұрын
Are you okey ? How you been .. I am transgender 2.5 years on T I had a hysterectomy and top surgery and I don’t want to get anymore surgery. I’m so scared of my Health my body feel so weak I think testosterone might affect the internal body
@ShelbyRiemer
@ShelbyRiemer 6 жыл бұрын
I just had mine implanted yesterday, and I've had several surgeries... this by FAR, is the most painful. You are not over reacting at all! Your video helped me very much, I thought I was being a baby.. thank you!
@joanmcgilton5148
@joanmcgilton5148 6 жыл бұрын
If a stimulator sends a shock it can’t be any different then when I’m hurting so bad and move the wrong way my body feels a horrible shock that hurts it scares me when that happens. I don’t know why that happens.
@joanmcgilton5148
@joanmcgilton5148 6 жыл бұрын
Are you able to walk? This is a old video. How are you feeling now?
@joanmcgilton5148
@joanmcgilton5148 6 жыл бұрын
My back and leg pain caused me to lose weight I’m less then 90lbs
@joanmcgilton5148
@joanmcgilton5148 6 жыл бұрын
I been to several neurosurgeons and they all mentioned that I’m not a candidate for back surgery. I’m in excruciating pain 24/7 I do take meds and when I’m laying down that’s about they only little relief I get. I have neurofibromatosis that’s where you get tumors on any nerve you have and tumors can grow there. I have multiple tumors in my spine and the last dr appointment I had the dr explain that there is a widening at the end of my spine with spinal fluid. So that’s been giving me most of my pain and why I’m unable to walk. Why didn’t any of the Drs give me options like spine stimulators. Am I supposed to suffer like this forever? I feel like the longer this pain is there the more nerve damage will occur. All I want is to be able to walk again. I know I will always have pain. But I think if I can walk again maybe I can do some therapy to gain strength. That’s why I think maybe the simulator might help even if it doesn’t take all my pain away. So do you know why none of the Drs never mentioned it to me?
@karlagentry4696
@karlagentry4696 6 жыл бұрын
Thanks for this information. Just nice to hear all kinds of outcomes. Hope u are getting better sleep. Good luck
@jesmassimo
@jesmassimo 6 жыл бұрын
Just has this surgery done and I know exactly how you felt. I feel like I wanna die ughhh
@freezerfreezer9097
@freezerfreezer9097 6 жыл бұрын
The question is did it work or not that's the problem that's why I brought up this KZbin video I got no input thumbs down
@stephaniebeliveau9352
@stephaniebeliveau9352 5 жыл бұрын
Thank you for sharing this! I had my scs placed Monday and I've been in horrible horrible horrible pain...I feel like the lack of post op videos is sad and that the ones I have seen make me feel crazy for being in SO much pain.
@leoelantra
@leoelantra 6 жыл бұрын
Gabe: What happened to this channel? How are you today?
@Zedie36
@Zedie36 6 жыл бұрын
MJ Coon Hey there :) This channel is still active, just dormant. Unfortunately my health situation worsened a hundred fold since making this video and its left me utterly destroyed and defeated. I’ve wanted to make an update video so many times, both personal and spinal cord stimulator videos, but day to day survival takes my everything. Plus, I’ve all but lost my voice, and my confidence with it, and hardly even recognize myself anymore. I wouldn’t know where to begin, though it’s been on my to do list for literally years now to make an update video. Medical issues and related trauma are no joke. I shall try soon. It could be helpful in the journey of finding myself again. I just need to practice using my voice again. I used to never shut up and made videos about everything. Truly crazy how things can change so much because of the influence of outside factors. Thanks for stopping by and asking about me. Means a lot :)
@jacktheduck3941
@jacktheduck3941 5 жыл бұрын
@@Zedie36 hi Gabe! Your health problems are related to testosterone? How are you? Hope you stay better now..
