25 Mind Boggling Diseases That Science Can't Explain

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List 25

List 25

Күн бұрын

Discover the mysteries of rare diseases in "25 BIZARRE DISEASES Science Still Can't Explain!"
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►25 Crazy Diseases Science Can’t Explain
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Explore the mysterious world of rare and perplexing health conditions in our latest video, "25 BIZARRE DISEASES Science Still Can't Explain!" Uncover the strange and fascinating stories behind these unusual ailments, from supernatural strength to uncontrollable genital arousal. Delve into the realm of medical mysteries as we discuss these rare diseases that continue to stump the scientific community. Join us on this intriguing journey into the uncharted territories of the human body and mind!
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Author: Hestie Bernard
Music: Something is going on - Godmode
Chapters:
0:00 - Intro
0:43 - Myostatin-related Muscle Hypertrophy
1:41 - Hyperekplexia
2:27 - Stiff Person Syndrome
3:10 - Haemolacria
3:54 - Rosacea
5:09 - Hyperthymesia
5:55 - Capgras Delusion
6:33 - Vitiligo
7:17 - Raynaud’s Phenomenon
7:50 - Pachyonychia Congenita
8:34 - Juvenile Idiopathic Arthritis
9:15 - Lamellar Ichthyosis
10:06 - Brainerd Diarrhea
11:14 - Sweating Sickness
11:44 - Nodding Disease
12:26 - Cutaneous Porphyria
13:12 - Auto-Brewery Syndrome
13:55 - Persistent Genital Arousal Syndrome
14:42 - Congenital Insensitivity to Pain
15:28 - Alkaptonuria
15:55 - Chronic Focal Encephalitis (Rasmussen’s Encephalitis)
16:32 - Creutzfeldt-Jakob Disease
17:16 - Morgellons Disease
18:16 - Rheumatoid Arthritis
19:03 - Wilson's Disease
_________________________________________
Learn something new every day.
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Пікірлер: 920
@list25
@list25 4 ай бұрын
Please support my channel and get access to amazing perks: kzbin.info/door/WqJpFqlX59OML324QIByZAjoin
@Azreal357
@Azreal357 4 ай бұрын
Hey, weird suggestion. My friend had issues with red patchy skin for years and he tried using "Nizoral AD AntiDandruff Shampoo", and it cleared it up within a few days, never to return. It's strange, but all the doctors he asked suggested it was psoriasis or that they simply weren't sure. He only tried the shampoo because someone told him it was an antifungal, and it may relieve the symptoms, and it 100% did. It probably isn't the same as what you got going on, but may be worth a try. Worst case scenario, you are out $20, best case is your skin issues go away. Cheers.
@mingfanzhang8927
@mingfanzhang8927 4 ай бұрын
❤❤😊😊
@mingfanzhang4600
@mingfanzhang4600 4 ай бұрын
❤😊
@LtJackboot
@LtJackboot 4 ай бұрын
I have Reynaud's syndrome. Winters are a byyitch.
@manueltapia1859
@manueltapia1859 4 ай бұрын
Mike I had Psinusitis from childhood to my teens, was horrible feeling I had excese of mucus despite used a tissue to clean. Now I can breath normal 😊 You are really Brave to show your psoriasis 😊
@queerskiesahead847
@queerskiesahead847 4 ай бұрын
I have Fibromyalgia and it's kinda sad how little is actually known about it. A lot of people seem to think of it as a catch all for people who they can't find a better diagnosis for, but it is 100% real. I get all these weird symptoms and I will research to see if what I'm experiencing is at all linked with Fibro and it almost always is. I wish it was taken more seriously.
@clarebebbington9984
@clarebebbington9984 4 ай бұрын
I have it too
@sheilaholmes996
@sheilaholmes996 4 ай бұрын
I had a friend who suffered from this as well.
@kathywiseley4382
@kathywiseley4382 4 ай бұрын
I have it also and it can be miserable. Add costochondritis to the list of odd symptoms. Having your ribs suddenly swell if incredibly painful. I always tell people to imagine you are coming down with the flu perpetually. All the aches and pains, sometimes a fever, always exhausted. But never actually getting the flu.
@randalmayeux8880
@randalmayeux8880 4 ай бұрын
I have it too. All I can do is take Gabapentin.
@queerskiesahead847
@queerskiesahead847 4 ай бұрын
@@randalmayeux8880 Gabapentin didn't really do much for me, they are trying me on Lyrica (which is similar), but that's not doing a lot either, but I'm trying to stay hopeful a higher dose will make a difference. I also take Cymbalta and Magnesium.
@Aconitum0444
@Aconitum0444 4 ай бұрын
I fought with doctors for years to no end because i wasnt crying or "im a kid you shouldn't be hurting" but i was, just this year i find a doctor who believes me, turns out ive had arthritis since a kid and scoliosis that no one caught cuz no one actually paid attention. Now im 22 diagnosed with full blown R.A. and Lupus. When your kid tells you they're in pain, please actually listen to them. Dont blow them off cuz when they get the answers they need without you, you'll regret it
@marisolmistakesmadefresh
@marisolmistakesmadefresh 3 ай бұрын
My sons father have these things it’s called mixed connective tissue’s disease it started when we were in a kickboxing class and the color in his fingers disappeared 😢
@OneStubbornLass
@OneStubbornLass 3 ай бұрын
I have Ehlers Danlos syndrome and RA as well. I freaking hated how he described RA!! It’s not an old person’s disease - I was 21 when I got it, it happens more often in women mid to late 20s (I’m 30 year old woman and I’ve only met one man with the disease), it can be if not more often is worse than lupus because the damage in the joints can cause never ending pain and it’s less likely for someone with RA to go into remission, not to mention that it affects the organs- stomach, GI Tract, lungs, heart and more… I wish people would do more research before just doing videos.
@OneStubbornLass
@OneStubbornLass 3 ай бұрын
We already go through enough trying to explain that it’s just as fatal as lupus and just as serious that we don’t need people spreading more misinformation
@nancys2839
@nancys2839 2 ай бұрын
Onestubbornlass You're absolutely right. Most people even doctors think if I take Tylenol and keep my joints warm I'll be fine. Unless you have this you don't have a clue. This is not osteoarthritis. I've had RA since I was a kid. I have ehler danlos, sjogrens, fibromyalgia, osteoarthritis, rheumatoid arthritis, traumatic arthritis and I fear lupus too. My youngest daughter is starting to get all of my symptoms and my dad had RA my sister sarcoidosis. I have been having severe flares since October. The pain is excruciating. I eat a clean homemade diet with absolutely no processed food or grains gluten etc. My joints feel broken with broken glass in them every morning sometimes most of the day especially bad from 2am to around 9am every day. The fatigue is killer too. Its hard to focus for long or sleep well because of the pain. My insurance company expects me to pay $ 2,400 Co pay for my medication until I reach $6,000. If I didn't have a family that loves and cares about me I might just give up. I feel for you I hope a better, safer more affordable medication comes along it couldn't be too soon. I hope you have some success with treatment although the treatments can have many side effects
@Maryaminx
@Maryaminx 2 ай бұрын
I have AS diagnosed now in my 30s. Parents believed I was in pain but thought it was normal. Turns out losing the ability to twist is actually not normal , who knew
@feliciathal4144
@feliciathal4144 3 ай бұрын
Endometriosis should be on thus list
@morrigan908
@morrigan908 2 ай бұрын
Agreed. Per Johns Hopkins, between 2 and 10% of women endometriosis. That's a wide range, but even 2% makes it a very common idiopathic disorder.
@user-rj3no2xs5o
@user-rj3no2xs5o 2 ай бұрын
It is usually diagnosed years and years after symptoms appear. Drs classify it as " woman's problems" debilitating painful periods are just what some women have to put up with. It makes me so angry - as you can probably tell - that this is brushed off by so many (and mostly male) doctors.
