A safer treatment for blistering skin disease

[@nikkic0509]

I was diagnosed with Bullous Phemphigoid 5 years ago at the age of 42, and its on the bottom of my feet all the time, frequently up the shins of my legs and rarely on my hands. The bottom of my feet hurt so bad, it feels like someone has take razor blades and made cuts all over the bottom. Some days I can not walk. I wish there was something that could at least help me.

[@imjuswas]

@@anatille thank you for sharing your story my grandmother has just begun experiencing BP and I’m desperate for real storytelling of how people have been cured or comforted. She is 85 & I feel desperate to find a long term solution for her. Any advice helps.

[@jmine3292]

My son who is 11 yrs has bullous pemphigoid..pls hlp with any effective treatment

[@lilolmecj]

Have any of you found any help?

[@tusharmehta79]

@@lilolmecj No Help from any group.

[@monalizasinger7015]

Same i wish i walk

[@walterclemente6325]

Its weird that there is not a big chain of comments on this autoimmune disease , the few groups on facebook is full of webinars and pharma sposors. are we doomed ?