#042

[@sandysmeenk5851]

Thank you Dr. Furlan for helping to raise awareness about EDS! As always, it is a pleasure working with you in support of people in pain in Canada!

[@DrAndreaFurlan]

Thanks again, Sandy! I hope more people will be aware of hypermobility, EDS and connective tissue diseases.

[@alfasiger4178]

@@DrAndreaFurlan Are you by any chance familiar with Visceroptosis?

[@BluetheRaccoon]

Thank you so much for discussing this! It's been a truly arduous journey that has made me unable to trust medical practitioners and fear returning and trying once again to be officially diagnosed. I'm tired of being gaslighted or persecuted as drug-seeking when I simply want my life back, and expect more than 'mindfulness' and acupuncture. Cannabis has made existing more bearable, but my function still decreases and I'm sincerely afraid of becoming a burden to my family.

[@gabbiebarnard7580]

I feel your pain 😭 the gaslighting and drug seeking accusations are distressing. Cannabis has been the greatest help too.

[@jennyklingstedt]

I know that there is no help to you to hear but your are lucky in Canada that you can use medical Cannabis for the pain. In Sweden there is no help. Sometime you can get opiods but most doctors don't give us any painkillers.

[@pianoistic5548]

I have hypermobile EDS, I am only 13, and I have dislocated my knee caps many times, I don't even remember all of them. And my family also found out that people with EDS have a higher risk of having POTS, which I have as well. Thank you guys so much for spreading awareness!

[@notanotherfuckingnikki]

Mine started the same way, they still lock up and cause constant pain especially when I wake up and just yesterday I couldn't move without screaming in pain.. be extremely careful with pots, because I have been fainting on a daily basis for over a year now and it's not good because I have a CSF leak that was put on hold for COVID protocol & I've hit my head several times now and they don't understand how important it is that I get the proper treatment immediately since I likely have a Chiari Malformation which is blocking my CSF fluid and causing lymphedema and CHF COPD bradycardia AND tachycardia before the falls. My pediatrician sucked and back then I was just double jointed then hypermobile and now my stomach is going backwards (dysphagia due to motility dysautonomia ataxia venous instability and generally my life has become unbearable and my kids don't even live with me anymore because I can't even get to the bathroom alone most days unless I crawl. Gravity is not our friend lol Have you ever heard of prolotherapy? I highly recommend watching the Caring Medical Group channel.. Dr Hauser is a fantastic Dr who knows his stuff and prolotherapy is supposed to be life changing (he treats too athletes etc) I'm not sure where you're located but you can always talk to me about stuff because I have been living with it for 42 years and have been put through the wringer and I know it's lucky you're diagnosed correctly because it's been hell to have "a well you look fine to me" type of problem even in the emergency room I'm treated like crap because I was put on heavy narcotics at your age... Low dose naltrexone is another good therapy for pain management and I also recommend watching the Weill Brain & Spine Institute video called Spine Time: Treatment for EDS, they're the top neurosurgical center in the world & I am currently working on getting there for a resection of a large cyst in my brain that's causing me to have even worse than usual symptoms and they know their stuff... Either way I wish you the best of luck with your journey.

[@ImagesofJosephSmithJun.]

HEDS, stretchy skin is no longer a requirement for Dx, with the 2017 changes, pt can just have soft velvety skin.

[@DrAndreaFurlan]

Thank you for the clarification.

[@BenMossMusic]

Can I still have hEDS with out soft skin or stretchy skin

[@clarabusemann7341]

@@BenMossMusic yes, but than you need 5 other symptoms of the category. You can look at the diagnostic criteria on the website of the Ehlers Danlos society.

[@burnswhenpees]

My hypermobility, gave way to pain, and stiffness, at roughly 15 years old. It would be virtually impossible, to recieve a diagnosis now, at 46 years old. All other symptoms persist. The crippling migraines, have lessened in frequency, while other symptoms have become unmanageable. Any advice, for someone in my situation? I see Dr. Kivitz,(rheumatologist,) on August 2nd, and need expert advice, on how to approach my visit. Any input, would be greatly appreciated.

