4 COMMON DEMENTIA CAREGIVER MISTAKES

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Dementia Careblazers

Dementia Careblazers

Күн бұрын

Пікірлер: 702
@mgillespie8306
@mgillespie8306 3 жыл бұрын
I help my parents to take care of my grandmother who is 101. My parents watched this video today. Things were a lot more peaceful here this evening. :) So much so, that I decided I better watch your video too. Thank you. Keep teaching because your are improving the quality of life for the LOWD and the caregiver.
@DementiaCareblazers
@DementiaCareblazers 3 жыл бұрын
I am so happy to hear this! 💕
@christineconnolly7560
@christineconnolly7560 Жыл бұрын
0⁰
@cnajen14
@cnajen14 Жыл бұрын
My dad had many changes right before Covid started emotionally losing his sister to cancer.Seeing his physical health was declining yet he was determined to do things like walking and refusing to use a Walker . He was in denial that he needed assistance . Dad had difficulty giving up his freedom …dads lady friend and him both were showing signs of dementia her family had her move her to another state closer to family members . I started to stay with him to keep him safe . But I also had help with a few family members and meals on wheels and senior services . I also worked with other seniors some times getting a day or 2 off for my self to unwind rejuvenate my mental health . There was soooo much going on with my siblings too .
@cnajen14
@cnajen14 Жыл бұрын
The advice yo just gave was very helpful and I can learn from them thanks
@喬丹尼
@喬丹尼 Жыл бұрын
Correcting, reasoning, I have so much to learn. Thankyou
@likeakittie
@likeakittie 3 жыл бұрын
A good carer for someone with dementia is so underrated and not appreciated enough. They deserve a lot more credits.
@carollisenbee4568
@carollisenbee4568 Жыл бұрын
From a retired nurse who worked in secured unit your teaching is right on great job.!!;;
@carollisenbee4568
@carollisenbee4568 Жыл бұрын
2 nd post all we need is LOVE, I showed love and caring when given them meds which can be difficult but I had a different relationship with each one use their name and I'd always reassure them with whatever the case be and every little thing about them was made special oh your beautiful red hair,...yes no questions God gave me something to.... interact with dementia
@libbydavis1957
@libbydavis1957 3 жыл бұрын
My son nailed this with his Grandfather....every time he saw him (and they lived in the same house) he would say "Hello Grandpa". We always said that my Mum was out shopping if he asked for her (after she died). I would also add that you don't always need to be sure about everything ..I would often answer "I'm not sure" or I've forgotten" so it didn't feel too strange to him that he didn't know something. Another good one is "I'll try and find out" or if they are asking the time or date look at your watch / calendar even if its only been 5 minutes since they last asked.
@miriamariel6185
@miriamariel6185 Жыл бұрын
I like the idea
@irenethomas5324
@irenethomas5324 7 ай бұрын
Yes 👍👍
@Aimee-md4dt
@Aimee-md4dt 5 ай бұрын
Grandchildren are the best!!
@triciagumbrecht6338
@triciagumbrecht6338 27 күн бұрын
👌🏻 perfect!!!
@muhammadyusaf5934
@muhammadyusaf5934 Жыл бұрын
Smummay of this wonderful video as I understood it. 1. Correcting. You don’t need to to correct your loved ones every time they say or do something wrong. Don’t correct it, let it go and save the strain in the relationship. 2. Arguing. Don’t disagree with your loved one. Instead of arguing: * Acknowledge what they said * Respond in a short and calm way, and * Redirect them to something else 3. Reasoning. When you attempt to reason with someone with dementia, it can lead to extreme frustration on your part and make it more likely your loved one will have some difficult behaviors. REMEMBER * You are trying to come up with a response that calms and reassures your loved one. * You have to come up with sentences that make sense in THEIR world, not necessarily in your world. 4. Testing. Don’t test your loved one’s memory by asking questions like these: “Do you remember who this is?” “Do you remember what we talked about yesterday?” “What did you have for breakfast today?” QUICK RECAP OF 4 COMMON MISTAKES TO AVOID Correcting Arguing Reasoning Testing
@muhammadyusaf5934
@muhammadyusaf5934 Жыл бұрын
@@juliealston1417 I am glad Julie this summary was helpful.
@joannjones5533
@joannjones5533 6 ай бұрын
How long can a LOWD live alone? She has been diagnosed over 3 years
@joannjones5533
@joannjones5533 6 ай бұрын
Cant drive, family only wants her to be content, is this notmal?
@joannjones5533
@joannjones5533 6 ай бұрын
Normal
@د.ليلىالخياط
@د.ليلىالخياط Ай бұрын
Thank you 🙏🏼💐
@nataliehilton1537
@nataliehilton1537 Жыл бұрын
I see dementia clients more as big toddlers than a bad dog (as in comments below) or crazy adults. It’s like ageing in reverse. It’s quite amazing to witness. It’s as though they become younger and younger, eventually not knowing how to eat or go to the toilet. Even their body gradually hunches over til they eventually end up in a fetal position and bed bound if they have long term dementia. It really makes me question if some of us are reincarnated or reborn. We aren’t meant to think of aged clients as children but I respond to my clients as though they are children and they respond well. They still want to be loved. Precious humans who don’t understand what 2am is. Who don’t want to sleep til their bodies force them to. Who want their way regardless of the dangers because they think they are capable of more than they are. The challenge is preventing danger to yourself and a person who is your size or bigger. I write this at 4am after caring for a dementia client. I am exhausted but I know she’s finally asleep and her husband can sleep as well. My heart breaks for both of them. I can’t imagine living with someone with dementia. For those who do PLEASE find a way to take a break. Even for a few hours. Even hiring a caregiver for 1 or 2 nights a month is essential. To those who never had that option, you deserve 100 medals and much more. People say they, “do what they have to.” Don’t underestimate the incredible feat of loving someone when they are acting unlovable. Not everyone has that ability.
@brendab5680
@brendab5680 Жыл бұрын
Well said. Thank you. 18:28
@mangot589
@mangot589 Жыл бұрын
I appreciate that. But that’s what it boils down to. You do what you have to do. But omg I’d love to have somebody come help me. Very soon, she’s not QUITE to that point yet, but I’d give it a couple months. I’m at the end of my rope. You know, back when it was you do what you have to do, there was a lot more family help. Now, 🙄. It’s just me. She’s not childlike yet. THAT I could deal with. Not half in and half out. Stubborn,, bully, secretive, sneaky, mad suspicious. Smiley, grateful. If you’re in California….
@davidhunter5062
@davidhunter5062 Жыл бұрын
Concerning your “big toddlers” analogy: “That ends this strange eventful history, Is second childishness and mere oblivion, Sans teeth, sans eyes, sans taste, sans everything.” -Shakespeare
@nataliehilton1537
@nataliehilton1537 Жыл бұрын
@@davidhunter5062 Thought provoking. Oblivion sounds like the best place to be right now.
@dawnsalisbury992
@dawnsalisbury992 Жыл бұрын
Return home return to homepage cancel
@louisewarren6472
@louisewarren6472 2 жыл бұрын
That’s the one thing I don’t like when you go to the doctor and they ask you what there doing it makes me fell like I’m putting him down in front of him !I feel like they should talk to us one on one
@m2mark1
@m2mark1 Жыл бұрын
I think you are a saint. My wife has been diagnosed with FTD at age 61 with 40 years of marriage. I love her to pieces but have fallen into every trap you have described here. A massive learning curve for me and I appreciate your videos as I feel abandoned after the medical diagnosis.
@kfm908
@kfm908 6 ай бұрын
I am in the same situation.I make these mistakes almost every day.We just have to try and think before we talk
@latrelle6655
@latrelle6655 5 ай бұрын
Please don’t be too hard on yourselves. No one can really prepare themselves for a loved ones dementia diagnosis. I would be remiss to say that it is easy because it is NOT! I made the first 3 constantly in the beginning. Not only is your loved one losing themselves you are losing them. You’re grieving as well. Watch as many videos as you can, read EVERYTHING and don’t be shy to join a support group in-person or even online. I wish you strength and peace. Every moment is a chance for you to get it right.
