2019 Power Over Scoliosis Event - Scheuermann's Kyphosis - Speaker Session 1

The Setting Scoliosis Straight Foundation and surgeon members of the Harms Study Group are honored to present our forth annual patient education course, “Power Over Scoliosis.” We have enlisted esteemed colleagues & experts for this once in a lifetime learning opportunity.
This program is made possible due to the continued support of our sponsors, grants,
and generous donations from families like yours.
In 2019, we've brought Power Over Scoliosis to Baltimore, MD. Orthopedic experts in the
Baltimore and surrounding area patient community are gathered for one unforgettable day to educate patients and their families on proven and unproven corrective treatment methods while discussing best practices for coping and conquering a scoliosis diagnosis.
You can skip to other talks by clicking on the timestamp below:
00:01 -- Details of Surgery and Surgical Options - Baron Lonner, MD
14:23 -- What to Expect: Surgery & Recovery in Scheuermann's Kyphosis - Holly Loosen, PT
28:00 -- Q&A with Baron Lonner, MD & Holly Loosen, PT
Special thanks to NuVasive for sponsoring this video recording!

[@MyraYoung-c3z]

My son got his op at the start of lock down thanks to the doctors in Edinburgh he's great but if the doctors listen to Nicola sturgeon my son wouldn't be waking as she stopped all surgery but the surgeon said he was going to operate as john was at 105 curvage and had scillyosis aswell he struggle getting in and out of his car but its sad to see him like this but we're very grateful to our Edinburgh Doctors

[@eemerald2323]

Yes Muscles adjusting to spinal alignment.. WHAT ABOUT THE LIGAMENTS? Please talk about the ligaments! Are those release in surgery?

[@WATCHINGTHEWATCHERS999]

Hi there, I’m a female with scheuermann’s that apparently is not severe enough for surgery, but I am in daily pain. Interestingly (as an aside) I went to a chiropractor recently (actually in relation to my hip not the kyphosis) and he said (and he’s not the first - I have heard this MANY times) that the scheuermann’s shouldn’t be giving me any pain. And he didn’t seem to be saying this in relation to how it presents for me. He was saying this as a general rule! Because when he said that I said I’m in a scheuermann’s group and everyone’s in pain and he responded that he has friends with scheuermann’s and they don’t have any pain 🤔… …So it got me thinking (because I did meet a guy with a worse curve than me who said he doesn’t have any pain) and it makes me wonder about physiological gender differences. One thing I have noticed (but I cannot sustain for long because it restricts my breathing) is that if I basically strap or tape up my boobs then my back and neck are less painful. I am a pretty average size (all over, including chest) so I can’t imagine boobs any bigger than mine. But also I’m 49 so I suspect the loss of collagen and muscle loss during perimenopause would also be playing a part. Besides that, women have less muscle mass ESPECIALLY in the upper body. For this reason I think there should be considerations made for this when considering quality of life. I’m really not convinced that the size of the curve is necessarily what governs pain. But then I don’t think medical professionals care that much about pain as it seems to only be certain conditions that are taken seriously and level of pain (and thus quality of life) don’t seem to be a big factor influencing this. (I’m from UK by the way so I am speaking from my experience with our broken system)

[@ayael2907]

I have been suffering from Schurman's for a long time, 8 years, which has stopped my life because of the pain when moving my hands. I can treat it by swimming and muscle strengthening exercises. By the way, I am 23 years old.I wish you a speedy recovery, God willing.

[@Empressively]

Doesn’t Johns Hopkins have an Ehlers-Danlos research department? It would’ve been nice to hear some statistics and tips for individuals with connective tissue disorders. Regardless, this video was very informative! Thank you

[@yasmineelmtabii7625]

I have a 52degrees thoracolumbar kyphsis, is the surgery a good option?

[@elyasabdullah5043]

Es hängt von Symptomen an,Meisten hilft in Ihrem Situation dem Sport und Rückenmuskel verstärken.

[@shopcashcashshop1501]

It makes me like pass out when I straighten it

[@st3v3i]

I am from the U.K. Scotland to be more precise. I have Scheuermann’s Disease. For 30 plus years my cry’s for help from doctors and specialist were ignored and brushed aside I will even say neglected every time. As I write this I have a kyphosis curve that is at 89.14 degrees also a slight scoliosis curve to around 10 degrees, I have bone grinding against bone lost several discs in the thoracic spine I have 2 disc bulges in the lower spine. I have loss of movement in my neck and also in the back. As I stood in front of Scotland’s experts they claim and told me they CANNOT do anything to help end of story. What would the people who hold these seminars and talks tell me?

[@peterzetterman5698]

wonder why the not surgery, very strange

[@st3v3i]

@@peterzetterman5698Scotland’s health services don’t rate on a global stage, neglect and lies refusing to help is all I have seen with them. I don’t know about NHS England however from information I’ve received they are far better than Scotland. I know enough about Scheuermann’s Disease to know what can be done and what can’t be……it’s finding a specialist who can amongst specialist who won’t. But sadly Scotland has a useless NHS .

[@ourmindzdj]

⁠@@st3v3iAmerica is further ahead with back surgeries. Their private health care means they operate more frequently on back as a whole and there is subsequently a bigger market for all concerned. Although sometimes they operate when perhaps they shouldn’t, it also means they are innovating more, your average orthopaedic surgeon has a lot more experience and surgery is more of a routine procedure than here. I’m 30 years old, male from t U.K. I like you have been told they will not operate by the NHS despite debilitating pain everyday and severe concern over my future and what life I may lead. You always have the option to go private however. I have read thoracic fusion is on average £12k give or take depending on surgeon. Have you ever looked to go private? It’s a small price to pay and you get to pick your surgeon at least!

[@WATCHINGTHEWATCHERS999]

@@st3v3ibetter??? Well my experience with them hasn’t been good. I have even developed a phobia about seeing medical professionals and have started taking an advocate to appointments.