I worked in this mans Reno office and he's a really really special doctor. He is a genius and without a doubt is striving to find better and better ways to really help people.

Well said Deborah !!!!

This was such a beautiful interview. As an ME/CFS patient with family with a very different approach to my illness it is healing to see examples of how nourishing and kind family can be. Thank you both!

Promo-SM 🍀

Now that was stupid !!!! Stupid to say that they look good because they have so much rest !!!! You know very well, Llewellyn that ME/CFS sufferers don't have a refreshing sleep or rest !!!!

Still no treatment May 2024

10 years later and still no cure

"Insightful interview with Canadian author Nora Gold sheds light on ME/CFS. A must-watch for valuable perspectives."

Their symptoms are similar or the same because they are all post viral syndromes. Its not rocket science. Dr Ramsay initially named ME Post Viral Fatigue Syndrome before his indepth resesrch became ME.

Thank you for this lovely conversation. Congratulations to Dr. Gold for her new book, it’s so important to have stories representing the disabled experience ❤

Thank you Dr Gold and Mr King…she is very optimistic about living with ME/CFS …I have yet to cultivate this attitude…..but yes anger is a warning symptom of an approaching relapse. I also have POTS only developed in recent years, but CFS/ for over 40 years…

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28 years.

💯🤍Raelan Agle has over 150 videos of persons interviewed from all walks of life who have purportedly recovered from Chronic Fatigue Syndrome and other challenges, including her own recovery stories. Worth serious investigation?

This hit home. Scheduling an appt with Dr. Levine now.

Firstly. Byron Hyde has always made sense to me. The point isnt in reasearch. For that is a meadering road of nonesense. The first step is understanding its both infectious and ludicrously serious to a point that isnt shareable . For thete is nothing similar. I cured myself . From .m.e ..I consider its origin man made and going bavk to the 50s. Where it has two shared gov culprability. Those same two provide all the red herrings and consequent confusion. In my opinion it may have some shared similarities with other point of creation. Thats why I think I also a difficult illnes to define ....well that and the fact that no one is trying. Cauesd by the wrong definition thus able to go awol. I looked at my own condition . From that I decided it needed serious intervention ..... Thus I created a simple solution . Dealing with firstly the symptoms as best one can...applying solutions to each one. That got me so far. But I was still left with the initial infection. Because a symptom isnt a cause. After a couple of years I worked out how to wipe out the infection in the brain. Because you have the fundamental problem of the brain barrier. Thus again I sought to look at an au natural solution. You have to bear in mind I had no way of checking ...in the modern sense of how my body was reacting . Other than by how it wa responding actually.... The problem I had was I hadnt grasped I jeede to fix the viral causation. I was on a catalogue of hetbals ......anti inflammatory etc . As each herbal worked in varying ways to lower the inflammation and oxidative stress. I eventually realised that I could send the nescessary choice of natural interferons to the point in question. That just requires a drop of jiggery pokery to get the right stuff in the right place to knock out the infection. I had been ill for 12 years....with variable times....but mostly titally buggered and house bound.. I am of the opinion that no one with this illness sleeps. What they do is lose conciousness to total exhaustion. Whilst they are in this state , the illness of course does not rest....in a constant immune state. Thus when one wakes up......thats not whats happening ...You are just coming round from total collapse. Thus there is no rest in the real sense. The response to illness is to fight it. But you cant , for all you do is antagonise the oxidative stress....which creates further damage. That goes on because no one out ther is giving the correct information to prevent this znd that is as annoying as hell. The problem is not unsurmountable... i said before trying my cure.....what I was doing ad why. That worked. I got about six weeks in before I started to get rest .....that is rest I hadnt had for years. WHO ineptness and hypocrisy in this matter has caused the complications. Anyone working in any service should be able to understand that shared fact. It took me about 7 years to get what I consudered to be my hormal homeostasis back . Much longer than I anticipated.....Things get complicated ..I ended upmin dire situations simply due to in my case nhs complete and utter ignorance on the matter....so I got zapped....which sort if finished off me poor old ticker. Etc and so on. The complexity is in the generic shared ignorance and the consequents abuse. The complexity isnt in curing the illness its in no one trying . In a coherent way. I still have a few left overs that are not quite leveled out. (Adrenalin n such ). . Fellow sufferers cant understand what I yell them because of wrong exhaust gasses in the blood from the auto immune state they are in. So thats tricky. Plus they dont realise they have been waste basketed no mstter how you try to educate them . My life went from fabulous to hell.....as you say you know the day. I can tell if someone has m.e or a similar causation invoking the auto imunne response in seconds. If I can a bloody layman ......why cant the medical priffesion....blinkers and stupidity and fear. And extreme ignorance a plenty. I rest my case your worships 😊