@RNMom424
@RNMom424 Ай бұрын
​@@user-rj3no2xs5o I was in my mid-30's before I got my diagnosis! The pics they gave my after an ablation showed I had lesions, BIG ones, everywhere. I'm glad it's an accepted disorder now. Like you said, before that it was "just cramps", heating pads, & Pamprin!! I have several of these invisible disorders. Maybe we should tattoo them to our foreheads! 😁
@lyraria
@lyraria Ай бұрын
Um, that's a lady disease. We pretend those don't exist. 😆 (I have endo, gotta laugh so I don't cry.)
@RebelSoul_
@RebelSoul_ Ай бұрын
My sister has it. Her whole life we thought she was making her pain up. As a adult I feel bad for making fun of her. But the doctors told us she was faking her symptoms so we just thought she was dramatic.
@ebenthealien
@ebenthealien 4 ай бұрын
I love how open and comfortable you are with your medical condition. You are the ONLY “List” guy I actually trust and respect 🫡 never stop making content, please. 🙏🏻
@shelly3251
@shelly3251 4 ай бұрын
I was diagnosed with Fibromyalgia 11 years ago, Hashimotos about 6 years ago, and Raynauds 2 years ago. Winter here in Minnesota is very difficult and painful. This year has been pretty good and less painful thanks to my heart meds, heavy socks, and many layers of clothes.
@deannaschrock5738
@deannaschrock5738 3 ай бұрын
Wow I am so sorry for you having to endure so many conditions at one time. It seems like similar portions of Fibromyalgia on steroids.
@doclewis8927
@doclewis8927 3 ай бұрын
I was also thinking of my issues. For me, I have Fibromyalgia diagnosed about 15 years ago, Chilblian's lupus about 9 years ago with Raynaud's also being diagnosed, and in 2022 I was diagnosed with gastroparisis (delayed emptying of the stomach). I live in Montana where we usually don't have too many days in the negative temps until the past couple of years. I've yet to find any heavy socks that I can wear due to the Chilblian's lupus going from too cold to too hot in a matter of minutes. I'll have them on a whole five minutes then have to take them off because I'm too hot. I'm also 50 so I've started my lovely hot flashes. Miserable. However, I am happy that you've found a balance and have been doing better. That's great. I wish you continued luck with finding treatments or little life adjustments that help you. Take care. Be well. Stay safe.
@deathfangthegothicgamer5601
@deathfangthegothicgamer5601 3 ай бұрын
Hi fellow Minnesotan
@jasonrichard7560
@jasonrichard7560 3 ай бұрын
Thought they found all these conditions to be related to vitamin D deficiency. It can take months to correct and typically D2 is prescribed instead of D3. Also vitamin D3 should be taken with K2 and magnesium. Hopefully your Dr will check your D3 levels.
@SunRabbit
@SunRabbit 3 ай бұрын
Not to overstate the obvious, but can't you just move to a warmer state, like Florida?
@gdtestqueen
@gdtestqueen 3 ай бұрын
The comments about JIA ring very true. I was diagnosed with JRA (juvenile Rheumatoid Arthritis) when I was 2. It progressed to adulthood and never left. Pain has always been there. But I didn’t know that wasn’t normal. I remember feeling like a wimp because the other kids could run and jump despite the pain when I couldn’t. When I was 6 I asked a friend how she figured out how to skip rope when it hurt so much. She was confused. That’s when I learned that most people can stand and walk and move without pain and stiffness. Total eye opener. On the plus side…when it’s all you’ve ever known, it becomes the normal. You figure out how much you can do and what is worth the hurt.
@proudgrannyjoanfleming8860
@proudgrannyjoanfleming8860 3 ай бұрын
My daughter was diagnosed with juvenile RA. We went through a year where she would catch everything and was on antibiotics every couple of weeks. I told the Dr it wasn't normal and they acted like I was mental for taking her health seriously. But she would go to school and tell them she wasn't feeling good get pushed in gym and end up at the doctors. Even after her diagnosis and trips to specialist started I was still fighting the school system to actually listen when she wasn't feeling well that she really could not be pushed it was making her sicker. Its hard when you start living your life and know nothing but pain. So many people sharing their pain. You learn to appreciate less pain and how to deal with more . But there is always some.
@gdtestqueen
@gdtestqueen 2 ай бұрын
@@proudgrannyjoanfleming8860 That is so true…you learn to appreciate the days with less pain, but it’s always there. And your daughter’s story mirrors my own. It was the multiple infections, one after the other, that alerted my parents and the docs when I was 2 years old. And no matter what notes I had, the school still pushed me too far. At least when I lived in Alberta…in Ontario I got identified as disabled and it made life so much easier. Also, I was a kid with JRA in the 80’s. Back then the only treatment they gave kids was childrens asprin (until they discovered Reyes disease), and then maybe Naproxen. They have come so far in treating children now for it, just blows me away! And I’m so thankful that the later generations at least have some hope and help. Hope your daughter is doing ok, and glad she has you to back her up and fight for her!!! Means the world!!
@whyarewealwaysyelling
@whyarewealwaysyelling 4 ай бұрын
I have MikeEstrinitis, Depression like symptoms when List 25 doesn't upload. it's highly contagious!
@merrileeheard3889
@merrileeheard3889 4 ай бұрын
I have it as well!!
@alysiareid6659
@alysiareid6659 4 ай бұрын
I have also caught this.
@whyarewealwaysyelling
@whyarewealwaysyelling 4 ай бұрын
​@@alysiareid6659I'm not sorry If you got it from me
@list25
@list25 4 ай бұрын
Oh no!
@Jimbodisfan
@Jimbodisfan 2 ай бұрын
Me too.
@srhodes79
@srhodes79 3 ай бұрын
Raynaud's phenomenon. Happens randomly but there are a few stores I avoid because they keep the temperature really low year-round and it only takes about 5 minutes before my fingers and toes become a problem.
@selenlibesthene2304
@selenlibesthene2304 Ай бұрын
I have Raynaud's! In the video he says that it "should" be taken seriously but none of my doctors ever seemed really concerned? Is there something I should know about it outside of possibly being tied to Lupus?
@pennykeller3048
@pennykeller3048 4 ай бұрын
I'm amazed that Mike could pronounce all those names. Good job Mike!
@list25
@list25 4 ай бұрын
I try lol. I pride myself on it actually. I know a lot of presenters/narrators/KZbinrs just kinda try and go with whatever, but I wanna make sure I do it right.
@pennykeller3048
@pennykeller3048 4 ай бұрын
@@list25 well, you're doing a great job Mike. I know that I couldn't pronounce half of those names. I really enjoy listening to your videos
@tonicoalson4109
@tonicoalson4109 3 ай бұрын
In a search engine type the word you want to learn to pronounce, then type pronunciation. You can get a correct pronunciation of the word you want to say.
@list25
@list25 3 ай бұрын
Unfortunately not always, and sometimes the results are just AI reading it and it's horribly wrong. Forvo is my go-to because it has recordings of ACTUAL speakers of said languages.
@marypasco2213
@marypasco2213 Ай бұрын
❤@@list25
@EmilyJelassi
@EmilyJelassi 4 ай бұрын
I have CRPS and Fibromyalgia and I'm still amazed by how little science understands either. I'm also missing 2 Proteins in My DNA that makes up my autoimmune system. The condition is so incredibly rare that it doesn't even have a name yet!