[@LangKatharine]

Getting a diagnosis of hyper-mobile EDS explained a LOT. Over the years I have had many mysterious physical issues that left my doctors scratching their heads. Dizziness, almost blacking out when getting up from sitting (also I have low blood pressure), ringing in the ears and hearing loss, complications from cataract surgery that affected my retinas and caused vitreous detachment, major internal scarring (adhesions) from several abdominal surgeries that led to an incorrect diagnosis of endometriosis. My intestines were glued to my reproductive tract and caused great pain with my periods (thank goodness I am past all that). My facial skin is almost free from wrinkles at age 69. My hands and feet are so hyper-mobile that they are now very arthritic and my thumbs are permanently dislocated. I have had joint deterioration in my hips and knees, causing one of each to be replaced. The replaced knee is now hyper-mobile as the ligaments have stretched out causing my knee to bend backwards a bit. The other thing is over-development of certain muscles. I believe the body does this to support joints due to weak connective tissue. I have overly developed musculature in my back, neck and legs, which leads to spasms and pain. I am now getting deep tissue massage 2x month and taking epsom salt baths. I exercise a lot and do tai chi, which helps with my balance problems.

[@DrAndreaFurlan]

Thank you for this comment. I just published a new video about cervical myelopathy (spinal stenosis in the neck). kzbin.info/www/bejne/jX-xfKitaqt0g5I Have you seen my website yet? www.doctorandreafurlan.com And please remember that I do not give individual medical advice via email, social media or website. My channel and my website are for educational purposes only. For any individual medical advice, please talk to your doctor.

[@psleep4255]

I’ve seen a pain management doctor for chronic pain that began after a catastrophic snow skiing accident in 1987. I live in the USA and desperately wish we had doctors like you here. I enjoy your channel very much.

[@janetwriter]

When my daughter was diagnosed in her late 30's she came to me and showed me how a lifetime of problems pointed to EDS both in me and in my mother. It was helpful to put it all together. What you say about providers is so true. There is a vast ignorance among them and I don't think they understand what I am talking about when I tell them I have EDS. I am 73 and just beginning to learn more about living healthy with this chronic condition that affects all of me. Mostly, it is hard to find a balance between activity and resting. I am more active than I was, but my pain is great and I have to rest my back for a while every day. It is strained just trying to hold my spine and ribs in place when I walk or ride a bicycle. I find that increasing my magnesium (magnesium citrate) helps with muscle pain and gut problems and sleep.

[@burnswhenpees]

Was there a point in your disease progression, where hypermobility, gave way to stiffness?

[@coolgirlfrozenfeet]

EDS would explain almost all of my problems that can’t be explained by my ADHD, ASD, and depression. I need to find a way to be diagnosed because it is very debilitating.

[@riversdudley4650]

I suffer from all of those as well its nice to know I'm not alone in this struggle

[@SparklyPrincessLynnette]

I was told that people with ASD are more likely to have EDS. X

[@heidibonjour]

Thank you! This is fantastic! An excellent and simple overview of EDS and excercises!

[@DrAndreaFurlan]

Glad you enjoyed it! Please share with your friends.

[@sandrafischler3515]

This video is so comprehensive and easy to follow. Thank you so much!!

[@DrAndreaFurlan]

You are so welcome!

[@anntunaley9974]

This is the best explained video for EDS

[@kamaaljamac3737]

MY LOVED Dr.. ANDREA FURLAN I MISSED YOU AND YOUR LESSONS

[@DrAndreaFurlan]

I missed your comments too Kammal!

[@ceecee3339]

Thank you for this presentation Dr Furlan 🙏 it was very thorough . I appreciate you bringing awareness to EDS! As a person who suffered my whole life with such a wide array of complex medical issues ,I wish someone could have put the pieces together earlier. Getting diagnosed at 39 ,I can’t help but think there was so much that could have been done differently to protect my joints etc. Canada is very lacking in appropriate medical care for us , we are pushed aside ignored and told it’s all in our heads. To hear a Dr being so thorough and understanding is wonderful. God bless you 🙏

[@DrAndreaFurlan]

Thank you Celina. Please share the video in your online groups and with friends.

[@decouvrir69]

What kind of doctor did you see to get tested and diagnosed???

[@LangKatharine]

@@decouvrir69 - I went to a rheumatologist to get my diagnosis.