@m2mark1
@m2mark1 5 ай бұрын
Thank you so much for your guidance and kind words. Unfortunately my daughter has now tested posiitive for the FTD gene today so i am distraught. Thank you for your kind words@@latrelle6655and support but nothing now can help......sorry
@barrycrook5995
@barrycrook5995 4 жыл бұрын
After 23 months of being my wifes full time carer, (we were/ both active managers of our three companies) I find that I am conitnually confronted by a wonderful woman that I feel I am in competition with, but she is in another world. My evaluation of my own position is, after watching your "back to basics' video is that , so far, I have failed her. I can see now that the daily frustration I feel is of my own making, and to try and let go of what has developed into a way of operating with the many people and situations we all daily had to deal with. Your video, for me, contained a simple message.... stop trying to make her situations fit my logic. Stop the competition and accept the fact of going with the flow. Your message has been received , and hopefully life will be easier for both of us, from today. Sincere regards for your wonderful work.
@dianeroemer9677
@dianeroemer9677 4 жыл бұрын
Barry, you have not failed her, you were only doing your best and what you knew.
@acornhomestead3575
@acornhomestead3575 4 жыл бұрын
You have not failed her, this is a learning process. I have been looking after a lady for 4 years and I'm constantly having to change statements as her disease progresses. Just keep learning and loving her.
@Gesundheit888
@Gesundheit888 3 жыл бұрын
There is a really good book about this subject from a nutritionist - btw, Dementia is actually Diabetes type 3 - Amy Berger - The Alzheimer's Antidote
@stephensnowdon3178
@stephensnowdon3178 Жыл бұрын
I was touched by your story , it's so hard to be in your situation,you have never failed !! ,you find yr way , respect to you .
@phariskimani
@phariskimani 7 ай бұрын
I need to learn more about caregiving to dementia loved ones
@lynnsavron7949
@lynnsavron7949 Жыл бұрын
I really needed to hear this. I have been doing everything wrong with my mom, who just turned 100. I chastise myself for my lack of patience. I need to let it go and learn how to accept that she'll never be what she once was, despite my trying to reason with her. Thank you for sharing this!
@wcwright44
@wcwright44 4 жыл бұрын
My neighbor struggles with dementia. Her daughter careblazer told me that she often drives home in tears from the hurtful things her Mom says to her. I felt so fortunate to be able to show her your channel. Thank you so much!
@j.gzzc.5069
@j.gzzc.5069 2 жыл бұрын
Did it help her???
@debby891
@debby891 Жыл бұрын
I feel exactly like your neighbor’s daughter. I belong to a support group, have read, researched and tried to learn as much as I can. What people don’t realize is that when you do it 24/7 for years there is no time off, no days to yourself with friends. It’s very hard when they are agitated and hurtful and you’re trying to care for them and help. It’s easy to say take a break for yourself, you can’t pour from an empty cup….easy to suggest but how when no one else helps?
@wcwright44
@wcwright44 Жыл бұрын
@@j.gzzc.5069 Sorry, I forgot to report back. Yes, she told me she does understand a bit more and found some great suggestions. I mean, let’s face it, it isn’t easy.
@Lisa-xf5uf
@Lisa-xf5uf Жыл бұрын
Tell her she's not alone💕
@mangot589
@mangot589 Жыл бұрын
Yeah my mom can be such a biTh. She always was, a bully. Now she’s getting suspicious. Probably because she was always a sneaky liar. Now she thinks I am. I’ve done nothing but try to keep her safe, and comfortable. I can actually FEEL my blood pressure rising when she does this. She basically accused me of gaslighting her, because she can’t remember. She needs drugs, I’m not kidding. I now understand why they do in care. . I’ve done all the redirecting. I’m done e eta thing you’ve said. Not with her. She digs in like a badger. Maybe you have a nice person to care for. I don’t. Even when she could reason. Try. Yeah. I have never ASKED my mother for money, she’s gotten a free ride for 9 years, because it was the right thing to do. I’ve given her autonomy as much as I could until very recently. Calm reassurance. Riggghht. Been there, done that. Nothing will calm her NOTHING. Valium would work better for her. This might work for a nice parent. I’ve had friends that have taken care of their mums, and they just went along. My mother is combative, suspicious, and awful. I dread every day. I bet this woman couldn’t deal with my mom. But she has ideas I do try. They don’t work, but I try. But I never cry. Mainly because I don’t love her, so it doesn’t hurt me. I am a good person, and that’s why I care for her. I don’t yell at her. I would never her hurt her, so don’t worry, I don’t even step on bugs. But man, it is so hard. Edit. These tips are helping so much. My feelings haven’t, but they are actually working a little. Bless this channel I realize now that they can’t help it sometimes and I’ve not gotten mad, nor tried to convince her “well, that’s what you SAID.
@ricosantos2836
@ricosantos2836 2 жыл бұрын
This was so helpful, I make all 4 mistakes daily. My dad has dementia and I take care of an elderly woman 3 times a wk that also has dementia. I have been making these mistakes with both of them, I forwarded this video to all my family and the family of the woman I care for. Thank you so much for this information
@DementiaCareblazers
@DementiaCareblazers 2 жыл бұрын
Glad it helped!
@Chrysalis616
@Chrysalis616 Жыл бұрын
Good on you for being so accountable and honest with your shortcomings. I’m certain by that ability alone, you are a much better caregiver than you likely give yourself credit ♥️🙏🏽
@ChrisBillows
@ChrisBillows 2 жыл бұрын
This is excellent advice. I read somewhere that a person with dementia may not remember WHAT was specifically said or done but remember HOW they felt at the time.
@myriamguns2162
@myriamguns2162 Жыл бұрын
Very true. I lived through a house fire while my mom was in the advanced stage of Alzheimer's and lost most of what I had worked for. I never told her bcse I knew she would not remember the factual content of what I told her but she would definitely be acutely aware of her feeling that 'something' was very much wrong. RIP mom. You are sorely missed.
@lourdeshernandez2398
@lourdeshernandez2398 Жыл бұрын
I need to hear this video every morning to go through a day with my mom and dad both with dementia.
@yocelin1087
@yocelin1087 2 жыл бұрын
I can attest that all these mistakes are so true! The only problem is I learned how to handle the situations correctly a little too late, which is so sad to me. It really would have saved both my loved one and myself a lot of heartache in our journey in dealing with this devastating disease, if only I would have had this knowledge to go by. To all those of you that are just starting out, don’t take these instructions for granted, you will be so glad you didn’t in the end!
@Grayback1973
@Grayback1973 Жыл бұрын
Thank you, my mother has early onset dementia and has been getting worse over the last 2 years.
@PennyMiller-j1k
@PennyMiller-j1k 3 ай бұрын
Thanks for your heartfelt honesty which is hard in itself. I’m two months into my husband’s diagnosis and have felt adrift until finding this source of information/education. I’m still stunned at how the initial doctor started us off. I asked for caregiver advice and was told to visit my local senior center. I understand the doc is focused on the patient, but the patient, if lucky, comes to the doc with a caregiver as part of his “situation.” I’m already learning so much from others’ experiences and comments/advice. Many thanks to everyone!
@ellieraposa5275
@ellieraposa5275 3 жыл бұрын
Thanks for a refresher course! My mom is 90 and has dementia. Years ago I was a CNA. I also took care of older family members. While visiting my grandmother all the time, long ago, she didn’t realize her son died. I would talk with her as if he was still living in another state. I never reminded her of this. It would have been her hearing it for the first time over and over again, having her react in shock and mourning mode.
@jeffweed3947
@jeffweed3947 Жыл бұрын
Yep, I'd telephone mom and she'd say "oh, you just missed daddy, he went down the hall"...NO way would I remind her he'd been dead for years!
@Britesmyls
@Britesmyls Жыл бұрын
I have been facing this recently as well. My mom keeps asking me if her mom is really dead. It’s heartbreaking. I’ve told her she is, but she is also watching over her and helping her along the way. I adored my Nanny. I miss her so much. She was my second mom.
@Jazzykatt23
@Jazzykatt23 Жыл бұрын
My dad who had dementia just passed a month ago. My mom died many many years ago. He kept asking when she was going to come and visit so I would always tell him she was coming at a later time. I made the mistake of being truthful in the beginning, and it was awful to watch him, suffer the news of her death over and over again.
