2 years of POTS GONE in 1 month- TREATMENT (Part 2/2)

Рет қаралды 49,668

Жыл бұрын

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About Dr Nathan Keiser:
Dr. Nathan Keiser DC, DACNB, FABBIR is a board certified chiropractic neurologist specializing in non-surgical, non-pharmaceutical treatment of dysautonomia, traumatic brain injury (concussion), and movement disorders.
Dr. Keiser was certified as a diplomate in chiropractic neurology by the American Board of Chiropractic Neurology (ACNB) in 2010
and has since served patients from across North America and around the globe in private practice.
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Пікірлер: 508

@yorocco1 8 ай бұрын

If you think 2 years is a big deal, you don’t know much about POTS. For most of us, it’s 20 or more years and it took forever just to get diagnosed.

@IfollowGod24_7 8 ай бұрын

Most of us sound crazy… I’ve had it for over 12 plus years and just now are a few Drs recognizing it😢

@yvonnejohnson1004 7 ай бұрын

I think I’ve had Pots since I was sixteen but after an EEG test my parents were told that I’d got Epilepsy. No one told me but I’d fainted at work, I was always dizzy, exhausted, tired, in pain but I thought that it was normal, I picked up any viruses going around and then Glandular Fever aka the Epstein Barr virus and I never seemed to recover. I became bed ridden for twelve years and after a lot of research I contacted a specialist who said that I’d got ME/CFS. That was in the 1980’s and it was nicknamed Yuppie Flu. I was later told that I’d got Fibromyalgia, I had a lot of muscle pain, and told that I’d got Chronic Pain Syndrome. Next came heart problems from Cardiac Syndrome X, Supra Ventricular Tachycardia, to Paroxysmal Atrial Fibulation and then Pots. Now I’ve been diagnosed with Osteoarthritis, Osteoporosis, Sjogren’s Syndrome and after a Pots related fall, Complex Regional Pain Syndrome. I broke my thumb, Sprained my wrist, Cracked some ribs, got a Tibial Plateau Fracture, and sprained my ankle. I’m now using a wheelchair, I can’t walk, weight bear, my knee won’t bend, it just stick’s straight out and I’ve got foot drop and damage to the Sciatic and Peroneal nerves diagnosed after an EEG nerve conduction test I can’t sit in my wheelchair for long before I get sciatica pain going down my legs. I’ve now got a Herniated Disc Bulge after twisting around in my Wheelchair. I’ve seen the best and the worst of our wonderful NHS. and at the moment it’s at its worst. I’m still strong but tired of trying but not for much longer as I’ll be 80 years old next June. I’d say that I’m justifiably fed up.

@SpectrumOfChange 6 ай бұрын

I think it's hard (but important) to remember that 2 years IS a big deal, even though it sounds like a freaking dream to many of us...

@himanshigupta2989 6 ай бұрын

Could you please help me with how are you managing it on day to day basis?

@SpectrumOfChange 6 ай бұрын

@@himanshigupta2989 I'm not sure who you're asking, but something that helped me was realizing its a nervous system disorder and beginning to treat that naturally. With "nervine" or "nervous system tonic" herbs. I've been making a strong tea daily of Mint, Oatstraw hay, & Nettle. Drinking that 2x/day for 3 months, made a big difference for me. But it has to be very strong tea I think.

@vickyshininger2597 8 ай бұрын

It’s refreshing to see that there’s someone looking in at POTS to find what’s triggering it in the first place…then finding ways to heal & retrain the brain (CNS) to respond as it was designed to. Looking forward to many more videos!!

@user-kv1hy3vu1k 4 ай бұрын

If you got the shot it’s vax injury. Seek treatment for that.

@davezzz7664 9 ай бұрын

I got POTS(self-diagnosed) after Covid. My primary care doctor was unable to diagnose it, cardiological exam showed my heart was perfectly fine. Neurologists here refuse to take in Covid related patients......I was helpless. I ended up dealing it with my self. I performed acupuncture for myself, practice Wim Hof breathing every day, doing mild exercise... Now it's been a year since the first outbreak of the symptoms, and I think I have had 90% recovery.

@NATEZPLAZE 8 ай бұрын

I pretty much self diagnosed myself with pots but then did the tilt test and i regret it cause it was like $1k

@GrandmaMaeCorporation 8 ай бұрын

Glad you’re getting better. I had amazing benefits with near infrared lights. I even shine them in my ears so they get to the penal gland (melatonin maker). I also am mindful of circadian rhythm so I can recover at night. I’m doing very well compared to other long Covid cases I know. GlyNac has been very helpful also. I take it before bed.

@elevatedmomma6 7 ай бұрын

I’m self diagnosed and I do t know where to start to get better. It’s taking over my life 😢😢

@NutrinsicHealth 7 ай бұрын

How did you perform acupuncture yourself?

@mrmaxin53 6 ай бұрын

Sounds unsafe. Unless you know what you’re doing, going in with needles trying to hit your own nerves is not safe

@energysavingday 8 ай бұрын

This treatment regime for POTS is very logical and clearly explained. Fantastic work.

@jeng151 Жыл бұрын

TYSM for posting these videos- it’s so incredibly important for us to understand our condition and so few doctors seem to be very versed at all. I did not even know your specialty existed & have never been referred to a chiropractic neurologist- I have another track to investigate now. Deeply grateful.

@dockeiser Жыл бұрын

💙💙💙thanks so much for the kind words. I really appreciate it and wish you all the luck in getting better! 💪

@User98681 Жыл бұрын

I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins

@stepheniestubblefield8612 9 ай бұрын

This helps understand why our functional neurologist did what she did with my Daughter. I wish more docs could explain the process they are using. Thankyou for sharing!

@ali511suth 7 ай бұрын

Thank you Nathan. That was amazing information.

@Tabby_Toons 7 ай бұрын

Hi, I’m currently in the process of being diagnosed with POTS. I have had all the symptoms for over 10 years but as I also have anxiety and depressive disorder I feel as though POTS may have gone under the radar for a long time. I actually went to my GP and told her my symptoms and asked to be referred to cardiology a few months back. When I saw the cardiologist he told me he was pretty much certain that I have POTS and has advised me to drink a lot of water and increase my salt. I am still under their care and awaiting my next appointment. This video has been really informative and helpful for me. It’s good to learn so much in one two KZbin videos. I look forward seeing more of them. Thank you so much ❤

@dockeiser 6 ай бұрын

Thank you for sharing your journey. Keep working forward to solve the next problem!

@suukinsin6771 4 ай бұрын

U took ciproflox or flagyl will cause vitb1 deficiency n thus pots n anxiety

@KMx108 Ай бұрын

My cardiologist and autonomic neurologist told me to drink lots of water and take salt pills, too...then I saw an endocrinologist who put me on B12 injections. My b12 serum level was never low but ultra-high doses of injected methylcobalamin made my POTS symptoms completely reverse/resolve. Doctors don't often fully consider the possibility of "functional b12 deficiency" ...the just rely on B12 serum levels and they really shouldn't, but they aren't typically educated very well on vitamin deficiencies.

