COFFEE AND MS Q&A WITH DR. B! ASK-ME-ANYTHING MULTIPLE SCLEROSIS!

COFFEE AND MS Q&A WITH DR. B! ASK-ME-ANYTHING MULTIPLE SCLEROSIS!
The Boster Center for Multiple Sclerosis accepts all major insurance carriers and accepts consults from around the globe, both in office and via telemedicine. www.BosterMS.com or call 614-304-3444 to schedule!
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COMMENT with your thoughts and questions below! I look forward to reading and responding!
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SHARE this livestream: • COFFEE AND MS Q&A WITH...
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SUBSCRIBE on KZbin: / aaronbostermd
VISIT US on the web: bosterms.com/
VISIT us on web: BosterMS.com
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NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help education others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!

[@CypeltResortAustralia]

9pm here in Perth Western Australia. Missed the live stream but it’s clear as here. 💪🏼💖🇦🇺

[@AaronBosterMD]

So sorry we missed you but delighted you could catch the replay! Also happy to hear the connectivity/buffering issue is finally better! #WeHaveMS

[@DrBrandonBeaber]

Very nice live stream. I don't think people fully understand how difficult it is to answer questions live without preparation while citing articles and recalling several-year old studies. I really look forward to your videos from ECTRIMS. I have never been unfortunately. Hopefully you can do some interviews and post them as well. It's awesome that you have created enough videos that you can cite your own playlists. Thank you for the shout-out also :)

[@Mezzystar1]

Hey Dr. Brandon Beaber. Seen as many people with MS have to deal with cognitive issues of all kinds every day, often leading to people leaving the workplace early due to problems with memory, sequencing, prioritising, concentration, forming sentences, remembering words, using the wrong word, doing the wrong things, making so many mistakes one never used to make, reading things properly the first time (side-question; are developmental dyslexia and dyspraxia a thing in MS?), losing things and scouring to find them only to lose them again, forgetting you've lost them, trying to keep up with what people are saying, over-running baths because you've totally forgotten that you were going to wash, producing speech when muscles don't work properly in your mouth and throat, along with many more issues of which knock your self-esteem and sense of self, I'm sure we can empathise with how difficult it must be for you and Dr Boster to keep up with questions on the live-feed, and answer them so eloquently, quickly and professionally, to boot. We totally appreciate it. Goodness, if anyone would understand the challenges involved with doing such an intense live Q&A, it would be a person with MS! Keep up the good work, both of you, and remember we get it. Look after yourselves and don't become burdened by perceived expectations. (I should take me own advice, actually...) You're already doing more than enough and you're both awesome, along with Prof.Giovannoni and his blog/Twitter feed here in the UK.

[@DrBrandonBeaber]

@@Mezzystar1 :)

[@lizstacy09]

Missed the live chat, watching the replay. Thanks so much for your channel!! From fernandina beach FL! No issues with the replay so far. 👍👍

[@Bluthdon]

Thank you for spending some of your free time with these Q&A sessions with us, Dr Boster (and moderators)! And thank you especially for answering my quick question about exercising 💖👍💖 'Hello, Howdy, Hi' from Central NJ

[@popcorn682]

Hi Dr. B! Wish I had made it on time, but you must have ended right before I woke up. We have missed this too! I’m glad you have returned to the vlogosphere! 😃

[@AaronBosterMD]

Darla So glad to be back!

[@rhondadouglas3771]

Western Canada. It 's so refreshing to Understand your words and what you are talking about, thank you.

[@laurah3282]

Hi Dr. Boster so glad you are back! My question is regarding HCST. What are your thoughts on this ? I noticed it is getting alot of press since Selma Blair had the procedure. I often here mixed reviews on the process some very good and some not very good.

[@Global_Harming]

I think your videos are beyond brilliant. You've done so much for me, and think for so many others. Please keep doing this.

[@andreawirtz2328]

I'm Andrea, living in Oklahoma right now, born and raised in Germany. Thank you for this very informative program!

[@AaronBosterMD]

You are quite welcome!