@MamaStyles
@MamaStyles Ай бұрын
Hugs Emily❤ I have CRPS ll and Fibro is my second diagnosis.The pain is UNREAL….def should’ve made this list
@thecraftycyborg9024
@thecraftycyborg9024 15 күн бұрын
Odds are good you actually don’t have fibro. I was diagnosed with both originally then once my CRPS more obviously spread, it was changed to just CRPS. When I asked why, I was told it’s only been documented to actually have both 1 or 2 times. Rather, what’s thought of as the fibro is the first signs of full body CRPS. They’ve realized this by treating patients with the dual diagnosis with things like SCS and DRG, which don’t work in fibro patients. (I have full body type II, plus a bunch of other shit. I have two SCS now, C2 and T8, and they work fabulously.)
@EmilyJelassi
@EmilyJelassi 2 күн бұрын
​@MamaStyles CRPS should've definitely made this list!!
@EmilyJelassi
@EmilyJelassi 2 күн бұрын
​@thecraftycyborg9024 Thanks so much for that information!! I'll definitely ask my pain doctor about that at my next appointment!! 🙏🙏🙏😊
@MamaStyles
@MamaStyles 2 күн бұрын
@@EmilyJelassi Agreed Emily💕
@sarade2792
@sarade2792 4 ай бұрын
I have Morgellons Disease. As a result I have lost all respect and trust in physicians. I have sores that have been present for about 15 or 16 years, and the itch is intense. Thank you for acknowledging this as a disease.
@nancykunik4370
@nancykunik4370 3 ай бұрын
Same here ... The worst of the symptoms can be treated with natural anti-parasite herbs ... Look up morgellans protocol it definitely helps ...
@wendysuecapps5114
@wendysuecapps5114 3 ай бұрын
I have been suffering with Morgellons since 2017. And you are spot on about losing ALL respect for the Medical Community!! I too appreciate the acknowledgement of it in this video!!❤❤❤
@sarahMuahahaha
@sarahMuahahaha 3 ай бұрын
Morgellons for me too, about 21/22 years.. had no idea and finally figured out this mess like 2 years ago. I lost faith in the medical community 😕
@nickhaviland500
@nickhaviland500 2 ай бұрын
Me too
@KatieBelle777
@KatieBelle777 2 ай бұрын
I’m an RN and never even worked in a specialty that would encounter Morgellons nor do I know anyone who has it, but I have ALWAYS believed the people who have it. It angers me that lots of physicians even questioned the psychiatric state of these patients or said the fibers were from their clothing, etc. I kept wondering why no one would run the fibers through a mass spectrometer. I think it was in Tulsa, Oklahoma (I could be wrong about where), anyway someone finally did and the fibers were nothing that showed up as any known substance. These people aren’t making this up.
@stephanieb1719
@stephanieb1719 2 ай бұрын
I have several autoimmune/rare disorders: Raynaud’s, Trigeminal Neuralgia, Ocular and facial Rosacea Hashimoto’s, Sjögren’s, Gout, Fibromyalgia, and inflammatory arthritis. I have trouble regulating my body temperature, excessive dry mouth/eyes/skin, muscle/nerve/joint pain. Something hurts 24/7. Interesting side note-my grandfather was a Nuclear Engineer in Oak Ridge, TN. He also worked on the Manhattan Project. He, along with the other engineers, died from cancer all over their bodies. He had 10 children, and all of them have some type of autoimmune disorder and/or cancer. Several grandchildren have multiple autoimmune disorders, tumors, and infertility. It’s been a painful struggle coping with everything. 😢
@WldUWlkTheMoon
@WldUWlkTheMoon Ай бұрын
Hi. We have a lot in common. I “glow” too. And, shock. Not only am I from Oak Ridge TN, I have TN and MS amongst other chronic illnesses. I find this interesting.
@user-rb3zh6sz1b
@user-rb3zh6sz1b 2 ай бұрын
Burning mouth syndrome is another one the doctors dismissed as 'all in my head' whilst not life threatening, it robs a person of joy in life, having a mouth and throat that feels scalded 24/7 is horrible.
@corrinnacorrinna5572
@corrinnacorrinna5572 2 ай бұрын
Look into B12 deficiency. It's worth a try.❤
@user-rb3zh6sz1b
@user-rb3zh6sz1b 2 ай бұрын
@@corrinnacorrinna5572 I did and I take it, but still no difference 😔 but thanks for the suggestion though and for caring ❤️
@corrinnacorrinna5572
@corrinnacorrinna5572 2 ай бұрын
@@user-rb3zh6sz1b I hope you find a solution soon. That has to feel miserable. 😕
@iamme7626
@iamme7626 Ай бұрын
It is sheer hell. Been suffering from that for about 2 years now and no doc can help!
@user-rb3zh6sz1b
@user-rb3zh6sz1b Ай бұрын
@@iamme7626 I feel for you my friend, it's been six years now and nothing whatsoever has helped, one doctor told me to be thankful it's not cancer! It's truly hell on earth. I have heard that sometimes it goes away by itself, but I'm not holding my breath! I've recently started carnivore, as I've tried literally everything else, and I've heard very good things about people being healed through it, so I'm giving it a good go. ❤️
@anngladstone9130
@anngladstone9130 3 ай бұрын
I developed rosacea shortly after moving near the beach. My dermatologist gave me various ointments, but the only things that helped was a certain antibiotic and prescribed facial wash. What seems to have really done the trick was getting a water softener system tied to our main water line 5 years ago. No more meds needed. It makes me wonder if I really have rosacea or something else. Also, my sister-in-law was diagnosed with RA at 18. Terrible disease.
@jimmcmurray857
@jimmcmurray857 4 ай бұрын
Id love to have that no.pain disease i have chro ic pain syndrome due to severe back pain
@umadbra
@umadbra 2 ай бұрын
Chronic fatigue syndrome.... Physics Girl Dianna is going through it right now. Wish her and her caring husband the best.
@corrinnacorrinna5572
@corrinnacorrinna5572 2 ай бұрын
Research Gulf War Syndrome & Chronic Fatigue Syndrome. The correlation is interesting.......
@coolbear6441
@coolbear6441 Ай бұрын
There was an episode of The Golden Girls for CFS. Dorothy had it..
@maryh1421
@maryh1421 Ай бұрын
My cousin has chronic fatigue syndrome. He is always tired and can't do anything. Apparently no treatment for it.
@quinn2014
@quinn2014 2 ай бұрын
I also have a friend with CIPA. When i was younger i really didnt want to feel pain cuz i have liver disease but talking to her has made me realize its incredibly super important.
@sandigore6987
@sandigore6987 3 ай бұрын
I have Fibromyalgia and lm not now nor😊 ever have been lazy but this just takes everything you have to just simply walk it is also painful
@jenniferlindsey2015
@jenniferlindsey2015 4 ай бұрын
I have a couple of cousins with Wilson’s disease. Although there is no cure, they have found that donating blood on a regular basis will keep their copper levels in check.
@vincentender1486
@vincentender1486 3 ай бұрын
A sort of win win, people get help with needed blood and they take care of their levels. Some silver lining for them
@liwiathan
@liwiathan 3 ай бұрын
So the treatment for this is bloodletting
@joywebster2678
@joywebster2678 3 ай бұрын
That's the treatment for excess iron in the blood. Excess copper as the MAN says destroys organs, and I've seen women in their 30s have their brain deteriorate from the excess copper.
@thepurplerose4520
@thepurplerose4520 2 ай бұрын
Thank you for sharing your psoriasis. I have had both psoriasis and eczema since I was a kid, and get self-conscious about it. Seeing someone talk about and share theirs so casually makes me feel more comfortable and confident about mine 😊
@vxsthxtics
@vxsthxtics Ай бұрын
My mom has psoriasis and words can’t describe how heartbroken I’ve always felt for her, trying all sorts of creams and treatments just to have an outbreak after thinking it was gone once again. What is worth mentioning is the social stigma and the fact that so little people know about this disease, I hated to hear people say stuff like „looks horrible, will it spread on me?! you better not get too close, I don’t want to catch this”… My heart goes to everyone with psoriasis, you are beautiful no matter what!
