1 Year Post HSCT :)

Рет қаралды 651

HSCT for MS

2 жыл бұрын

Update on my first stem cell 'birthday'

Пікірлер: 10

@jb3543 Жыл бұрын

Keep up the good work ! Hope you are still feeling good. I am going to Russia in June

@hsctforms68 Жыл бұрын

Hi there! Thanks for your lovely encouragement. This is incredible news that you're going to Russia 😃 You'll be so well looked after and sending you hugely good thoughts!

@emmagoodwin2496 2 жыл бұрын

Your such an inspiration ❤️❤️❤️

@hsctforms68 2 жыл бұрын

Thank you Emma! I basically think of how much further I need to go before I can justify getting a dog again and use that to make me work hard at getting stronger :) x

@alyassery11 Жыл бұрын

1 year later. Hope you are doing well.

@hsctforms68 Жыл бұрын

Thank you! I am doing well slowly and surely. Just made a two year post HSCT video that I'll hopefully post before too long :)

@gp9608 Жыл бұрын

How the fatigue and brain fog is going ? If you had these problem obviously? Thanks I looking for info :)

@hsctforms68 Жыл бұрын

Hi there! I can completely relate to wanting info about HSCT. It's exactly what I was doing before I went. Although fatigue and brain fog aren't a primary symptom for me I still can get fatigued following certain tiring events. I certainly don't get wiped out for energy though and it feels very under control. One thing that I found very helpful was the HSCT warriors podcast and they also have a way you can book a call with someone who's had the treatment. I did this before I went and it was really helpful. The link to that's here - hsctwarriors.org/talk/ I heard on their podcast people talking about how brain fog and fatigue improved for them. Good luck! 😃

@rachelmoseley8065 2 жыл бұрын

Would you recommend this treatment?

@hsctforms68 2 жыл бұрын

Hi Rachel! Coming from my personal experience I'm so happy that I finally had this treatment. I wish I'd had it done many years ago! I feel very positive about what it's done for me. What I definitely do recommend is researching it thoroughly to understand what's involved. One part of this I can personally recommend is the hospital I went to in Russia with Dr Fedorenko. It was fabulous care x x