[@tarahj478]

I just want to say thank you so much for this video. I am 42 and was told by a doctor (not my regular dr) that I most likely have EDS- type 3. My pain mgmt doctor acts (it seems to me..because of her attitude and denial/ brushing off my telling her this) like I'm trying to MAKE it UP!!(I wouldn't wish the pain I have now on my worst enemy!) Like everything with my health, I end up doing my own research & learn everything i can. I've had TMJ disorder since I was a teen as well. Thank you for all of this info and i hope to find a better doctor ASAP! Its funny... as a kid when i was a gymnast and then later, a dancer in my 20s- 30s, and even in jr high, I won the "sit & reach" test(basically stretching while sitting and stretching forward) and the flexibility helped me - I just thought I was super flexible. Also-- It seems like the US is behind as far as helping ppl with this disorder. Hopefully that will change soon. Many thanks.

[@DrAndreaFurlan]

You are very welcome, Tara.

[@thesocialcommenter5004]

Thanks Doctor Andrea showing your love and care through informative videos it's very helpful to me and others as well. I am following your video they are very beneficial.

[@DrAndreaFurlan]

Glad it was helpful!

[@thesocialcommenter5004]

Thanks a lot Dr. Andrea for the excellent infomative video it's very important and helpful. You doing wonderful work to help us

[@DrAndreaFurlan]

You're very welcome!

[@vinjehelene5314]

I have just gotten this diagnosis after years of painful body. Sometimes I can’t get out of bed. Started when I was 15 and gotten worse, I’m now 28.

[@tuskedwings7453]

I happened to see an expert in this for hypermobility in my hands, got diagnosed with EDS; glad I caught it early. Im 23 so I think i’ll be able to change my lifestyle to accomedate.

[@agdesignfabrication1009]

I am surprised anyone gets diagnosed with anything nowadays. Doctors are generally rushing from one appointment to the next. Saw the image of the thumb flexed back to the wrist which is something I can do easily and was curious if it was something unique. Also have hyper mobility of a few persistent and extremely painful joints but good luck with getting a proper diagnosis - been trying for the last 10 years!

[@SHARYU_NIMBBALKAR]

Tq....i am sharyu Nimbalkar From India... I am eds patient

[@DrAndreaFurlan]

Thank you for sharing that.

[@SHARYU_NIMBBALKAR]

Plz mam... ...i have eds....I have rectal prolapse problem in childhood since plz .......plz guide me...I am unmarried...but ...in future my delivery problem ??? Pzl ... rectal prolapse ???

[@kamuconkamucon8543]

I can not thank you enough for invaluable information,asante.

[@DrAndreaFurlan]

That is great to hear. Please share this video with your friends. I have lots of videos about chronic pain on my channel kzbin.info And don't forget to turn on the notifications 🔔

[@evegraves2261]

I would love to see a video specifically for my physical therapists and doctors...so they can learn more about how to help me.

[@DrAndreaFurlan]

Dear Eve, that is a great suggestion for a future video. Thank you.

[@jessicawright8783]

I’m a physio student currently putting together a presentation for prac on HEDS.

[@DrAndreaFurlan]

Thank you for your comment, Jessica. I hope your presentation goes well.

[@IanMcBeth]

Thanks for putting this together.

[@DrAndreaFurlan]

You are very welcome. Thank you for writing the comment.

[@juahgbarjuewaye166]

Your presentations on joint pain have helped me a lot with my knee and back pain...thanks you

[@DrAndreaFurlan]

You are so welcome!

[@justyybearr3519]

This doctor explained this so perfect a house without a proper foundation

[@DrAndreaFurlan]

Thank you for watching the video and writing this comment. Please share this video with your friends. I have lots of videos about chronic pain on my channel kzbin.info And don't forget to turn on the notifications 🔔

[@johnwasef9111]

Thank u for your great vedios .Greatings from Egypt

[@DrAndreaFurlan]

So nice of you. Please share this and other videos from the channel with your friends.

[@TheGabz0rz]

I was diagnosed with Fibromyalgia and now after watching this i am wondering if i was misdiagnosed. Can they be comorbid?