@ChrisGascoigne1 Жыл бұрын

Woahh have you got a new camera Nate? The quality looks great 👌 I really appreciate you going into the 2nd part of this story of how you helped this girl; it gives a clear picture as to why testing is so important and why each patient has to have a treatment plan specifically tailored to their personal situation. One question comes to mind when hearing about these case studies and that is, how do you work with patients who get exhausted very easily? I'm sure you have it all the time with patients, where basic observations and exercises during appointments completely drain them; how do you navigate that situation? So glad that your channel is growing, totally deserved.

@dockeiser Жыл бұрын

Haha I am using a different camera! Thanks for noticing. Good question. It applies for most people I see. In the biomarkers I’m watching, you can see fatigue very quickly in the function. That may look like a pupil dilating or a pulse flattening or an eye movement losing stability. Those become markers of fatigue. We will rest for a short period and allow recovery and then go again working in short spurts in a single session, then taking 1-3 hours of rest between sessions. We are adjusting all of the times based on what I am seeing. The response time in neural tissue is most faster than what we think of in muscles, tendons or ligaments. We are looking to apply a consistent challenge sufficient to force adaptation but to maintain function. Hope that gives some color to how we think about fatigue! Take care

@ChrisGascoigne1 Жыл бұрын

@@dockeiser Exactly the type of answer I was hoping for Doc, thank you for being so clear on how you monitor fatigue. I often notice my left pupil is a lot bigger than my right when I feel rough, maybe there's something going on there 🤔

@dockeiser Жыл бұрын

@@ChrisGascoigne1 You may have something there. Maybe a thread worth pulling

@mogahidosman2569 Жыл бұрын

I've watched the video but I couldn't know the mangment of Pots and visual disturbances following brain injury?

@User98681 Жыл бұрын

@geraldjohnson3731 6 ай бұрын

I'm just starting to get a diagnosis as a patient. What U have explained is helpful with the knowledge I've recv'd from listening to U. Thanks a lot...gery...OKC

@debsalvesalve7850 4 ай бұрын

Yes, please share more in this area please 🙏

@victorialister5520 8 ай бұрын

I've had POTS along with hEDS and CRPS for 28 years. Everything you say makes sense. I'm on medication (ivabradine) but not aware of similar neurological chiropracters in the UK. It certainly wouldn't be available on our NHS! I will try the lying down 'spotting' exercises though. Thanks.

@becky6598 3 ай бұрын

@victorialister5520 Yeah, it's not covered by American insurance either, but it was worth it for me to pay out of pocket. I recently met a nice lady on the plane who has had POTS for 11 years (she's never done functional neurology therapy), while I'm nearly fully recovered after a year. So I recommended a good clinic in her city.

@jordenmckinney8518 2 ай бұрын

@@becky6598how much was it out of pocket? and what types of clinics usually offer this kind of therapy ?

@user-hc5ue5xk5f 3 ай бұрын

Wow! Thank you for such an informative video about POTS. Extremely validating to hear you go through the mechanisms, I can relate so strongly but after being treated so poorly by so many doctors, you start to feel gaslit at some point. So thank you so much! Also, do you have more of a training /excercise video on how to do the ROV exercises? I think that would be extremely beneficial for a lot of us sufferers out here!

@nadineknopfmacher6860 2 ай бұрын

Fascinating! Closest I have come to understanding how pots can be treated and pots patients helped. Pots patients can feel pretty helpless. Been to many doctors and there appears to be limited understanding of the exact mechanisms at play and treatment to remediate. So thank you! And yes, plesse do make more videos on this topic of how to re-train the brain and heal symptoms.

@Bosimalindiwe 11 күн бұрын

The herbal teas from Dr. Oyalo have been a game-changer for my energy levels, I experienced noticeable improvements in my symptoms within just a few weeks. Dr. Oyalo’s herbs have been very effective for my POTS. Thank you Doctor

@denisebanto3185 Жыл бұрын

Love the info ! Thank you!

@dockeiser Жыл бұрын

Glad it was helpful!😊

@TracingFlares Жыл бұрын

great insight. Can relate myself to many of mentioned points. Thank You

@alafairdavis3059 9 ай бұрын

How can I get help with my parks?

@bernadettelampman6394 11 ай бұрын

Going to talk to my neurologist about this. I have been having problems with dizziness, sleep, and heart rhythm at night since surgery in February. Emerge dr just tested me and my blood pressure goes down when I stand up. This talk gives me hope that maybe with these kinds of tests you mentioned we can narrow down what’s going on. I’m going to recommend she looks at your work

@Blessednesting 5 ай бұрын

I’ve had pots symptoms since having my twins almost 9 years ago. I had 3 surgeries within a 15 month span all around that time.

@faith1277 3 ай бұрын

What kind of surgery did you have?

@becky6598 4 ай бұрын

This is a great video - my doctors (also functional chiropractic neurologists) use similar tests and treatments. I got POTS/dysautonomia in July 2022, and the POTS was mostly gone by January 2023. For me, 10-11 hours of sleep per day was a big part of the recovery, and it got a lot better very quickly with that. I'm so glad I found doctors like these, since mainstream docs didn't have much to offer me at all.

@jaeshasway 3 ай бұрын

I have my worst days when I don’t get enough sleep. I suffer from insomnia so this quite often. Even when I can sleep longer I don’t so I have an issue falling asleep and staying asleep. I’ve tried some medications, but most of them cause a lot of fatigue the next day like a hangover. Most natural remedies help me fall asleep and feel better with less sleep but they don’t help me stay asleep. What did you do to get 10-12 hours of sleep. I don’t think that’s possible for me, but right now I can’t get 7 hours. I average about 5.5 hours.

@becky6598 3 ай бұрын

@@jaeshasway I'm sorry to hear you're having so much trouble sleeping. I also had a LOT of difficulty sleeping at first (and agree that not enough sleep makes it much worse), but that improved slowly with treatment and supplements. During the worst times, I found that listening to guided visualizations or soft music (the Abide app or channel) helped me fall asleep. I still often play abide soft music if I have trouble falling asleep or falling back asleep. After 3 months, I was able to sleep a bit better, though I still woke up often. Then I went to my parents for a month of vacation (last December), and that's when I was able to consistently get 10-12 hours. During this time I did a couple of things to help - before going to bed, I took 1 to 2 Cortisol Manager tablets, magnesium L-threonate (also took this in the afternoon/early evening), 200mg (liquid) L-theanine, and melatonin (less than 1mg extended release seems to work the best). I also took Adaptocrine twice a day. The Adaptocrine and Cortisol Manager are expensive-ish but worth it when you need it, and they help support your adrenal glands, which may be in part related to developing the dysautonomia. I also used earplugs since my nephew was staying with us and he can be noisy in the mornings. Over the last year I found my energy and sleep improved enough so that I no longer take the adaptocrine or the melatonin. I still wake up 3-5 times per night (and on rare occasions every hour), but I usually can fall back asleep quickly. I get about 7-9 hours now, though if I didn't have to get up for work I would sleep more. I recently restarted taking the L-theanine to help when I have trouble falling back to sleep, as that seems to help very well, and quickly for that, and doesn't make me groggy the next day. I hope this can be helpful. I still have some degree of dysautonomia, but no longer have POTS.

