21 күн бұрын
Пікірлер
@jmaldonadobp 2 ай бұрын
Amazing story I wish Ana Ana continuing recovery. How could I get Dr. Schneider contact information? I have a little cousin that was just diagnosed with the same condition, she’s 11 and doctors are not giving any hope.
@nloremfoundation 2 ай бұрын
Hello, we wish your cousin the best in her fight against FUS ALS. Please email [email protected] to connect with n-Lorem and contact a person who can best assist you.
@marthapenha 3 ай бұрын
Live day to day
@1320RPracing 3 ай бұрын
Praying for you Anna🙏🏼🩵 I was just diagnosed with fus-als and hopefully starting my clinical trial soon your story gives me hope and I hope you manage to live a happy life you deserve well as all of us who are affected by this 🙏🏼🙏🏼🩵
@nitinkapoor3578 3 ай бұрын
My son is 18.years and having FUS ALS. How can we connect to dr Neil
@nloremfoundation 3 ай бұрын
Hello, Neil is a physician at Columbia University Medical Center. You can contact Columbia through their website. In addition, please email [email protected] with the subject "Pre-submission Committee".
@seedubb789 4 ай бұрын
Thanks for the optimism & confidence through clear presentation to give us the understanding. Thank you very much for this base understanding!! My father is experiencing Ventricular Tachycardia and its rumored to be genetic mutation
@marielzapues8180 4 ай бұрын
Anna is a great fighter! By her surname Kämpfer means "fighter." She's the real one. As I read her biography, I was really inspired by her story and she's one of my best patient, easy to take care of and she always helped me to make my work easier. She's easy going person. She's just a normal human being like us, unfortunately she got ALS.. I hope she will make this through, and we can say Anna Kämpfer the fighter and a survivor of ALS 🤩
@sepehrheidari8352 4 ай бұрын
I just learned about Anna in my neurology lecture!! a mix of heartbreaking but yet encouraging story, and her motivation and determination is unmatched!! really hope for long-lasting improvement and improved health for her
@danacaro-herman3530 5 ай бұрын
God bless you Dan, may the Lord accompany you on the rest of your journey through this short life until you reach your eternal home to Him🙏
@gregorygarcia7807 7 ай бұрын
why did god do this to someone who wears a jesus cross? must be something wrong with god. had a freind's bro die of ALS. here one day spent time as a vegetable then died. he could play guitar pretty well B4. His mom was a rocket-scientist at rocketdyn and JPL. the guy who had been my friend became a worthless repugnant. we ain't friends no more.
@trick9704 7 ай бұрын
Marvelous!! No longer, human have no time to pay for any wars!!!!!!
@rishabhsoni8586 7 ай бұрын
😊
@fawzikrossa3786 9 ай бұрын
Im trying to contact you about my son’s NARS1 Arg 534 mutation can I have an email adress to explain you my request please ? Nb : im physician
@fawzikrossa3786 10 ай бұрын
Any news about NARS 1 treatment ?
@nloremfoundation 10 ай бұрын
Thank you for reaching out. n-Lorem works closely with each physician that submits an application. During the discovery and development process, n-Lorem will notify each physician on the status of their program. As such, we encourage patient families to reach out to their submitting physician for program updates.
@fawzikrossa3786 10 ай бұрын
@@nloremfoundation thank you for the answer … what about patient families living outside usa ? We are based in France and im a physician and i wish i can submit an application I need your help
@nloremfoundation 10 ай бұрын
@@fawzikrossa3786 Thank you for your question. Patients must either live in the United States or have an identified research physician in the United States and have the ability to travel to the United States for treatment and evaluations per the treatment protocol. Please email [email protected] to connect with an appropriate person at the foundation.
@jeffreyliu-g5i 10 ай бұрын
The best doctor is self
@MosarofKhan-z2l 11 ай бұрын
Please help me sir please my name is MOSAROF I'm from Bangladesh 35 year old I'm suffering MND ALS disses one year please help me sir
@JulieBlair-g6w 11 ай бұрын
Having a terminal illness profoundly changes a person and makes them realize what is important in life! It makes you appreciate life! God bless you!
@michealmcpherson1575 Жыл бұрын
"Promosm" 😄
@bdfelley Жыл бұрын
I rcvd my diagnosis in may of ‘22. Life did not end that day. My new self, as Dan mentioned, is aware,,present and grateful. Who knows what the future holds… there is too much joy in today!
@IsmailKoppath-y5f Жыл бұрын
💋💋
@panammmsy1869 Жыл бұрын
God bless you Dan. Your relentlessly positive outlook on life is inspiring.
@marywittenberg8347 Жыл бұрын
Incredibly inspiring impact Dan has had on NYC and many of us. And now, he is again inspiring with his perspective amid his fight and his great work with Target ALS. Goooo Dan. 🙏❣
@solomonjonathanlubandi7011 Жыл бұрын
Your story is amazing, keep up the fight.