[@DrAndreaFurlan]

Yes, they can co-occur

[@saracerroni8998]

Thank you for your useful tips Dr. We ed patients are very difficult subjects to be treated...😉

[@DrAndreaFurlan]

Thank you for watching the video and writing this comment. Please share this video with your friends. I have lots of videos about chronic pain on my channel kzbin.info And don't forget to turn on the notifications 🔔

[@myrddinmekel206]

Thank you! I am diagnosed with BJHS (Benigne Hypermobility Syndrome) a condition that doesn't excist anymore. My rheumatolagist said it was the same as EDS and I was sure it wasn't. I have a lot of the EDS symptoms, not only POTS, disclocations and joint hypermobility. But also some allergic reactions and a lot of helping aids. My old one retired and I now have a new one specialized in EDS. I hope she can give me the right diagnose. I think I have hEDS but I am not a doctor. I walked strange at the age of a baby too. The excersises that you are recommend are good for most of us but not for my body. I will start with the Muldowney Protocol at the end off the month. I barely can walk 500 meters so I just find the BJHS diagnose very strange, especially the Benigne part.

[@DrAndreaFurlan]

Thank you for your comment.

[@sadmermaid]

How are you going?

[@michelebenedetti2674]

Thank you. My son diagnosed with heds at John’s Hopkins last month and week later hospitalized with diverticulitis. Please address GI issues with Ehlers Danlos

[@DrAndreaFurlan]

You are welcome.

[@michelebenedetti2674]

Dr Andrea, do you have advice on my 27 year old son with heds on his diverticulosis

[@RealZayComo]

@@michelebenedetti2674what are his symptoms? I think I have the same thing 🙏

[@varungupta3193]

Very nice information abt this....But advice us treatment also

[@DrAndreaFurlan]

Thank you for your comment. That is a good question for a future video.

[@jackcojamco5073]

God bless u Good noon Puerto Princesa City Palawan

[@DrAndreaFurlan]

Dear Jack, I'm so happy to hear that you are watching from Puerto Princesa City in Filipines. It is a beautiful city. Maybe one day I'll visit.

[@shannongreenwell1278]

Thank you, Doctor. I tell people that about the house as a way to explain What EDS is. I have Classical EDS type two. I found out that it runs through my dad’s end of the family.

[@DrAndreaFurlan]

Thanks for sharing!

[@shannongreenwell1278]

@@DrAndreaFurlan your welcome, Anytime! I am glad to learn more about this. I am still trying to learn as much as I can about it so I can also help bring awareness to it, too.

[@vickersfanxoxoxo]

Omg I think this is what I have. I thought my flexibility was normal. But recently I have been having gastro and Neuro issues, as well as POTS. 🤦🏾‍♀️ I need to see a specialist.

[@Proudmomma7]

I’m 43 and have always had a lot of these symptoms growing up but I thought it was normal. I most recently had my jaw dislocate 4 times and my hip once. My chiropractor wants me to get tested for EDS. My question is why am I starting to have the dislocations now?

[@DrAndreaFurlan]

Hi Kaci. Thank you for taking the time to write this comment. I don't have the ability to give medical advice here. Please talk to your doctor. Consider subscribing to this channel.

[@Proudmomma7]

@@DrAndreaFurlan I will thank you.

[@Mystic_Light]

@Kaci McNeel, it has to do with aging, wear and tear, and how strong our mucles are. Since our tendons and ligaments operate in reverse, it's very important that we keep our muscles strong because they hold our joints together, not our ligaments...said my geneticist.

[@mssmiley5691]

There is no genetic test for hypermobile EDS. Diagnosis is based on specific clinical criteria.

[@LangKatharine]

-@@mssmiley5691 I went to a rheumatologist but he said there is no definitive way to diagnose hyper-mobile EDS. He ran me through a lot of physical tests, asked a million questions. In the end he told me that I have many of the "markers". As I age, the symptoms are increasing. One thing this video did not address is overly tight muscles. Often the muscles have to over compensate for weak ligaments and tendons. I have started getting deep tissue massages every two weeks and taking epsom salt baths almost daily. Stretching is good but only helps a little. Also helpful is using a percussion-type massage tool.

[@hamshadkhattak7923]

Good video presentation.

[@DrAndreaFurlan]

Thanks for the visit

[@roseri1905]

I'm so happy💜💜💜

[@DrAndreaFurlan]

👍👍👍

[@biiaxu]

Parabéns! Muito bom esses vídeo!