@MrSolenoid
@MrSolenoid 4 ай бұрын
I have CRPS. Or complex regional pain syndrome. I got it from damages to the nerves in my right leg. Which I got amputated in 2022, but it had already spread to the rest of my body. Scientists say it's the most painful disease they know of. It's also called the suicide disease.
@MamaBe1963
@MamaBe1963 4 ай бұрын
Unfortunately I have RSD too
@austinpearson2684
@austinpearson2684 3 ай бұрын
How does it hurt is it constantly? And do you agree with its name the suicide disease?
@austinpearson2684
@austinpearson2684 3 ай бұрын
Also does it just start randomly or is it from something that happened like a fall
@MrSolenoid
@MrSolenoid 3 ай бұрын
@@austinpearson2684 yes it pretty much hurts all the time, but at different levels. And yes, the nick name is very valid. Speaking from personal experience.
@MrSolenoid
@MrSolenoid 3 ай бұрын
@@austinpearson2684 From what I understand it comes after an injury. But some people may say they haven't been injured. But they may have gotten a bump or something and not given it another thought. The nerve injury I got came from a severe ankle fracture, I didn't know it was broken so I kept walking and running on it for years.
@tutuMiyako
@tutuMiyako 3 ай бұрын
I've been diagnosed with Rheumatoid Arthritis at 25 and have been taking immunosuppressants ever since. 5 years have passed and I keep learning this disease is so much more than just swollen/painful joints or the morning stiffness... Like, it seems to be affecting every single part of my body, seriously, wht〇 is this disease... I really wish it gets better understood soon
@lynnmarie8774
@lynnmarie8774 2 күн бұрын
I hope they find better meds for you. You’re too young.
@DebraElias-uc6yz
@DebraElias-uc6yz 4 ай бұрын
Very informative video, I enjoyed it very much & thank you very much for not being to shy show your Psoriasis as I have it myself I have always been too shy to show it.
@KoldBreeze
@KoldBreeze 4 ай бұрын
Sarcoidosis should be on this list. I have it. The rapper Krayzie Bone has it. I haven't taken treatment for it but I will in the next month or so. It has proven fatal for those who don't take care of it. I hope it doesn't kill me. Pray for me.
@nancys2839
@nancys2839 2 ай бұрын
My only sister has this and she uses CBD oil. She had 13 doctors before surgery at OHSU hospital for several lung nodules. 12 said she had lung cancer 1 doc said sarcoidosis She is doing well with it and her rheumatologist is surprised that she is fairly pain free and symptoms are under control. Best wishes
@Dana_Rose_
@Dana_Rose_ 3 ай бұрын
I have lupus. Every other person with lupus that I have met is a little bit different. My symptoms include joint pain, back pain, sensitivity to temperature, migraine and liver issues. I also grow strange granulomas in my sinuses. Weird stuff.
@SG-bs6dm
@SG-bs6dm 4 ай бұрын
I suffer from Raynauds syndrome and it can be challenging. When it goes below 60 degrees (I live in PA so that’s fairly) I have make sure I have gloves with me.
@merrileeheard3889
@merrileeheard3889 4 ай бұрын
My sister has it, and she finds that if her face gets cold it also triggers!!
@user-dn2du4nu5h
@user-dn2du4nu5h 4 ай бұрын
My 17 yo son has RA and Reynauds. He also carries gloves when it's cold.
@userunknownx
@userunknownx 3 ай бұрын
Mittens are better. Gloves restrict what precious circulation you do have.
@laurabugg1080
@laurabugg1080 3 ай бұрын
I have hyperhydrosis and raynauds. The sweating is much more debilitating because you can’t be away from home long without looking like you just walked out of a sauna. My makeup sweats off and forget curling my hair, it’ll be soaked and straight within an hour so ponytails are my best friend.
@jlboss733
@jlboss733 4 ай бұрын
I was born with emphysema, athsma and COPD. I also have😊Morgellen's . I was born and raised in nothern Utah. My oldest sister acquired equine encephalitis when she was 8 years old and it took her within 2 weeks . She died 4 years before I was born. Equine Encephylitis was caused by a mosquito that had bitten horse that had the disease and then bit my sister. I really enjoy this channel and the narrator is very good at bringing up all these things. His voice and personality are perfect for what he's doing. He's good with Latin pronunciations. Hop you're around a long time.
@raymondmartin6737
@raymondmartin6737 4 ай бұрын
After having symptoms of pustules and redness on my face, in 1992, at age 48, I went to a Dermatologist and was diagnosed with it and initial treatment did clear it up quite well. I did have blood vessels appear near my nose, and they did sometimes bleed. Ihad treatments for that, and my nose did not become bulbous, which when I described that word for the nose at a hearing for disability at the Veterans Administration, the transcript ommitted that word with a ? mark, probably because they could not understand that word. I found later and to now use Metrogel topical treatment keeps it under control. 😊
@sjnieha
@sjnieha 4 ай бұрын
I have psoriasis when I was in my teens, I had it everywhere, and the family doctor put me on Methotrexate that cleared it all up. I will be 58 this month and the only place it came back in all these years was on my elbows.
@sandyhearn8332
@sandyhearn8332 4 ай бұрын
I also have psoriasis and Methotrexate clears it up, stays away for 5 to 15 years and flares up again. Glad to know what works for me. But psoriasis varies for many people and finding the right treatment can be difficult.
@trentgay3437
@trentgay3437 3 ай бұрын
Both of you watch out for joint pain. 1/3 of people with psoriasis will develop psoriatic arthritis and it's no fun.
@DotWarner0518
@DotWarner0518 2 ай бұрын
I have psoriatic arthritis and it can be brutal. I hope all who suffer with it find an effective treatment.
@trentgay3437
@trentgay3437 2 ай бұрын
@DotWarner0518 I hope you have as many good days as possible there so far in-between. 😊
@edie4321
@edie4321 2 ай бұрын
I took Methotrexate prescribed by my doctor for RA when I did not have it. Very fortunately for me I saw a Rheumatologist the before the second dose as I had been having some breathing problems, and it turns out the one dose of that drug burned my lungs. Idk, what would have happened if I took the second dose.
@sheilaholmes996
@sheilaholmes996 4 ай бұрын
Marilu Henner, the actor from Taxi has a memory thing, not sure if it’s this one, where she remembers everything. What people didn’t understand about Michael Jackson was that most Black people that have Vitiligo use dark makeup to even out their skin color. He used bleach which whitened his skin.
@summerbrooks9922
@summerbrooks9922 2 ай бұрын
MICHAEL JACKSON did not use bleach but used dermabrasion which lightens skin.
@adpink3069
@adpink3069 4 ай бұрын
Mike always makes me smile.
@kobieravenhenderson1756
@kobieravenhenderson1756 4 ай бұрын
I love all the videos. Always great content and list 25s. I often learn new things. Great job Mike and all List25 crew.
@Flamsterette
@Flamsterette 3 ай бұрын
You guys are back as List 25? Awesome!
@AsmodeusMictian
@AsmodeusMictian 2 ай бұрын
Fantastic video. Thanks!!
@juliannagrandinetti2964
@juliannagrandinetti2964 3 ай бұрын
Thanks for being real. And for all your hard work keeping us in the loop of current information.
