7 Signs of Ankylosing Spondylitis - A Rheumatologist Review

[@eivindgjengstjohansen9625]

My father got AS at 19 in the army he died 3 days ago at 82,5 he had AS and COPD he closed his eyes at the hospital then he was gone he simply decided that it was his time he didn't want to experience the risk of a wheelchair and oxygen assistance he told me "if i can't walk on my own then i will stop taking my medications" R.I.P. dad you were a warrior 1941-2024 i'm 32 and i have had AS since 20/21 it's hell on earth he had a older son who died at 46 had severe AS it was a heart attack the heart exploded so yeah AS is quite scary...

[@rheumatologistoncall]

I'm so sorry for your loss. Your father sounds like a true warrior and his decision to stop taking medications shows his strength and independence. Sending you lots of love during this difficult time.

[@eivindgjengstjohansen9625]

@@rheumatologistoncall 🤝

[@Mckenna12502]

Ooooh love I'm so sorry.. Our father's would have been amazing friends. I lost my father January 2022. He also had a arthritic condition that was severe. He never went to a Rheumatologist or orthopedic doctor He also had congested, heart failure.And copd just like your father, if he couldn't use his own Body, it wasn't an option towards the end. It got really bad. He accepted a wheelchair 2 times at the hospital for imaging but only if I pushed it. He refused when it was time for him to use a Walker. It was the only time he got upset with me when he saw me bringing in all the equipment. I completely understand what you're going through. As I was with my father for the 4 months we had from the date of diagnosis of cancer. 4 over a year. II don't remember the year.I had just lost such a big piece of me😢 I'm trying still to this day but I know he's with me as I am now on my journey of pain. And I find out on the twenty ninth of may if I have AS But I think I already know the answer. I'm sending you the biggest hug and prayers of healing. Cry scream do whatever you have to blessings to you and your family again. I'm. So sorry🥺❤...Your Father was a strong Man❤..

[@ShamuAdism]

Thank U Dr , Greetings From Indonesia , i am a 43 year old male, was diagnosed since 2002. Medication that i took when i flare up is Sulfazalazine and celebrex. Flare up cause by food with sugar corn fructose and shellfish and air pollution. I ate a high dosage of Vit D and Fishoil. Still exercise regularly 5 days a week. Run, cycling rowing and power lifting. Survive Army for 2,5 yrs and many marathon and triathlon and Spartan obstacle races. But more flare up happens since covid vaccine, i cant and more sensitive to allergic such as coloring on foods. Tips for all other fellow AS, i suggest u took allergic test. All the best to all AS patient and Thank u Dr G.

[@rheumatologistoncall]

rheumatologistoncall.com/free-resources/

[@Stargazer9900]

I’m so sorry you’re experiencing this! I hope you get treatment to lessen the numbness or pain (if you are experiencing pain).

[@rheumatologistoncall]

Thank you for your kind words and concern. It means a lot to me.

[@jjfromthebigland781]

I'm a bit of a rarity for AS sufferers... my initial symptoms started when I was just 15 years old and progressed rapidly and aggressively over the next three years, receiving a diagnosis just before my 19th bday. I'm 51 now so it's been just about 35 years of living with the constant pain and severe stiffeness in my spine and I'm currently waiting for hip replacement surgery...

[@cmarth1]

Dr. G. I am an Athletic Trainer in a high school. I have a 15 year old female athlete who was tested for HLA B27 because of family history and is positive. She has developed a significant inflammation of her right knee and is not responding to typical care. She was referred to her Rheumatologist, medications were prescribed (I was not told what drugs were prescribed) her mother did not want her to start them at her age because of the harsh side affects. She opted for acupuncture the person treated her with a larger gauge needle about 12 needle punctures within a 1 inch square to an area below the anterior joint line medial side of the knee. then applied cupping to draw blood from each puncture site. Stating he was stimulating a inflammatory response to increase blood flow, deliver nutrients and cells to reduce the chronic inflammation. My understanding is that her condition causes her body immune system is attacking her own tissues. So would it not be contra productive to generate more of an inflammatory response in an already inflamed knee.

[@rheumatologistoncall]

Thank you for sharing the details of the treatment the athlete received. It's important to consider all perspectives when exploring treatment options.

[@Ludwiguser066]

I have AS as well as Sclerosing Messerenteritis. It's now making it difficult to breathe at night.

[@tbh1304]

Great video all the time is unspecified inflammatory spondyloarthropathy lumbosacral the same as ankylosing spondylitis

[@rheumatologistoncall]

Thank you for watching and sharing your thoughts!

[@MultiSamSami]

Im 31 years old, I've seen my primary care doctor for a year, and he kept saying that my back was fine and healthy. I took a second opinion with a rheumatologist, and he diagnosed me immediately. For now, I manage my pain with daily exercises and nsaids, but he wants me to start a biological treatment, which is quite scary.

