Sudep Is Painful

I started my medication in 2019 but since then I am very okay though I am still taking my cambamazapine drugs,I really thank God that I am now giving testimony to my fellow members

Very informative, Thank you for sharing

In case you want to meet a historic person, I am Ian Anttila; I was the worst case of epilepsy in North America due to a staph septicaemia back in 1980 where I got back home from sick kids on Dec 12! 1980; the same day that Trudeau passed bill 82. As I was AVERAGING 20-30 tonic clonics and 200-300 complex partials a week I was not allowed to go back to school at first, but then my mother (an RN) and my cousin who was Mayor took my side and went to the federal court of Canada with a copy of bill 82 as it reads “every human has the right to an education” and won the battle. My mother drove me to school and attended it for 3 years but then it sparked special needs education.

My son is a epileptic how can you help us im from phil . we dont have enough money to support him we need a group of people who can help us to continue his medication

Dr my sister is suffering with epilepsy around 8 years. She is under the treated by an epilepsy specialist in kerala. She taken two medicines daily lobasam 5 and oxetol 450 but now she have some gastric problem with that she shows some epilepsy like symptoms in night. Why it comes frequently? She regulary eat medicines

My wife hadn't had one for 7 years and she got up to get water at 12, heard a glass drop and she was on the floor shaking. Scary shit, kept her on her side as her head was banging, fell on her head and face. Next day, I took a 15 min nap after work and she had another outside bleeding, went to the er and she had another. Scary shit.

Thank you for the video !! 🏳️‍🌈

OK, since you’re not awake yet no vaccine has ever been tested for safety and efficacy, antibiotics, damage, your gut, Microbiome, the people in the white coats know nothing about seizures, as a nurse for 20 years, I saved people in my own community by treating them early treatment with the FLC CC protocol, the new white coats coming in Are ignorant and brainwashed by their indoctrination program in the Rockefeller, funded medical schools, transgender makes more money for the white coats. They can push hormones to surgeries and cause irreversible damage to a man or a woman, these doctors are going to be arrested, all will be held accountable for these crimes against humanity.

I have an important question… is there a history or studies on treating Epilepsy with natural remedies?

Coffee, alcohol and even some foods can interfere with Epilepsy medication. Of course hormone intake, birth control and street drugs will cause effects as well. It doesn’t take a genius to understand this.

I feel that the best way to justify asking about hormone intake or birth control is because these things can interfere / interrupt the way the medicine works.

Can we get to answering the question as to what sexual orientation has to do with the treatment of Epilepsy?

So nothing about EP? And All *LGBTQIA+* Great..

My personal opinion and that due to the self hate this community tends to be more negative.

What does your kink or sexual preference have to do with treating this neurological issue?

Many of the drugs that are available to treat epilepsy are harmful for a fetus.

Maybe the fact that people are taking hormones that doesn’t apply to the gender your were naturally born with it is creating glitches in your brain and body.

I know a pedo (child attracted) who suffers epilepsy can you help him ?

All of these issues exist not just within that community, but within anyone in any part of the world

We are seeing A TON of suicidal patients who regret their surgeries and trans affirming care, MDs are getting arrested

Could it be that more people are confused due to the fact that kids are being encouraged & molded to the idea that this is the new norm?

It allllllll starts in the gut

Wow 😮 This is SO UNBELIEVABLE WEIRD!!

Hello i been smoking marijuana since high-school I'm 31 now... Four year's ago I've been having seizures every 1-4months I'm starting to think my neurologist is right to stop smoking😢😢

Need. Minimally 3-4 minutes between bouts to repeat same effort.

Turn it. We asked a few months ago on our social media channels. What's the most common misconception about epilepsy? You'd like to debug and we got over 400 comments. So we wanted to do a webinar to address. The most common themes we saw in those hundreds of comments that folks submitted. We also want your questions during the weapon are. And we'll ask our experts your questions during our q and a portion of today. Just as a reminder, we're not able to give specific medical advice. So please keep your questions general in nature. And if you have. Specific questions about your health? Always talk to your health care team about those questions. We are grateful to the speakers who are with us and all of you who are joining us today, like I said from all over the country and some global outreach too. So I'm pleased to have with me doctors, monisha, goyle Katy laylor and Kathleen thagger and as a person living with epilepsy myself, I'll CHiME in and provide lived experience comments as necessary. All of them bring a different expertise to the conversation and I'll first introduce you to all of them and I'll start. And then we'll start the discussion. So first I'd like to introduce doctor Boyle. She's an epileptologist and professor of pediatric neurology. Doctor goyle received her medical degree from the University of Alabama School of Medicine with additional training at ST. Louis children's hospital.

