Its really tiring and depressing 😢😢

Wow this was so inspirational!

Any reserch going developmental anx epileptic encephalopathy reason of dnm1 gene mutation and nsf gene mutation?

How can i get in touch with Janet, this story like a lot people has touched a very sensitive subject for me?

Apparently you cant afford to live on 118 grand a year. Cant wait to boot you lot out of government

You're a scam artist thats more interested in taking your patients money than actually caring about helping them, you dont keep your promises and attempted charging me for a follow up phone call u promised u wouldnt charge, and trying to get through to you through your receptionist is likely trying to call MI5. awful experience with him.

Wonderful news and a wonderful development to bring hope to many whose seizures have not been controlled.

Promo-SM

Thank you for that exquisite academic experience (ION 2008-09)

Excellent overview of epilepsy: Role of music as a supportive therapy need to be evaluated meticulously : if successful,after becoming seizure free _employment to lead normal'life will be possible _genetic based incidence &early detection via Advanced technologies like ÀI(artificial intelligence)+positive counselling ketogenic diet_special care for epilepsy in women -regards Dr Indira RTD Addl Director of medical education and research AP and now in Hyderabad Telangana India 👏👏👏

❤❤❤❤❤

Excellent news!

Very exciting development.

Thank you for your wonderful work. I hope it will give hope to epileptic individuals towards getting a cure in the near future.

Congratulations Amol💐

Keep doing great work 👍

Congratulations Dr Amol Sir

Thank you so much Suzannah🌟

I don't see any details on Shape Epilepsy Research below. Was it only on a live feed chat?

Let's not forget some hospitals have old CT scans instead of MRIs and the UK is behind in EEGs with limited hospitals having a cap that can be worn and requiring attendance for 21 electrodes to be glued to the scalp and controlled conditions whilst taking readings.

Soaps have covered epilepsy lately. Emmerdale is another example. I am open about my epilepsy on social media to raise awareness.

It's not necessarily that nobody has considered it. I have epilepsy and my sister is a psychologist. A couple of years ago at Christmas my brother in law mentioned they'd looked into autism traits and said that I have a number of them and wondered about the link with epilepsy.

Ah good, you mentioned screening of people with epilepsy for autism. Will this be widespread nationally?

How many people are in the PPI group? Given that over 600,000 people in the UK have epilepsy, it's important to know what percentage are in the sample size of the study. Perhaps increase it by offering those diagnosed with epilepsy an autism test. If they are found to have autism too, offer the option to join the PPI group.

thanks a million

My nephew was diagnosed with epilepsy when he was 18 months old . He is now 46 and only found out he was Autistic about 2 years ago. He has been severely affected by ‘ drop’ seizures throughout his life and it has affected his mental development. He’s been in full time care for many years. His adopted parents (since he was 6 wks old) have been amazing and since he’s lived away from home have visited him every week despite the long distance involved . I fear it’s too late to improve his condition but I do hope life can improve for him. He never complains about his situation but he does sometimes ‘fall- out’ with the other autistic people he lives with. I do hope the Epilepsy and autism research can improve dramatically now and it was so interesting that Suzanna was so knowledgeable & able to express herself so clearly and highlight problems facing people with her condition . I think the organisation needs to employ her in order to gain maximum understanding and future progress for people with epilepsy and autism ‼️

I want to like this a thousand times. Such a powerful video. Keep up the great work. It is appreciated.

Took at least 6 years for my son’s diagnosis at age 32. He was admitted to A&E more than 10 times and weekly in 2019-2020 before a wonderful A&E Doctor asked me if I’d considered epilepsy. He had been diagnosed with alcohol problems and it was almost a foregone conclusion that he began to drink because he felt so bad. But even dry, he still experienced them until he eventually got his dx in 2020 after much persistence from me his mum and the intervention of one single fantastic doctor we chanced to meet. Not totally under control now, but certainly no where near as severe (previously broken limbs and pneumonia having fallen and inhaled his stomach contents).

God bless Dr Idedia on KZbin after I spoke to him, concerning my Herpes infection he told me that he is going to provide the herbal cure to me, which he did, after i receive his herbs and i take it as instructed i was cure permanently from herpes my herpes infection was gone. so I decided to share my testimony, that nothing is impossible with God, God use Dr Idedia on KZbin to healed me. No matter what you are passing through, no matter how deadly the sickness is and no matter what the situation is God that did mine is still going to do yours, people suffering from herpes, brain tumor, kidney disease, pcos, AIDS, ALS,copd, asthma, athritis,herpes, Cancer,Hpv, any kind of disease, you can reach him now on KZbin search Dr Idedia

Such a kind, courageous couple.

Gill - If I thought the cure for epilepsy was at the top of Everest, I’d get there. You’d do anything to help find a cure. That’s what you’d do.’ And Gordon, ‘Our hope is that no one, anywhere, will have to go through what we’ve been through.’