10 years later, There is no cure still. There still is no agreed upon course of treatment either for ME/CFS. The UK and other countries are devoting more resources to find a solution if not a cure. Would love to see same concerted effort here in the states. As of 2024, Stanford (where Dr. chia is) will no longer take individual PPO plans. For those who can’t work, this means they wouldn’t be able to go there without paying for everything out of pocket. Impossible to not feel helpless, hopeless, and mental considering all other doctors still think it’s a laziness or anxiety thing. There are few clinical trials or clinics with this level of knowledge and research background. We need more support for specialty care in the USA - our health system is even more broken now.

I am astonished. This is the most informative interview I have heard.

I know that research has identified specific proteins in the spinal fluid of patients with ME/CFS that are not found in healthy individuals and no-one talks about it, that's weird

Whatever you do, DON'T follow Johnson's 'extreme mold avoidance' program. There is no science to back up his recommendations -- NONE AT ALL -- and all you'll do is end up sicker.

Listening to this now & NIH has wasted the Long Covid $…. 😡

A cat or a dog???? And, you having M.E., who is going to clean up all the hair these pets are shedding???? I think that is so disgusting to have your home full of pet hair!!!!

I saw a neurologist decades ago and he said my balance was affected, I had slow activity in the brain stem and my frontal lobe was affected altering my ability for academic work. I had to drop out of my degree. I did feel however my visual memory was fine and some years later got a fine art degree. However I’m still quite affected and now have skin symptoms with neuropathy…..it’s all horrendous

It took two years and many tests that showed up as normal, and many doctors before I was referred to Dr. Systrom. The invasion CPET test is not fun, but it gave me a diagnosis of Dysautonomia-Pre-load failure with a side order of Small Fiber Neuropathy. Going from extreme exhaustion with severe nerve pain, to living a normal life is amazing! I won't be running 5k races anything soon, but to be able to go on vacation with my family and do a lot of walking (best day was 16,000+ steps!) is priceless. On a side note, Dr. Systrom is a very unique doctor that would come out personally to get you from the waiting room! True gentleman and a class act!!

Thank you so much for All your work and informative series of interviews dr King!

Excellent interview... As a parent of an adult male with M. E., found this interview quite heartening. I also happen to be a Systemic Family Psychotherapist.. And, we Do look at All the Parts of the person, couple or family with whom we are working.... All the best to yourself and your family, Lynn.

It always astounds me how many amazing, compassionate, intelligent and tenacious people are out there fighting for people with ME 💪

Really great to hear recognition that ME is a 'full-time job, where you have to solve challenge after challenge.'

I have CFS/ME and I would like to get in touch with other sufferers

Children with CFS/ME have a better chance of recovery than aduls

Eyi mama angisakhoni... Imali iyangala😭. ❤❤❤💯🔥🔥🔥

We now have a presidential candidate in the USA who had his own tangle with toxic mold... AND has read Osler's Web, the book by Hillary Johnson which tells the hidden story of Chronic Fatigue Syndrome. How the Truckee High School "teacher cluster" scared two Incline Village doctors into calling the CDC for help. Yet the Center for Disease Control epidemiologists and all researchers who analyzed the incident could make no sense of it. Because toxic mold was not yet discovered. They knew nothing about the power of the dreaded black mold Stachybotrys. All that is needed is for Robert F. Kennedy jr. to make that connection. Attention-research-funding into mold illness will be assured. As told in Dr Ritchie Shoemakers books Mold Warriors and Surviving Mold, this is why I told the story of "Mold at Ground Zero for CFS" To try and make this happen sooner rather than later. podcasts.apple.com/us/podcast/biomedical-research-gone-awry-with-hillary-johnson/id1552000243?i=1000559928038