[@DrAndreaFurlan]

Obrigada, Beatriz.

[@NatiDeNut]

Thanks!!

[@DrAndreaFurlan]

You are welcome. Please share with people who need to know about this.

[@notanotherfuckingnikki]

Anxiety and agoraphobia PTSD and fear of moving are common because of pots, our bodies are constantly confused about where are bodies are in space and time (which also is the reason we're so clumsy)

[@Sovereignlupi]

Thank you

[@DrAndreaFurlan]

You're welcome

[@TheHealingHandsDuo]

Dr. Andrea Fulan, are you able to recommend any practitioners that might be familiar with EDS in the GTA in Ontario Canada? And how would one go about seeing one of these practitioners if they do not have a regular family physician or without a referral? I have suspected for a while now that I might have some form of EDS but then again I was also diagnosed with Lyme disease over a decade ago which carries many of the same symptoms. However, the only reason I suspect EDS is that I am extremely flexible (joint hypermobility, more so than the average person) and while it wasn't an issue when I was a child my flexibility has become very painful as a middle-aged woman and is now leading to the opposite effect in the form of muscle and collagen loss and joint stiffness/pain, I also have multiple degenerative discs one in my neck, middle and lower back, as well as spinal stenosis just to name a few things on a list that is much too long to write about here. I mean it could be autoimmune arthritis (inflammation or elevated CRP levels) like RA but I don't think so. I was also diagnosed with Crohn's colitis but as you said in your video intestinal issues and issues with collagen are common in those with EDS, however, they are also common in those with any sort of Lyme complex infection as well which I would encourage anyone with EDS to get tested for Lyme among other infections that are usually related, like Babisia among dozens of other bacteria and parasites. Don't bother getting tested in Canada for Lyme either because our labs here are pretty useless, either send your blood over to the US Lyme lab, IgeneX, or over to Germany.

[@DrAndreaFurlan]

Hi, UHN has a EDS clinic, but I think the wait list is very long. Please ask your doctor to refer you there.

[@TheHealingHandsDuo]

@@DrAndreaFurlan I don't have a family doctor unfortunately and haven't had one in years. I fired most of my allopathic practitioners and specialists years ago when they were less than helpful than all my holistic practitioners and kept trying to imply that all my aches and pains were simply in my head. Until of course, I sought out private healthcare (on my own which is very expensive) and all my tests came back positive for Lyme and several other co-infections from the US but by then I didn't trust any of them anymore since they couldn't figure out what was wrong with me for over 4 years. And then later when my Gastroenterologist told me there was absolutely nothing I could do naturally to control my Crohn's symptoms and that changing my diet wouldn't make much of a difference (which was not true at all) I knew he had to go as well. Hence the reasons I am now looking for a "knowledgeable" MD who actually knows what they're talking about, especially when it comes to EDS. Whereabouts are you located and are you a practicing physician? Would a Sports Medicine Practitioner or a Physiotherapist be able to refer me to the UHN or do they lack the credentials to make that referral, would you happen to know? I guess my Chiropractor wouldn't be able to make that referral either? Thank you and I appreciate your previous response.

[@stinastina2293]

Can you have all other symptoms of hypermobile eds without the stretchy or velvet skin? My orthopod suggested eds as I have hypermobility syndrome I fully tore my atfl and partially tore my cfl he said its because I'm so hypermobile it happened without obvious injury, arthritis, chronic fatigue, stomach issues and idiopathic autoimmune hives and angioedema, dizziness and breathlessness when standing up or standing too long. Also balance issues as I fall over a lot, walk in to doors etc. When I was a baby I went to hospital as my whole body bruised for no reason. I think I've had issues since birth but now I'm 30 and everything started to become unmanageable.

[@DrAndreaFurlan]

There are many types of EDS and various symptoms. You need to talk to a doctor for a proper diagnosis.

[@sarahb.6475]

I just got diagnosed with EDS and I do have the super soft skin...but years ago I didn't! My skin had gone super soft after I changed my diet and went grain free. I am gluten sensitive. Well sensitive to all grains really! Maybe you are the same? I went onto a keto type diet.

