My daughter is nearly 14 and in the last Yr she has nearly all the symptoms of pda n she is getting assessed for autism, it's been really bad in the last yr.
@Mel-gf7zbАй бұрын
This has to be the most misleading, uninformed and incorrect seminar on PDA that I've ever listened to. I'm horrified that these two even had a platform to discuss something that they clearly know very little about. PDA has very little to do with intertia! Autistic/ADHD intertia yes, but it is NOT what PDA is. Most of this (no, all of it) has nothing to do with PDA. Leave the subject to those that know PDA, live with it and work with it. Listen to Kristy Forbes, look at PDA society, listen to Sally Cat - literally any one but these two.
@KonradHalabudaАй бұрын
❤ thank you for the opportunity
@lorimckay2704Ай бұрын
holy cow thanks for the words to express my brain
@lorimckay2704Ай бұрын
I honestly am too nice and have too much empathy to do the attack. I know its in me but I have gained control except for other villains'! I don't let out my dark passenger on children or those that love me at least 90 percent of the time. But I've learned to control how many demands are on my life. I Know difference of deliberate vs intentional and use my words to tell them knock it off.
@MelissaThompson4322 ай бұрын
3:44 I used to wonder whether I was cynical or even sociopathic. It turns out, I'm just practical and PDA. I actually do empathize, quite a lot. I just don't let it get in my way.
@MelissaThompson4322 ай бұрын
Ah, Harry! The man who explained to me who I am!
@DrLShaffer2 ай бұрын
I've thanked you for this lecture before, shared it many many many times - especially with professionals. I wish I could see the Power Point that wasn't working. Can you share that with us?
@garrendavis94972 ай бұрын
I think he did a great job at explaining the instincts of PDA but I also don’t like that he frames all PDA’ers as hostile and always lashing out externally. If you have PDA but at the same time hyperempathy/sense of justice you will never allow yourself to lash out at others because you hate to be someone else’s problem. That person will internalize everything which takes the form of shutting down, seeing external demand as their own (“this this is something I SHOULD do. But why can’t I physically do it?”), and probably intellectualizing everything to try thinking your way into having the motivation to do said task.
@shortbread4453 ай бұрын
My 4yo is sleeping next to me and I'd like to (but not going to) wake him.up ans hug him bc all the traits you deacribed are within him and he's been jokingly described to "either become.a lawyer or a bouncer" when he's grown bc he either bargains or just scolds us and tries to get his way with us. But then again there're SO many instances each day when he complies to live's and parents' demandes which visibly costs him so much effort. And I love him for trying to fit in and "be good". And he loves us for getting out of his way when his "troll persona" is at the helm. It'll be a good excercise for us parents not to have any expectations but to enjoy what his inherent motivation will give us.
@kimwatkiss44564 ай бұрын
This is an absolutely fantastic personal perspective of PDA. Thank you so much!
@DeboraSantos-ld7fo7 ай бұрын
Simply Rhys ❤
@fallenleavesfeedtheroots7 ай бұрын
When i force myself to follow through on demands i “can’t” do, i depersonalize and and go crazy basically. Very uncomfortable and dehumanizing
@rabbitcreative7 ай бұрын
24:18 Re: intrinsic vs. extrinsic motivation, see Alfie Kohn's "No Contest".
@Morbid_micko7 ай бұрын
This was brilliant Thankyou
@jillwaite74847 ай бұрын
Hi urgent question to anyone out there. Do you ALSO avoid demanding /asking things of others? This could be a missing piece in my jigsaw. Why I can be a rebel without a cause or even a clue.
@rabbitcreative7 ай бұрын
> Do you ALSO avoid demanding /asking things of others? I do. I feel sick to my stomach when I think about asking someone for help, even in life-threatening situations (e.g. being homeless). The destructiveness of competition teaches us to think of everyone as potential obstacles to our own success. > Why I can be a rebel without a cause or even a clue. I sometimes wonder if what we call 'rebellion' is nature's way of fighting back. I speculate that the so-called rise of 'autism' is nature's expression that something is terrible wrong on Earth, and needs to change. Try thinking of 'being a rebel' as a pool of energy, and begin looking for a structure (mental framework) for expressing that energy. I can recommend Alfie Kohn's "No Contest" as a start. And if you want to be a hardcore rebel, try Alfred Korzybski's "Science and Sanity".
@bradyshannon84528 ай бұрын
I believe I have this. It is paralyzing sometimes.
@breninaotearoa41528 ай бұрын
This has helped so much to understand four generations of our family. Thank you!
