Update on Isaiah [8.22.2017]
17:24
7 жыл бұрын
MY OXYGEN MACHINE DIED! [8.20.17]
13:13
2 toddlers & a cold [8.4.2017]
9:08
7 жыл бұрын
Short & Sweet [7.30.17]
6:21
7 жыл бұрын
FRIDAY FUN @ THE LAKE [7.29.17]
9:03
Chemo with Isaiah{7.28.2017}
18:27
7 жыл бұрын
Update part 1 - mommy [7.6.2017]
16:44
We're BOTH in the hospital!!!!!
17:05
Best News in 10 days!!!!
5:52
7 жыл бұрын
Surprising Day! {6.11.17}
21:01
7 жыл бұрын
Isaiah gets an NG TUBE {6.7.17}
22:34
Trains, Cars, & PBJ {6.6.17}
4:29
7 жыл бұрын
Isaiah Surgery Update! {6.5.17}
15:14
AFTER ONLY 7 DAYS...[5.20.17]
10:42
7 жыл бұрын
Mediciene MISHAP ruins day [5.4.17]
11:11
Hernia Repair Sugery [4.28.17]
16:39
7 жыл бұрын
Пікірлер
@user-ep8qw4jn3xkatie-joy
@user-ep8qw4jn3xkatie-joy 5 ай бұрын
I hope you get better soon. I’m praying for you. Love you.
@user-ep8qw4jn3xkatie-joy
@user-ep8qw4jn3xkatie-joy 5 ай бұрын
How I found you on KZbin
@user-ep8qw4jn3xkatie-joy
@user-ep8qw4jn3xkatie-joy 5 ай бұрын
lam prayed for you
@user-ep8qw4jn3xkatie-joy
@user-ep8qw4jn3xkatie-joy 5 ай бұрын
Love you so much very proud get better soon
@user-ep8qw4jn3xkatie-joy
@user-ep8qw4jn3xkatie-joy 5 ай бұрын
l hop feeling better soon
@nicola6947
@nicola6947 3 жыл бұрын
Can you do a story time
@mihaelahatch8977
@mihaelahatch8977 3 жыл бұрын
Do you have a gastric tube or do you do ng tube yourself sometimes
@mihaelahatch8977
@mihaelahatch8977 3 жыл бұрын
God bless you
@curtisbemis6640
@curtisbemis6640 3 жыл бұрын
I wish I could be on pain management for rhe last part of my life transplant isn't an option for me but I'm 33 and no doctor will even think about it ita always no way . your to young abuse is so heavy at your age range .!!! . your gonna die but I don't care your not getting pain meds . after 3 tries I just went to the street you stop caring at a certain point.
@jana-od9cx
@jana-od9cx 4 жыл бұрын
You haven’t updated in 2 years are u okay!?
@devangel3614
@devangel3614 4 жыл бұрын
she passes away in 12/19
@jana-od9cx
@jana-od9cx 4 жыл бұрын
Devangel god bless her
@ts14rules
@ts14rules 4 жыл бұрын
Do you like to wear oxygen tank
@DDOWNS89
@DDOWNS89 4 жыл бұрын
RIP Jess praying for your kids
@rosalindalawson4669
@rosalindalawson4669 5 жыл бұрын
Hello my Robotic surgery took 4 hours and boy am i in pain love your videos.
@jessicawilkerson2417
@jessicawilkerson2417 6 жыл бұрын
Hi, I came across your channel awhile back, catching up on your older videos and just wondering how you were doing?
@susanmaroney5520
@susanmaroney5520 6 жыл бұрын
David White also has natural supplements that's helping our c.f. kids you can find him on youtube
@susanmaroney5520
@susanmaroney5520 6 жыл бұрын
Check out Dr Robert Morse on youtube he's amazing healer works with natural herb and he shows how to clean and heal.
@turuturubidois1514
@turuturubidois1514 6 жыл бұрын
Thanks for the information on about pain managment ✌ I am currently "looking at transplant" . It is a understantment when doctors say are you "addicted to pain relief" when realistically the pain killers are like heaven to me at times.