[@brendapotter5879]

Thank you for another great video. I hope you have a safe and wonderful trip. Learn everything we need to know.😊👍

[@sueabrams1508]

From Everett Washington my daughter has MS newly diagnosed

[@janewatts135]

QUESTION: Dr. Boster my neurologist suggested Mavenclad for me as I haven't taken a DMT for years. My Question what are the side effects please ? So far I've read very little in side effects...... He would prefer I have ocrevus but to date it's not licenced in the rep of Ireland. So Mavenclad I agreed on. Just to say I get on very well with my neurologist attending him for years he's down to earth always doing his very best for patients....just like you..... he's easy to talk with. Thank you in advance for everything & for being you. Jane Watts Co. Mayo Rep Ireland. 💚

[@deborahnooname5130]

Hello, myy name is Deborah, I have had MS for 20 years. Now secondary progressive. Having trouble with memory. Both parents had alsimers. Any suggestions? Also Having trouble with trimmers mostly right side of body mostly, sometimes all over. Thank you so much for what you are doing to help people with MS!!!

[@sondrefagerliie6895]

QUESTION: Studies show that giving rituximab immediately after cladribine has been a very successful treatment for a variant of hairy cell leukemia (HCL). Of course HCL is a very different disease from MS, but could the same strategy be applied? Using cladribine for induction and rituximab for maintenance? I was diagnosed with highly active MS a year ago and is just about to start my second treatment year with cladribine/ Mavenclad. I am however a bit skeptical to go without any treatment for three years after the last dose, which is the protocol for Mavenclad.

[@Courtneyhorvath-i3n]

Raining 😢😢in Michigan

[@reitae]

QUESTION: O Bands significance & elevated IGG but not O Bands in blood serum. Is that very important in your opinion? Thank you so much for these videos. YOu are Amazing!!

[@shirleyritsch2475]

I have taken Amantadine for 20 years....should I be concerned about that?

[@DIAcademics]

Hi Aaron, I just moved from FL to Iowa - iowa city area. I'm looking for a good MS doctor in the area. My doctor in FL recommended that I check with the NAtional MS Society. But I was wondering if you know of someone, maybe at the University of Iowa...I'm willing to drive for a couple hours if need be. Thank you

[@cementra2007]

COULD YOU THINK OF INSTANCES WHERE YOU WOULD RECOMMEND HSCT OVER MABS?

[@vanessalambert4286]

Could MS patient drink coffee

[@km06ore]

QUESTION , can you as a professional dismiss ms in a reflex test ? Is an mri always needed to be sure ?

[@meloneyparker]

He has a video on how he diagnoses MS as well as diagnosing PPMS . MRI's are needed.

[@km06ore]

Thank you

[@rubysusich4334]

If i take steroids before a mri will it make active lesions heal super fast before they see them in the mri?

[@reitae]

SAME QUESTION for me please??? Thank you so very much!!!

[@rubysusich4334]

@@reitae i fould it doesn't! They saw a meningioma tumor that i have had with contrast that was missed with all other non contrast mri

[@reitae]

@@rubysusich4334 Wow! That is a big "miss". :( So sorry that happened to you. Thanks so much for your reply. :)

[@liapat0851]

👍🏻

[@kenyahughes6127]

Vumerity is it a good ms medicine QUESTION

[@lisaleem9593]

Yes I have anxiety.

[@karensmith5540]

Hi....from Prosperity, PA....I turned on because j thought you were talking about the effects of drinking coffee if u have M S...lol....what are your thoughts on This? Diagnosed recently from RR to Secondary Progressive. Began OCREVUS in June of this year. Also began the Wahls Protocal in May and down 22 lbs! Thank you for caring about us!

[@vanessabee6391]

@@karensmith5540 I thought the same Karen...........😃

[@judytobey]

There’s so much out there. Gets so confusing!

[@kapluchi194]

How can a person with no use of legs exercise especially for weight loss?

[@AaronBosterMD]

water based exercises with life jacket on might be an option. Also a hand crank would be awesome! Have you ever seen them?

[@kapluchi194]

Yes I’ve seen them. Being paraplegic makes me nervous about doing water therapy.

[@yazzylee1]

Try google WiFi. it boosts your internet to its full capacity

[@samiqbal5645]

If you can do something for me please tell me some solution for my blurred vision i’m fed up 😭

[@arr2820]

How are you?

[@ayemayyy]

Have you had experience with or know of Mayzent?

