Neurodegenerative Disease Seminar

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@Sariah2020 14 күн бұрын

Thank you for the awareness. My 4 yr old was newly diagnosed from genetic screening. It has so many symptoms and we had a hard time figuring it out until she was screened. Thank you for the awareness!

@bouharmadjamila6240 2 ай бұрын

Plz I want to ask a question ❓ one of my family members had CJD disease...just One month she enters to Coma ? My question is is it the final stage of this disease or is it normal because as I know the ❤ year with this disease (now she has 3 months with it ) ?

@catbee1452 4 ай бұрын

My husband is all this but he has severe short term memory loss. I've heard of people having more than one kind of dementia.

@HelenHarris-r7b 4 ай бұрын

Jackson Brenda Garcia Daniel Wilson Scott

@AhmedIislamRevertPunjabiMuslim 7 ай бұрын

This disease is very painful, I saw it with my own eyes. My father had Frontotemporal dementia, (bvFTD) He passed away on 12 January 2024.😞 What Is Frontotemporal Dementia ?(bvFTD) Shrinkage of the front part of the brain is called frontotemporal dementia (bvFTD). Frontotemporal disorders (FTD), sometimes called frontotemporal dementia, are the result of damage to neurons in the frontal and temporal lobes of the brain. bvftd symptoms are personality changes, patient loses weight, has memory loss, cannot eat on his own, cannot wear clothes, cannot walk and has sleep problems In frontotemporal dementia, the patient also suffers from Apahsia Means loss of voice.he can't speak Science has just found out that there is no cure for this disease, why this disease occurs, science still does not know. Quran had told about dementia 1500 years ago. This is one of the signs of Allah Click This Link & see video-kzbin.info/www/bejne/Y36rg5V_ms-sqKMsi=pumN2a_SpbS6f8nS

@fallmar05 8 ай бұрын

My sister just recently passed from this."Emotionally" devastating experience to go thru. Hope more people become aware of this disease. Knowledge is "progress" towards a treatment one day(god willing).

@shellbacksclub 5 ай бұрын

So sorry for ur loss. I just lost my uncle 6 months ago to CJD. It's unbelievable.

@fallmar05 5 ай бұрын

@@shellbacksclub Thank you for your condolences. It is consoling to know that there are others who truly understand this unique experience and that we share our grief in our great loss. May your loved uncle as well as my wonderful sister know a truly peaceful sleep now and wake to a glorious day. A healing thought.

@vtj2e 4 ай бұрын

Sorry for your loss. My mother is also diagnosed with cjd. Her memory is rapidly detoriating. How long is the life span of person having this disease

@fallmar05 4 ай бұрын

@@vtj2e So sorry to hear about your mom having this unforgiving disease. You have my heart and that of others who have gone thru this experience with their loved ones. To answer your question the duration from showing symptoms of falling,memory loss and other to eventual passing is around 6 months often less. Diagnosis is often only confirmed well into this span. I hope you can give her every bit of love that you can during this time for the ordeal will be haunting and heartbreaking."Be strong" for her. I will pray for her and you. Take care.

@bouharmadjamila6240 2 ай бұрын

@jeremiahbaker6396 8 ай бұрын

Thank you

@markgentry6688 11 ай бұрын

Thank you ❤

@SR-bw3sc Жыл бұрын

The music is a bit intense.

@Ilyxs Жыл бұрын

I have MELAS myself and this is one of the best videos for people who want to learn something about MELAS

@lacypatterson5984 2 жыл бұрын

The sad thing is when you are fighting for them Everyone else thinks you’re the problem OR isn’t ballsy enough to stand up

@catbee1452 4 ай бұрын

No. Kidding. They don't believe things are as bad as you say they are. Total lack of support. Our daughters are afraid to talk about their dad's dementia, let alone offer me support.

@nonacee5065 2 жыл бұрын

Very simplistic view of FTD.

@louisegalluzzo1749 2 жыл бұрын

So it has been pointed out to me that you may not have intended to sound flippant by your usage of 'just neuron death', which I accept, but I would urge you to be more mindful in future as this is a devastating disease. That said, I do applaud you bringing it to the attention of people as no one seems to have even heard of it.

@nicksteini 2 жыл бұрын

Very informative, thanks

@andreagoodman5414 2 жыл бұрын

This is my JAM

@eileenking9987 3 жыл бұрын

Thank you for this information. It answers a lot for me .

@dilsalange 3 жыл бұрын

Me gustaria en espanol

@louisegalluzzo1749 3 жыл бұрын

You pissed me off at the me off at the ’just neutron death’. You clearly have never had anyone closer to you with this.

@nicksteini 2 жыл бұрын

She didn‘t mean „just neuron death“ as disrespectful. It‘s simply the medical definition of atrophy :)

@louisegalluzzo1749 2 жыл бұрын

@Kimmy Anfo yes, because I care what you think. You clearly don't get it, see Furtuna has made a polite response which made me realise the girl in the video is not intentionally being disrespectful. How exactly is staying my opinion rude? How is it irrational to be bothered by language which to me, an autistic person who takes things literally, trivialises a disease which my mother has and has had a devastating impact on our family?

@user-ii3vn8tn3q 3 жыл бұрын

Couldnt it be that I just don’t like people?

@violet9853 3 жыл бұрын

my relative turned into a horribly mean, spiteful and revenge minded psychopath, telling lies all the time, it was so hurtful and unjustified. 😥 oh and he would never go see a doctor... because he "knew" there was nothing wrong with him.

@touchofzen8428 3 жыл бұрын

There is some evidence, that you can revers TAU or other Proteins accumulating in your brain - 🧠 Dale Bredeson wrote a great book called "The End of Alzheimers" and it can give hope for people with other forms of dementia.