@marianacadore9245 10 ай бұрын

Thank you so much 🙏Please any more details will be helpful

@MissCaitlyn00 4 ай бұрын

That's pretty incredible, thank you!

@el-adcohen8201 6 ай бұрын

Hey! PT here. I love this video. It also sticks thoroughly to the can't hurt might help idea. ID the symptoms, correlate with brain regions, verify blood flow changes if possible, then find related or exact function and modulate according to orthostatic and symptomatic change. Makes sense to me. :)

@eirenemacbean8364 3 күн бұрын

This all relates exactly to my recent experience, including how sensitive the response is to every sort of factor....energy level, last meal, etc....I have learned to manage disequilibrium quite a bit by carefully planning calorie intake, monitoring my energy envelope, devotion to sufficient hydration and sleep, learning how to rest deeply during the day, learning how to disconnect anxiety with meditation, breathing, thought direction, somatic tracking, etc. Your talk was never in the least monotonous, I was hanging on every word and idea. I only wish I could find find any healthcare provider nearby that understood a word of this. I have been completely on my own sorting through what my mysterious affliction is.

@pabloetchandy5454 6 ай бұрын

Very interesting this new point of view... Thanks you for sharing it. Pablo PT, from Argentina...

@kristengregory7014 7 ай бұрын

Hey Dr Kaiser, I recently discovered I may have a binocular vision dysfunction. My right eye is the dominant eye. I also have POTS. Given the left hand side is what you're talking about here, do you think there could be a connection between POTS and a dominant right eye?

@user-pv8pl5tb8x 10 ай бұрын

This sounds so encouraging. Do you know any colleagues in Australia doing similar work? In particular, with paediatric patients?

@willystilly 3 ай бұрын

I would like to know this too.

@forschool1343 6 ай бұрын

I found this video very helpful in understanding why it may be that I want to lay down and then I feel better after 10-15 mins. It also explains why things get wonky, as i call it, after Im on my feet for awhile. I am a nurse and I have hyperautonomic symptoms or hyperadrenergic POTS. I got much better w/ a functional medicine doctor but need to get over the hump. Great info! I would love to hear more specifics about it like you gave in this video. Thank you!

@dockeiser 6 ай бұрын

Thanks so much for the compliment. I’m glad your health is trending in the right direction! I will try to keep sharing cases and giving a look into recovery strategies as I have time to sit down and record them. Thanks so much for watching and all the work you are doing to help others. Take care

@yekaterinburgchelyabinsk1080 8 ай бұрын

Thank you!

@elizabethboydmusic Жыл бұрын

This is so helpful! I've come to a dead-end with medical help recently. I'd love to request some of these tests from my neurologist. Is there a name for testing blood flow to the brain based on positioning? Also, if you have any recommendations for doctors in Utah, send them my way! Your clinic seems amazing.

@dockeiser Жыл бұрын

Hey there, the test we are describing here is transcranial doppler ultrasound. It helps to recognize any differences between blood pressure in the body and how that is translated to the brain. Honestly I'm not sure who to point you toward in Utah (what a beautiful place to live) but with some digging, you may be able to find someone thinking in a similar way in your neck of the woods. Thanks for reaching out and we will be rooting for you on your journey!

@User98681 Жыл бұрын

@Catlily5 8 ай бұрын

It sounds like you are using a tilt table which is also used for diagnosing POTS.

@Ffrenchyyx Жыл бұрын

I’m waiting to see someone in Australia who does what you do or close to I’m assuming, as I’ve been diagnosed with potts, I felt like I knew what you were talking about and now I’m very keen and hopeful for my treatment! Thanks for the video 🖤

@shanellecauchi6037 11 ай бұрын

I'm in Melbourne and I always say the same thing y can't we have half the Dr's they have in America to treat pots

@Ffrenchyyx 11 ай бұрын

@@shanellecauchi6037 I know of someone in Melbourne who treats it if you need their number

@nadiacastricum3292 8 ай бұрын

Please 🙏🏼 I am in Melbourne and just got back from neurologist and said it’s anxiety and vertigo.I have been feeling dizzy, nausea and loss of balance for a while. Are you able to tell me which Doctor in Melbourne helped you.

@user98dlk7hg6vc 7 ай бұрын

@@nadiacastricum3292 Melbourne cardiovascular & autonomic clinic

@danijeanes5078 26 күн бұрын

Who will you see ? Can I know I'm I'm aus

@amandakephart2544 6 ай бұрын

Oh my gosh i Hope the balance center here can help me , you literally made it so simple when everyone makes it so difficult and seems LOST in understanding the healing process

@nino2121 10 ай бұрын

Thank you for making sense of this condition. I have been mostly horizontal for months now. There has been recent improvement but I didn't understand what the trigger for improvement was.

@KathySierraVideo 9 ай бұрын

Sometimes that’s what frustrates me the most… when I am feeling *better* and can’t figure out why. I don’t want it to be random; I want to duplicate the things that “work!”

@theresacarroll9669 13 күн бұрын

Amazing, thank you! I’m 4 yrs in to long covid recovery and part of that was neuro-ophthalmology to work on convergence/ divergence insufficiency, which did help a lot with double vision. I feel like my brain has such a lot to do with all this and so fascinating to hear how you’ve worked with pots. I loved the explanations of incremental stresses to build capacity. Looking forward to hearing more!

@Bosimalindiwe 11 күн бұрын

@angelenabusse6198 9 ай бұрын

I was dx with Orthostatic hypotension/ dysautomia. From contracting covid this Feb. I have exteme low bp, dizziness, lightheaded, passed out. Woke up with head bobble for 3 days. Can't drive and my eyes are horrible. Trouble tracking objects, can't drive. Constand dizzy, lightheaded nauseous extreme fatigue. My bp drops down to 80/40 I think k my blood flow to my brain is causing most of these symptoms. I think I hqve POTS. Going to the Mayo clinic for evaluation. I'm glad I seen this video. I've been doing vestibular therapy and saccades. It seems to help some. Any other suggestions?

@robintyson1475 11 ай бұрын

I’ve been seeing Dr Randall Gates in Reno, NV and have improved over the last three months doing these neurological exercises. But you explained the mechanism of PoTS very well and why the eye exercises are helping. BTW I also changed my diet to low FODmAP and AIP to help the gut brain acid heal. I had POTS for 20 years then Covid set it off like crazy- no one recognized it or knew what to do for me. But I did finally find help

@SpectrumOfChange 9 ай бұрын

Hi, I'm excited to see someone is being treated in Reno! I'm not there but used to live there and am in California now. I'm wondering if you could point me to what exercises Dr Gates has you doing, are there videos or pdfs somewhere showing them? I've recently been *finally* diagnosed with POTS after decades of struggling. Salt is helping my energy levels but there's also all the other symptoms, as I'm sure you know. This video is great but also a bit dense for my brain cognition levels today, and if you could share what you're doing I'd be most grateful. One thing that's changing my life rn is taking L-Glutamine on an empty stomach every morning. Helping with digestive function and also with mental function.