@queenrae9655
@queenrae9655 3 ай бұрын
I have endometriosis
@joey_5060
@joey_5060 2 ай бұрын
I used to get Raynaud's symptoms in a couple of my fingers when I got cold. My finger(s) would get really uncomfortable and white. But after (I think it was) a couple years of it, it suddenly just stopped happening. I wonder what's up with that... I also found out about 7 years ago that I've been living with a rare cancer called Myelofibrosis for over a decade - almost two - while the drs were telling me there was nothing wrong with me. I finally got my diagnosis 7 years ago when they accidentally figured out what was wrong with me (after years and years of calling me lazy). I have no idea if the Raynaud's was connected to my untreated (at that time) cancer...but I've honestly had a lot of weird problems throughout my life. Some of us are just lucky, I guess. 😉😶
@volkswagenation
@volkswagenation 2 ай бұрын
I live with Raynaud's, in Canada ❄️. My brothers called me a reptile when we were kids because i would still be wearing my winter coat on summer holidays. Otherwise, Crohn's disease, Asthma, Fibromyalgia, Gilbert's, adhd and PTSD have been a fairly good time.
@cathytrottier8944
@cathytrottier8944 3 ай бұрын
I was diagnosed with Fibromyalgia when I was 22. I am 50 now. It's no picnic, and I have Poly Neuropathy.I was diagnosed with RA when I was 15. My mom had it , and many others in my family.
@fergustheragamuffin5091
@fergustheragamuffin5091 4 ай бұрын
I have Fibromyalgia and Trigeminal Neuralgia. Trigeminal Neuralgia has had 0 Research done on it but it Kills people daily, by being so Painful with VERY few treatments and if they don't work people end their suffering. No One knows about it, and Doctors don't know ALL the symptoms the good ones are using our Facebook group to learn more to be able to help us before we end the torture
@lesliestout2195
@lesliestout2195 2 ай бұрын
I also have TN
@fergustheragamuffin5091
@fergustheragamuffin5091 2 ай бұрын
@@lesliestout2195 I am so sorry that you're struggling with this curse too.
@HavianEla
@HavianEla 2 ай бұрын
Curious to see this list! There is SO MUCH about the human body we don’t know, and as a disabled woman who has seen the dehumanization most healthcare workers have for anyone they can’t immediately identify the problem of. (Or if they peg you as a “junkie”, as if someone dealing with mental health issues and substance abuse ISN’T worthy of life 🙄 both people who struggle with SUDs and people with chronic pain get this treatment on the regular.) I was so dehydrated it HURT when they started putting fluid in my veins, horrifically. For three days I was throwing up EVERYTHING, including water, and the ENTIRE time I’m there, they’re interrogating me about my pain medication I make sure to take responsibly. Didn’t really FEEL like they cared I was dangerously dehydrated. Pretty sure they did a drug test on me - probably to see if I had my medicine in my system. Which I didn’t - y’know, on the account of not being able to keep anything down.
@mahalalettvin7675
@mahalalettvin7675 2 ай бұрын
thanks for sharing your experience. I'm disabled and confront a range of mental and physical health issues as well. it is absolutely infuriating the way folks are treated. it has taken me so long to get any level of appropriate care. instead I spent many years being gaslit- mostly told its just in my head. thanks again for your comment. nice to feel less alone
@thecraftycyborg9024
@thecraftycyborg9024 15 күн бұрын
A dear friend of mine has one of the worst cases of L Ichthyosis ever documented. Her life expectancy was 3 years, so her mother donated her for medical experimentation. Thankfully she survived her mother’s abuse and is enjoying adulthood, but it’s very painful and causes her a lot of issues. Her medical issues are on par with those of patients with Harlequin Ichthyosis (the most extreme form of the cluster of skin diseases).
@EmilyJelassi
@EmilyJelassi 3 ай бұрын
My mom has Rheumatic arthritis .. autoimmune conditions seem to run in the female side of my mom's family: lupus, arthritis, Reynaud's syndrome, etc.
@daniellapan232
@daniellapan232 3 ай бұрын
I was born with Epidermolysis Bullosa, a rare skin condition that that causes the skin to blister, tear,or shear from even minor friction or pressure. My hands and feet take the most abuse, so that's where the majority of blisters form. However, I get blisters on the backs of my thighs from sitting in one position too long, I get them around my waist if my pants are too tight, and I get them on my calves and ankles from new socks. The infections are guaranteed and I've had blood poisoning more times than I can count, and sepsis three times. I've also experienced necrosis several times and have blisters envelope my toes and lift the nail off. And I'm LUCKY because I only have EB Simplex,as those who suffer from the three worst variations of this disease do truly suffer unimaginable pain.
@user-nm4xh5eb1k
@user-nm4xh5eb1k 2 ай бұрын
I’ve heard and researched a least half of these. I was quite surprised that I knew about most of them. Find more… it was quite interesting and entertaining to listen to
@SMSREDD
@SMSREDD 3 ай бұрын
Omg I haven't seen this channel in a minute omggggggg🤯 Still love it so much and you look healthier and happier!!! Congratulations!!! 🤯☺️
@LePeanutGallery444
@LePeanutGallery444 4 ай бұрын
I love your videos! I try to watch one everyday. I was born with congenital fiber type disproportion. It primarily affects my skeletal muscles. My type one fibers are significantly shorter than my type two fibers. Basically, it makes me physically weak and causes my body to be really thin and awkward. The closest comparison that I can make to my body type is Mr Burns except I have hair and a smaller nose, but can no longer walk. Keep the videos coming; they're "excellent." (the word excellent should be read in Burns' voice.)
@user-jf9nl8mb6h
@user-jf9nl8mb6h 4 ай бұрын
I have pachyonychia congenita I was really surprised to see it featured on your video. Thanks for bringing awareness.
@nasserh6887
@nasserh6887 4 ай бұрын
I have it to, krt-16
@mamalo75
@mamalo75 4 ай бұрын
I love your videos, and look for new ones every chance I get. To answer your question on what diseases we have experienced, I've got couple for you. My husband passed away last year at the age of 46 from Hemochromatosis. Recently, my youngest son was diagnosed with the same disease, and my granddaughter is a carrier and has the possibility of developing the disease when she gets older. It's a nasty one. I was recently diagnosed with Ehlers-Danlos Syndrome, and while not fatal, I'm not looking forward to the chronic pain I am supposed to develop in the future.
@clarebebbington9984
@clarebebbington9984 4 ай бұрын
Hemochromatosis is in my family also, I’m a carrier, thankfully I don’t have any children but my nieces and nephews have to worry about it. I’m sorry for your loss.
@mamalo75
@mamalo75 4 ай бұрын
@@clarebebbington9984 Thank you. I appreciate it. As a carrier, do you know if you have the possibility of developing the disease?
@clarebebbington9984
@clarebebbington9984 4 ай бұрын
@@mamalo75 as I understand it, there are 2 genes, for the sake of this I’m going to call the. Gene an and gene b. If you have both, you will develop the Disease. If you have gene a, you have a higher chance of developing it, if you have gene b, you have a lower chance of developing it. If I had children, and their father either had the disease or was also a carrier, than the children have a higher chance of developing it. My niece’s ex husband has the disease, so the plan prior to pregnancy was for her to get tested. The marriage broke up before children, so as far as I know, she never tested for it.
@mamalo75
@mamalo75 4 ай бұрын
@@clarebebbington9984 Thank you for the explanation. That makes sense. So, since my youngest son has been diagnosed with it, does that make me a carrier for gene a? Taking into account that my husband had the disease?
@robinheath3136
@robinheath3136 3 ай бұрын
I subscribe to you today because I so appreciate it you being forthright with your psoriasis I love the fact that you keep it real
@Castielsgirl
@Castielsgirl 2 ай бұрын
I want to tell you how impressed I am with the fact that you are able to pronounce all these weird huge words. I’ve heard you in other videos and you never cease to impress.