@josephinman30379 ай бұрын
7:46
@jasperd76409 ай бұрын
Time stamps for myself 10:59 - social obsessions over topics 11:30 hyper vigilance in case there’s a demand 12:39 behaving in “psychopathic” ways 15:09 the emotional empathy goes away, explaining why i stop seeing people as people i love and care about, and i’m not myself anymore, using any means necessary to regain my sense of control … damn. yep. 17:45 feels as thought we didn’t do it. god damn. this explains so much of my life. 31:33 needing to actually experience why we can or can’t do something. my dad has complained about me being like this my whole life
@SomeoneSomewhere420699 ай бұрын
"No mother, I prefer room service" lmaoooo I don't know how the audience didn't erupt into laughter there xD
@LemonMoon-u7q9 ай бұрын
This was magnificent, truly!! My son is autistic with a pda profile...this has been so helpful!!
@LeonardSamuels759 ай бұрын
LOL, so were basically Batman.
@Yuumiiiiiiiii9 ай бұрын
I always felt so bad "gathering" all the info, reading people and knowing how I can talk to them and "control" what not to bring up, how to manipulate the conversation so I don't end up being asked to do something, etc. Especially the times of breakdowns... I still feel bad, but in the end I can't stop because I HAVE to be vigilant. All this time I didn't even want to think because of all the "psychopath" stories, and how badly it's portrayed, and how even "manipulation" is always viewed as bad. Now I actually can see it as a part of me that just protects me. A fairy godmother I didn't really expect to work this way.
@Desotto19 ай бұрын
But he doesn't explain how to team up with the PDA. He just said you find success through doing it, and gives us dozens of methods that don't work. But never told us of a method that does. He just said team up with it so you're both saying yes
@7177YT9 ай бұрын
Yup, that's me. Took me more than 40 years to clock it. I wish I had that framework to understand my behaviour earlier, would've spared me a lot of grief.
@thewildybeast10 ай бұрын
This has to be one of best speeches of neurodivergence that I have heard. Why? Because it’s not about giving people a better understanding of neurodivergent conditions. It’s about giving people something far more meaningful than that . The speech is about the part of neurodivergence that gets forgotten. The part that Joe is so brilliantly able to engage his audience and share with them and that is the human side; What it is like to grow up and live in this world, when you are neurodivergent. Making this speech one of the best that I have heard.
@joclayton346410 ай бұрын
Important to point out that if you've met one PDAer you've met one PDAer. I dispute the use of the word "we" here especially in the context of the "cuddly psychopath" theory - not all PDAers will employ these strategies, there are other strategies
@turtleanton653910 ай бұрын
Yes it is😊😊😊
@Jen-GP10 ай бұрын
This is so me, I'm 49 and finally on the list for an asd assessment, I've suspected for about 15 years and tried to get a referral for the last 7
@barefootarts73710 ай бұрын
22:45 I have learned to explain to my friends, that actively caring for me in one of these situations is a way of asking for my attention. And that it comes across as insensitive, and even rude. Some people just don't know how to be invisible, as an act of love or respect. I am really getting a lot out of this.
@burkstrum11 ай бұрын
💯 relate. I bought the book for my parents and myself. I never thought that anyone could explain me.
@michaelanthony27911 ай бұрын
Thank you.
@LKH32111 ай бұрын
Amazing. I'm now going own a rabbit hole for info on differences between PDA ers who are socialized female vs male and also late diagnosed. I believe the presentations can be significantly different.
@ericer524811 ай бұрын
Sorry, but I am really struggling to understand the point you are trying to make in this presentation. Basically, what you are saying is: "Unless the person who has a PDA is determining the agenda and controlling the choices and not having to comply with social expectations, their parents and everyone else around them should expect resistance and defiance". However, where does this leave the caregiver of a child who does not want to comply with demands that are essential for the safety and maintenance of their health? For example, how do you support a child who refuses to shower, brush their feet, wear a seatbelt, to take medicine for severe diabetes? Should you just let them go ahead and do whatever they want? What are you suggesting that should be done in such situations? In other words, in your presentation, you explained what a PDA is. However, you did not provide any clear guidance about what caregivers and parents should do to support children with PDA. Has any intervention been helpful to you? By the way, you did a very good job at complying with the demands and expectations related to being a speaker at this event, which tells me you have learned how to cope with demands throughout your development. Has anything helped in this process?