@Andy-ne5qi 4 ай бұрын

Wow im in reno and need a diagnosis so glad i found this comment because everh doctor ive talked to so far is at a loss

@hehunches Жыл бұрын

describing the visual thing, the eye movements, made me tear up. That's why I constantly want to lie down. My eyes feel jittery and make me feel that icky dizzy swoon

@clarkbrechin7970 Жыл бұрын

Thoroughly interesting stuff. I believe my Dad has developed POTS following heart surgery 2 years ago and he has very little quality of life now. I've just started giving him electrolyte powder and water drinks and I think Vitamin B1 will also help his symptoms. The Doctors here don't really want to know and have advised him that he won't get better but I'm definitely going to try these exercises with him. Thanks again!

@dockeiser Жыл бұрын

Sorry to hear about your Dad. I hope he gets better soon. Let us know if we can help

@User98681 Жыл бұрын

@olgakraievaia Жыл бұрын

Thank you! What is peripheral nerve stimulation and how it’s done?

@sandyreed277 5 ай бұрын

I am excited about this. I have an appointment with my neurologist on December 6th and will ask her to view these videos (if she hasn’t already heard about what you are doing). I have ha 4 concussions in 4 years, a brain tumor removed and 2 mini strokes. I am hoping this will help me. I have a hard time with movement around me.

@josieb3238 Жыл бұрын

I’m so glad I’ve found you. A week ago I called a chiropractor that does this therapy. Right now the it sounds out of my particular price range. It’s totally worth it, but I’m retired at 74 and need my savings. If I had more earning potential and was relatively younger my lifetime would have been so much better

@dockeiser Жыл бұрын

I’m sorry to hear that limitation and hope there is a way to overcome it. Thank you for following

@becky6598 Жыл бұрын

Hi Josie, I’m doing similar therapy, and yes it’s expensive. On the other hand, much of the same effects can be gotten through slowly ramping up to normal everyday activities. Check out the steady coach KZbin channel - Dr Arthur has a free program on her website. It’s focused on dizziness/balance problems, but I have those as well, and for many of us POTS/disautonomia, dizziness, fibromyalgia, and other chronic disease are all just examples of neural circuit problems. I have had all the symptoms discussed in this video done June 2022, and the POTS improved greatly over 3 weeks of better and longer sleep (9-11 hours per night). So maybe you can start by just seeing if you can get good sleep for longer consistently. I had to find some good supplements to help with that, but it’sm much cheaper than therapy.

@josieb3238 Жыл бұрын

@@becky6598 thank you so much for your reply. I will check out the channel right now. 🌺

@mogahidosman2569 Жыл бұрын

I've watched the video but I couldn't know the mangment of Pots and visual disturbances following brain injury?

@User98681 Жыл бұрын

@kristensheble6062 Жыл бұрын

This is such incredible info. I find myself crying so often now; I used to be a huge marathoner, now I can’t even run a mile without feeling like I got hit by a bus. It’s been like this for almost two years since I had Covid. Do you know of any doctors in Omaha who offer treatment like yours in Michigan? I’m sick of going to so many different doctors and feeling like I’m crazy for not assuming it’s just anxiety/stress 🥺

@dockeiser Жыл бұрын

I’m so sorry to hear about this. I don’t know of anyone in Omaha specifically, I’m sorry. Let me know if there is any other way I can help 🙏

@User98681 Жыл бұрын

@maafa21MustSee Жыл бұрын

Research vitamin b1 thiamine deficiency. Dr Marrs

@kristensheble6062 Жыл бұрын

@@User98681 Thank you so so much. I'm already taking Quercetin, but can you tell me what symptoms you felt were most alleviated with resveratrol?

@User98681 Жыл бұрын

@@kristensheble6062 fasting was key to my recovery. I am also not 100% I am about 50% give or take 10% any given day. The supplements were just a nice compliment to the fasting lifestyle. In the past month I’ve used 1000mg Quercitin and Resveratrol AM/PM. I’ve fasted 4 days, 3 days, 2 days & did OMAD and 16/8 on the days in between. Fasting is the real key to detox the spike protein!

@truthprevails7085 11 ай бұрын

I am very interested in this subject, pls do more. Maybe this is part of why phone and iPad screens trigger CFS/POTS symptoms-eye movements. A dimmed down large TV does not, unless already have a migraine

@funnymoore6664 8 ай бұрын

Very interesting, I can’t imagine what this treatment might cost. Hope many can get this help.

@johndavy4706 Жыл бұрын

Brilliant.

@missbhaven4777 Жыл бұрын

Thank you 🙏 this is fascinating. My 17 year old daughter is waiting for a diagnosis but PoTS sounds exactly like what she is suffering from. Ewe are in the UK and I can only hope to find someone like you for her.

@dockeiser Жыл бұрын

If there is anything we can do, don’t hesitate to reach out. I have a colleague Jake Cooke in the UK who may be able to give you some guidance as well

@User98681 Жыл бұрын

@jen6488 Жыл бұрын

Im in the UK too, could i get a contact for Jake too please? my daughter is 19 and has since October been suffering, no longer drives, is due to stsrt college but likely wont at this rate. she is drained and exhausted by this and her doc is less than helpful

@izzylabbett3841 8 ай бұрын

Hi, I’m also in the UK based in Leeds, and have been left to my own devices after being diagnosed last year with PoTS. My cardiologist at the time before TT results came back said she thinks I just have “Tall skinny girl syndrome and I need to drink more water and eat more crisps” it was very demoralising at the time. And last week I ended up in A&E because I am so dizzy I can’t see straight and had chest pain etc and no one could work out what was wrong with me. If anyone could give me any UK contacts who practise functional holistic methods as opposed to straight away suggesting drugs like beta blockers, I’d really appreciate it. I’m 21 and have just lost my job over this, I can’t drive, I can’t move and I’m really really struggling. Thanks guys ❤

@missbhaven4777 8 ай бұрын

@@izzylabbett3841 Firstly I’m sorry for all you are going through and that you lost your job. My daughter is the same only with college. Have you tried the POTS UK website? There is a lot of useful information there regarding supplements which seem to help and have you tried vagus nerve stimulation? Also saline infusions are helping many POTS sufferers by increasing blood volume. Obviously I’m not a doctor just a mum who wants to help out. Wishing you all the best 🤗

@chriscarpenter6241 11 ай бұрын

I appreciate your take on this. It's new information and a perspective that may be useful. I would like to hear more. Thank you.

@peterfranks7619 3 ай бұрын

Interesting stuff, I have hypo adrenaline pots. I love the way you approach this diagnosis.

@peterhellwege4279 Жыл бұрын

Could you give some examples of what eye exercises might help improve blood flow to the brain.

@dockeiser Жыл бұрын

Sure, different eye movements and components of vision utilize different combinations of pathways in the brain. When a pathway is activated, if healthy, activation will cause blood flow to increase in the local area. You can classify them by the type of movement like pursuits, saccades, optokinetic reflexes, vergence eye movements or vestibulo-ocular reflexes. Additionally you can classify them on the direction of movement, whether peripheral or foveal vision is being biased and by which visual field. Hope that helps answer your question! Thanks for reaching out

@brianmilliken4681 10 ай бұрын

I am also here looking for answers. One thing that is helping me to cope is compression stockings/socks. Makes sense with the idea of the blood flow problem.