@qatquekinx354
@qatquekinx354 4 ай бұрын
Can you do a video on Long Haul Covid and what we know and do not know about this condition. I have it! To say life is unpleasant is gross understatement. It is my opinion that society zt large should be better informed about this…
@heidimisfeldt5685
@heidimisfeldt5685 2 ай бұрын
I would go to the health food store and ask what can help strengthen my immune system, many natural herbs, and nutrients will help, in my opinion. A stronger immune system can fight back. Get enough good sleep, go to bed early. Get sunshine in the morning and in the afternoon too. Eat plenty of fresh fruits and vegetables. Avoid all kinds of refined sugar, comes in over 30+ names. Bone broth, look it up. Homemade of course. Avoid sources of stress, including toxic people.
@mariaclark7358
@mariaclark7358 Ай бұрын
If you look up chronic fatigue syndrome or ME you will find long Covid are very similar if not practically the same you will find in time that the medical profession will have no idea how to treat or help you. So in the end you will be left to find treatments yourself to elevate symptoms which will cost you money. Don’t look for outside help it won’t happen your on your own sorry but people with ME have been treated badly for years and years.
@anaistm174
@anaistm174 3 ай бұрын
Epilepsy. Came down with it in my thirties with no known cause. There’s nothing wrong with my brain physically, apart from chemically and electrically obviously. I’ve never hit my head or been in an accident, it doesn’t run in the family or anything. Doctors just said, it happens, even in your thirties, for no reason that we know of. So they can only treat its symptoms, but without a cause, there’s no cure.
@susanrobinson910
@susanrobinson910 3 ай бұрын
I have epilepsy myself. I am 47, and I was diagnosed when I was about 16ish. Nothing has ever showed up on EEGs, so doctors think it is related to PTSD. It freaking sucks, doesn’t it?! I can’t drive, I can’t work. No medication has been able to fully stop the seizures from happening. I freaking hate it! I wish you the best, and hope you remain seizure free 😊❤️
@lisapinfold506
@lisapinfold506 Ай бұрын
I developed it after a stroke. Not that common, but I get by.
@ambermartin3961
@ambermartin3961 2 ай бұрын
I've ME/CFS and POTS. One issue with many of these disorders/diseases is that they have overlapping or very general symptoms - pain, fatigue, memory/thinking issues, inflammation, too much/little response to infection, etc. Ironically, we're getting more research funding because of Long-COVID (suffers, I'm so sorry....I know how badly it sucks and how dismissive people are). I think a large part of the issue is funding. If it's too rare, it's hard to get research funding. If it's got too many general symptoms and no clear marker, it's also hard to get funding.
@doclewis8927
@doclewis8927 3 ай бұрын
My Aunt had capgras due to water on the brain. She called up my mother and the police claiming that my Uncle was the "bad uncle" not the "good uncle" who she knew. That he had been replaced. My mom ended up flying down to help take care of her for about a week but the delusions were so bad that she became violent. They were able to get her into the hospital and they found out that she had water on her brain but by then she had too much wrong with her medically. She died a few months later. She did survive the surgery but she had a bad heart that gave out a month or two after surgery. We were grateful that she could finally rest.
@serenapenner3581
@serenapenner3581 2 ай бұрын
I was diagnosed with Juvenile Rheumatoid Arthritis at 9 yrs old. I also have Multiple Sclerosis. I have MS Lesions on my spine which may leave me unable to walk. I also have some Lesions in my brain on my occipital lobe, which could affect my eyesight in time, and on my right perietal lobe, which can effect my sensations including temperatures, pain etc as well as my taste. .
@ricksaint
@ricksaint Ай бұрын
I too was told I had JRA when I was around 12 years old. Was given prednisone and some iron pills. Extreme;y high fevers and pain were the norm, but I would snap out of it in a few days. Fast forward to my thirties, and my then girlfriend, now wife, insisted I go to the hospital when I spiked a fever of 104. Again, tests and fluids, this time a stint of 10 days in the hospital, and I was fine. Right before our wedding, I began having numbness in my hands and she insisted I go to a neurologist. Found out I had MS and may have had it a long time. Doc felt all those times when I was younger may have been me experiencing flare ups but no one bothered to even assume that MS may have been the culprit. Not exactly what I would've expected or wanted but at least now we knew how we could treat.
@bexief31
@bexief31 3 ай бұрын
I suffer from Rheumatoid Arthritis. It is incredibly painful and debilitating. It took a few years and a referral to Hillman Cancer Center for me to finally receive a diagnosis. I am now disabled due to my condition. Worse yet, my RA has moved into parts of my body beyond just the joints. It is responsible for a pulmonary nodule in one of my lungs, Ulcerative Colitisis, and my Diabetes. RA is NOT the arthritis your grandparents get. It is the only form of Arthritis that is an autoimmune disease and it is no joke. I wish it were taken more seriously by the public.
@susanhoneycutt5610
@susanhoneycutt5610 2 ай бұрын
@bexief31 I’ve never heard of RA outside the joints. My sister has it and some of those other things. How did you learn the relationships? A GI specialist, an endocrinologist, or your RA Doctor?
@lunarlotis3746
@lunarlotis3746 Ай бұрын
My RA moved in to my eyes, my eyes hurt all the time and I have to ware shades so the light won't hurt.
@susanhoneycutt5610
@susanhoneycutt5610 Ай бұрын
My sister has it. Very debilitating. Treatments have improved a bit, but since it is degenerative, it is very very hard to find a treatment plan that works well over time.
@Kisha_Zuri
@Kisha_Zuri 3 ай бұрын
Well I've had ITP, a blood disorder, and I was diagnosed with perianal chrons disease last July. Fun times.
@justanotherhuman1239
@justanotherhuman1239 26 күн бұрын
Reynauds is truly a mystery. Despite knowing about it for years now, I still cannot predict when my toes or fingers will go unhealthy shades of purple or white, and whether or not blisters will just appear seemingly without cause. I luckily don’t live somewhere with extreme enough temperatures to cause damage to my extremities, but I can say that it’s extremely uncomfortable anytime the temperature drops below 10 degrees
@Doc1855
@Doc1855 4 ай бұрын
I’m glad that my aunt didn’t watch this. She would have started telling everyone that she had one or more of these diseases.
@erayburn6354
@erayburn6354 2 ай бұрын
I think that disease is called 'Hypochondria'
@neolithicnobody8184
@neolithicnobody8184 4 ай бұрын
Cystinuria and Urolithiasis, paired with Renal Colic, have been my nightmare for the last 40 years. Imagine having DAILY labor pains and still manage to hold down a full time job. Doctors can't cure it and it's NOT considered a disabling disease, even though it has disabled me progressively over the last decade.
@NoctidBog
@NoctidBog Ай бұрын
Bro, giving birth to stones every day is not considered "disabling"?!
@neolithicnobody8184
@neolithicnobody8184 Ай бұрын
@@NoctidBog Nope, not considered disabling. If it was my heart, lungs, spine or head it would be.
@LillikoiSeed
@LillikoiSeed 3 ай бұрын
Very cool and brave of you to share that, Mike. That will make a lot of your fans feel better today. Great necklace too by the way. 👍
@sandrahartman7078
@sandrahartman7078 Ай бұрын
If you have one autoimmune disease you are likely to have multiple. One of my doctors calls autoimmune disorders the smurfs because you almost never see just one. I have three so far.
@Arjalineck
@Arjalineck 4 ай бұрын
Ive got bad back syndrome
@robinsmith5442
@robinsmith5442 4 ай бұрын
I've developed open areas on my stomach that look like someone dripped acid on them. They are responding to treatment but the doctors at University of Missouri hospital can't tell me what caused them.
@OneStubbornLass
@OneStubbornLass 3 ай бұрын
Were they abscesses before and then ruptured? If so I’d ask about Hidradenitis Supporativa… I have it and just now healing from a nearly 6 month outbreak of MRSA on my stomach because they all got infected.