@blueminnie13
@blueminnie13 4 жыл бұрын
Yes, this is excellent advice. Even when my LOWD accepts my reasoning answer, it never ends there and 20 minutes later we are having the same conversation again. Less is more. When I feel myself losing my patience, I get up and leave to the kitchen, or bathroom, or patio for a few minutes. Since the pandemic began, I've had a conversation with my LOWD, the same one, about the 1918 flu, 1000s of times (really, many times at every meal). It is crazy making!!!! Sometimes I get upset and say "You already told me." but, it works the best to just stop talking, like the conversation is over. I got a pair of wireless headphones so I can listen to music or the radio. This helps me to keep calm. I know this may seem rude, but being stuck home together since March, it's a way to improve my well-being. Over the last 6 months, I've worked very hard on my empathy to remember my LOWD is ill. I've made good progress staying calm, but I can tell on days when I'm tired or upset, it takes real effort and sometimes I leave the room and allow myself to cry to relief stress.
@cathygoltsoff9615
@cathygoltsoff9615 4 жыл бұрын
My sister is doing this with her current caregiver. At one time my sister stayed with me and I handled her money. I always tried to keep about $100.00 in her account for emergency. She wanted to buy some 75.00 perfume and I said no you can not. She was furious. My neighbor said if she wants to handle her own money she needs to be on her own. I learned the hard way that you can not reason with dementia. God bless the Careblazers!
@EtreTocsin
@EtreTocsin 3 жыл бұрын
Why couldn’t she have the perfume, was it just not in the budget? Sorry, I am new to all this and am just trying to learn.
@cathygoltsoff9615
@cathygoltsoff9615 3 жыл бұрын
@@EtreTocsinRe: Limited income. At the time She was staying with me She was on a limited income. She is actually very intelligent and had some college and refused work and training. She was getting disability and I budgeted money for her food, transportation, clothing etc. I wanted for her to have a little money in case of emergency in case of medical or emergency needs. The perfume was too expensive and she needed practical items. Sometimes her income did not cover all the necessities. I would often take her out for meals and events that I paid for as I tried to stretch my income. . I felt responsible for her at that time and emergencies do come up when you need money. There are items and perhaps an RX that her benefits may not cover. I think it is best that she handle her own money and if she wants the perfume she could have purchased a lower priced alternative and/or decided to work or get a job. We are too close in age for me to be her parental figure. I am a live and let live type of person and I did not like being the “perfume police”. She had asked to stay with me and while she was I took the responsibility very seriously. In retrospect: I think she wanted me to foot all the expenses and then she could use government disability money as shopping spree money. I work very hard and have never taken government assistance, so I have a different work ethic.
@fayemorgan5389
@fayemorgan5389 2 жыл бұрын
How do you make her understand that she can't afford that with dementia my mom wants to go to Walmart every few minutes and I can't get her to understand we can't afford to go that often? She always wants to buy the same things daily. We always spent days shopping before dementia and that's what she remembers but she gets so frustrated that we don't go all the time . Most distractions don't work with her .I hate this disease and what she is going through.
@amigofriend5886
@amigofriend5886 Жыл бұрын
@@fayemorgan5389 I don't know what to say. I appreciate your honesty and hope you feel better right now.
@LegoAnimationGuy1
@LegoAnimationGuy1 11 ай бұрын
​@@fayemorgan5389start a new pattern. Maybe thrift stores. My dad did this and you can learn from Dr Lori how to buy things you earn money from reselling. But watch whatever habit you start. They remember the habit and stress if it doesn't occur. You've got to commit too.
@colleeneggertson2117
@colleeneggertson2117 Жыл бұрын
It's important to realize that the person with dementia has a disability. We don't tell a person in a wheelchair, "Just stand up and walk." That would be unreasonable. Telling a person with a mental handicap to remember, or to be logical in our way, is also unreasonable.
@triciagumbrecht6338
@triciagumbrecht6338 27 күн бұрын
These suggestions are EXCELLENT; not only for conversing with your love one with dementia, but also when your talking with anyone who is under stress, emotional, physically not feeling well, or has normal forgetfulness for a 80 year old .
@esthermortensen4260
@esthermortensen4260 4 жыл бұрын
When people find out he has dementia, they're surprised. He is still managing on a high level. So,when situations described come up, I too can forget he has dementia. But now I feel better equipped to handle these situations. Even if I start handling them wrongly, I should be able to catch myself and handle them correctly. Thanks for this video.
@oksanasileryte9366
@oksanasileryte9366 4 жыл бұрын
Yes..I do forget or deny that my mom has delusion mental disorder and take her negativity personally and get depressed...I am happy I found these supporting videos..
@clarissaharris4103
@clarissaharris4103 4 жыл бұрын
My brother is high functioning as well. He has FTD and is obsessive about 2 subjects which he believes he is an expert on. He's always been well read but now a lot of what he says after 5 minutes makes little sense. I appreciate this video because I find myself trying to correct him and getting frustrated/ angry. Tomorrow he will repeat everything he said today. I have to remember this is the disease and unless there is a potential for harm, let it go.
@deborahspence8420
@deborahspence8420 3 жыл бұрын
@@clarissaharris4103 Well, that Is the Problem in taking care of someone with any kind of dementia. Not only that they are forgetful and repeat themselves, but, also, that they are Dangerous and do harm!!! If she/he is Violent toward you, the caregiver, Or even Threatens you, or gives you any Lip, just call the Police on her/him!! Do Not hesitate to do so!! Do Not take Any Bull-SHIT from this person!!! Instead, you need to realize that Now there is a role reversal, especially if you are taking care of a sick parent/parents or a sick grandparent/grandparents. YOU are now the Adult, and You are Clear-headed and Alert. You are No longer a helpless child or teenager or young adult, who was Being told what to do, or what not to do, by your parents, or grandparents, or other authority figures. Now, it should be the other way around. You should be telling Them what to do, And what not to do. You are now the caregiver, and an older adult and an older son or daughter. You are now Much older than your twenties, thirties, and forties. So, as a caregiver, it is Your turn to Give orders to your confused aging adult/adults, and make sure that those orders are followed! And, yes, you Will risk being, or seeming as Mean as other people that you know and dislike. But do Not worry about that---- don't be manipulated into feeling guilty if you are harsh with the person/people under your care. You need to practice Tough Love, and Often, too!! Being sick and confused from dementia is a reason,---- But Not an excuse for bad behavior from the person/people in your care! You Must apply severe punishment to them when they get out of line!!! Yes, I am being blunt about all of this. Too many people make excuses for other people. If we, Ourselves, did anything wrong, we got our heads Belted in!!!! It is True.
@traditionalgirl3943
@traditionalgirl3943 3 жыл бұрын
@@deborahspence8420, no, it’s not “payback time”. Tough love is for those who can learn. Let go of the past. Bad memories will just trigger you. Give all that to God and ask for His help. Be as kind as you can; it will be worth it. A LOWD is ill so expectations have to change. Maybe you are not the person for this caregiving job. If it only leads to a harsh authoritarian attitude think about getting help. Forgiveness is where it’s at. Peace.
@suzanne9174
@suzanne9174 2 жыл бұрын
I have started on my Dad's journey with Dementia.Sometimes he may ask the same question many times I answer as it is the first time. I have been a Caregiver for many years.I have found Patience is the best quality you can have. I have been making many memories with my Dad. I made a promise to my Mom before she passed that I would look after Dad.Mon had the beginnings of Lewybody Dementia. However the Cancer she had took her first. Thank-you for your helpful information. I found you on KZbin and try to look for you a few times a week. Thank-you Suzanne G
@NCcrumpet
@NCcrumpet 2 жыл бұрын
I need to save this video and rewatch daily! Unfortunately, I did a lot of correcting the other day when my mom was being evaluated by the home health PT and she got very upset with me. I thought I had to correct all the mistakes so she would get the right treatment plan, but it would have been better to take the person aside after and explain the important mistakes.
@cherylschnell1184
@cherylschnell1184 3 ай бұрын
where is the video?