@evieulici897 8 ай бұрын

I’m just now suspecting pots and eds with my daughter. She had three instances after waking from her sleep that she seemed to have like a mini seizure. I wonder if she was not getting blood flow to her brain. I wish the doctors would listen.

@kdealproductions 10 ай бұрын

Thank you, Doctor. But I'm not exactly sure what I can do here at home to improve. Just the eye exercises?

@valiqafkostaff5907 6 ай бұрын

Do you have any recommendations as who to see in Toronto Ontario Canada area or around for POTS low blood pressure high heart rate thank you. I can’t even find a Neuro physiotherapist forget Neuro Chiropractor or a Neuro familiar with PoTs, I also have a left leg tremor which is linked to my pots. Thank you, Valentina

@michaelawade6653 5 ай бұрын

Can u please make a video about what people at home without any medical equipment can do to help themselves please?

@katherineramos4464 Жыл бұрын

Hello can you give me examples of exercises that can be done at home or with the help of someone? My mother is currently suffering from similar symptoms and I want to be able to help her.

@Ky-xh8zq 9 ай бұрын

Look into “chop” for exercises for pots I haven’t tried it out yet I’ve been recently diagnosed with pots. Also any recumbent exercises are recommended too:)

@ToujoursDansLeRouge 7 ай бұрын

I hope one day, there will be a simple protocol know by all dictors and patients, that will be able in Myalgic ENCEPHALOMYELITIS, longCOVID, elhers danlos syndrom, mastcell activation disorder, cure POTS in a month or why not in one day. I’am so curious to see what will be the medecine in year 2123, we are actually in 2023 and it’s hard to heal so much disease like severe myalgic encephalomyelitis.

@dentaldan4238 4 ай бұрын

Where would one get this kind of medical philosophical approach you outline? I live in maryland, would it be a cardiologist, neurologist, hospital center , etc.; you're input would be greatly appreciated; wonderful presentation!

@mmarshall1349 10 ай бұрын

Don't understand what these specific exercises are - is there a breakdown of specifically what to do?

@shayquegan1 9 ай бұрын

Hi I have Pots and orthostatic HTN ..plus sever decrease in CVF right side..do you know where I can do rehab near me the Brigham dosent seem focused at all on rehab I had the tilt table test at Brigham Womens in Boston

@heptoxidem3829 6 ай бұрын

Sweetheart, most potsies have brain fog. Can you make a video just briefly tell us how to fix this illness? I t was hard to understand what you trying to say..just something really easy to understand please

@starrynightsky3 3 ай бұрын

Right? There is so much info and talking and I have no idea what to do, how to help myself

@berguzarkorel5350 11 ай бұрын

How much you hold them at each inclination? This should make a difference and how do you know how long to hold at each inclination?

@bjstudio4865 6 ай бұрын

N-Acetylcysteine (GlyNAC) and thank you for the info

@kylem8117 Жыл бұрын

Great Video, my Dysautonomia/Pots/orthostatic Hypotension started after I took Levaquin. I have severe nerve damage from the medication confirmed by skin punch biopsy in all 3 biopsy areas, from ankle to arms. Could the nerves that were damaged be a cause of the autonomic dysfunction? I suspect that treatment would be different? It’s been 3 years and can’t spend anytime upright.

@ChipsAplentyBand 9 ай бұрын

Four years ago I was prescribed Leviquin for a bad sinus infection. The Leviquin incidentally cured a long-term skin infection (in 2 days) but either my sinus infection was viral and so that virus, or the Leviquin, left me with POTS-like symptoms. I began chiropractic care as if for POTS three months later because I couldn't afford to go the cardiology route. Over some months I improved, though due to a prior decompression/fusion surgery (C4-C6, titanium plate with six screws on the front of my cervical spine) my chiropractor has to adjust my cervical spine around the fused cervical vertebrae. In just the last few weeks (July into August 2023) my POTS-like symptoms have returned. The only significant change in my routine that I'm aware of is me having had a 'temp' chiropractor adjusting me for the past 6 weeks while my regular chiropractor is recovering from hip surgery. The temp doctor adjusts me a bit harder and more sharply and so I've wondered if that difference in treatment 'style' might have re-aggravated something that's not usually a problem for me now. Cervical instability/compressed nerves in the upper neck are thought to be one possible cause of POTS/Disautonomia symptoms. The brain stem could also be involved. The common denominator here seems to be potential nerve damage. Until I get back to my regular chiropractor I'm trying to focus on nutritional supplements that support good nerve health plus am taking electrolytes, anti-inflammatory supplements, and staying well hydrated. Meanwhile, my symptoms are worse or better intermittently, both from day to day and from hour to hour within a given day. Thoughts or suggestions, anyone?

@Catlily5 8 ай бұрын

Stay away from that substitute chiropractor.

@christafisher8533 11 ай бұрын

I hv heard taking B1 (Benfotiamine) which is Thiamine and also fat soluble may help.

@Happydealhappyday 11 ай бұрын

I'm in the finger lakes region of NY. How do I find a practitioner that can train me in this way that is closer to home?

@jakefifelski3851 7 ай бұрын

I am a diagnosed POTs patient seeking a cause. How does a “mild right beating positional nystagmus with eyes closed” compare to this tracking phenomenon you describe? Could this nystagmus be indicative of reduced blood flow to a similar area in the brain?

@user-pv8pl5tb8x Жыл бұрын

This is very interesting. So if the exercises develop the neurones on the left side of the brain, promoting increased blood flow requirement to that area - how does this help the increased blood flow to actually get there when a patient stands up? Because the physiological mechanisms to help get the blood flow to the brain will still largely fail won't they? Or are you trying to redirect the little flow that does get to the brain, to that certain area of the brain that will help the most to combat symptoms of orthostatic intolerance?

@User98681 Жыл бұрын

@willowblackwood425 8 ай бұрын

This is very interesting and kind of complicated but I feel like I have some idea. I have had POTS for several years now. Going on four years diagnosed. I also have peripheral neuropathy of unknown cause in both of my lower legs. I have felt like maybe the conditions were related but i have been told no. I also have fibromyalgia recently diagnosed but have had the symptoms for years and years. I am assuming the neuropathy would prohibit the sensory stimulation for the leg area?

@sandracrocker6143 5 ай бұрын

They are very commonly related. MSIDS questionaire for Lyme disease / Igenex test

@sarahjoseph2660 2 ай бұрын

CIRS look up shoemaker clusters, might be an explanation good luck!

@MsKimberlydealba Жыл бұрын

Wow this is Amazing. Is there any one in California who does this? Does anyone know?

@NADA-ok2ce 2 ай бұрын

I would love to see someone look at classical pilates mat work and what you are talking about here. I think you might see some of this there in subtle ways…..

@AnotherCaroline176 Жыл бұрын

Interesting information, thanks for sharing. One thing that was a bit confusing was that you said several times that standing upright is 70 degrees, which I understand should be 90 degrees ?

@dockeiser Жыл бұрын

Great point! On a tilt table we elevate people to 70 degrees to mimic standing, not the full 90 degrees. Thanks for the question. I’m sure you weren’t the only one wondering that!