@cindyshaw5867
@cindyshaw5867 6 жыл бұрын
how are you doing now? And why do you need a feeding tube? Like what is your illnesses. I have terminal cancer along with gastroparsis and Astema and I dehydrate super easily and POTS and EDS I hope you are all straightened out now. I just had a feeding tube situation myself. went in yesterday compltetly prepared to have to redo my feeding tube placement all over again because it was leaking so bad and we had no clue as to why. then the dr figured it out and all it needed was my inner and outter buppers to be tightened I have the mushroom end not balloon type of tube,, so it was a fast fix. I was there maybe 1 hour and that time was spent waiting to be called in and to be checked in once I was in the back I was there 5 mins and out going home. I'm so sorry you had to go threw that. That looked pretty painful when she put that red thing in there. God Bless
@DenisesDelight1
@DenisesDelight1 6 жыл бұрын
Hello sweet angel. I just have met you and started following you. You are so amazing. I’m 65 years old and a retired RN. I have not met such a mature, brave,intelligent young women in my whole life. I’m so impressed with your life. WOW! What a wonderful young woman you are. I am a Christian and know that Gods plans are perfect for you. I will continue to follow you now.
@jeanspeer4053
@jeanspeer4053 6 жыл бұрын
Just found your videos a few days ago. See you have not updated in a long time. Hope you and your son are doing well.
@shekeyra100
@shekeyra100 6 жыл бұрын
What i just watched the nurses pinning baby down to get ng in numerous times was disgusting for a adult its hard even if sedated and that was wrong i know jessica was upset to i know tube will help but the ways they did it not ok
@sunshinenickerson9679
@sunshinenickerson9679 6 жыл бұрын
Lisaa they did this according to hospital protocol which was to immobilize him then place it. It was an older child so he would have fought if they didn't immobilize him!
@shekeyra100
@shekeyra100 6 жыл бұрын
ppl put subs on makes me laugh at words it puts
@shekeyra100
@shekeyra100 6 жыл бұрын
no id of left in as dentures can be hard to get used to also can react to them
@annettequinn2471
@annettequinn2471 7 жыл бұрын
Just realized this is from April, hope your surgery went well! 🙏💐💐
@bettyb8739
@bettyb8739 7 жыл бұрын
Paint can needs a handle.
@LadyLoLinda
@LadyLoLinda 7 жыл бұрын
Yay Nashville! My hometown!
@sunshinenickerson9679
@sunshinenickerson9679 7 жыл бұрын
Why is the tube insertion going so fast? Is there a way to just show the perfect one?
@sunshinenickerson9679
@sunshinenickerson9679 7 жыл бұрын
You guys did almost everything right, however there should have been NO pillow at his head, a heart piece of tape placed right beside his nose to prevent removal of the tube, Posey Mitts on his hands AT ALL TIMES. What also helps is an AMT BRIDLE. Look it up. What it does is it goes through BOTH nostrils and connects to the tube so when he tries to pull it out the AMT BRIDLE pushes on the bone in his nose putting pressure so he stops immediately.
@maryjayne39
@maryjayne39 7 жыл бұрын
Glad you all had a great time. You deserve it. I do have a question .. what is the juice that he has to take.
@jessbeatscf8578
@jessbeatscf8578 7 жыл бұрын
We make fresh veggie/fruit juice with a juicer.
@rsvkav
@rsvkav 7 жыл бұрын
I'm so happy you guys were able to get out and have some fun!!!!!
@maryjayne39
@maryjayne39 7 жыл бұрын
Been worrying about yall. Haven't seen a video In a couple weeks. Hope all is as well as it can be. Prayers for all.
@brymom1067
@brymom1067 7 жыл бұрын
Sweet baby....praying for y'all.
@lizmastro4458
@lizmastro4458 7 жыл бұрын
I take amitriptyline and I love it! I've been on it for almost 3 years. It's pretty hard to adjust to but it gets easier every day. Just be prepared for it to knock you out and it does cause some temporary vision problems but nothing to worry about! Let me know if you have any questions!