@jasonholguin4121
@jasonholguin4121 6 жыл бұрын
Gabe did you have a prior spine surgery or did you just get SCS? Disregard I finished watching you video.
@wheychung2nite
@wheychung2nite 6 жыл бұрын
Wow!! Doing my tiral now on day 6 . You look great BTW... Good luck!!!
@micheleevans3521
@micheleevans3521 6 жыл бұрын
Hi Gabe!i hope you get this message. I received my permanent SCS 6 mos ago following 20 yrs of spinal pain. I have had 11 surgeries and fusions with hardware in my cervical 3-7, thoracic 7-12 and Lumbar 1-5. Due to the many surgeries, I developed a condition in which cobweb like scar tissue attaches to the covering of the spinal cord called arachnoiditis causing severe neuropathy/radiculopathy in both lower legs, ankles and especially both feet. I am having good success with the SCS which is a St Jude’s Burst model. It’s taken 6 mos for us to be able to find the optimal protocol. I would estimate an approx improvement of 75%. I’ve actually been able to wear closed toe shoes twice in the last month. Yay! I was wondering if you are still taking pain meds? My pain mgmt dr is trying to wean me off of my meds, especially the Norco and the Flexaril. I’ve been able to cut the Norco by 50%, the muscle relaxer by 30% but the Gabapentin is a different story. I truly don’t see myself coming off of it unless it totally stops relieving the residual pain. If you’re on Gabapentin, have you had any memory loss? You mentioned that your battery life is 5 yrs. You need to research the St Jude’s stim. It’s expected to last 8-10 yrs. when they checked my battery’s rate of usage, it was calculated to last almost 10 yrs. I have to agree with you that this was indeed a very difficult surgery. It was harder for me than the large fusion that had me in ICU for a week and in Rehab for a month. I think the docs. undersold the pain and the length of recovery time! You mentioned that you were having digestive/colon issues too. If you are able, will you share that info too. I have had to see a specialist due to severe diarrhea.. I hope to get a response back and wish you luck with your SCS and your transition. Regards!
@shellcshells2902
@shellcshells2902 6 жыл бұрын
Medtronic does a vagus nerve stimulator...
@Zedie36
@Zedie36 6 жыл бұрын
Shell Cshells thank you! Do you know what conditions they’ll implant for?
@shellcshells2902
@shellcshells2902 6 жыл бұрын
Just Gabe it was advertised at my urologist office for urinary issues caused by the vagus nerve... my Medtronic rep said they've been very successful!
@shellcshells2902
@shellcshells2902 6 жыл бұрын
Just Gabe www.medtronic.com/us-en/patients/treatments-therapies/bladder-control/therapies.html
@Zedie36
@Zedie36 6 жыл бұрын
Shell Cshells the website said tibial nerve. Nothing about the vagus Nerve. Did the doctor say vagus?
@shellcshells2902
@shellcshells2902 6 жыл бұрын
Just Gabe this is a better link.. sorry about that.. www.mayoclinic.org/tests-procedures/vagus-nerve-stimulation/about/pac-20384565 Mayo is leading in all this and trustworthy.
@cherylbrown5872
@cherylbrown5872 6 жыл бұрын
I'm doing the TRIAL MARCH 15 2018 for CHRONIC PAIN IN BOTH TITANIUM KNEES. PLEASE PRAY FOR ME.