[@lisaleem9593]

Does menopause affect MS ? I'm having more pain jabs and stabs. Weird headaches. Hot flashes are the worse.

[@kapluchi194]

When taking a sip of water the liquid goes down the wrong pipe and choking starts. Could this be something caused by PPMS and what type of specialist would one see?

[@meloneyparker]

I am sad that I missed you live. Your energy is off the hook and thank you for spending part of your Sunday morning with us.

[@DMhockey33]

Hi Dr. Bolster, where should I post questions after your KZbin live? I often think of things and I'm not sure if poaching them here is what I should do. Thanks so much for the videos love them

[@cherylvl1036]

Hi from Canada 🇨🇦 Dr. Boster. Thanks so much for taking time out of your day to answer our MS questions❤️. I just want to let you know that if most of your viewers are not having buffering then it’s not an issue with your bandwidth it could be a problem with theirs. Thanks for making changes to your internet connection for us!! It’s great now!

[@anjummodi5845]

Is having coffee ok in MS

[@AaronBosterMD]

not in my opinion!

[@anjummodi5845]

Thanx a lot

[@AaronBosterMD]

☕☕☕☕☕❤

[@karensmith5540]

Really? No coffee? Can you say why?

[@bghetmiri5736]

Hi Dr Is it normal if someone throws up? Getting dizzy?

[@MSVlogSupport]

Hi Dr Boster, I'm in Nevada 😃. I'm curious if my movement problem is common. When I am watching TV or just reclining on the couch, my lower body is constantly moving in a circular motion as well as my head. I try to stop it and it feels like I'm fighting something pulling me?? My head movement was something I wasn't aware of until my husband told me and took video to show me. I look very out of it and my mouth will sometimes hang open. I try to find the humor in it and say I look like something from the Walking Dead. In all honesty I am embarrassed by it. Please let me know if you have any paitents with this and how I should proceed?? My doctor has no idea.

[@MSVlogSupport]

PS, just a slight lagging at the end of the video!!

[@AzitaKhosravi]

thank you

[@AaronBosterMD]

You're welcome

[@Melissa-cb7hn]

My local neurologist dropped your name to me and suggested I check out your KZbin. I’m SO glad he did and I try to pass your name and channel to others. Thank you for the videos. They are very educational.

[@judytobey]

I had to find the courage to reach out.. I’m 64 and have had RRMS SINCE 11/25/20

[@judytobey]

Hello I’m Newbie from Franklin, MA . Very good reception

[@julie9155]

I know a guy that took 4 CBD at one time and staggered around, speech slurred. He took over the amount purposely to feel outside the norm

[@dougtagg9162]

Missed live chat watching tonight. Thank you. Doug coffee in hand from Lyndhurst. Just a note on the quality of the livestream, it was fine until the end, then there were problems.

[@AaronBosterMD]

TY Doug coffee in hand, and TY for the livestream feedback. Still working on improving the internet connection!

[@felicitacruz6476]

Hello my name is Felicita from Philadelphia I’m losing my hear can it be my MS medicine

[@darlene1187]

We were riding out and cleaning up after Hurricane Dorian (Halifax, NS) when this was live! I actually joked with my family, when we were sitting in the dark, that Dr. Boster better not do a Live STREAM!!! 🤣🤣🤣 Great video. Thank-you.

[@cynthiablue3312]

HEARD OF AMPYRO TO HELP WITH MUSCLES IN WALKING AMPYRA

[@MrsSherron09]

Hi Dr. B! What do you feel is the best treatment or best way to cope with RRMS and this AWFUL neuropathic pain? I was dx'ed January 2018 but looking back, I've had issues with this for 18yrs now. I was dx'ed with carpel tunnel when I was 21 y.o. and was advised by my doctor at the time, to stop doing hair; however, I never received any type of scans or testing back then to actually support the dx of carpel tunnel syndrome. I believe that this is what gave my disease more time to get worse bcz I was misdiagnosed so long ago. I am now 38 and have ALOT more symptoms than I did 18yrs ago.

[@Global_Harming]

Dr Boster. What do you do, or what should you expect people to do, when you have allergic reactions in the form of urticaria, to solumedrol, minutes after a 1g drip start? I know, probably very specific , but seemingly to my doctors a confusing issue. I'm obviously not hoping for a clear definitive answer, but a rough idea.