@paulflint6254 3 жыл бұрын

I have a diagnosed mental illness but would like a brain scan to find out if it's something else. Would love to know how to go about doing this as my behaviour has really deteriorated recently and I'm losing control, thanks

@Orourke-r7v 2 жыл бұрын

My loved one, who has FTD, saw a neurologist

@paulflint6254 2 жыл бұрын

@@Orourke-r7v thanks , i think i was just mentally ill.

@LoriAnneHarris 3 жыл бұрын

you should have explained that is is usually a defect in the mitochondrial DNA and not the nuclear DNA double helix most people think about, (that you showed)

@deannafrankton9532 3 жыл бұрын

To answer your question: it is due to copyright laws and availability of free and or paid images.

@LoriAnneHarris 3 жыл бұрын

why did you never show the mitochondrial DNA structure

@angelinarobert622 3 жыл бұрын

it's not double helix DNA. it's the wavy structure inside the Mitochondria. 🤔 why not show the mutation an A to G or Guanine molecule next to Adenine like wikipedia.org/DNA/ page does? Now that's chemistry. all we are is 100's of trillions of atoms. 🤔 you'll need a Quantum Computer to figure us out.

@dollytelgote2738 3 жыл бұрын

I am from India,I got diaganosed with same 3 days ago..let me know if I can help

@agelinagozes6365 3 жыл бұрын

HOW MY HUSBAND GOT CURED FROM Amyotrophic Lateral Sclerosis (ALS). I lost my Dad to ALS 5 years ago, he suffered from the dreaded disease for 6 years with his doctor telling us he can’t be cured and all the therapies and life support machines could not save him and 3 years later my husband was also diagnosed of the same disease and I was devastated he fainted when the doctor read the diagnosis because he knew how deadly the disease is. His condition worsened and he was unable to move and he was confined to the chair the direction the disease has taken with his body is the gradual deterioration of the “Bulgar muscle,” which controls breathing, swallowing, voice, and tongue movement. His neck muscles have weakened to the point that he can’t hold his head up and the left side of his body is weaker than the right , the doctors told me all his muscles were dead, he was able to eat via a machine because he could not swallow anything. I searched and tried different neurologists and different medicines none worked and I was so scared to lose my husband. While running up and down seeking a solution I met my friend from third grade and saw me all worked up, we got talking and in the process of discussion I told him all I am facing. He felt sad and told me about Dr. Sani who was able to cure his cousin. I was interested and he gave me his contact. I contacted him and he sent me his medicine and in a space of 4 weeks he was up on his feet again and in 6 week here covered fully. He can do normal things like walking, eating, without any assistance whatsoever. I am so amazed at the potency and effectiveness of his medicine. I decided to share my story for you not to lose hope or feel your world has ended. Simply contact him by Email: [email protected] OR WhatsApp / call +2348118184266

@stefanlehmann7699 3 жыл бұрын

Honestly speaking the only research that the ’scientists’ will always do involves the increase of big pharma profits. They will never cure any disease permanently for them to make more money by keeping people reliant on drugs, and they will do everything possible to discourage others from trying other medications like herbal medicine but I thank God for my friend who directed me to Dr. Sani.I am happy to inform you all that I am finally free and completely cured of ALS (amyotrophic lateral sclerosis) after using Dr. Sani herbal mixture, the formula works like magic .Always learn to follow your heart, refuse to be discouraged because there is no problem without a solution . I am back on my feet even stronger than before thanks a lot to Dr. Sani. You can also contact Dr.Sani to eradicate diseases like diabetes, high blood pressure, stroke, infertility, tuberculosis, skin disease, hepatitis, fibroid etc.You can reach him through his WhatsApp number on: +2348118184266 or via Email: [email protected]

@catherine7147 3 жыл бұрын

My husband passed away last November from some form of this disease. We never received a complete diagnosis and certainly never had any guidance. My husband started experiencing many of the characteristics mentioned in his early 50’s. Despite seeing 6 different neurologists and several neuro psychiatrists, He was told he had severe depression most often. He was given medications and some seemed to help with behavior issues. In July of 2020, a neurologist gave him a pamphlet and said he may have a type of FTD. He had accompanying gross and fine motor difficulty and experienced many falls and injuries. He was an environmental geologist and missed working. He died at age 66 at home with his dog at his side. This was a very good explanation but care in the real world is lacking.

@jenniferrobinson1792 2 жыл бұрын

I am experiencing these symptoms. It’s difficult to get a diagnosis. It’s worse for my friends and colleagues than for me. I can’t imagine what you endured.

@catherine7147 2 жыл бұрын

@@jenniferrobinson1792 thank you and I hope you can find some help managing the symptoms.

@FresnoRays 8 ай бұрын

I'm sorry if I sound insensitive, but what was it like living with him? At what phases of the disease was he unable to have full conversations anymore? At what phase was he unable to speak full sentences, and when did he get reduced to groans and moans when it came to speech? I'm doing a college project over the summer and I want to learn more about ataxia in bvFTD.

@catherine7147 8 ай бұрын

@@FresnoRays The disease developed slowly the first 5 years. He was still able to work however he was losing the ability to complete reports due to word finding difficulty. Over the next 4 years, he would answer slowly and had more significant word finding problems, This was frustrating to him and he would avoid conversations at times. Some days he was more verbal and some days unable to speak . He never fully lost speech until the last few weeks of his life. At that point, he was sleeping a lot. I hope this information is helpful to you.

@FresnoRays 8 ай бұрын

@@catherine7147 How is the progression like? Is it exponential or is it a a gradual decline