What a great and wonderful awards ceremony! Bravo everybody - to the recipients and to the organisers. Great work!

'm happy I'm finally cured from herpes virus, all thanks to Doctor Salami on his KZbin channel for curing me with his herbal products.

I am overwhelm with joy and happiness and i am happy to share this with you all around the world about how Dr.CHUKWU MADU HERBAL HOME cured HERPES VIRUS...ever since i was diagnosed of Herpes virus in 2015, I was always thinking on how I can get a solution out of my body so that i can be okay again. Until One day I went online on the internet to know more about the Herpes Virus i came across a Review Comment many people are saying that Dr.CHUKWU MADU HERBAL HOME cured their Herpes Genital Virus, I did not believe, i search again and i saw a testimony of someone who has been healed from HPV AND HIV by Dr.CHUKWU MADU HERBAL HOME..and i decided to contact Dr CHUKWU MADU HERBAL HOME to Help and i told him about my HERPES illness he told me not to worry about,that he is going to send me his herbal medicine and actually he did.i took the medicine just as prescribe by him, he told me to go for check up in the hospital which i did and to my great surprise my Doctor told me the Herpes Virus was no longer there, all thank to you sir Dr CHUKWU MADU HERBAL HOME, contact his WhatsApp Number: +2348058485598 .His email: [email protected]. His herbs are very powerful and has no side effects. He can cured all kinds of Viruses, diseases, sicknesses. (1)HIV. (2) Cancer (3) kidney stone. (4) Stroke. (5) Epilepsy (6) diabetes. (7) HPB. (8) Fibroids. (9) Syphilis. (10) Cold sore...........

Thank you for a very interesting webinar... I've had epilepsy now for 47 years and am currently waiting for eeg results. Trying to find the correct combination of medication has been really difficult.

My son died aged 30 his story even if it helps just one person, google Alan Davies SUDEP

I totally agree with what Dr. Charles Stewart said towards the end. Understanding and awareness is so important to those who have epilepsy. It's really eye opening to know how many people live with seizures. It's important that we all have empathy for what others experience. ❤️

I enjoy these roundtables! They are very informative. Thanks for sharing it!

When had Phone call appointment didn’t like as I wasn’t organised with my paperwork to discuss in hospital app when I attend and didn’t look like much attention was given as disorganised speaking to another Doctor

I was born with epilepsy and cerebral palsy. I have a twin brother, i was born first. My brother was born with no problems. I take phenytoin for my epilepsy, as a child I was on phenabarbatone, then at 14 i was put on Epilim 500mg. Which caused me to gain lots of weight. I went to live in Canada for a few years where I was taken off eperlim & switched to phenytoin. Which I still take today. As a child I had grand mal seizures, which doctors said I would grow out of. Which I did, but I now have petit mal. It' feels weird when I have it, i can hear all thats going on around me, but ppl and any noise, sound much louder, plus it feels like I'm floating on water. Before the seizure I get the smell like burnt toast. I can have a seizure at any time, night or day. Unpredictable. I feel a little confused when I come round, which lasts for a couple of minutes, then I'm back with you again. Usually a cup of tea helps me recover. I read a lot of blogs where people who shared their testimonies kept mentioning Anti-seizure Herbal medication. I searched for a website I just followed the email address of Doctor Patrick that was shared on these testimonies; I got lucky when I got a reply from Dr. Patrick. I followed his instruction, used Herbal Medicine in less than 2 months, I was already cure because of the changes I was seeing. Within a period of 5 months, I was cured totally forever. I went back to my neurologist, I was checked up and marked epilepsy free. If you need his help you can Contact this herbal doctor via his email [email protected] and WhatsApp connection is +2348102558553 for help. ....

very nice.

Very nice, the topic is discussed in detail, we must congratulate all participants specially Dr Amol who has deep and perfect knowlegde about the research and has enamurated the complex subject in a very simple language and nicely. Hope in future we will be happy to view few more interviews in near future. Hatsoff to all.

Nice work

Dr. Nze has done it again for me and my family. My son who has Autism was cured totally after 14days after he finished taking the herbal cure medicines which Doctor Nze has prepared for him. I never believed there is cure for Autism and never believed herbs can cure it. Today am a living testimonies and witness and I can boldly stand anywhere and testify about the marvellous work of Doctor Nze. People are out there discriminating all the traditional doctors and saying there is no cure for Autism in life. Whatever [email protected] are doing you have to apply faith and focus on what you are getting in return. Write her on her email and wait for her response,Dr. [email protected] or Whatsapp 08116004247. Thanks for taking your time to read this .

Ava is my sister from another mister. This happened to me. Thank you for sharing ERUK. You're the best.