[@sarahb.6475]

I was just diagnosed with EDS yesterday although I have suspected I had it for over a year now. I was diagnosed by a neurologist but I also have a referral to a geneticist (although personally I suspect hEDS). I have been on the keto diet for some years and I find it to be very helpful for my joints. That is it seems to help them heal? Or be less pain? Of course I am very careful what I eat and eliminate any foods I react to. I am curious if you have heard of anything about keto being helpful for EDS or is it just me? I do have a lot of gut problems, food sensitivities, airborne reactions (MCAS no doubt) and what seems to be on and off Pots. I am also very gluten sensitive (to all grains) and I don't tolerate oxalates at all or dairy or eggs! I do think its the keto that allows me to be as active as I am even though I have EDS.

[@DrAndreaFurlan]

Thank you for sharing Sarah!

[@almazka6923]

I have a kyphoscoliotion eds( thank you so!

[@AnaPravilovic-k3y]

An interesting point is a proven correlation of EDS with Marphan Sy, and with NeuroDivergency. I cannot name the authors of the study, Yet, people with these should be medically monitored, especially, as the doctor have mentioned, when the state of Aorta is concerned.

[@oh2887]

Dental issues too with a lot of people.

[@DrAndreaFurlan]

Thanks for sharing this.

[@BunnyFoooFoo]

Hello, hope someone can help me.What doctor treat this in the US? So I can get a dr that understand everything is related. I have hEDS, POTS and fibromyalgia. I recently move to the US and they told me I needed a PCP so I picked one in my insurance. He was clueless about POTS, and hEDS he just gave a refill for fibro meds. I was in treatment with cardiologist and reumatologist in my country. Thanks a lot!

[@DrAndreaFurlan]

I hope you find a doctor soon. Usually physiatrists like me.

[@BunnyFoooFoo]

@@DrAndreaFurlan thanks a lot! I will look for one right away :)

[@AshleyMarie1992]

I’m hypermobile. But I have no family history of Ed’s. No joint pain or dislocations, no abnormal bruising. And I don’t think my skin is stretchy. The only problem I’ve had is I do have tmj. Can I be hypermobile without having hEd’s?

[@sarahberesford4724]

How do you no fybromyalgia or hypomobilty

[@DrAndreaFurlan]

Thank you for your comment. That is a good question/suggestion for a future video.

[@laurahiggins8594]

You just diagnosed my 85 year old mother! Too bad it took this long. :(

[@himyaralward2792]

Can l found drug for it or only treatment of syptomes ... thank you very much my doctor

[@DrAndreaFurlan]

Thank you for taking the time to write this comment. I don't have the ability to give medical advice here. Please talk to your doctor. Consider subscribing to this channel.

[@snehadebnath439]

if someone suspects they have this then which specialist doctor should i talk to ?

[@DrAndreaFurlan]

I am a physiatrist, specialist in Physical Medicine & Rehabilitation (PM&R), so you may try to find a doctor physiatrist in your area.

[@shandaa2007]

I have it along with SLE Lupus

[@DrAndreaFurlan]

Thank you for watching the video and writing this comment. Please share this video with your friends. I have lots of videos about chronic pain on my channel kzbin.info And don't forget to turn on the notifications 🔔

[@SumitaDas-wj7rv]

I have rheumatoid arthritis, what should I do to reduce my knee pain?

[@DrAndreaFurlan]

Hi Sumita, please talk to your doctor.

[@DrAndreaFurlan]

I just released a video about exercises for rheumatoid arthritis (RA).

[@SumitaDas-wj7rv]

Thank you for your notification.

[@Kenzi24]

I feel like the weight of my arms pulls my shoulders out of place slightly :( I don't know what to do. It hurts all the time

[@DrAndreaFurlan]

Thank you for watching the video and writing this comment. Please talk to your physiotherapist, as they will be able to help you with an individual program. Consider subscribing to my channel. I post videos once a week about a variety of topics on chronic pain.

[@kuttiesrecipes9929]

I am from India mother of two kids. I am with heds please help me to manage this condition

[@DrAndreaFurlan]

Thank you for taking the time to write this comment. I don't have the ability to give medical advice here because I am not able to get all the details that I need and most importantly, to examine you. I don't give individual medical advice via social media or by email. This channel is for educational purposes only. Please talk to your doctor.