[@debraindxb]

Haha...French Press. I like your style!

[@darlene1187]

Great idea about pedaling on the stationary bike during commercials!!!

[@Kitty-gk1gi]

How does one go about pressing for further testing, such as lumbar puncture and such, without upsetting the communication and relationship with a current clinician?

[@roberture5903]

I missed the live stream but caught the replay. Good to see you back on KZbin dr. B.

[@Kitty-gk1gi]

@@roberture5903 it was a great live stream! I don't know if he will see your comment though, since it's a reply to mine. I hope this finds you well!

[@roberture5903]

Thank you Anna,, I guess I'm the one that screwed that one up honest mistake though. Great to hear from a fellow villager. God bless you

[@Kitty-gk1gi]

@@roberture5903 that's okay! It happens to all of us. 💜

[@AaronBosterMD]

Anna Keeton my best suggestion is to be honest and firm in conveying your concerns.

[@luannhayden9391]

Hello from Sacramento. What MS drugs are out there for secondary MS.

[@judytobey]

Your calm manner is very soothing

[@cynthiablue3312]

So glad your drinking coffee LOVE COFFEE😆

[@AaronBosterMD]

Me too!!

[@Godglue]

How does caffeine affect MS? I’ve heard with MS we should stay away from caffeine.

[@cynthiablue3312]

Cup in the air, cheers Ms in Georgia Near easy pain in feet?

[@babsgrumpton]

Great to see you back Dr B. Always listen to you while I’m out running - I’m 4 for 4 👊🏼 🏃‍♀️

[@sueabrams1508]

How to prepare for a spinal tap? Does it hurt?

[@yvetteschoeller5547]

Dr. Boster, EVER HERE ABOUT auditory canal lesions

[@sherrilyncaron]

Missed the live chat but so glad to be watching now. From Vancouver Island, Canada

[@lindalong7460]

QUESTION I’ve had MS for 15 years, I now have Secondary MS. Are there many people with MS have fainting spells? Linda from Florida

[@kelly-bo-belly]

Be sure to ask your PCP about these spells. I had issues earlier this year and ended up fracturing my wrist from one of the falls. So many bad falls. It's nothing to sit on. That's for SURE. :( Keeping a journal to record the events and what was happening before/during/after proved helpful to best communicate and understand my own situation. 👍 Would recommend trying the same for you. :) Looking at medication side effects and drug interactions may be a good starting place. My doctor discovered that one of my meds was causing orthostatic hypotension which resulted in fainting upon standing and walking too quickly from a seated position. A quick medication adjustment solved the problem. I hope you can find such a solution! Good luck pinpointing this issue and take care of yourself! 🧡

[@lesliex7894]

Hi Dr B, why discontinue annual MRI after age 60?

[@cynthiablue3312]

GOT BIKE TO KEEP MOVING, LEGS WEAK 😩

[@Courtneyhorvath-i3n]

Howdy

[@anjummodi5845]

I walk with a walker...walking 50 meters make me tired and fatigued out.. then I need a wheelchair .. should I walk unnecessary

[@anjummodi5845]

And one more thing I cant stand without help.. my left side is weak one

[@violentshemp7776]

Hello from Fort Wayne IN :)

[@desiredecove5815]

❤️

[@paulmasella1616]

Dr. Boster, the stream is buffering again.

[@AaronBosterMD]

Paul Masella yikes!

[@AzitaKhosravi]

thank you

[@AaronBosterMD]

Welcome!

[@sonsofanarchy5316]

In România it is very difficult to include, because there are no treatment for MS,

[@tarasloman1065]

No problem with the video. Thank you for the education Dr. B, checking it out from Kelowna, BC, Canada.

[@anjummodi5845]

My ankles and feet are all swollen up.. what do I do and what medicine to take

[@kittysmith2258]

Missed the stream! QUESTION: does taking low dose naltrexone along with being on Ocrevus counteract each other? Another MS’er said they do the opposite of each other? I’m taking LDN for last resort for fatigue AND MS hug.

[@reitae]

QUESTION: Do you usually prescribe steroid taper after a 3 day steriod infusion when in a flare? I'm just curious of the "normal" protocol or what You suggest be best. Thanks you