@paulcahan9992
@paulcahan9992 6 жыл бұрын
do you have an activity that you can do to distract yourself from the pain? before I was "floxed" (adverse reaction to Levaquin, Cipro, Floxin etc) I used to weld for making art. I made a lot of pain art and welding , i have to concentrate so much on safety and creativity, I do it and the brain feels a lot less pain but I can only do that in short periods of time. i hope you find ways to distract yourself as much as you can from your suffering. at least .1 percent of the time. paul
@paulcahan9992
@paulcahan9992 6 жыл бұрын
Thanks for telling so much about your experience. I'm curious about the nerve pain you have and whether you were ever given a floroquinolone antibiotic like levaquin or cipro. that stuff causes nerve pain and a lot of people say they have fibro but then i ask about antibiotics anda lot of them, their eyes light up and they say... yeh.. i had levaquin before this started. hummm
@paulcahan9992
@paulcahan9992 6 жыл бұрын
I am very interested in a group of people supporting eachother who are in severe continual pain. I was given the antibiotic LEVAQUIN 20 years ago, and I had a devastating delayed reaction. After 7 days, my ankles exploded. I was swollowing time bombs. Both of my achilles tendons ruptured. they were like rubber bands under the skin trying to break through the skin in both legs. I wanted a double amputation it was so painful. stupid doctors in 1998 knew nothing, not even given pain relief when cast on. It was hell. Pain in my calfs have been terrible for 20 years. I have really bad tendonitis and nerve pain. toes are freezing cold and bottom of calves are freezing sometimes, and bottom of feet are bright red and I want to die at those moments until some pain meds kick in which I hate to take. damn that company. did they tell my delayed reactions can ruin your life forever? My lawyer tried to sue the stupid doctor and that failed and now everyone is suing the company and has a driver to get them around. my life stinks with this pain. I tried the st judes system but after a few days the WIRES FELL OUT. I HAD A TAIL! WTF? I could not do this again with that traumatic situation. the doctor said it was the first time he ever saw that.. which i don't believe. how can the wires stay in place if you are upright? gravity obviously is a factor and the doctors can't sew the leads in on a trial so i'm confused how the trial can work with wires dangling loose?
@MulunaLewi
@MulunaLewi 6 жыл бұрын
thank you so very much I will update take care
@sheldonbeaver8451
@sheldonbeaver8451 6 жыл бұрын
If you could do it all over again would you?
@Zedie36
@Zedie36 6 жыл бұрын
Sheldon Beaver I absolutely would, and have, several times now. For lots of complicated reasons (keep meaning to make a much needed update video) I’ve had to have multiple revision surgeries and had it completely removed out of desperate need for MRIs after sustaining a traumatic injury. I’m now running burst stimulation with St. Jude, so it covers pain without the parasthesia. It’s been worth all the surgeries to keep the pain management option, but damn, doesn’t matter how many times I have the surgery, if they do any bone shaving on the lamina which they almost always do, it’s downright brutal pain, but passes within two weeks.
@MulunaLewi
@MulunaLewi 6 жыл бұрын
hello Gabe I have watched your video at least 10 times I wanted to know how are you now I understand living with pain is a very traveling I have back problem as well I've been living with it for two years it seems like nothing is working I don't know if I wanted to do the the implant surgery can you give me some hint I think you so much I hope you are okay
@Zedie36
@Zedie36 6 жыл бұрын
Disaster Master I’m long overdue for an update as I’ve had 7 or 8 SCS surgeries since making this video. It’s all been worth it in the end to have SCS and such an awesome current system, St. Jude burst stimulation. The beauty of it is that you can do the two week trial and see if it works before committing to an implant. If a doctor wants to implant you without a trial find a new doctor! Living with pain is tough. I have chronic pain and a lot of injury related pain I’m still dealing with, so every movement can hurt me at times. Determined to figure it all out though. Mayo Clinic has been helpful to me for that lately. I hope you find some relief! Let me know if you have any questions!
@robertkipness387
@robertkipness387 6 жыл бұрын
Disaster Master I have my permanent St.Jude burst stimulator for 6 weeks now and it is the greatest thing every so far. It has lowered my pain down to a 3 from a 10+. I have L4-L5-S1 fusion with the rods and screws from a broken back. It isn’t a total relief of pain but does make it livable. I recommend the St. Jude SCS because it’s the one I have. Good luck to you.