@lynneclifford326
@lynneclifford326 3 жыл бұрын
These four points are so simple but true. I have made all these mistakes. My mum sometimes thinks she is living in her old home. She will ring me and be quite adamant that she is there. I constantly tried to reason with her that she was actually in her care home. This just made her quite angry. The last time this happened I just went along with her and then gradually changed the subject. This time there was no conflict and when I rang her later that day she was totally aware that she was in her room at the care home.
@moxig5717
@moxig5717 2 жыл бұрын
I often feel like I’m living with a black out drinker And I’m trying to explain to him the next day what he did the night before It really makes me think of that a lot and I know it won’t make sense but I try to let him know not to get up out of bed because he fell Thank you so much for this video, it is helping me immensely!
@KatsWind
@KatsWind 2 жыл бұрын
I've been caring for a neighbor who's close family and loved ones do everything to avoid her and she was left without transportation and anyway to communicate (phone). I appreciate the tips and empathetic approach in helping us just get through a day of being a caregiver for someone with dementia.
@debbymiller8828
@debbymiller8828 4 жыл бұрын
Thank you for this practical approach to helping my husband have more “good” days. Stress relievers are essential for both of us.
@suzannecanell4630
@suzannecanell4630 Жыл бұрын
Omg I’m guilty of all these. Thank you for pointing these out. I have fallen into bad habits. Im going to be more cognizant of my own behaviors.
@yesiownfrodo
@yesiownfrodo 2 жыл бұрын
I'd just like to say, I had a stroke 8 years ago, and testing and correcting were part of my rehab, as I was trying to stimulate my brain and encourage plasticity. It was and continues to be the most exhausting part of stroke recovery for me. (One day my dad said to me, "You seem fine to me." I said, "That's because no one can see the work I'm doing inside right now." :) ) My dad had a severe stroke last year and is in rapid cognitive decline. At first I tried working with him using the techniques I had learned, but I soon stopped. The only recovery he has made from the stroke has been motor, and his cognitive decline is profound. I'm sure they'd classify it as dementia if he weren't already medical coded for stroke. Anyway, I switched my approach to yours and changed my expectations. I don't try now to help him regain fine motor skills or work on his memory. If my mom and dad want him to have that they have the financial resources to get him a therapist. My job is just to be a daughter. You cannot walk someone else's path for them. I will say this: thinking is not consistent, it's dependent on many variables. YOUR LOVED ONE will think better when they are well hydrated!! How many actual ounces of water are they drinking? Are you keeping track of that? The brain must have sleep, glucose, fat, and water. It also benefits from stimulation. Do NOT allow your loved one to sit around watching the news. It agitates them. Instead, get a DVD or download something that is just nature. It's so calming. Try it. If you feed their brain and watch out for l negative stimulation, you might find yourself with a happier family member who is easier to talk to and who enjoys their day.
@DementiaCareblazers
@DementiaCareblazers 2 жыл бұрын
Hi, We are so glad you are here as part of this community. Wishing you all the best on your caregiving journey. 💖
@ruthread8403
@ruthread8403 Жыл бұрын
My husband had a massive stroke 8 years ago. He has stroke induced dementia. So a stroke definitely causes brain problems.
@autumnleaves8553
@autumnleaves8553 Жыл бұрын
Very helpful advice. Thank you. I appreciate that you are on your own journey. And I hope that you understand me when I say sorry for your loss even though your parent is still alive. It's hard to see the rapid decline in cognitive skills. Be well.
@mayamaker8841
@mayamaker8841 Жыл бұрын
Thank you for this video. My spouse have never abided by any of the advice given by doctors, even after a quadruple bypass surgery, sleep aponea surgery, severe diabetes etc. He also has a Narcissistic Personality Disorder. Recently he was diagnosed with early onset dementia and has been put on medication. Almost two years ago we made timetables and charts for him to record his medications, testing, going for walks etc. More recently, he bathed infrequently, wasn't going for his walks, and some strange behaviour that was incomprehensible. The medication keeps him calm. Because of his NPD people have taken advantage of him and he has given away our life's savings, leaving us very little to live on. He also has a mania for shopping for stuff he doesn't need. Some of this can be controlled and his credit and debit cards safely out of reach. I don't know how fast he will decline, so your video was really helpful. To avoid confrontation in the past, if I needed him to do something, I would leave him a note. Thank you.
@dawnabarge2400
@dawnabarge2400 10 ай бұрын
Thank you. Life changing video and advice.
@dianeatwood1602
@dianeatwood1602 Ай бұрын
Most of us just stumble along figuring out things on our own. I’ve really learned patience and being in his space and not expecting him to be in my space.
@alicedaley851
@alicedaley851 Жыл бұрын
Thank you for sharing your expertise. I never found anything more helpful. I have been very frustrated and alone and lost. Family don't see or understand what is going on. GOD BLESS you! Its like a great fresh breeze of oxygen in a stagnant environment .
@brigidcannon8130
@brigidcannon8130 3 жыл бұрын
Thank you, these four common mistakes to avoid with your loved ones who have dementia could also be applied In other situations with loved ones. For example, not correcting others in public , not arguing when it is not going anywhere and creating more stress, not reasoning when maybe the person only wants you to listen and feel understood A
@suefrisk8505
@suefrisk8505 Жыл бұрын
Well said!
@edwardb7811
@edwardb7811 Жыл бұрын
Good points❤
@brianmcdevitt8239
@brianmcdevitt8239 4 жыл бұрын
I think I’ve learned these lessons but your reinforcement of them is invaluable. Thanks!
@pollylopez6842
@pollylopez6842 4 жыл бұрын
Thank you for this lesson. I needed to hear it again! Very good teaching! You are an amazing teacher!
@Mrsmadison45
@Mrsmadison45 4 жыл бұрын
I’m a Retired CNA, let me Praise you for sharing 🙌🏻💜 I’m my Husband’s Caregiver he has Vascular Dementia .... We have been married 18 years and he just turned 80 and I’m 61 ❤️ When my Husband is on the phone ☎️ and I have a BIG problem opening my mouth 😩 Correcting him. I have to remove myself from the room to keep my mouth closed ! My Husband is a Retired Policeman 👮🏼‍♂️ and he is pretty much calm and I know that if there is not a safety issue I have learned to let it go and so because he is my Husband I love ❤️ him so much and I want him to just be normal. Redirects are sometimes not helpful because he forgot. Sometimes you won’t know there is a problem.
@tita481
@tita481 4 жыл бұрын
I too am in the same situation.
@SuperColymon
@SuperColymon 4 жыл бұрын
Same boat same age 61/80. It’s overwhelming and I feel like I’m disappearing. Family doesn’t see it being a problem but I’m the one who sleeps light because he constantly walk through the house at night checking the front door, thank god he can’t unlock the deadbolt. Hanging in there!