@75sadiegirl
@75sadiegirl 7 жыл бұрын
I totally understand there is no way he could work. I don't know how he keeps his energy up. Good man you have there!
@kayelabenseman9875
@kayelabenseman9875 7 жыл бұрын
awww poor little guy
@madison8568
@madison8568 7 жыл бұрын
Don't know if you are up for a visitor and if you are interested in meeting one of your subcribers, but I have a few appointments there tomorrow at Childrens and Adults and would love to meet you.
@jessbeatscf8578
@jessbeatscf8578 7 жыл бұрын
Madison sure that would be awesome! What is your facebook so I can message you.
@christienbbrooks7334
@christienbbrooks7334 7 жыл бұрын
Praying for you guys !!!🙏🙏🙏🙏🤗
@madison8568
@madison8568 7 жыл бұрын
Question. Was he admitted to Vanderbilt Children's? I recognize the rooms lol as a fellow Chronic Illness warrior. I just got out of their a few week ago after being there 17 days and being treated horribly there by the doctors (as you know the Teams rotate every week and the 2nd week I was the team was horrible and they committed medical negligence). I finally begged them to let me come home on TPN which is what I am still on; I am failing NJ feeds (I have had an NJ tube for 6 months). I have felt the exact same way with the Vanderbilt doctors and the adult ones as well (the adult side had discharged me keeping nothing down at all and they couldn't pass another NJ tube because I was not far out enough from surgery). Lol I actually just realized that I was in the hospital from May 29th, 2017- June 14th, 2017 so our hospital stays overlapped
@barbh1
@barbh1 7 жыл бұрын
Good idea to hire somebody to help. I think your family would be very nice to work for. If I lived in your area, I'd apply for the job. Good luck! :-)
@shadysidetigers1
@shadysidetigers1 7 жыл бұрын
I am praying for you guys. ❤ sending you hugs. ❤❤❤
@kayelabenseman9875
@kayelabenseman9875 7 жыл бұрын
Wow girl u ACTUALLY are looking really good. not so run down and tired or stressed put :)
@stacyklostermann8378
@stacyklostermann8378 7 жыл бұрын
I wish I could just give you a huge gentle hug 🤗. I think about you guys alot xoxo
@waysofthewhippet8480
@waysofthewhippet8480 7 жыл бұрын
stacy klostermann agreed
@ts14rules
@ts14rules 7 жыл бұрын
hey jess how are you doing on oxygen tank
@stephaniedunn5060
@stephaniedunn5060 7 жыл бұрын
ts14rules do you have some "Oxygen" fetish??? Why do you ask on every video about that? this girl has enough going on without your creepy oxygen questions in every video!!!
@kayelabenseman9875
@kayelabenseman9875 7 жыл бұрын
awww man poor little man :(
@Radioactivegodgoji
@Radioactivegodgoji 7 жыл бұрын
Jessica thank you for an update😀❤️👓🌈☀️
@kitkatgawrys7852
@kitkatgawrys7852 7 жыл бұрын
Hi Jess I would like 2 Isaiah bracelets ! Love you all!! Stay strong !! God Bless!!!🙏🙏💕💕💕💕💕💕😳💜💜😳😳😳
@jessbeatscf8578
@jessbeatscf8578 7 жыл бұрын
Kitkat Gawrys, email me at cffteamjbird@gmail. let me know your name, address, and ill sens you the info om how to pay.
@16050390
@16050390 7 жыл бұрын
sorry, can't watch anymore, so ridiculous. just let them treat him with chemo
@bostonsbabies801
@bostonsbabies801 7 жыл бұрын
leukemia is very very treatable in kids with chemo. use your extras as just that extra in addition to the treatment that will work.
@lbigirl1976
@lbigirl1976 7 жыл бұрын
Just let them take care of him Jess. His cancer is very curable I know you don't want him to have Chemo but that is going to save him.
@christienbbrooks7334
@christienbbrooks7334 7 жыл бұрын
You guys are in my prayers !!!!!!!