@silviacaballero8105
@silviacaballero8105 5 жыл бұрын
Hi everyone the spinal stimulator does work , I have had major pain from a back injury hurt my sciatic nerve ,I had stimulator put in April 13 ,2018 so for me it worked
@gabrielrave1609
@gabrielrave1609 6 жыл бұрын
Gabe here too wiith sci injury as well! I'd love to talk with you sometime. i''m fused c4-6 and t5-12, all incomplete, injured in mn on oct 23, 2011:
@johnvandenburgh8771
@johnvandenburgh8771 6 жыл бұрын
What's 21 months on "T" mean?
@Zedie36
@Zedie36 6 жыл бұрын
John VanDenburgh T stands for testosterone.
@rickyrodriguez2238
@rickyrodriguez2238 6 жыл бұрын
Hi , This was a very good video and very informative . I just had one put in and have noticed a lot of what you are talking about I feel . The burning around the battery and major GI issues. It’s nice to hear from someone like you about this procedure and get info as much as I can . So many questions and not getting really any answers from others .
@Zedie36
@Zedie36 6 жыл бұрын
Ricky Rodriguez Hope you’re healing well and benefiting from the device. Glad my video was helpful. I keep saying I’m going to make another update but am drowning in medical stress so it never happens. Someday! Take it easy, and let me know if you have any questions.
@LeafFreedom
@LeafFreedom 7 жыл бұрын
I am going to be going through this same thing....uggg, so many surgeries. It is rough. I will join your youtube community, I too have many similar issues.
@Zedie36
@Zedie36 7 жыл бұрын
LeafFreedom I hope your surgery goes well, or went well, whatever the case may be. Best of luck with SCS! So many surgeries indeed. For me they’ve all been worth it. Heck I’ve had major SCS surgery four times with a few minor ones thrown in. I still have one more major revision to get it right but I’ll do it because it’s worth it.
@ELULTIMOTRENMX557
@ELULTIMOTRENMX557 7 жыл бұрын
Were you able to go back to work after getting the stimulator?
@Zedie36
@Zedie36 7 жыл бұрын
Luis Martinez I apologize for the late reply. I was in the throes of medical testing when you commented and then had major surgery. Just getting to comments and stuff now. I was not able to return to work because I’m on disability. If the pain that SCS helps were my only pain, I do believe I would have been able to return to work. But I’ve had a slew of other illnesses and injuries that have kept me on disability.
@westernspud504
@westernspud504 7 жыл бұрын
i Have 3 Crushed disc in my lower back Constant pain from lower back and legs ,without medications .I went to see a new Doctor yesterday --08-28 17 , she suggested nevero hf10 therapy , i am researching information on you tube , i would love to get of all my Pain meds , and have no pain ,
@Zedie36
@Zedie36 7 жыл бұрын
western spud that sounds really painful. I know from personal experience that crushed discs pressing against spinal nerve roots causes terrible pain in the back and legs. I've not heard of that therapy but I definitely wish you luck in finding something that helps ease your pain. I'm only familiar with SCS at this point. Hoping it can always get the job done for me. But I am interested in and open to dorsal root ganglia neurostimulation. I love that they keep coming up with new ways to treat our pain without medications since there's such a terrible opioid epidemic in this country.
@haroldwilliams9849
@haroldwilliams9849 7 жыл бұрын
I get it done tomorrow long you off work for anyone who's done it?
@Zedie36
@Zedie36 7 жыл бұрын
Harold Williams Good luck, hope everything goes well and recovery is smooth. I can't answer the work question because I'm on disability, but if I were working, I can't imagine going back to work any sooner than 3 weeks based on the same bad level of post op pain I've had each time I've had the surgery. No bending, lifting or twisting for 6 weeks is a very important part of recovery and healing! All the best to you!