@donnanoe6736
@donnanoe6736 4 ай бұрын
I have Fibromyalgia along with Type II diabetes and Lupus. I am in almost constant pain. Fibromyalgia hits every joint in the body. It causes severe fatigue and a foggy brain. It is thought to be caused by physical and/or emotional trauma. Fibro is definitely not fun. Every area of my life has been affected by it.
@merrileeheard3889
@merrileeheard3889 4 ай бұрын
I have Rem Behavioral disorder. It causes a person to act out their dreams, so yelling, swearing, kicking and punching during sleep are really common! It can be a precursor to Parkinsons! Because I've had it for over 50 years, Parkinsons has been ruled out. But it does make getting a good night's sleep next to impossible!!
@sarahheld3761
@sarahheld3761 4 ай бұрын
I wonder if you can do a List 25 on MS?
@sarahheld3761
@sarahheld3761 4 ай бұрын
I could help... I have it.
@RealMelodyBlue
@RealMelodyBlue 3 ай бұрын
I have MS too
@sarahheld3761
@sarahheld3761 3 ай бұрын
@@RealMelodyBlue May I asked how old you are I'm 42 and I've been diagnosed since 2014
@lesliesnowdon8490
@lesliesnowdon8490 4 ай бұрын
My dad has rheumatoid arthritis, both daughters and myself have EDS, my uncle had Wegners disease and my younger brother has Hypothyroid disease and developed vitiligo. My youngest also has Fibromialga. Guess we got lucky, lol.
@SydneyB
@SydneyB 4 ай бұрын
EDS! My kid was told just this week that their symptoms indicate that they might have this! We're just at the very very beginning of researching and finding out about testing! (NOTE: EDS is NOT the same as ED!!)
@lesliesnowdon8490
@lesliesnowdon8490 4 ай бұрын
@@SydneyB we have the hypermobility type. I'm 60 have had both knees replaced and can still put my feet behind my head, lol. I would recommend tylenol and advil together to alleviate pain if they are an adult. Safer then prescription meds. Good luck. 👍
@joywebster2678
@joywebster2678 3 ай бұрын
I have EDS vascular and hypermobility type. I just wanted to comment to the person whose talking about it in their family, you might want some genetic counselling in order for those coming into child gearing/ making years to choose wisely vs just passing on conditions. EDS is rare in that with each generation it gets worse, so no it doesn't spontaneously appear. I wasn't diagnosed until my 50s, and I did it myself as a Nurse then went to a geneticist. So I had the ability to talk with my grandad who said well yes he too had extra bendy fingers and and that's was it. His son my Dad had the fingers, and bending over backwards, but died of vascular dementia. So me everyone ignored as a kid, youvare " double jointed". No it was EDS and my low gym marks was due to joints that flex rather than let me run well etc. So as an adult, angina due to vasospasm, ignored by Dr's. Finally two heart attacks...vasospasm. Then 4 strokes over 2 yrs, and I got hear scans, brain scans...ohhh you have aneurysms in your cartid artery, and aorta, and the strokes are from spasms...OHHHHH finally the light bulb, vascular EDS, plus hypermobile.EDS. Dr's are used to diagnosing children, not adults. So finally I'm on medications that stopped the spasms in my blood vessels, ( touch wood), but the damage in the brain stays. I see a Dr yearly to measure the aneurysms growth. So only in the last 20 yrs do they learn about EDS in medical school instead of focusing on Marfans which is rarer ( Abe Lincoln had it). So don't glibly pass on genetic diseases/ conditions. Genetic counselling is so much more advanced now.
@lesliesnowdon8490
@lesliesnowdon8490 3 ай бұрын
@@joywebster2678 my oldest daughter will be going for the genetic testing, both of my girls have been diagnosed with EDS. I haven't gone to a specialist yet but have the extreme flexibility that helped point the doctors in the right direction with my girls. I'm glad you have found the proper meds to help you function better.
@sashaelton2696
@sashaelton2696 3 ай бұрын
My 19 yr old son has/had JIA. However they now say it's ankylosing spondylitis. Heartbreaking to watch. He was in such pain around his young to mid teenage years and they couldn't diagnose it. It was at a point sometimes where he couldn't move without screaming. We called an ambulance once as he passed right out from the pain. Couldn't walk. His back and hip were so seized up. Thankfully he was diagnosed and on the right medication. Without it he could've ended up hunched right over where his spine would have fused itself permanently.
@patticampana9458
@patticampana9458 4 ай бұрын
This video was so interesting and informative! I have an idetict memory. Some people think I'm weird, maybe so. However, not exactly a disease. Thanks, Mike🙂✌️
@daniellapan232
@daniellapan232 3 ай бұрын
The word is " eidetic". If you really have it,you wouldn't have misspelled it.
@patticampana9458
@patticampana9458 3 ай бұрын
@daniellapan232 Excuse me for the spelling, but, I am losing my sight and sometimes have a hard time reading the letters. Case and point, it took me 10 minutes to write this. Hope you find this correct and accetable.
@marilynlincoln7173
@marilynlincoln7173 4 ай бұрын
You did a terrific job in pronouncing all these different diseases
@list25
@list25 4 ай бұрын
Thank you so much
@Sharonmxg
@Sharonmxg 4 ай бұрын
Oh Mike, I am sincerely sorry you are afflicted by psoriasis. I have been on every kind of treatment for the diabolical condition and will swear by Stelara. Ask your doctor! Psoriasis has plagued me since my mid 20s. I was covered from ankles to knees, elbows to fingers, ears, nostrils and scalp. Slathered in various preparations of steroids and Vitamin D. Subjected to UV light therapy. Eventually, I was prescribed methotrexate which cleared my skin right up. But the dose had to creep up over time. I had to have liver blood tests done every two months, after a few years I had to have a liver biopsy just to be sure the MTX was not killing me. Eventually I was told I could not take any more methotrexate, I had maxed out the allowable cumulative dosage. As soon as that med was stopped the psoriasis came back with a vengeance. So biologics were introduced. Embril, and Humera. Neither worked for me and then Stelara arrived. Stelara is a human IgG1K monoclonal antibody, which inhibits the mediated signals generated by interleukin (IL)-12 and IL-23 cytokines - triggers for the lesions.
@josi4251
@josi4251 2 ай бұрын
I have Reynaud's, Sjogrens, and fibromyalgia, as well as reactive hypoglycemia. I've learned to manage them, eliminated a few things that are inflammatory agents, and do pretty well. The worst is the days of just whammo pain from the fibromyalgia. I am still working full time teaching kids, so I just keep going.
@evasilvalayton758
@evasilvalayton758 4 ай бұрын
You sure know how to keep it interesting ❤
@list25
@list25 4 ай бұрын
I try
@twistedpixie6972
@twistedpixie6972 2 ай бұрын
I have Ehlers-Danlos Syndrome. It affects the collagen throughout the body. It can also appear in cats, dogs, and horses. Its most common symptoms include hyper mobility in joints that could lead to dislocated joints without reason, Postural Orthostatic Tachycardia Syndrome (POTS), and really elastic skin. However it can be life threatening as it can affect the vascular system and lead to severe internal bleeding and stroke in other types of EDS. There are 14 types of EDS with only a few that can be genetically identified.
@quinn2014
@quinn2014 2 ай бұрын
vEDS is the one that causes the mosg vascular issues MOST of the time. Which, isn't just aneurysms and dissections. As you may know it can also lead to hollow organ rupture, tendon and of course blood vessel rupture and even unilateral or bilateral spontaneous pneumothorax. I also have a general hEDS diagnosis but unfortunately I have 3 other genetic conditions (hEDS, OTC deficiency, Mosaic NF1, and Periodic Paralysis as well as an unidentified myopathy). Sorry to hear you have EDS. That sh*t ain't fun.