[@timmyt3144]

Hi, I'm a 13yr old girl and I have been diagnosed with this. However, I am certain that no one in my family has ever had it before and I was wondering if 13 is the normal age to get it

[@DrAndreaFurlan]

It is not unusual. Please follow what your doctor told you, Timmy.

[@tracysimmons5006]

Thx sweetie

[@DrAndreaFurlan]

You are welcome!

[@anik5945]

Is there a spectrum to EDS?

[@swamphag8668]

If someone has hyper mobile joints, can they end up damaging the joint to the point where it’s not very mobile anymore?

[@DrAndreaFurlan]

Hi Clarissa, that is a good question for a future video. Yes, people with hypermobility can cause lesions to their joints, in the tendons, capsules, ligamentns, and that may cause their joints to develop arthritis and more tendinitis.

[@SparklyPrincessLynnette]

I have hyper mobility in some joints but not the ones in the Beighton score would this mean I don’t have HEDS x

[@DrAndreaFurlan]

It is really important that you see a physiotherapist. The physiotherapist will examine your specific situation and tell you what you can and cannot do. These videos are for educational purposes only. Now that you are more knowledgeable about your condition and the types of exercises you could be doing, it will be much easier for you to discuss with your physiotherapist. You will understand what they are saying, and why they are recommending one exercise and not the other one. I think that patients who are more knowledgeable about their options are much better to adhere to the treatment recommendations. That is the ultimate goal of these videos, that you can discuss with your health care professional and be a partner in the decisions.

[@SparklyPrincessLynnette]

@@DrAndreaFurlan thank you so much for your full and well thought out response I really appreciate you taking the time to respond it is appreciated x

[@rachaelsun7798]

Hello my dear Doctor. Why my left calf is so painful

[@DrAndreaFurlan]

Dear Rachael, please ask your doctor.

[@r.sarkar687]

Dear doctor I have hyhpermobolity in my elbow ,its carrying angle above 15 degree. Give your best solution?

[@DrAndreaFurlan]

Thank you for taking the time to write this comment. I don't have the ability to give medical advice here. Please talk to your doctor. Consider subscribing to this channel.

[@r.sarkar687]

@@DrAndreaFurlan it's ok . but I was accepted that you providing me Solution

[@DrAndreaFurlan]

Please talk to your doctor.

[@r.sarkar687]

@@DrAndreaFurlan ok dr. thank u 👍👍

[@deesh7438]

please respond!!! I am in desperate help. I am 17 yo, I have hypermobile wrists which caused an injury from working out. All my life I wanted to become a plumber, but with my hypermobile wrists I don’t feel confident about this career, What are your thoughts Dr? Should I throw this career away?

[@DrAndreaFurlan]

Thank you for taking the time to write this comment. I don't have the ability to give medical advice here because I am not able to get all the details that I need and most importantly, to examine you. Please talk to your doctor. Consider subscribing to this channel.

[@beautifulbeach]

I am confused Is this disease among the diseases of the immune system or the nervous system?

[@DrAndreaFurlan]

Neither. It is connective system.

[@paoloitalia4863]

@@DrAndreaFurlan salve doc. Scrivo dall'Italia. Non esattamente così, nel senso che l' EDS, poi, incide su quello nervoso (neurologico) perché molti affetti da tale malattia sviluppano nel tempo la SFN (Small Fiber Neuropathy) che è una patologia che colpisce il Sistema Nervoso Periferico: devastante ed invalidante. E in Italia come negli U.S.A ci sono molte persone affette da tutte e due le patologie. Negli states la luminare che si occupa della SFN è la dottoressa Anne Louise Oaklander Direttrice dell’Unità di Neurologia e del Laboratorio di biopsia cutanea neurodiagnostica e assistente in neuropatologia, Massachusets General Hospital; Prof. Associato di Neurologia, Harvard Medical School - luminare nel campo della NPF (abbreviazione per convenzione di Neuropatia delle Piccole Fibre, dall’inglese abbreviato SFN, Small Fiber Neuropathy). In Italia, invece, è la dottoressa Nolano Maria, professoressa di Neurologia, laboratorio di biopsia cutanea (presso la Fondazione “Salvatore Maugeri” Centro Medico di Telese Terme (BN) I. R. C. C. S.). Solo per la precisione. Un caro saluto dall'Italia.