@heykayde
@heykayde 7 жыл бұрын
Hi Gabe. Thank you for posting this. I hope you're doing a lot better. I've been told I may be a good candidate for a Medtronic Stimulator but have to admit I'm really scared. I've been referred to another Dr and I'm trying to do research and think of questions to ask. I've already had laminectomies of L1-L5 and a fusion of L5 to S1. That was12 years ago and I've been in pain ever since. This has led me to your video. I'm wondering how you are doing now? Does the implant feel anything like a tens unit? I know I must be desperate if I'm even considering surgery with batteries installed along side my titanium. yikes! I promised myself after 7 surgeries within a few years that I'd never let anyone take a scalpel to me again and I don't want to make another surgery mistake. Any words of wisdom you have would be greatly appreciated. Best wishes in your battle.
@Zedie36
@Zedie36 7 жыл бұрын
Heykayde I'm a monstrous believer in the power of neuromodulation and SCS. I guess that's because it's worked so well for me. And because I've gone through hell and many surgeries to keep my SCS. After this video was made I went on to have 5 SCS surgeries. I'm running St. Jude's new burst stimulation now and it's fantastic. It's a long story as to why so many surgeries just for SCS. I'm long overdue for an update and have been meaning to, so hopefully sometime soon. But my point here is that I've gone through hell many times, for complicated reasons, knowing it was going to be worth it for SCS. I'm sorry you've been in pain for so long. It's worth the trial, and that's the beautiful thing about SCS. Just know that the real thing is waaaay better than the trial. And it's like having an internal tens unit but that can way exceed the intensity your tens unit can put out. Good luck figuring it out!
@marcb1890
@marcb1890 7 жыл бұрын
Gabe, I'm considering the St. Jude BurstDR for long term pain associated with neck surgeries. I wanted to get your opinion as to why the St. Jude worked so well and the others didn't. Is this a new or better technology than the other SCS? What is it that you think worked? Also, my neurologist ( not the pain med doctor) is concerned about the scar tissue from the leads. You mentioned that the leads did cause scar tissue. Was this a problem when you and the initial SCS removed to implant the St. Jude? You mentioned that SCS are better for extremities, legs, arms, shoulders etc.. and not the back. Any reason why you have found for this? Lastly, can you do a quick update on your experience with the St. Jude and why you chose it. I think it would be helpful. The BurstDR is relatively new and it would be helpful for people to have feedback from people such as yourself. Thanks, Marc
@Zedie36
@Zedie36 7 жыл бұрын
Marc Brody my apologies for a delayed response. I'm a bit overwhelmed these days. I've been meaning to do a general SCS update for a while, and definitely need to talk about my St. Jude BurstDR model. In my opinion it's far superior technology. I have better pain control than I had in the past with all the other models, and I don't feel a damn thing regarding the stimulation which is the most amazing part. Burst doesn't give you constant stimulation, so the brain can't adapt to it like they are finding happens with older Tonic stimulation. Implanting leads on the dura matter of the spinal cord will create scar tissue. It's an unavoidable biological occurrence. But I've now had numerous revisions and the whole thing taken out and re-implanted etc. and there haven't been any issues with scar tissue interfering with reimplantation, nor did scar tissue ever cause any other issues. Scar tissue has to be created in order for the lead to ever stay in place. My personal experience is that SCS helps the most with my leg pain, but I think that's because I have more severe damage to my spinal nerve roots, thus pain in my legs, than I do in my lower back at this point. I can't say it doesn't help with back pain, I just always focus my attention to what I'm feeling in my legs when it's being trialed or implanted. I'll really try to do an update soon. I'm leaving for Mayo Clinic in a few weeks and that has me super busy. Good luck!
@marcb1890
@marcb1890 7 жыл бұрын
Thanks Gabe. And, YES, a video on the St. Jude would be great. I would say you don't need to prepare........ just give your opinion. That is what helps others! Good Luck at Mayo
@Zedie36
@Zedie36 7 жыл бұрын
Marc Brody I'm scrambling to prepare for my Mayo trip. Most likely I won't have a chance to make an update video on St. Jude until the end of next week once I'm settled in Rochester. It's on my list though!