@quinn2014
@quinn2014 2 ай бұрын
There's actually still only 13 types. The newest "type" they identified was shown to be caused by the AEBP1 gene which they later classified in with the TNXB mutations which means they're both gene mutations that caused different variations of Classical-Like EDS. The TNXB mutation though rare is still way more common than the AEBP1 gene mutations. There are quite a few types that are considered super rare obviously such as clEDS, mEDS, mcEDS, pEDS and dEDS are the first ones that come to mind.
@quinn2014
@quinn2014 2 ай бұрын
Not trying to mansplain btw so sorry if it came out that way. I really just like sharing weird information I know.
@necrocomicon8
@necrocomicon8 Ай бұрын
My sister's eds causes her heart to not pump enough blood to her brain, so she has near constant migraines
@twistedpixie6972
@twistedpixie6972 Ай бұрын
@@quinn2014 you didn’t come off that way at all! Thank you so much for putting that info out there! 💜💜💜
@sarahhilton7572
@sarahhilton7572 4 ай бұрын
I have Fragile x syndrome I found out that i can't have children I have as arthritis I also get night fits I have Carpal tunnel in Both hands and i have mental health problems and self-harm havea lot of more health issues, my dad has psoriasis Mike don't worry your is not bad my dad has it nearly all over his body
@sierra7202
@sierra7202 3 ай бұрын
Please hang in there. I know it's not easy. I know exactly what you're going through. At an early age I was diagnosed with a number of things and as time went on, I had more health issues to come up. I was in three car accidents within 15 years. None were my fault. I was sitting at a red light at two of the accidents and at a stop sign at the other. I was nearly killed at one of those and injured again at the other. I had one surgery after another. It was a nightmare. At one point my kidneys shut down and I was in complete renal failure. I was lucky though. My kidney function returned. I suffered from severe depression and I'm bipolar but I got through it all. I still have issues and deal with a lot of pain. Some days I can't do as much as I want but I tell myself it's okay and maybe tomorrow I'll do more. Just don't give up. Give hell! Go out screaming and laughing! Try to enjoy some small part of this crazy world we are living it. Watch something funny, do something fun.
@guernseydonkey17
@guernseydonkey17 Ай бұрын
I got RA in my mid 20s & have been suffering with it for over 40 years, I'm glad that medication has prevented my hands from deforming like the ones shown.
@iamme7626
@iamme7626 Ай бұрын
I have RA, Hashimoto, Vitiligo, Morgellons and Lyme disease, each day is hell on wheels and I cant recall a day where I wasnt sick, yet fake my way through life somehow
@robinwickham1261
@robinwickham1261 4 ай бұрын
The worst disease I've ever had or seen as morgellons it's a manageable but it takes years to figure it out
@nancykunik4370
@nancykunik4370 3 ай бұрын
Absolutely agree ... Worst part was treating the different stages for about 20yrs ... Sores are gone now but residual tissue ,nerve and cognitive function are damaged... Grateful to now after years of hell ... Age 64
@ToRung
@ToRung 4 ай бұрын
Success is based on your own efforts. Never give up ❤😘🌹 Have a good day 💖💞 ✌🥰
@rickwrites2612
@rickwrites2612 3 ай бұрын
To a degree at least. Certainly can't hurt.
@queenb67
@queenb67 3 ай бұрын
I just recently started seeing a rheumatologist who thinks I might have psoriatic arthritis. I've never had the tell-tale plaques or other major signs, just subtle things here and there since my teens. My aches and pains were largely ignored until this year, and they're systemic. I'm hoping for relief soon, because the disease as a whole is miserable.
@carenhodder9640
@carenhodder9640 3 ай бұрын
I have suffered M.E and Fibromyalgia for 30 years and it strips you of any semblance of life due to extreme exhaustion, weakness and pain. This is just a small list of aggressive symptoms each sufferer has to face each day.
@VincentClark0101
@VincentClark0101 4 ай бұрын
#19 thank you for sharing
@sondragraf7609
@sondragraf7609 3 ай бұрын
Psoriasis on my feet and toenails. Makes it hard to sleep during the inflation and itchy part and after a bad breakout the skin under the shedding plaque sheets makes walking painful. Thank you for sharing. Very brave if you to help others showing empathy. I hide my ugly peely feet😢
@austinpearson2684
@austinpearson2684 3 ай бұрын
I have really bad excema and it itches so bad when it breaks out at one point it was cobiering about 63 percent of my body and getting in the shower was the worst it made it it's so bad especially in hot water but if I scratched it it was insane how good it felt I got it on and in-between my hands and feet elbows, calves, face, my inner thighs, back, it was bad
@vickiemckie5681
@vickiemckie5681 4 ай бұрын
I have always been very wordy and was a very good speller. I had no problem with pronunciations either. I am so jealous when i watch you smoothly move over difficult words. Cobid left me with brain damage causing memory loss, and problems with word retrieval. Theres more to it but i cant ever remember without digging out the paperwork. So, im adding post Covid syndrome to your list. It may not quite fit the subject but it can be very devastating.
@blessedveteran
@blessedveteran 4 ай бұрын
I was recently diagnosed with rosacea. I just started taking doxycycline hyclate in hopes that it will help lessen my skin issues 🤞 . My mother had it as well.
@jonasbaert
@jonasbaert 4 ай бұрын
I myself have Arthrogryposis Multiplex Congenita (not a desease luckily). But as a kid I went on a camp with another kid once who didn't feel pain. A few days passed and he did need to the hospital after a serious infection by which he had a fever. A few years ago he told his story on TV and because of it I know he now stays at home most of the time, and that he always need to be very careful when he do something.
@Kisha_Zuri
@Kisha_Zuri 3 ай бұрын
Missed ya Mike! Welcome back!
@list25
@list25 3 ай бұрын
Thanks!
@rhondahoughton790
@rhondahoughton790 3 ай бұрын
I have Raynauds and RA as well as Fibromyalgia and Crohn’s disease
@chardywolfe
@chardywolfe 4 ай бұрын
I've got muscular dystrophy. My muscles are slowly decaying and it's very painful.
@LauranCHB
@LauranCHB 4 ай бұрын
I have Renauds syndrome. But, controlled through keeping my core warm, gloves when it's cold & beta blockers
@carriekarlock2651
@carriekarlock2651 4 ай бұрын
I have Ankylosing Spondylitis with Fibromyalgia, totally sucks! No cure, just pain management treatment.
@carriekarlock2651
@carriekarlock2651 4 ай бұрын
And it causes a condition called Bamboo Spine.. it is a genetic autoimmune disease. Same family as Lupus & rheumatoid arthritis. Just more rare.
@AllTheNamesAreUsed1
@AllTheNamesAreUsed1 2 ай бұрын
I have PCOS, it makes day to day way more difficult than it needs to be. They don't have anything to help or cure it.
@bored1428
@bored1428 3 ай бұрын
Recently found out I have HAE. The amount of doctors that misdiagnosed me or didn’t test why my limbs kept swelling. For 6 years Ive Bern clueless and so lost. Im 21 now and feel so relieved
@wendaruth1117
@wendaruth1117 Ай бұрын
Thank you for making the distinction between RA and regular Osteoarthritis. As someone who has RA, it's a very misunderstood disease.
@domonickmatheson5080
@domonickmatheson5080 4 ай бұрын
I kind of wish I had hyperthymesia that sounds amazing
@christianporter3638
@christianporter3638 2 ай бұрын
I have a rare disease called Granulomatosis with polyangitis. Its a form of vasculitis (inflammation of red blood vessels). I also have polycythemia, a blood cancer that inflames my red blood cells. Pain and fatigue are my chief complaints, but im also at risk for cancerous granulomas in my body (treatment is chemo/steroids) or blood clots (treatment is blood thinners and blood letting)
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