[@rheumatologistoncall]

You need a second opinion? Contact us if needed and we will explain you all you need to know about biologic therapy

[@lillyrocks2011]

It's interesting, doctors without knowledge would diagnose it with Fibromyalgia, and the patients will be without the right diagnosis for years. Fibromyalgia is the typical diagnosis of "I don't know what you have, but go back home because I don't have time for you".

[@rheumatologistoncall]

Thank you for your comment!!!

[@rheumatologistoncall]

I agree! It is very often misdiagnosed!!!

[@effusiveluxeltd.co.7995]

That was my experience for almost 20 years and as a human the worst thing to hear a doctor tell you is that its all in your head.

[@rheumatologistoncall]

@@effusiveluxeltd.co.7995 I am really sorry to hear that! I hope you found someone that will helps you

[@xcomfortablynumb83x]

@@effusiveluxeltd.co.7995 or you’re told you don’t have it even though you have every symptom…. Your parent has it… you’ve shown symptoms for the last 18 years, you’re HLA b27 positive… 😞

[@davyg8864]

So glad i found this. I have been for a few blood tests, i had test done for rhumatoid arthiritis it came back false negative, my test for imflammation came back positive, my vitamin D came back low. I had xrays in my back/hip they came back as nothing showing, my neck and back came back saying i have arthitis. Its so confusing as my worst pain comes from my back and hip, although my full body aches, i wake up 2-3 times a night with my forearms, elbow and shoulders aching, my hands ache, wrist, ankles, hip and lower back, And my groin. Also have plantar fascitits in both feet. I have been referred to a rhumatalogist but going to be a long wait. Dont know if i can wait months i have been trying to get this sorted for years this is them just doing these tests. I am so down about my day to day life, my pain on a good day is a 7 out of 10 on a bad day 10. So tired and fed up. Take meloxicam and dhyrcodiene, vitamin d, and onzeprole

[@janetphillips2875]

Omg, with the exception of the groin, you sound JUST LIKE ME!! Have you found any answers? I surely havent! Sometimes I wish I had a pain pill the size of a football and just take big bites out of it!

[@shahbaz3709]

I feel your pain. I am dealing with exactly the same situation. Long waits for rheumatologists in US. I'm seeing a doctor overseas temporarily until i get my appointment because the pain is sometimes unbearable. Hope you get well soon!

[@mullaway5746]

I got naproxen 550mg 2 per day from my Dr, till i can see the specialist, it helps a fair bit

[@thesecretlifeofhuman]

Check out rheumatology solutions on KZbin (The Paddison Programme). I started it 11 days ago because people are having amazing results.

[@thesecretlifeofhuman]

@@janetphillips2875 Check out rheumatologysolutions on KZbin (The Paddison Programme). I started it 11 days ago because people are having amazing results. It might be what you’re looking for. I hope you find resolution and freedom from pain.

[@Tinyteacher1111]

I think I have this. I have all the symptoms except sausage fidgets, except that my fingers are lumpy from arthritis. I started to have lower back pain in high school and later, my rheumatologist said o have possible AS. I was just saying that my eyes are bugging me for a long time.

[@rheumatologistoncall]

please go to be evaluated again.

[@Tinyteacher1111]

@@rheumatologistoncallI did and was diagnosed with it and my entire spine has fused together. I’m only 4’ 9” and 95 lbs., so it’s not like I’ve ever been overweight and non exercising until now that I also have Lyme and incredible pain.

[@spyboyzunwanted]

Thank you Ma'am ❤️

[@rheumatologistoncall]

thank you

[@johndiaz2853]

Hi, I have a quick question. Something you said was very interesting. You stated that people with ulcerative colitis or Crohn’s disease can also develop a form of AS?? so can you tell me is there various forms of AS? If so, what form of AS do people with crohns or ulcerative colitis develop? Thank you so much.

[@rheumatologistoncall]

Yes they can develop AS / seronegative spondylitis

[@johndiaz2853]

@@rheumatologistoncall thank you for the reply! Is there a difference in severity or outcome in these cases?

[@Hsmobile626]

Thank you so much

[@rheumatologistoncall]

my pleasure

[@dianariley9582]

I have this and I can't find any doctor to treat me. Hardly any rheumatologist will see me because I have government state insurance and nobody wants to treat me. The very few ones that will treat me have waitlist of many years long as I live in one of the post poplulated cities in the USA and I can't get any pain relief. My regular pcp doctor refuses to give me anything for pain except ibuprofen or extra stengrh tylenol, (which does absolutely nothing) and that ibuprofen gives me bruises and it killed my unborn baby and caused me to almost bleed to death. I had to have emergency surgery just because I took 2 ibuprofen while I was pregnant, and I didn't know I was pregnant. The pain is unbearable 😢 I don't even want to live anymore. 💔

[@rheumatologistoncall]

Thank you for sharing your story. It's important to raise awareness about the challenges faced by people with government state insurance. Your experience highlights the need for better access to healthcare for everyone. I hope things improve for you soon.