@User98681 Жыл бұрын

@NikiTrades 10 ай бұрын

Thank you Dr. Keiser! Is there anything someone can do at home to replicate this kind of treatment even some minor daily exercises? Or anyway to find out if there is a doctor in my area who does anything like this for POTS/orthostatic intolerance?

@Love_Meat_Tender 7 ай бұрын

This makes sense to me. I taped myself while doing the retinal tracking technique, and there is some lag in movement. A few years ago, I had minor head trauma, and the inner ear was busted on one side, and symptoms seemed to appear shortly after. Coincidence? Maybe. But I am going to try the exercises and see if i get any improvements.

@dockeiser 6 ай бұрын

good share. I would be dubious of a coincidental relationship. take care

@asnoopy 5 ай бұрын

So what exercise should we do exactly, and can we do it ourselves without any doctor?

@tamizorge17 10 ай бұрын

My first dysautonomia experience occurred after taking a certain medication, Cymbalta i believe. Then it occurred after stinging nettles, then after a bug bite, then while driving on the 405 a few times after having ozone therapy with glutathione. I now believe it was due to excipient materials in the glutathione. I also had dysautonomia after the flu shot which also retriggered food sensitivities. And the last time was after a dysport injection. Ive never been covid vaxed and will stay away from all needles! Also have a history of car sickness and dizziness as a child especially. From what i understand this is an indication of some enzyme issue that suggests an autoimmune situation which i know i have. Also a history of viruses includes epstein barr, lyme and i have mold. More to the story but I'll leave it there.

@ChipsAplentyBand 9 ай бұрын

See Dr. Maggie Yu's KZbin channel if you're interested in her thoughts on why she thinks POTS is caused by autoimmune issues. Video title: "The Real Cause of POTS and How To END IT."

@ChipsAplentyBand 9 ай бұрын

This gentleman's channel is also worth a careful look; the channel name is: What POTS Really Is

@eggbenedict-gt7mw 7 ай бұрын

Epstein Barr trigger this

@julierogers4473 6 күн бұрын

I would love to be able to talk to you. My pain management put me on diazepam in September and immediately started losing weight. It turned on me by January. I was not feeling well and his office. Telling my symptoms. In the nurse popped up and said oh protracted withdrawal. I didn't even know what she was talking about. I said no, I'm taking it like I'm supposed to. I'm all right in the morning until 2 hours after I take the it...I just think it's too much. Dr said oh just cut it in half 🤬. Added baclofen on top of it... I have told him over and over again I couldn't take that.. Long story short, I ended up in the ER 2 weeks later with my gut shut down and a significant impaction 🤬.

@garyglibbery5983 8 ай бұрын

So what type of dr do I look for? I have pots I think and my left eye and behind it I had this head ache. Then brain fog the next day and exhausted. It sounds just like what you are describing. I’m 58 and been going to the dr for dizzy spells that go away for over 20 years now, and never been diagnosed with anything stress they say.

@KMx108 Ай бұрын

I was told my symptoms were stress / anxiety/ etc...eventually I found out I had a functional B12 deficiency and ultra-high doses of injected methylcobalamin addressed my symptoms.

@puppyforever7101 11 ай бұрын

Where and how we could get help with Pots?

@MyForestNymph Жыл бұрын

This is so helpful ! This is exactly the eye symptoms I have from the long covid induced pots - I can feel my eyes skipping . I’m adding the eye movements to my morning physical therapy routine ❤️

@max-cs9ko Жыл бұрын

Long covid is also associated with Microclotting, any exercise without treating clotts and underlying inflammation can worsen the situation

@dockeiser Жыл бұрын

Good luck in the process. I hope you feel better.

@mikejames293 Жыл бұрын

I have long covid POTS, waking with adrenaline surges in the AM that causes rapid heartrate. Thank you for trying to help us.

@dockeiser Жыл бұрын

@@mikejames293 sorry to hear you’re still struggling and I hope you can work your way through it soon and getting back on track. Take care

@User98681 Жыл бұрын

@KMx108 Ай бұрын

I had 3 years of POTS symptoms that went away with ultra-high doses of injected methylcobalamin (a form of vitamin B12)...when i told my autonomic neurologist that the B12 my endocrinologist was giving me was doing this, he said "yeah...that can happen.".......ok.....then why didn't you make the recommendation???? Why just tell me to drink more water, take salt pills and all that jazz? Good grief! Why was i even seeing an autonomic neurologist if known causes are simply ignored??

@bodybuilding2983 Ай бұрын

what vitamin b12 level did you have before?

@Bosimalindiwe 11 күн бұрын

@thenailtherapist519 3 ай бұрын

I really enjoyed your video. I am curious if you use any traditional chiropractic methods to help increase the cerebral blood flow? I have a somewhat mild case of POTS which came out 6 months after i got Covid. Turns out i have chronic Lyme and a bunch of tick infections. It was really bad in 2022, and I'm about 70% recovered. But i still wake up in tachycardia and i can't tolerate much exercise, which is so hard for me to deal with. I also get brain fog and fatigue by 2-3 pm every day. Anyway, it's interesting to hear this take on what could be going on. I would love to have this type of in depth evaluation. You sould like you might be in the midwest, so do you happen to know any other practitioners in the DC area? Or are there online resources for home exercises which people like me could try to assist brain recovery? Thank you for your insight!

@Bosimalindiwe 11 күн бұрын

@Gronneberg1 7 ай бұрын

Hey @dockeiser I’m in need of help here in Minnesota. Know anyone from Minneapolis area?

@claradelcore9405 11 ай бұрын

Can I find someone like you in Switzerland?🙏❤️

@NATURULCAUSEZ 2 ай бұрын

Hello! I'm dealing with symptoms but in a rare boat where I have higher than normal BP currently. What would you recommend doing or testing in my current situation?

@Bosimalindiwe 11 күн бұрын

@wendytanowitz9836 6 ай бұрын

I have postural intolerance. When upright, I am Fatigued, have poor balance and coordination, and I feel tremulous in my core and kegs. For 15 years. Any thoughts?

@immadforit Жыл бұрын

What about tachycardia that happens when you lay down? I don’t usually have much of an issue with standing, it’s random though, I have my days where it can be triggered by standing.

@dockeiser Жыл бұрын

Great question. For this you could be looking at a different phenomenon. Have you had a work up done? If you want to discuss it, feel free to reach out via email: info@drkeiser.com

@KMx108 Ай бұрын

Tachycardia while laying down happened to me. It went away with ultra-high doses of injected methylcobalamin. I had a functional B12 deficiency which meant I had all the symptoms of b12 deficiency (the list of symptoms is long and varied) but my blood serum level was normal. You can't fully rely on those tests unless they tell you you have a low/deficient level. The tests can show a normal level but that doesn't measure what's actually getting into your cells. B12 deficiency presents differently in different people and most doctors don't get a lot of training on it. They know the basics, usually, which leaves a lot of patients not getting proper treatment.

@sweetzms1 3 ай бұрын

This is such a great video! Do you know of any practioners in Ontario, Canada, in the greater toronto area that does this type of work? I've had CFS for almost 11 years and got horrible POTS after getting covid last year. I literally cannot function as my heart rate is constantly so high and keeps me in a crash/flare up. My cardiologist and neurologist were very unhelpful. Just did the basic tests and tell me everything is fine...when clearly I am not. I can barely get up to use the bathroom without my HR going up to 160+.