@michaelomalley592
@michaelomalley592 3 жыл бұрын
I have to say that I certainly wish I’d come across this video a long time ago when my late great grandmother was battling both Dementia (sundowner’s) and Alzheimer’s Disease. And let me say it was highly challenging when I became her at-home caregiver/POA when she’d became a flight risk and even provided ongoing care during her stay in a nursing home, I can DEFINITELY relate to what many caregivers (new or ongoing) may feel or otherwise experience (the rapid mood changes, agitation, etc.)..especially when you’re suddenly faced with a rollercoaster of emotional, mental and physical strain that caring for a loved one with Dementia presents. This video hit the head of the nail and is a sublime outline as to how to avoid these mistakes early and put out any fires before they start. Like many others whom have loved ones suffering from dementia and/or Alzheimer’s, I made these same mistakes in the beginning and by no means was I a perfect caregiver and I knew I had to quickly learn to keep myself in check during those moments so that I could provide the best care as humanly possible..especially with the “Arguing/Reasoning” and “correcting”. I’d seen friends whom are caregivers exercise the same mistakes and it can somewhat alter relationships. My grandmother’s case was somewhat unique to a degree: with the sundowners portion of Dementia, she’d be perfectly OK during the day (so long as she didn’t have too much sugar as it bizarrely altered her mood/behavior which to this day her Doctor couldn’t explain) and would happily sit down to watch her Soap Operas, Jeopardy, Wheel of Fortune and the Price Is Right (her number one favorite when Bob Barker was gameshow host), but as the sun set around 6:30-7 PM, that’s when I noticed the agitation, confusion/disorientation, talking to now deceased loved ones (she mentioned her sister Annie a lot) and moments of verbal/physical aggression which by far was heartbreaking to witness. While Dementia affects people differently, we must all work to not take anything that’s said or directed at us personally as we know that this disease is responsible for any behaviors. The one way I’d learned to cope and better process the mistake of argument/reasoning/correction is to in a sense think of it as if you were caring for a toddler or small child (I mean this in the best of ways, of course). Toddlers are still fairly new to the world and when it comes to their day to day life, they’re going to do what they do on their own terms. When you try to “over correct” or find yourself arguing or reasoning with said toddler who is already used to living on their own accord per-se, it’s expected that they’d react negatively to it and see it as if they often don’t feel validated and thus they’re going to try and “prove you wrong” and test limits/boundaries when they feel challenged or limited in any way. We often try to maintain the adult conversations with our loved ones with dementia to help “keep their dignity”, however as time passes it becomes increasingly difficult to do so which can not only frustrate yourself as a caregiver, it in turn can frustrate the loved one who’s faced with Dementia albeit by overstimulation from “trying to remember” or who in their mind “THEY know how certain events took place” therefore making them feel challenged or undervalued and when the disease progresses to where they can no longer verbally communicate in a clear and concise manner, it just adds more stress for all involved including the loved one with Dementia. If there’s ANY sound advice or insight I can provide from nearly 10 years experience as a caregiver to help make things more comfortable, these would be it: * Go at their own pace: when it comes to care (dressing, feeding, bathing, etc.), to rush them or become impatient and frustrated only worsens things. *Give your loved one the freedom of choice: This applies to things from morning routine, to food choice, clothing choice and beyond. Whilst a loved one with Dementia may not be able to verbalize their choice outright, giving them the freedom of making simple choices helps to keep the loved one engaged and the feeling that they’re still in control. For example, my grandmother before dementia was a very confident and vain to where she ALWAYS put herself together with makeup, etc. so when it came to dressing and grooming, I’d get down to her level and use the “hand under hand” technique which helps to maintain a physical connection with your loved one while also allowing your loved one to also be engaged in their dressing/grooming routine. I’d have her make simple choices by starting with two choices for shirts, pants, makeup choice, etc. I would then hold up the shirts for her to look at and say “would you like to wear this shirt or that shirt?” She’d then had the freedom to point and touch the one she wants rather than frustrate her by “just dressing” her per-se. Same with the meal, makeup and other things. It also helps to try and read their body language as people with dementia often times cannot verbalize that their thinking or feeling. By utilizing these techniques, I personally found it to be very helpful and kept her calm as well when she didn’t feel like her freedom was lost. If there is ANYONE whom is a caregiver (new or present) for a loved one with dementia, know that YOU ARE NOT ALONE and never be afraid to seek help/support where you feel is needed.
@joycecoffman3420
@joycecoffman3420 3 жыл бұрын
How do I respond to these messages?
@joycecoffman3420
@joycecoffman3420 3 жыл бұрын
I am a “Loved One” (as you are referring to these lessons and as m the “receiver” of things you suggesting. If you would like, I would like to respond that MOST of what you are advising is very good or very bad; depending upon the “levels” these folks are. for example if I loved one as you refer to them it’s just beginning to experience some forgetfulness and he’s treated in the matter in which you suggest it becomes harmful (counter productive) and hurtful. Any further correction from that point on is worthless then… as pain creeps into the “loved ones” mind. Pain that takes over the “lesson’”meaning and causes yet another fear! A lot is dependent upon the level at which a person is in need of this kind of Shall we say…. Manipulation.
@michaelsteck1076
@michaelsteck1076 4 жыл бұрын
As I am a new care blazer, this is very helpful as I see myself already making these mistakes
@evientually
@evientually 3 жыл бұрын
This is extremely helpful. I'm helping a woman whose dementia only recently became obvious, and I have to try to communicate what I see to family who can't be as available as I know they would like to be. In doing so I now see that I test her in ways that are stressful and can be avoided. I'm relatively new to her, initially being hired to take care of her dog and transitioning into a somewhat loosely defined caregiver position. Being outside the circle of her familiar people, I know she hides her feelings and what she does and does not remember out of politeness or propriety, and it's not yet easy to tell when she's being stressed. But I can almost definitely discern how she is if I watch more and quiz less. Your advice has already helped her by helping me. Thank you.
@godisgoodallthetime9250
@godisgoodallthetime9250 11 ай бұрын
This was wonderful! Everything you have described I have been doing and getting nowhere. The hardest part for me is his accusing me that the house is in my name, that the car he used was so old I had to get rid of it and sometimes he gets obsessed with that. So do I say well we can get another car when we need to and then change the subject and I really thank you that you said don't be hard on yourself because it's a learning process. Even that brings me to tears! It's so hard not to be, feeling like you constantly have to defend yourself on why you're not there and you have to fix the house window etc, and being accused of things and another of the hardest part is him saying I want to be home I'm coming home tomorrow or I'm going to sign myself out. Meantime he has been bedridden for 7 months and is in a nursing home all this time. I'm going to start going to a once-a-month support group and I'm hoping I can connect with somebody that I can connect with over the phone. Boy if you had a phone number it would be wonderful thank you so much for this video! God bless you in Jesus name!!😊😊😊
@judyhaley8102
@judyhaley8102 4 жыл бұрын
This is worthy of watching more than once! Great information and reinforcement of things I try to do.
@royrubba
@royrubba 2 жыл бұрын
Thank you so much for this! My mom has dementia it just started about 6 months ago, And I have been guilty of all 4. I'm informed now and will change the way I deal with her now.
@davkumi
@davkumi 4 жыл бұрын
Gosh Natali, you are so perceptive and articulate. I experience all of this and have began to understand that I have to relate differently. You have made it clear how to do it. Thank you😊😥!
@tickytootoo453
@tickytootoo453 4 жыл бұрын
Thank you so much! I'm learning more and more on how to take care of my mom. You are an angel💓🙏💓
@folsomanna7435
@folsomanna7435 3 жыл бұрын
I'm so so glad l found you. I'm a caregiver for my 89 yr old father.
@Wanday639
@Wanday639 3 жыл бұрын
Thank you, for posting information and techniques to make living with dementia as a caregiver manageable! Trying to remember today’s strategies I’m going to use don’t drive a CART in front of them! Don’t Correct; Argue; Reason or Test to make them understand. Work to make them maintain feelings of control and independence and to feel respected and loved!
@antoniarozman
@antoniarozman Жыл бұрын
Lo
@deborahw.5980
@deborahw.5980 11 күн бұрын
Just beginning the journey with my mom. I'm watching every video and reading every article I can. Thank you for this one!
@seattlepeggy
@seattlepeggy 3 жыл бұрын
I am teetering and falling slowly into my own short term memory loss. 🍏 I see the wear and tear on my loving relationship with my daughter 🌸 I will give her this link ❤️ I appreciate what you’re teaching 😊 I wish I had known all this w my own Mother back in 2000 - 2007 🏡 I have taken a very long time to type this and I use happy emojis instead of a period sign (easier to see where I’m at and they make me happy) ♻️ Please keep on pushing your thoughts and education forward, if not for my family, but for others who will wholeheartedly benefit from this !! Much much love, Peggy 🍏
@evercuriousmichelle
@evercuriousmichelle Жыл бұрын
I know you wrote this two years ago so you probably won't see my reply, but I am so touched by your comment. So often there are videos for and about caregiving, but so few videos from the people learning to cope with their own memory loss. Sending hugs on this difficult journey!
@SatrinaHill-tz2ib
@SatrinaHill-tz2ib 11 ай бұрын
Thank you!! Today was a difficult day. I needed this video!! Different approach tomorrow. Every day is a learning situation when you have a parent with dementia. Stay Strong all .
@garlicgalore
@garlicgalore Жыл бұрын
I'm really liking your channel! It's nice for the caregiver to experience fewer difficult behaviors, for sure, but its also nice for the person with memory loss to not be upset by shame, grief, or confusion. When we can facilitate this, its a win, win. And ultimately, the feelings not the facts are what matter.
@gregorybarr6112
@gregorybarr6112 4 жыл бұрын
Why do people give a thumbs down to good advice? Thanks Dr.Natali for sharing your expertise and wisdom with us !