[@Mari-fe7wu]

Thank you for the video. I had been diagnosed with AS since 2016. Since then my Rheumatologist push on me Celebrex or Diclofenac. I'm trying not to take this meds as much as I can avoid them because I believe this meds in the long run will give me another problem. Something that you didn't mention that happens to me is that when I'm going to have a flare I feel like I'm going to have fever but the thermometer doesn't show it. What is your opinion about this? Thank you.

[@rheumatologistoncall]

Thanks for sharing!Thanks for watching my videos!

[@bartrese]

Omg I am dealing with the fever part

[@njsmkmmsthatsit3518]

Good question this happens to me too. I have talked to another Dr and also asked my Rheumatologist about it but they just looked at me strangely... ha ha

[@lunodpatay2341]

Thank you

[@rheumatologistoncall]

You're welcome!

[@aakashansh7104]

Plz suggest me some medicine

[@rheumatologistoncall]

I WILL POST A VIDEO ABOUT MEDICATION VERY SOON

[@lillyrocks2011]

And how's it diagnosed??😢

[@rheumatologistoncall]

you find another video in my channel! kzbin.info/www/bejne/q5TMo6Vnj7J2hqc

[@sirimalsilva5474]

Dear madam, May I know Ankylosing spondylitis is auto immune disease? Or heredity disease?

[@rheumatologistoncall]

yes it is autoimmune disease! thank you for watching my videos!

[@sirimalsilva5474]

​Thanks o lot madam for replying to me. Nicely explained You are very kindness ❤️.

[@eivindgjengstjohansen9625]

My father got AS at 19 in the army he died 3 days ago at 82,5 he had AS and COPD he closed his eyes at the hospital then he was gone he simply decided that it was his time he didn't want to experience the risk of a wheelchair and oxygen assistance he told me "if i can't walk on my own then i will stop taking my medications" R.I.P. dad you were a warrior 1941-2024 i'm 32 and i have had AS since 20/21 it's hell on earth he had a older son who died at 46 had severe AS it was a heart attack the heart exploded so yeah AS is quite scary...

[@johndiaz2853]

Does this butt pain ever go away

[@rheumatologistoncall]

Hang in there, it will get better!

[@johndiaz2853]

Well thank you ! I was just curious if the butt pain goes away because I don’t take meds ! I have leaky gut and other stomach problems that eventually led to this AS thing due to poor immune system function! So just curious to know if but pain is life long?with out meds

[@AprilC450]

❤

[@rheumatologistoncall]

Thanks!

[@brianmckeever903]

i am 48 and just diagnosed , so the notion of it being diagnosed only in young people is nonsense....

[@dansmith3085]

51 for me.

[@sally.7709]

She said most

[@njsmkmmsthatsit3518]

You have no idea when it might have started. You know when you got some of the symptoms but it could have started yesterday or years before then. Chronic pain is multifaceted not everyone experiences it the same as the next person.

[@estherk7484]

The habitual swaying is most disconcerting making it difficult to concentrate on the message.

[@rheumatologistoncall]

thank you for watching!

[@DrAndreaFurlan]

Excellent information Dr. G. Your video is very well produced. I like your calm voice. I also appreciate the subtitles in many languages. I watched with Portuguese closed captions and they were perfect!

[@rheumatologistoncall]

Thank you 🙏🏻 so so much! I am impressed with your work as well Dr Furlan! Your videos are offering great educational information !!!!

[@nosherwanadil6753]

I have Juvenile Ankylosing Spondylitis when I was 13 years old , now I am 25 years old and facing partial numbness in saddle area and legs below knees.No urine or bowel symptoms.

[@travisricks3436]

I have something bad going on with my back. I stay in pain 24/7. I was diagnosed with Osteoarthritis of the spine at 34. I’m now 38 and have been to 2 different rheumatologists. I may have Ankylosing Spondylitis or some type of inflammatory arthritis. I go back to see the doctor in about 4 weeks.

[@rheumatologistoncall]

ask for a second opinion

[@bartrese]

I have inflammatory arthritis, unknown type. We’re leaning towards AS just because of the back pain and hip pain

[@Vixinaful]

How did it go?

[@MultiSamSami]

@travisricks3436 osteoarthritis at 34 is unlikely.. that's what a doctor thought I had, I asked for a second opinion and it actually was ankylosing spondylarthritis

[@travisricks3436]

@@MultiSamSami you are 💯% correct. I was recently diagnosed with Ankylosing Spondylitis. Very, VERY debilitating and painful on a daily basis. I am prescribed Tramadol, 3 Norco 10s daily, and a Humira shot once every 2 weeks. I still suffer very bad every single day. I just turned 40 years old. Been on social security disability for almost 3 years now. It isn’t fun at all.