@Bosimalindiwe 11 күн бұрын

@shippen2010 Жыл бұрын

I think I need this help I live in Cumming Georgia North of Atlanta where do I go... I was diagnosed with a brain growth in the center of my brain and they're gonna do radiation treatment on it in about a month could that be the problem

@dockeiser Жыл бұрын

It would be great to consult your medical neurologist. Take care and best wishes

@mikefortnite3214 2 ай бұрын

the beginning of my wifes POT journey she had horizonal BPPV. have you linked this at all to POTS? or could the bppv mimic the symptoms youre describing. she only got the room spinning when looking to the right/laying on right side. eye nystagus etc

@Bosimalindiwe 11 күн бұрын

@yagodkov Жыл бұрын

I was watching your video - 2 years of POTS GONE in 1 month- TREATMENT (Part 2/2). But I didnt understand what kind of exercise should i do? as I understand it, you need to lie on the bed and then begin to gradually rise and make eye movements to the left to the right? is it correct ?

@JRESHOW 3 ай бұрын

Ever figure it out? I’d like to know the treatments and exercises too!

@siobhancunningham2923 9 ай бұрын

Will dry needling help for pots

@moremytrees8339 6 ай бұрын

This info is very promising. My husband just got out of the hospital with POUS diagnoses. He has had 2 passing out spells and hurt himself both times. We live in Ohio. I wonder, is there a place that would practice this close by?

@Donate_Please 5 ай бұрын

I got POTS from COVID before anyone knew what it was and they sent me to Neuro Outpatient Center. They had me doing the VOR while balancing. But they didn't try the tilt table maybe I could try that on my own?

@Dragolo99 Жыл бұрын

hey doctor keiser, could you recommend someone in switzerland?

@claradelcore9405 Жыл бұрын

I’m searching for it too!!

@jenniferrezes4347 Жыл бұрын

Thanks for making this video and sharing this information. I’m currently in a bad flare up waiting 6 months to see a cardiologist and have been told there is not much any medical professional can do as there is no cure. I’ve made a few changes to my lifestyle and have seen some improvement but it’s still very challenging. I would love to come see you but I’m too far away, in Ottawa.

@DrAngelFace123 Жыл бұрын

There’s always no cure but people always heal. Check out medical medium!

@jenniferrezes4347 Жыл бұрын

@@DrAngelFace123 Thanks so much for this valuable information! I watched one vid on EBV and my mouth just dropped as it sounds like he was describing my life.

@GUITARTIME2024 8 ай бұрын

6 months to see a cardiologist. Wow.

@LM-is2ry 4 ай бұрын

@jenniferrezes4347: You can manage systems. If you’re interested, I can tell you what I do to improve my quality of life.

@NRCave1 18 күн бұрын

Sorry Jen. Did you catch CoVid too? I hate this damn virus. POTS is scary @times. I'm 26♌ btw.

@msheepyhead 8 ай бұрын

For months I have been feeling lightheaded, dizzy, nauseous, weak (almost like my body is slowing down). I tend to get flare ups. I’ll be okay for a bit then I’ll have two weeks or so of very frequent episodes of this. Often times if I lay down for 10-20 minutes I’ll feel better, but not 100%. I have fainted twice. I’ve been told it’s anxiety and migraines. I have suffered from both for years and know that this is something entirely different. Could this be pots, even if it doesn’t happen every time I go from a horizontal to vertical position?

@Catlily5 8 ай бұрын

Are you more flexible than other people?

@msheepyhead 8 ай бұрын

@@Catlily5 no

@Catlily5 8 ай бұрын

@@msheepyhead I hope you figure out your symptoms!

@msheepyhead 8 ай бұрын

@@Catlily5 thanks. Saw the doctor yesterday. They think it’s pots and I’m being referred to a cardiologist. My heart rate shot up to 140 moving from a seated to standing position.

@Catlily5 8 ай бұрын

@@msheepyhead Sounds like POTS! I am glad that they referred you to a cardiologist!

@margaritachacha9552 Жыл бұрын

Can you help with someone experiencing high heart rate and shortness of breath with minor tasks. I think I have a touch of POTS. I also am dealing with an anxiety sensation as well. This all came on after having Covid several times and then loosing my mother. I feel as if my cortisol shot way up and I can’t get it back down. Dealing with insomnia as well any tips would be appreciated.

@dockeiser Жыл бұрын

I’m sorry to hear you are going through all of this. It would be great to do an evaluation to see what path forward would make the most sense.

@User98681 Жыл бұрын

@ajneedhams Жыл бұрын

This is exactly me. Have you found any help? I could written this comment myself.

@User98681 Жыл бұрын

@@ajneedhams I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins🙏🏼

@jenniferrezes4347 Жыл бұрын

I am in a similar situation, lost my family pet and my grandmother and then got Covid followed by 3 back to back upper respiratory infections. 2 months later this major POTS flare began. 3 months later I still have difficulty standing and walking but the breathing and heart rate improved significantly when I started exercising daily. I do 20 min on my exercise bike daily and then weights while low to the ground (seated or laying). Training cardio and my core has really helped. I also had to quit caffeine and avoid anything that is too stimulating. I increased water intake as well. Good luck with your healing.

@Evajjane 10 ай бұрын

What tests should I ask my doctors to preform? I’ve had the tilt table test and nothing. I’ve had a heart monitor for two weeks, and was dx with tachycardia but my functional medicine doctor suspects POTS or some form of dysautononia. My heart rate increase when I stand up , also randomly out of no where my heart rate and blood pressure increases while at rest along with the other symptoms. Ive been rushed to the ER twice last week. However the doctors only suggested anxiety medication. 10mg of Valium daily. That’s not working, it helps for a few hours and then the same things happens. I’m in chicago please help.

@Catlily5 8 ай бұрын

Could you have Inappropriate Sinus Tachycardia? It is supposed to be similar to POTS?

@eggbenedict-gt7mw 7 ай бұрын

@@Catlily5what about sinus bradycardia

@Catlily5 7 ай бұрын

@@eggbenedict-gt7mw I don't know much about it.

@asnoopy 5 ай бұрын

Any published article about this?

@kaitlynryan1898 Жыл бұрын

Hi! I have had Pots for about two years as well! Do I need to see a certain specialist? My doctor doesn’t know anything about this and I’ve been having a terrible year. My heart rate goes to 200+ or when I’m standing too long, my arms hurt from circulation. They are always red and painful and I have to hold them about my head, happens with legs/feet too!