And eight most children diagnosed with lgs will continue to have seizures through adulthood. Three main things help doctors make a diagnosis of lgs multiple types of seizures, slow development delays in mental and or physical motor skills. An abnormal eeg or brain wave pattern. Doctors use a test called an eeg to measure and record brain waves. The majority of people with lgs have a mixture of different types of seizures. Most people with lgs have frequent seizures. Daily seizures are also common. If you've never seen someone have a seizure, it might be scary the first time. But as with many things, once you know what to expect, it can be easier to understand and recognize. Many people with lgs have seizures that can cause drop attacks. A drop attack is when a person has a seizure that makes To fall down these drop attacks can be caused by multiple seizure types and may affect just the head or the whole body resulting in a fall. With drop attacks. It is important to protect the person who is seizing to help prevent serious injury. That's why some people with lgs may wear a helmet. Lgs is a lifelong condition. And although there isn't a cure, doctors have ways to help manage it. In addition to seizures, people with lgs also have some challenges with. Learning the challenges vary greatly from person to person, but we work hard to understand what our loved ones need and to make sure they have the support to reach their own potential. Okay okay okay Fortunately, people with lgs often get extra educational support and additional help with general life skills. This type of support is so helpful, especially on a day to day basis. As an extended family member or friend of a person with lgs you should also know how much your support gives strength to the entire family. Just reaching out and staying in contact with us a quick chat on the phone, a coffee emails and texts helps us recharge. Sure lgs families have different challenges, but we love our friends and family and want to stay connected. Thanks so much for taking the time to learn more about lgs your support means a lot. If you have more questions, please don't be shy. We want to help you understand. We welcome your curiosity and appreciate your Board.

Has anyone ever been on CBD oil and gotten off of it? Like what was the change for you because that crap is expensive and hard to understand of what to do when you are getting off of CBD or western "medications" it is hard living with epilepsy because you have so many to deal with it is like which one do I need for life without breaking the bank. It is not fun. Enjoy your lives while you have it. It is s sometimes. That is how life is.

God bless you young man 🥰😔

As a 20 year old with seizures I first started having them was back in 2015 and I was continuing to keep having them and it got so badly that I was constantly have accidents by peeing myself and vomiting on myself I was repeatedly rushed by ambulance over and over again it’s so terrifying and I kept missing school because I was constantly having seizures. Now I haven’t had any about a year.

Any treatment available?

I don’t trust caregivers in general. Are they my family and people who are close to me and my current boyfriend because I have the worst time with caregivers ever.

I’ve recently I have seizures, and visited my local VA doctor who prescribed numerous medications for me. My wife tells me that I’ve fell down the stairs on two occasions, bit my tongue, had a head surgery, and still confused as to what has happened. Herb

Despite India having several excellent Neurophysicians, it's almost impossible to give the patients with epilepsy response because they do not know anything at all. The first time I had the attack there was nobody who could help me until it stopped. Then my parents were called and I was taken to the hospital, not for the seisure but for the injuries I had that day.

I’m in the process of trying to get my seizures and partial seizures under control but everything takes so long from each person to another I’ve asked for antidepressants but it’s taking longer as they carry a small risk of seizures sometimes you feel like saying I give up I’ve been on the phone all day how bad do I have to get before it’s classed as urgent

Wrong stress is not the root cause

lamictal. Had many more side effects that the previous manufacturer did. This never occurred to me until the dizziness (which I just figured was from my hearing issues and allergies, I’ve had an increase in seizures since then also. it was brought to my attention that these may be because of a difference in manufacturing of the medicine. Didn’t even know that was a thing, but it’s well now my to be one from doctors and such. Fun stuff.

This man saved my life!

Beautiful,

Saw him today in my school his moves were great

Having a larger community and making more noise wont do anything for your seizures, but watching my video and contacting me today will. Make the move and live your life the way YOU want to!

thank you for this webinar!

She is spreading seizure awareness😂😂 all jokes aside you draw really well

Do you have to breathe in when you press the atomizer?

I what is so frustrating is when teachers don’t know. I cannot tell you how many times I was scolded for not paying attention. Tonic clonics are embarrassing. Complex partial are always fun especially when the teacher is upset thinking you’re just high or something cause you’re walking into the wall repeatedly. , simple partials are annoying cause you’re all disoriented randomly til it stops.

Oh I m always happy to see as a patient epileptic videos talking about epilepsy

After one of my seizures I woke up to an EMT trying to calm me and two cops holding on my legs down amd a third wandering through my house looking in closets and cabinets. acab