@lisalo3011
@lisalo3011 Жыл бұрын
She takes too long to get to the reason we clicked to watch the video.
@ZoomStranger
@ZoomStranger Жыл бұрын
@@lisalo3011 ok but you know you can click forward, don't you? People probably give the thumbs down to feel like they have power.
@crasshag
@crasshag Жыл бұрын
Why should viewers coddle the original poster for wasting our valuable time of 3:48 minutes before getting to the subject matter? It is similar to click bait. Why should the viewer have to do the work for her, of scrolling ahead to guess when the subject matter will finally be addressed, or going to the transcript to find the meat of the matter? Viewers were sincerely interested in the subject matter, and it is REASONABLE that the poster GET TO THE POINT.
@mumsysescape6612
@mumsysescape6612 3 жыл бұрын
My hubby has always been an argumentative soul, only now it's the same arguments over and over. I will try to put these tips into practice, thankyou!
@NursePeterMAbraham
@NursePeterMAbraham 11 ай бұрын
I know this video is older, but I just wanted to say thank you. I work as a hospice visiting registered nurse, and typically 50% to 75% of my caseload is taking care of patients with various types of dementia. While I almost naturally employ validation therapy (created by Naomi) techniques, I learned a number of new things from this video. Thank you.
@bonnieblevins9425
@bonnieblevins9425 4 жыл бұрын
I am just learning. Wonderful teacher.
@salauerman7082
@salauerman7082 4 жыл бұрын
Bonnie Blevins me too! I had found Teepa Snow first, on KZbin and Facebook, who is also awesome 😎.
@vsibirsky
@vsibirsky 4 жыл бұрын
I loved how at the end you said to just start to make some changes in what, as a caregiver you say. I was getting overwhelmed early in the video because I do do... all of the things you point out as things that aren't helpful and make a bad situation worse.
@spettaway1
@spettaway1 3 жыл бұрын
Thank you so much for this video. My sister-in-law has dementia and her husband is her caregiver. I’m a retired nurse and he will call me asking questions. I took care of my mom who had dementia so I try to help him when I can. Your video is outstanding. The information in it is very timely. Thank you so very much.
@ginaperkins1088
@ginaperkins1088 Жыл бұрын
I wish this channel was around when I was caring for my mother(she passed almost 8 years ago) This information would have been so helpful to me. This information is so helpful and important for primary caregivers. Keep up the good work .
@robertalafrance3671
@robertalafrance3671 2 жыл бұрын
Thank you for the simple, rational approach to assisting our loved ones. I will begin to utilize these immediately, not expecting perfection from myself yet, but feeling more confident that I am reducing family stress in the household.
@jennfusco4242
@jennfusco4242 Жыл бұрын
I’ve only watched two videos so far and can honestly say that you are a godsend!
@myintra6500
@myintra6500 Жыл бұрын
this is absolutely true with my mom... her behavior completely changed after i changed how i interacted with her thanks for this video, stay blessed dr Natalie
@nancypachou9705
@nancypachou9705 Жыл бұрын
My mom is starting to have dementia but also she is bedridden due to other health issues. The psychatrist who visited her at home perscribed alloperidin but he was explicit that I should correct her blah blah and left me with literally no instruction probably he wanted the extra info to give him etra....we went through hell and back. I am balancing things better now that I am getting more informed and treating the underlying problems that feed the dementia. I found your videos very helpful. Thank you very much. Greetings from Athens Greece!😊
@jeanettestoffregen2874
@jeanettestoffregen2874 Жыл бұрын
My husband (age 79) was diagnosed 2 years ago with age related dementia. His problem is mostly with talking and comprehension. He has hearing aids, but is determined that they do not work. So although i believe he really does have hearing problem, he does not comprehend what he does hear. My question is: when does he need to stop driving? He has made a few mistakes, but actually does oretty good at driving. He does need me to help with directions however. He can drive to familiar places without help. He seems to think he is helping me by driving and feels that he must take me everywhere i need to go. Daily conversations are next to Impossible because he can’t find the words and says “uh” and long hesitations between all words. He wants to know everything, such as today’s appointments, and asks over and over-even if there are no appointments. You are very helpful but this has been extremely stressful for me. I miss my best friend😢.
@sharonpinkerton8297
@sharonpinkerton8297 3 жыл бұрын
I have done all these things,but recently am learning these better ways.I saw that trying to reason with Mom lead to more frustration for her,for her husband and ultimately for me!
@heidymendez7508
@heidymendez7508 3 жыл бұрын
Same here . I realized it was going nowhere. Hang in there 😥
@jaxoncook673
@jaxoncook673 Жыл бұрын
I was a CNA for a long time with Dementia and Alzheimers and now my dad has Dementia so now I help care for him and try to help my family learn these things thanks for the update
@dorothycatherine7896
@dorothycatherine7896 10 ай бұрын
My mother accuses her health aid of stealing from her and hitting her both are not the case she hid her jewelry which we found in in her bedroom ….and there are no marks on her. No one is beating her and no one is stealing from her. I told her if you feel someone is beating you we will call the police and have them look at your body for marks and of course she says no because deep down she knows no one is hurting her Do I just let her go round keep saying that ?? no I can’t ….it’s so upsetting.
@mapeandrews3951
@mapeandrews3951 4 жыл бұрын
I have recently become my mother's caregiver, she is in the middle stage of dementia. I have been making ALL these four mistakes but didn't know how to change my behavior. I find this video invaluable in helping me see the dynamics and roots of friction and stress. Do you think that if I change my behavior and follow these suggestions my mother will feel happier about living with me? What I mean is, do you believe any damage to our relationship I have caused by treating her incorrectly can be reversed? Thank you for giving us the much needed tools to navigate these difficult situations.
@amigofriend5886
@amigofriend5886 Жыл бұрын
It's not your fault. Nobody is perfect. The most important is you are looking at how to do a better job.
@eileenmcgrath4457
@eileenmcgrath4457 3 жыл бұрын
Our 92 y/o mom seems to be at the beginning stage of dementia, which seems to be happening quickly. Your videos are very helpful for my sisters and I to understand our mom's confabulation, depression and anger at times as well.
@michelleshort8859
@michelleshort8859 Жыл бұрын
We were taught differently years ago reality orientation
@Fidi987
@Fidi987 3 жыл бұрын
This should be part of a school curriculum, so that if someone encounters the situation of suddenly having a relative with dementia in the family, they have an idea of what to do and do not rely on random information they stumble accross. Even in a nursing home, I have heard a very nice nurse once tell an inhabitant with dementia, "Mrs X, your dinner is served in your ROOM as it has been every day during the last 10 years!" Also, there was another patient constantly calling "hello?!" to everyone who was just ignored or told she had said the same thing several times already. On the positive side, there was a woman who was screaming several hours a day, just screaming random things, and she had some friends in the home who came to visit her and take her for walks down the hall. So all the entertainment did not rest with the nurses.
@bcufan9835
@bcufan9835 3 жыл бұрын
My mom recently progressed from mild cognitive impairment to dementia and I only just recently discovered your channel, Dr. Edmonds. I literally cried with relief upon finding just a few of your videos (especially the one on managing guilt and sadness--I really needed that video today!). Your comforting manner and well-explained, highly practical advice has already helped me in my interactions with my mom and I know I haven't even begun to scratch the surface of all the wonderful content you have created. I know I will be visiting your channel frequently, and I hope maybe I can catch one of your live Q & As sometime. I want to give you a heartfelt thank you for the much-needed help you are providing to people in such an easily accessible way!
@DementiaCareblazers
@DementiaCareblazers 3 жыл бұрын
I'm so happy you are here. Sending you love and strength as you care for your mom.
@arthurashbeats
@arthurashbeats 10 ай бұрын
What were her symptoms when mild cognitive impairment? Any details u cae to share? I think my mom is there now and she lives alone 500 miles away. She repeats herself a lot. She makes up memories of me that I know never happened. She got lost in the airport last time she tried to fly, and she starting to lie a lot about small simple things. noy sure if its dementia but has me worried
@jenniferwolf5941
@jenniferwolf5941 9 ай бұрын
It sounds like a Grandma I help care for. She needs someone to help her pretty much 24/7 now, although some days she can be left alone for a few hrs. I would suggest calling her town's council on aging and ask what programs might be available to help her. Meals on Wheels, senior citizens center, vfw, etc. I would check into a visiting nurse also. Our Granny has a nurse come once a week to check her vitals,weight, her meds, physical therapy, etc. I'm sure it's very hard to be 500 miles away in an already tough situation. I just prayed a prayer for you, and everyone going through this now!