[@sarahb.6475]

It is not a disease. It is a genetic condition. Basically you are born this way. The word "disease" suggests there is a "cure" or that it is something you "catch". Its neither. Its caused by gene mutations.

[@karenking3890]

Is it possible to have joint hyper mobility and not have EDS?

[@DrAndreaFurlan]

Yes, the majority of people who have joint hypermobility, the great majority, do not have EDS. It is a normal variation in human race.

[@karenking3890]

@@DrAndreaFurlan Thank you!

[@MsDiesel2006]

Is there a correlation between ITP and EDS??

[@DrAndreaFurlan]

Good question. I need to do some research to find out the answer.

[@MsDiesel2006]

I’d be very interested in your findings. I have had ITP for years. And am certain my symptoms are that of EDS I pass the Breton test (sp?) with 8 I believe if I remember correctly. Also have symptoms of POTS especially when hot. I cannot do anything squatting/vent over without getting dizzy.

[@danitalynn8024]

Hello Dr. Furlan! Thank you for sharing so much great health information on your KZbin channel! :) I suspect that I very likely have EDS based on a wide range of criteria and symptoms. However, I have not been able to find any doctors yet who are knowledgable enough about EDS to properly access me. My family doctor I cannot get any referrals from to other specialists either. I live in the Niagara Falls, Ontario region. Do you know of any physicians in this area who are very familiar with EDS? Are you possibly taking on consults of patients who are not referrals? I will drive to Toronto if I need to however local would be a little more ideal. I would so so so appreciate it if there is any advice you could provide me in regards to finding someone to properly access me for this syndrome. Thank you, Dani

[@DrAndreaFurlan]

Please ask your family doctor to refer to me using www.tapmipain.ca

[@raemills3089]

Noooo, no yoga! Yoga is NOT good for EDS, you're too likely to damage or over extend your ligaments. Please recommend Pilates instead!

[@DrAndreaFurlan]

Hi Rea, thanks for writing this comment. Not all patients with EDS are the same, and not all patients with EDS have all joints hypermobile. Some of them are in fact very rigid and afraid to move. Not all Yoga means overstretching, there is the component of relaxation and meditation that is also very helpful. If a patient with EDS wants to try Yoga, I would recommend to take care with overstretching the hypermobile joints, but I would definetely say "Try and see if it helps you, and if you like, then keep doing it". I think the most important aspect of doing exercise therapy is to ENJOY and ADHERE to it, without aggravating their symptoms. Not everyone enjoys Pilates and not everyone gets better with Pilates either.

[@psleep4255]

That would be great if I could afford to take Pilates. 😐

[@sarahb.6475]

I do yoga and I have EDS. My yoga teacher is very aware of my hypermobility and she only does stuff that is safe. We have a one on one private yoga class that also includes mindfulness and walking. I think it depends on the individual and how the EDS affects them.

[@vi4670]

Hi. Is it possible to have hypermobile EDS without having hypermobile joints and only having issues with joints and internal organs (dolichocolon, prolapses, etc) ?

[@DrAndreaFurlan]

Hi Victoria, yes it is possible.

[@vi4670]

@@DrAndreaFurlan thank you

[@RealZayComo]

@@vi4670what kind of digestive issues do you have ? 🙏

[@FortheBudgies]

I really wish every piece of information on hypermobility wasn't accompanied by that image of someone pulling their thumb to their wrist. Not everyone with hypermobility can do that. I'm 50 and was just diagnosed with hypermobility and it's the answer to a lifetime of pain and health problems. I've never been bendy in my life, at least not in ways that seem bendy. We need to stop perpetuating the idea that everyone with hypermobility can do weird contortions.

[@MehediHasan-dt8my]

my nack pain two year ago. I am 21 age. mri normal

[@DrAndreaFurlan]

Please ask your doctor.

[@ireneamaglio2334]

ho capito poco

[@DrAndreaFurlan]

Aggiungerò presto i sottotitoli in italiano

[@michaelfleming8490]

Ack ack!

[@Uyhnmm]

Lord, don't give any living being such defects that are passed on from generation to generation 😰😰

[@ferdabasak6806]

Thank you

[@DrAndreaFurlan]

You're welcome