[@botodeov57]

Thanks Doctor for great info!! much appreciated!!!

[@rheumatologistoncall]

My pleasure!

[@rheumatologistoncall]

share the videos with other people to spread the knowledge

[@AnkylosingSpondylitisMan]

I have Ankylosing spondylitis, and was diagnosed in 2017. It can be brutally painful, but also it can be managed, depending on each patient.

[@rheumatologistoncall]

Agreed

[@Vixinaful]

Does your fingers swell up with this and the pelvic hurts like you think you're about to die? Joints crack?

[@dc.pentrumesteri4893]

@@Vixinaful yes

[@tahsenhossain3749]

Mam,when the osteoporosis occures? I mean i have diagonosed with that disease and it is in early stage so, when is the possibility to grow osteoporosis?

[@sirimalsilva5474]

Dear madam, If HLAB 27 positive , what does it mean ?

[@rheumatologistoncall]

watch my video on HLA B27, thank you for watching my videos!

[@juney18]

Thank you for posting!

[@julioalay7004]

How do I contact you

[@elenaruseva8559]

Just got suspected for nr-axSpA…with no definitive diagnosis. Is that normal to have low grade fever no matter what drugs I take, including corticosteroids?? I am afraid to apply for biologics with that unexplained fever.. I will highly appreciate your opinion! :)

[@rheumatologistoncall]

Fever is usually a sign of infection or inflammation. You need a full evaluation.

[@elenaruseva8559]

@@rheumatologistoncall Thank you so much! Doctors in Bulgaria say there is no point to check for infection or inflammation outside joints when my inflammatory markers are all fine - CRP, ESR etc. But I will do my best to search look up in every organ and system in my body. It is real hell to live with this ..it came so suddenly and acutely. Is this typical for ankylosing spondylitis? I am having history or ReA in my childhood with complete recovery ...so it might be the same now.

[@annap1191]

Thanks for the video. Can you develop this after spine surgery?

[@rheumatologistoncall]

It all depends. The surgery is uncommon to precipitate that. Thank you for watching my video, dont forget to subscribe to my channel for other videos!

[@slyj03maxx]

Can you explain the pathology of the alternating buttock pain and treatment? I experience that significantly and would like to better understand how to treat it.

[@rheumatologistoncall]

Thank you for your comment

[@slyj03maxx]

@@rheumatologistoncall This did not answer the question at all..

[@rheumatologistoncall]

@@slyj03maxx buttock pain can come from multiple reasons most likely from inflammation of the sacroiliac joints. Treatment is directed toward decreasing inflammation and then add physical therapy

[@slyj03maxx]

@@rheumatologistoncall Physical therapy aimed at what? SI joint dysfunction? Hips? What is actually causing the additional inflammation and how can it be treated outside of biologics?

[@Mari-fe7wu]

I have this problem. In my case I have to hernias in my spine that cause my sciatic nerve give me pain. The pain is alternated bit generally in theleft side where the hip is very painful most of the time when I take walk and can run until the knew or some timea ankles. This is terrible and so painful.

[@themysticmuse1111]

Great vid.❤️

[@rheumatologistoncall]

Thank you so much!

[@cyn8733]

Can a orthopedic diagnose for this? Does it come up in a blood test?

[@rheumatologistoncall]

Not usually, ask for a rheumatologist

[@cyn8733]

@rheumatologistoncall will AS come up on blood work, mri or xray?

[@janetphillips2875]

Dr. Girnita, thank you so much for this information!

[@rheumatologistoncall]

My pleasure!thank you for watching my video and sharing your insight!

[@brianaluso]

Thanks 😊

[@rheumatologistoncall]

Thank you for watching my videos! subscribe to support my educational efforts and share with others

[@caroltrotter-rl5gb]

Absolutely nailed it! 😅

[@rheumatologistoncall]

thank you for watching!

[@kimdamrong8350]

Great

[@rheumatologistoncall]

Thank you for watching my videos! share them with other people to help them be educated!

[@kimdamrong8350]

@Dr. Diana Girnita - Rheumatologist OnCall Yes sure. May I have your email and I would like to ask you more about Rheumatology management for patients.

[@johndiaz2853]

Does AS affect the small bones of the feet ? 🦶 like the toes or only the heels?? Thanks

[@rheumatologistoncall]

sometimes

[@rymasharma8876]

hello Dr. how can AS be treated?

[@rheumatologistoncall]

see my channel for other videos about AS

[@mrspleats]

Thank you This helped🥰

[@rheumatologistoncall]

I'm so glad!