@arthurashbeats
@arthurashbeats 9 ай бұрын
@@jenniferwolf5941 thank u. And means a lot. And will do
@sarahstrong7174
@sarahstrong7174 9 ай бұрын
@@arthurashbeats It is not lying if they are confused about what is happening.
@sunnyperez1273
@sunnyperez1273 4 ай бұрын
Perfect timing! Just when I needed to hear mistakes 3 & 4, your video started, where I left it. Thank you for making these educational videos. These should be mandatory for anyone taking care of someone with Dementia and Alzheimer's disease, private or in a facility.
@DementiaCareblazers
@DementiaCareblazers 4 ай бұрын
So glad the video helped!
@EtreTocsin
@EtreTocsin 3 жыл бұрын
What about the dementia sufferers that get physically violent because of their suspicions? I knew a woman who’s mother attacked her, lunged at her and dug her fingernails into daughter’s face. The daughter was so scared she had to call the police. Her face was bloody and scarred for days / weeks all because the mom thought the daughter changed the thermostat.
@mahone-kt4dj
@mahone-kt4dj 2 жыл бұрын
Press charges!!-
@mahone-kt4dj
@mahone-kt4dj 2 жыл бұрын
Put. Her in a nursing home
@oksanasileryte9366
@oksanasileryte9366 4 жыл бұрын
As I started to visit my mom 3 days a week she became much more peacefull, but after 3 years me doing this - sometimes I feel stressed out and depressed. I need time for myself - so it is very difficult to say "no, I am not coming today" to my mom - because she every time I am leaving she almost crying - please stay, without you I will feel so lonely, I will suffer here alone, when you will return? please do not forget me, call me, it is so boring to be alone, and so on...it feels like never enough, I never feel satisfied for helping her, it's like a chain on my kneck...how to manage this? how to shut the door and go enjoy life when my mom is saying these things? :(
@javajunki81
@javajunki81 Жыл бұрын
My Mom keeps saying she’s going home, and doesnt think she lives in her house that she has lived in for 33 years. I keep correcting her. I guess I shouldn’t do that. Thank you so much , you have been such a help.
@Robin-ri1121
@Robin-ri1121 Жыл бұрын
Omg I’m so glad I bumped into this video! I, the caregiver did exactly the four things in your video. Thanks for opening my eyes and educating me on what not to do. Of course I’ve stopped doing the four common mistakes before watching your video because of too much energy being used by both and it wasn’t getting me anywhere so why get excited for nothing. Anyway I’ve since calmed down, it’s hard, but I still need patience. I pray every night just having my parent another day with me. I’m still trying to maintain because it’s still something new to me. Thank you!
@kenutton992
@kenutton992 Жыл бұрын
I am being taken care of my son and daughter-in-law. They claim I was diagnosed with dementia. I am taking care of my self. Cooking my meals. My problem is they have taken all my freedoms away. I no longer have a phone. No longer have use of the internet which I used regularly to answer questions I might have. Able to download clipart to give me ideas for my Paintings. There is very little apps I have left because they were deleted. I no longer have a contact list and unable to contact my friends. I feel that I am trapped. I need help to get back the things they have taken from me. Do you know of someone who might help me?
@suewright1299
@suewright1299 Ай бұрын
Hello Ken, were you ever diagnosed by a doctor in the first place? If not I don’t understand how your son & daughter-in-law can claim you were diagnosed? If you’re able to care for yourself and especially cook your own meals, something that they would need to do. It seems to me that they have purposely taken away your phone and internet so you can no longer get in touch with your friends. The people that you regularly talk to would soon know if you have a short-term memory loss etc, the things that would be a certainty of someone who has short-term memory loss and all the things that go together to indicate any type of dementia. Do you do your own shopping? If so, can you take enough cash so you can ring the police and possibly your doctor to see when you were diagnosed? Take great care of yourself and your money Ken!! ❤ Do you know your neighbours well enough to show your post above to?
@maryd9049
@maryd9049 Жыл бұрын
Thank you sharing how to change my behaviors! I definitely have been doing the first 3 things. Then leaving frustrated and over whelmed.
@RapKrider
@RapKrider Жыл бұрын
*I understand that my grandmother had dementia, but I was living overseas. *I have a friend whose mother had dementia, and after we visited her, my friend shared her belief that she would be in the same situation someday. *In other words, I am going to copy the link to your videos and put it in my folder for my children! The advice for thinking of communication with toddlers and pre-school age children rings true. I began following you on Instagram. These videos are excellent expansions of your knowledge. May you continue your service knowing that you are certainly making a difference. Gives me hope!
@carrollguenhart9468
@carrollguenhart9468 Ай бұрын
This is he most helpful advice I've heard yet. I know it pushes all my buttons when my loved one accuses me of horrible things, or says I don't love him. This helps a lot. Eager to learn a new language. Thank you so much. I've just subscribed!
@cljclb3351
@cljclb3351 4 жыл бұрын
Wonderful information. Thank you so much. This may have already been suggested, but if you ordered the items slightly differently they'd form the acronym CART.
@drewwerts7711
@drewwerts7711 Жыл бұрын
My dad has advanced dementia and unsure of how to help my all time hero. To see him regress is incredibly difficult. Your videos are amazing. You are a angel. Please keep the wonderful videos coming. God bless.
@anniepackman1383
@anniepackman1383 Жыл бұрын
Thank you so much. I wish the carers in my Mum's care home could have training in this. Annie in UK
@lmcpaza1
@lmcpaza1 Жыл бұрын
Thank you so much for all your precious recommendations! My father has body Lewis Dementia and it’s been a struggle, is her two other brother who help with his care and the personalities are all different. These recommendations are so simple and priceless for all of us un bringing back some reassurance and calmness in my fathers life, it makes all the difference ❤ thanks you 😊
@annpino5005
@annpino5005 Жыл бұрын
In his final months, my husband had hepatic encephalopathy, which shares some similarities to dementia. I used similar strategies as yours to try to ease his discomfort and the burden on me as well, but it sure wasn't easy at the end. Basically, once the mind is gone, they're just not the same person, and it's hard for the caregiver and hard for the sufferer when they have a period of lucidity in which they realize what has happened.
@jancusick1000
@jancusick1000 Жыл бұрын
You are describing how to be kind to people with dementia so that the relationship can live well as long as possible .
@nancyrandall1762
@nancyrandall1762 2 жыл бұрын
I loved your comment that learning to deal with someone with dementia is like learning a new language. I am now committed to learning this new "language" with my brother and I feel a lot more confident now that I see how many of these mistakes I have been making (all I admit). Thank you so much: not only do you point out how this helps the person with dementia but it also helps us, the careblazers. I look forward to putting this great advice into practice immediately! Great video and so glad I "found" your site.
@DementiaCareblazers
@DementiaCareblazers 2 жыл бұрын
Awesome!
@donnacpotts
@donnacpotts 3 жыл бұрын
Thank you so much. Where have you been all my life. Caring for my husband is teaching me to develop the character of Christ. The one thing I've learned is that us caregivers must get a lot of rest! A good night's sleep. Because that helps when those questions come. It's a race at breakfast time to see after he eats, did I get the meds in front of him before he runs out the kitchen and then tells me he took them! I could go on but thank you so much. I will subscribe to your channel. May God continue to bless you to help us out. Donna!
@carolebee3962
@carolebee3962 Ай бұрын
I need this sooo much. Im new to this. My husband has been diagnosed with Alzheimer’s. Im scared. Im heartbroken. Im confused. This was such good advice.
@victoriagoforth9748
@victoriagoforth9748 4 ай бұрын
This is such great advice.. I learned this when I was around 8 years old taking care of my dad who had brain damage from an accident.. The calmer you are, the calmer they are..
