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Having Ehlers-Danlos syndrome means having a complicated condition. I didn't realise how complex it could all get and the extent it can affect an EDSer's existence. If you've been newly diagnosed with it then these learnings of mine may help - well, I hope they do!
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Time Stamps:
01:10 - 1st Thing
02:19 - 2nd Thing
03:55 - 3rd Thing
04:39 - 4th Thing
06:00 - 5th Thing
07:16 - 6th Thing
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Original article to this video:
6 Things I Didn't Know About Hypermobile Ehlers-Danlos Syndrome:
allthingsendometriosis.com/th...
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Website: allthingsendometriosis.com/
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Podcast: open.spotify.com/show/2l9oX7A...
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References Mentioned in this video:
National Cancer Institute:
training.seer.cancer.gov/anat....
Jeannie Di Bon:
jeanniedibon.com/
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Website Reference:
My Journey: Being Diagnosed with Ehlers-Danlos Syndrome:
Blog Post: allthingsendometriosis.com/jo...
Video: • How I was Diagnosed wi...
My Experience: Treatments to Manage Ehlers-Danlos Syndrome
Blog Post: allthingsendometriosis.com/tr...
Video: Part 1 - • Treatments to Manage M...
Part 2 - • Physiotherapy & Exerci...
My Experience: Connecting Endometriosis and Ehlers-Danlos Syndrome
Blog Post: allthingsendometriosis.com/my...
Video: • Connecting Endometrios...
Are Ehlers-Danlos Syndrome & Fibromyalgia Connected?
Blog Post: allthingsendometriosis.com/eh...
My Experience: The Relation Between Endometriosis / EDS and Chronic Fatigue
Blog Post: allthingsendometriosis.com/en...
Dysautonomia: How POTS Changed My Life
Blog Post: allthingsendometriosis.com/dy...
Video: • How I Manage My POTS, ...
Everything Endometriosis:
allthingsendometriosis.com/ab...
CSF Leak:
Blog Post - Part 1: allthingsendometriosis.com/st...
Part 2: allthingsendometriosis.com/in...
Video - Part 1: • Status Migrainosus, Th...
Part 2: • From Migraine, to CSF ...
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Disclaimer: I am not a medical professional. I am a patient and have created this platform to share my experiences. This is all purely informative and in no way am I providing medical advice. Please consult a medical professional.
#Hypermobility #EhlersDanlosSyndrome #EDS #hypermobile #healthandfitness #healthblogger #dysautonomia #POTS #growingpains #whatisehlersdanlossyndrome #connectivetissue