@dockeiser Жыл бұрын

That is a good question. If you have been stalled for that period of time, a specialist may have some further insight that could be valuable. Let us know if we can help you or help you find someone. 😊

@heatherfolts Жыл бұрын

@ Kaitlyn Ryan, I'm so sorry to hear that you've been experiencing such a hard time this past year. I can totally understand the frustration that comes from your doctor not knowing much about POTTS.. The one person you are expecting to be able to rely on for the answers , doesn't have them.. or better yet .. doesn't even know the questions..I know my daughter has been struggling with a diagnosis of Potts & Bradycardia for the last six months.. I have been watching every video I come across just trying to educate myself and relay it to her.I believe the largest part of newly diagnosed people with Potts is stemming from a result of having had Covid-19 at some point. I suppose this is why some doctors have never treated it before. It must have been a rare thing before now..hopefully they catch up.. because this can be very isolating to those who have it.. and the not knowing where to go once u are diagnosed is scary. It feels like a life sentence for a crime you didn't commit so to speak. ANYWAYS.. Just wanted to say you are not alone in the not knowing... keep educating urself the best you can and I believe you will cross paths with the right people on the way..

@User98681 Жыл бұрын

@mlissaswift8572 10 ай бұрын

I started experiencing symptoms at age 15 when my cross country career did a 180. The doctors couldn’t figure out what was wrong with me and I just got a complex dysautonomia diagnosis (POTS and a type of vasovagal) at 35 years old. Kaiser doesn’t have a POTS specialist and is recommending your typical add more salt to your diet, etc. Do you think I should also be seeking a POTS specialist outside Kaiser, and if so, where do I look? (I am located in Riverside, CA). Thank you so much!!!

@anthonycruz5661 8 ай бұрын

@mlissaswift8572 I’m experiencing the same situation as you. I’m through the Kaiser system and it seems like they don’t care about what I’m telling them and just told me I wasn’t hydrating enough and to drink more fluids. After so much research I have all the symptoms that match POTS. It’s so debilitating and as I’m not able to work due as I always feel like passing out through any physical exertion. What have you done so far? I am going to go research for docs outside the Kaiser system and hopefully can figure something out.

@mlissaswift8572 8 ай бұрын

Anthony, I am so sorry to hear how bad yours is! I feel fortunate that my POTS doesn’t seem to limit me in my daily life, other than trying to exercise, really. When I found out about POTS, I brought it up to two general practitioners and my pulmonologist, and all of them dismissed the idea or blatantly told me it was not POTS. They did start to take me more seriously when I tried another angle and instead of talking about my exercise intolerance, I told them I have fainting spells just upon standing up. They first ordered orthostatics where they track your heart rate and blood pressure in the lying, sitting, and standing positions. I also had to push for a referral to the cardiologist, which meant I had to jump through a ton of other hoops like wearing a Holter monitor for a couple weeks and getting ultrasounds on the heart and everything before they would give me the referral, and even then, it was my pulmonologist who was stumped and pushed the referral through. The cardiologist did her own orthostatics on me and said I probably had a combination of POTS and orthostatic hypotension. I think I was the one that mentioned/asked for the tilt table test. (I had done my own standing test at home with my Apple Watch, blood pressure monitor, and timer on my phone and was pretty confident that it was POTS or something similar). Where are you located? LA was the only Kaiser that did the tilt table test in Southern California I think, but I finally got my diagnosis there on the spot after the test and after 15 years of not knowing what it was (about 2 years after resurrecting the issue with Kaiser). Now that I have the diagnosis, they told me to drink 96oz of water/day (I think this could be different for everyone? 🤷‍♀️). I’m kind of in a trial and error stage…I also ordered LMNT (the flavored ones in a 32oz water bottle with ice taste like Gatorade!), and they also prescribed me Midodrine to constrict the blood vessels…I’m taking both of these about an hour before a run to see if I notice a difference. Honestly, I’m not sure that I do, but I’m still going to give it some time. I have asked Kaiser if they have a POTS specialist I can work with and they said no and I don’t need one, but I can’t help but think that I do. The cardiologist said she would refer me to a neurologist outside Kaiser that does, but so far I haven’t seen that referral come through. At my job I have the option of going with Kaiser or Blue Cross/Blue Shield so I might switch next year because I found an integrative clinic for people with POTS (I think) and other complicated chronic illnesses called Restoration Healthcare in Irvine and LA, so if I switch my medical insurance I can go see them. A friend also sent me this naturopathic doctor that specializes in POTS and seems really good, just might be pricey. She puts out a lot of great info on Instagram too @drallisonwilliams. I feel like because POTS is not well understood, these big doctors often shy away from it. I would do your own standing test and continue to push for a tilt table test through Kaiser, you have to be your own advocate! The guy that told me about POTS had his daughter diagnosed at the Mayo Clinic. I would also research POTS specialists near you and see if that’s an option, or go with Dr Allison. If your standing test fits the POTS criteria, I would also try the water and LMNT and see if you notice a difference.

@mlissaswift8572 8 ай бұрын

@@anthonycruz5661 sorry, I didn’t tag you in my response above! I hope that helps! Let me know if you have any other questions or I can help in any way!

@anthonycruz5661 8 ай бұрын

@@mlissaswift8572 I truly appreciate your info Melissa. Yeah I’m currently wearing a halter monitor right now for two weeks and asked to be referred to a cardiologist but my doctor seems reluctant. I will push for it and I also did my own POTS test at home and fit the criteria. Are you able to exercise? I can only do like five minutes of exercise before l feel like fainting which sucks cuz I’m an active person and a casual cyclist as well. I hope things get better for the both of us. Thank you for your reply once again.

@mlissaswift8572 8 ай бұрын

@@anthonycruz5661yes they were reluctant with me too, but I kept having to push them on it and the more I took the angle of having fainting spells just from standing up, the more they were willing to push that through. So I am able to exercise, but not at the performance I would like. For me, I feel like the interesting thing is I don’t necessarily feel like I’m going to faint (unless I’m changing positions from lying or sitting or something to standing), but I’m a runner and my heart rate goes to max almost instantly and my legs feel like they’ve never run before…I think it’s because my body can’t pump blood well/fast enough to keep up. And it doesn’t seem to matter how in shape I am otherwise. Even in the middle of a cross country season in high school or now working out/running 5 times/week. I tend to push through, but it’s miserable, plus discouraging to try so hard and not be able to have the performance even come close to matching. Like someone whose never run before in their life would be faster than me.

@laurainrevison1162 4 ай бұрын

My understanding is many of these peiple find out to have hyper mobility/ EDS / Nuerodivergent. Therefore mire sensitive and have more nueron activity in general.

@lichtsier1306 Жыл бұрын

this is so so so essential. here in russia i cannot get any useful advise, i can't get the answer what is going on with me and what am i supposed to do. so it wasn't delayed, all that you saying is important. so thank you so much i want also to add, maybe it's interesting for you. so my POTS developed after my mediastinum tumor surgery and i've been experiencing POTS symptoms now for 3 years. and it wasn't the same. the most intence symptoms are remained for the last 2 years.

@yagodkov Жыл бұрын

Добрый день! А вы поняли в чем суть лечения заключается ? Я как понял нужно сосредоточится на каком объекте и постепенно подниматься и следить за ним ?

@lichtsier1306 Жыл бұрын

@@yagodkov я поняла что нужно постепенно увеличивать нагрузку и при этом желательно чтобы человек выполнял упражнения под "комфортным" для него наклоном, в данном случае как при выполнении Тилт теста Ну и налаживать процессы анаболизма катаболизма

@yagodkov Жыл бұрын

@@lichtsier1306 А можете описать как вы поняли как нужно делать это упражнение ?