I don't think that ME COULD BE CONFUSED WITH MENOPAUSE

I have been dealing with MECFS since 2017. This illness for me was caused by a variety of vaccines. The worst one was the Moderna vaccine that I received on May 14, 2021. It caused me tremendous brain inflammation and I was bedbound for the entire summer of 2021. The next year, I ended up with C19 for that year....I did eventually overcome later in that year. For the most part I followed two books , The Diagnosis of Chronic Fatigue Syndrome by Dr. Sarah Myhill and From Fatigued to Fantastic by Dr. Jacob Teitelbaum. With these two books as my guide, I am now about 70 to 80 percent improved. I could not find a doctor in my area who understands what MECFS is, nor could diagnose or treat it. I basically had to be my own researcher and doctor. Thanks to Dr. Montoya and to Debra Warroff for this interview. I do believe that American doctors need to be trained to recognize MECFS. Perhaps the two books I mentioned could be their textbooks, especially Dr. Myhill's since it is most technical. She even invented a blood test to prove that a patient has this disease. Thanks again for the video. Miss Monique 🙂🙏💗

Holding on to joy is great advice, not just for ME survivors.

I am very happy for her, but please stop calling spontaneous recovery stories “inspirational”. She doesn’t even know why she got better. In fact she attributes it to pushing through a period of high stress, when in fact she must have been better by then, as she didn’t get PEM. For the vast majority of people with me/cfs, pushing through a high stress situation is either not even possible, or could easily cause a major crash! Very irresponsible advice for people with me/cfs, to suggest that pushing through high stress made her recover, when she doesn’t even know that’s what cured her. Indeed it’s more likely that she was only able to do that because she had already recovered, or she would have had horrendous PEM. It’s what made her realise she was cured, not what cured her!

The patient community has adopted the "ME" term without ever looking into CFS. I believe this is exactly what the CDC hoped for when they chose the trivializing name back in 1988.

Now and then people may get better without reason. 23 years later its just getting worse.

What treatment cured her?

It's always great to hear of recovery stories because it gives one hope that perhaps one day that could be me too. It's a shame that it wasn't mentioned in this video 'how' Kira got better, or was it by pure chance? I am so happy that Kira is now well and wish her all the best. Thank you both for sharing :)

I Hope this book will be audio due to this/my illness! I can’t concentrate enough to READ BOOKS ANYMORE except short reads!

We can hope that long covid finally changes the health care system so it pays proper attention to post viral conditions, ME/CFS, chronic lyme etc. We shouldn’t underestimate the obtuseness of medical eminences though - I suspect we will have to wait for more retirements because it will be difficult for many established medical authority figures to change their minds and admit that they were wrong to dismiss the seriousness of such conditions and fail to devote proper resources to their study.

Good interview, Would be nice to include Mold and ME in this conversation

I will buy this book

My me/CFS started with Epstein Barr Virus 1980, then CMV 1986….so have suffered for many years, either bed ridden, chair / house bound Some days can go out for a sort time…Many doctor visits…but they offer very little help here in Australia…So get quite upset about the exposure and rhetoric around so called long Covid..and the help they are getting..I would not call it long Covid yet…I had to wait several years to be diagnosed with Me/CFS …

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Post CMV, since 1996

Thank you for that great interview, and THANK YOU Leonard Jason, we need to differ between the CFS and ME !!

promosm 😎

I was officially diagnosed with M.E. in the UK in 1992. For 2 years I had gone from doctor to doctor being told more often than not that "it was all in my head". For 30 years I have lived with this disease which has destroyed my life Amazingly only now there is so much being discussed about M.E. and it's about time. Still today so many doctors do not take the symptoms seriously.