Жыл бұрын
Жыл бұрын
Пікірлер
@Heidibeeren Жыл бұрын
Wir bleiben auch so lange wie möglich ohne Transplantation. Das ist einfach ein großer Eingriff, den man vermeiden kann mit der Phototherapie
@korbanrezai3788 Жыл бұрын
Stimmt 😊
@barbaralenze1346 Жыл бұрын
😢😢😢😢😢😢😢
@FreyaFoto Жыл бұрын
Genau !!!
@FreyaFoto Жыл бұрын
Mir gefallen die kurzen Haare 🤍🌸
@_ketless Жыл бұрын
Mir langsam auch 😅
@FreyaFoto Жыл бұрын
Sieht trotzdem schön aus 🤍
@FreyaFoto Жыл бұрын
🤩🤩🤩 die Kleider sehen voll schön aus
@FreyaFoto Жыл бұрын
🤩
@Heidibeeren Жыл бұрын
Danke auch für dieses Video. Mein Thomas hat auch seit nem halben Jahr etwa mit dieser empfindlichen Haut und Blasenbildung zu kämpfen. Es ist gut zu wissen, dass er nicht der Einzige ist und er einfach aufpassen sollte.
@_ketless Жыл бұрын
Es hilft halt wirklich nur eincremen und aufpassen, dass man nicht so in Menschenmengen gerät.. :/
@creativelens_chemnitz Жыл бұрын
Guck ich mir alle an!
@chiragchavda1057 Жыл бұрын
Thanks for video, you have mentioned about light which can reduced 8 hr of phototherapy to 2 hr of phototherapy . Can you please share more details on that??
@_ketless Жыл бұрын
I'm sorry, you misunderstood me. I said that through further progress in research, it could be possible that in a few years you may no longer have to be under the light all night. But these are also only hopes on my part
@chiragchavda1057 Жыл бұрын
Dear ketless, By making these type of video you helping parents like us, Keep Doing. My son have CN. He is currently 1.5year old. We are giving him 7-8 hr of phototherapy & phenobarbital 3.5mm twice a day. We have very tough time. When I see my son in light , I feel pain. I have seen your video on auto-translation to English as I don't know your language. I have some question you may answer it in the video but due to language problem I may not able to catch it. Sorry for that. Does homeopathy helps in CN? If yes can you share name of medicine. Does homeopathy reduced Phototherapy ? any other information on this pl. How to measure bilirubin level at home? Does Sun light help to reduced phototherapy light hours? Thank you very much Regards, Chirag Chavda
@_ketless Жыл бұрын
Dear Chirarg Chavda, thank you for the positive feedback! I feel sorry for you and your son. I can imagine how hard it is for your family. Homoepathy helped me, but we didn‘t have any medically provement. The homoepathic treatment is very indivual. Every human needs another treatment. My homeopath detoxified my liver every year. Homoepathic don‘t reduce phototherapy. But 8 Hours of phototherapy are enough. From the age of 10, you should let the child be irradiated with light from above and below. I have a bilimetre at home. With a little bit of blood we measure the bilirubin. I hope this informations can help you. I wish you all the best. Best regards, Kety
@chiragchavda1057 Жыл бұрын
@@_ketless thank you for Prompt reply.
@shirleybarnhart7436 Жыл бұрын
Why are your eyes yellow?
@_ketless Жыл бұрын
Watch my Video 😊
@FreyaFoto Жыл бұрын
So eine starke Frau 🙏
@_ketless Жыл бұрын
🥰 danke dir
@Heidibeeren Жыл бұрын
Hallo, meine Zwillingsjungs (10) haben auch CNS Typ 1. Schön dass du Videos über dein Leben mit dem Gendefekt machen willst. Wir werden sie uns auf jeden Fall anschauen!
@_ketless Жыл бұрын
Ich freue mich auf den gemeinsamen Austausch. 😊
@creativelens_chemnitz Жыл бұрын
Sehr stark, dass Du deine Geschichte hier teilst :)
@FreyaFoto Жыл бұрын
Ich finde das super mutig von dir, dass du deine Geschichte hier teilst 🌸
@_ketless Жыл бұрын
Danke dir 😊