@kareasutherland63678 ай бұрын
Hi PDAer here. I recommend researching the low demand / low arousal approach. Neurodivergent Insights has a good write up on low demand / arousal. The essentials like teeth brushing and medication are much easier for us PDAers when the majority of the barriers to our well being needs are removed or minimailized. Unschooling or a democratic (student led) Learning environment makes the biggest difference in my experience.
@emmajk743311 ай бұрын
Hazel is an amazing person!
@konwhey2346 Жыл бұрын
Holy crap!!! This is me to the T. This feels good and bad figuring this out.
@catherinevaughan7522 Жыл бұрын
Thank you for your talk. I’m just learning about PDA. Quiz results, my preference for control, and a history of resistance suggest I have some characteristics of PDA. I have lots of questions. May I share some thoughts? I am coming at this with ADHD, not autism, and Apathy Syndrome at age 70. Late in life, I am an advocate for mindful kindness and God’s lovingkindness. I’m guessing that the idea of trust in divine love and surrender to God’s will would be hard for someone with full-blown PDA, perhaps inconceivable. What’s helpful, what’s not? I have faith in divine blessing, that God’s lovingkindness guides and sustains all creation. Further, I feel invited to say Yes to God’s hope for humanity, that we embrace, embody, and express God’s lovingkindness. “Anchored in kindness, mindful kindness”, has given me a point of origin to come back to. I imagine IKANITAN as a system where love trumps fear and kindness counts, where the brain’s so-called negativity bias can be employed as a smoke alarm for our benefit and the greater good. Neuropsychologists and others would have to develop this. IKANITAN = an internal kind attention neural network guiding our internal threat alert neural network. Any reaction? As adopting a daily routine has eluded me, it would seem that kindness and surrender are not enough, or I haven’t consented enough. Dishes, laundry, clutter, lost items (laptop, current eyeglasses) - the nightmare never ends. Thank you for your kind attention.
@dennisshaw5454 Жыл бұрын
It all makes sense now.
@njkly Жыл бұрын
Man this gave me answers which I was looking for my whole life... I always thought why even if I love my gf soo much but when she asks me to do something I can never say yes but do that thing in slight difference that why for me I feel in control and make her somewhat happy also.😢
@infernoglass_ Жыл бұрын
thank you, this was very helpful ❤
@missdempster26 Жыл бұрын
I found this video so informative! Thankyou so much for creating this <3
@mamaof2998 Жыл бұрын
how can i get the powerpoint ?
@dawnroot4293 Жыл бұрын
WOW...i was right....my soooo has PDA. Im in Canada and I have mentioned it to his doctors and teachers and they looked at me like im crazy :( Im a single mom with no real support and he's 14 with 6 different diagnoses with autism being on. Do you ever come to Canada?! #pleasehelp
@MelissaThompson432 Жыл бұрын
If you show them the video will they pay attention and take you seriously? I'm fortunate enough to have found a primary that accepts my self-diagnosis. On the other hand, there are no adult ASD resources within several hours' drive of me. 😕🤷
@sensitivepersonality5866 Жыл бұрын
Speaker sounds Machiavellian
@margohannon5956 Жыл бұрын
This video really resonated with me for my little one with ASD. Heard of PDA yesterday. Thank you so so much!!
@Gdad-20 Жыл бұрын
PDA looks n sounds so closely related to Sociopothy. Its the manipulation for self preservation. The selfish gene! Lol 😂❤❤❤
@Model_mayhem_mother Жыл бұрын
What happens when your a PDA auDHD mum with 3 PDA auDHD kids..this Circus 🎪 ringmaster left town the 🐒🐒🐒🐒🐒 opened the cages and now we have problems and the ringmaster is there out back 🚬 and ducking about with the trapeze artist!
@cierraallen9288 Жыл бұрын
This made me cry because I understand even more how much internal struggle my child has.
@mamaof2998 Жыл бұрын
same. i cried when he said the child feels like " i cant go to that horrible place (school) or I will die" that really hit home because I decided to homeschool my 5 year old and that is basically what she told me when I asked her why she didn't want to go to the local school. she said " I don't want to go because I'm I want to stay with you and *sibling* because I love you and I will be sad and cry all day and I will miss you".
@cierraallen9288 Жыл бұрын
Unfortunately they do not recognize PDA in the U.S. I told the man who did our Autism testing just because it is not recognized does not mean it is not here!
@normasouza1086 Жыл бұрын
It’s now starting to be recognized.
@karaleighgarrison Жыл бұрын
My son was diagnosed with PDA in Utah a couple years ago. It’s coming, thankfully!
@DanJHugs11 ай бұрын
It’s still not fully recognised or understood here in the UK either.