@star_man
@star_man 2 жыл бұрын
Thank you. This is something I am struggling with very much as the moment. My 89 year old father dreamed/hallucinated that a man was in the house which has kicked off a lot of "The Man has stolen..." or "The Man has put something in my sugar to make me feel unwell", when in fact he's misplaced it and he's just disorientated because of his dementia. I have been guilty of trying to explain logically why there isn't a man because he gets scared about the prospect of an intruder being able to come into the house, but when I try 20% of the time I might allay his fears but it's only temporary as a few hours later he's forgotten, but most of the time he finds excuses... but all the doors where locked, he's had a set of keys cut; the doors were also bolted, he has a magnet to open them or came in through the windows (for someone with dementia he's still sharp at thinking up loopholes!), and 10% of the time it leads to him becoming very upset, confused, and crying. The only problem I have at the moment is the redirection as he's still "with it" enough to not let go of what was upsetting him and sees that I'm trying to distract him and THAT makes him upset.
@DementiaCareblazers
@DementiaCareblazers 2 жыл бұрын
Sending you love! I hope you get through it.
@kzf8978
@kzf8978 2 жыл бұрын
I would be tempted to give him a spray bottle with water in it (you could put essential oil drops in to make it scented) and tell him it was a special spray to ward off the bad guy. If he doesn't want to do it you could use the spray and tell him you are confident all is well now. Like people do with kids to ward off the monsters that come out at night.
@gracerascon9026
@gracerascon9026 2 жыл бұрын
You're God sent! God bless you and thank you.
@DementiaCareblazers
@DementiaCareblazers 2 жыл бұрын
Thank you too!
@dochubbell
@dochubbell 10 ай бұрын
I found this helpful as I am taking care of a 82 year old who is diagnosed with Alzheimer's. They can take care of her own personal needs so far but since moving in occasionally goes through bouts of what is called sundowners. It is mostly in the evening when it is dark, and they will think someone is peeking into their room, or someone is having a party next door, or there is two people in helmets looking in the sliding glass door.. I try to acknowledge their concerns, will even say I don't see anyone but lets go take a closer look. I even try reassuring them by telling them all the outside doors are locked, the house alarm is set, and I have a safety device for our protection. All too often they want to insist what they see is real and they are scared and don't feel safe. This is creating stress for both of us, and I have rightly or wrongly even told them since darkness is often a case of shadows that their mind is filling in an answer of when they are trying to figure out what they end up thinking it might be, even if it is wrong.
@mib20000
@mib20000 4 жыл бұрын
my mom has hallucinations and those 4 things I find myself doing. She sees people out the front window giving her boxes and she wants me to go get the boxes. I try telling her there isnt boxes there which leads to arguing but I have also tried going along with it saying I will get the boxes later and she will TEST me and ask where the boxes went. Its a long rabbit hole. She talks to people all day and night when there is noone there. If I try to tell her noone is there she tells me to shut up and go upstairs. now if I go along with her and act as if they are here it still goes down a rabbit hole and now she has a boyfriend thats cheating on her. They tell her she won big money and keeps asking me to contact her bank. never ending stories.
@mib20000
@mib20000 4 жыл бұрын
@@theedesp yup tried that drug and it only made her super pissed off. 3 months on it and she was screaming at some guy that was in the house to GET OUT NOW. The anger was only getting worse so I stopped giving them to her. her Doctors are useless. They have the attitude that there is no known cure so live with it. Oh, and the drug didn't do anything to make the hallucinations go away. thanks for the advice
@carolynnr.6409
@carolynnr.6409 4 жыл бұрын
@@mib20000 sometimes pharmacists have good ideas. I took my mother's list of meds to one and she pointed out possible side effects. Some medicines conflict with each other also.
@mib20000
@mib20000 4 жыл бұрын
@@carolynnr.6409 will try that thanks
@glendadavis1945
@glendadavis1945 4 жыл бұрын
Wow! That is draining
@debby891
@debby891 Жыл бұрын
Exactly what I’m going through, frustrating and exhausting. You feel like you’re losing your own mind
@missykuss9975
@missykuss9975 Жыл бұрын
Very sound advice. Thank you.
@salehmalaeb4788
@salehmalaeb4788 Жыл бұрын
I should do a video for my loved ones about if i ever have dimentia and appologize before for the hard time i would probably give them and ask them to forgive me and try to tolerate me
@_JanetLouise
@_JanetLouise 2 жыл бұрын
excellent, timely information, suggestions and reassurance ... mahalo
@DementiaCareblazers
@DementiaCareblazers 2 жыл бұрын
Glad you enjoyed it!
@YayaVye369
@YayaVye369 Жыл бұрын
I wonder if anybody has advice on how to handle the loved one that just talks and talks. We are getting to the point where we can’t have a conversation, but I don’t know if it’s appropriate to just ignore her or what? This is so hard. I’m very thankful to you and the work you’re doing.
@dougcropper2751
@dougcropper2751 4 жыл бұрын
This is valuable advice. It is a challenge for me to let my wife say inaccurate things. I need to "let things go".
@blueminnie13
@blueminnie13 4 жыл бұрын
The hardest for me: mom will be on the phone telling her sister something like "I never got breakfast today," making it look like I'm negligent.
@sweetangiegirl1
@sweetangiegirl1 3 жыл бұрын
@@blueminnie13 Please don't let those things get to you. Everyone knows that she has dementia. I learned to think of it this way: The mama that you knew is no longer there. You have to figure out a way to deal with the person you have now. 💛
@LAppleDumpling
@LAppleDumpling 3 жыл бұрын
@@blueminnie13 oh My God me too. It makes me feels like I am an Ogar. And my Mom will say She's gonna get mad at me....now I sound abusive🥴 I send you a hug and glass of wine🍷
@blueminnie13
@blueminnie13 3 жыл бұрын
@@LAppleDumpling Yes!!! Thanks for the hug and glass of wine. Clink glasses! My mom (96) has yelled at me in this past when the Dr. said she couldn't live alone anymore. Now she just stops talking when I say something she doesn't like (This is usually about keeping clean). Sending hugs and cheer back at you!
@LAppleDumpling
@LAppleDumpling 3 жыл бұрын
@@blueminnie13 96?!!! I used to think I wanted to live to 100, but not anymore...... It helps so much to know this, this is what we're dealing with now. She says I didn't even get dirty, why do I need a shower! I try to be so empathetic and understand when someone's been in control all their life and she too just gets silent. it would be nice if we all live close to each other then we could exchange each other's roles for a few hours a day. You know like when you babysit someone else's kids sometimes it's nicer break and a good insight. Well I send blessings don't know how you do it!!! ❤️🍷❤️🌻🌻🌻🌻🌻🌻💘
@lindadaniels8639
@lindadaniels8639 Жыл бұрын
I take care of my 97 year old mother. She was always asking me, multiple times a day what time it was or what day it was, so I got her a atomic clock that gives her the answers to all those questions. She said that as soon as she gets up she looks to see what day it is, that way she knows if someone special is coming over, like the visiting nurse or the therapist.
@robmallandaine8495
@robmallandaine8495 3 жыл бұрын
Very helpful video. Thank you. I find myself making the mistakes you highlight. Things are really difficult at the moment as my dad passed away last month and my mum keeps forgetting that he has died. She keeps asking where he is. When we tell her what's happened she (and us) have to go through the nightmare of telling her again.
@helenm9621
@helenm9621 4 жыл бұрын
Correcting, arguing, reasoning, testing. The initials = CART
@DementiaCareblazers
@DementiaCareblazers 4 жыл бұрын
Interesting! I didn't even put together that connection! THANKS!
@DeborahLowe9
@DeborahLowe9 3 жыл бұрын
Thank you for sharing this information with me as I'm living with my Mother who was just diagnosed with onset of dementia.
@Alaskagirl618
@Alaskagirl618 6 ай бұрын
Omg…this all applies to my husband who is dying of an aggressive brain tumor..he has the dementia like symptoms starting now ..I have made all 4 of these mistakes and I cry while I watch this. I feel so bad , but so happy I found your channel. Thank you from the bottom of my heart.
@ChristineHermann-v2u
@ChristineHermann-v2u Жыл бұрын
Hello. I am an end of life or elder Doula and I enjoyed this video because it is giving me tips for effectively working with my elderly clients. Please give me info on getting more info from you.
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