A Common Path: Endometrial Cancer

[@beverlyho9559]

January 2nd I awakened to blood soaked pj bottoms. I'm 66. Knew it was not normal and went to emergency for several hours, several tests, then one week later to my gynecologist and had an endometrial biopsy. It came back carcinosarcoma. I was told it was rare and a more aggressive cancer as it gets into connective tissue and muscle. I went home and cried. It wasn't common uterine cancer but something worse. Not that any type of cancer isn't very serious. I've had a laparoscopic hysterectomy almost 2 weeks ago, and except for a weaker bowel movement feel great. I've been told I'll need chemo, no mention of radiation therapy. I had just had blood tests the beginning of Dec 2022 and they looked great (I also have chronic kidney disease.) I'm still trying to wrap my mind around this diagnosis. Thanks so much for this video!

[@KonstantinosAlexandropoulo-c1t]

I have seen a lot of videos from doctors here on KZbin that explain how to starve Cancer.I wish you all the best God bless you

[@audrajack2529]

I was diagnosed with stage 3 breast cancer Sept 2022. I went through chemo. On my pet scan at the end of March 2023 the cancer spread to several places in my bones. My oncologist wanted me to start taking a chemo pill. Same side effects as the previous infusion chemo I just completed. I refused the chemo pill. I was told about the fenben and started taking it in April 2023. I take 2ml every morning. I add it to my coffee. I had another pet scan in Aug 2023. It showed no metabolic activity. My oncologist said I'm now in remission. I can't say with 100 percent certainty it was the fenben. But I'm still taking it and will continue to.

[@tetehl4731]

I hope these women are all well today..💖🙏

[@Americansangel]

I just turned 58 years old I had a endometrial biopsy Done and I find out in two weeks my results, and you are beautiful strong woman thank you for sharing 🙏🏽

[@happycook6737]

Please grow and eat broccoli sprouts. Check KZbin videos. Extremely powerful in cancer prevention. The sprouts have very little taste. Also include tofu in your diet. It is an estrogen blocker. Estrogen grows many reproductive cancers.

[@kellivelasquez149]

Hi Sheila, I work for Savvy Cooperative- a patient owned public benefit co-op and a patient insights platform. I was searching online for stories about Endometrial Cancer and came across your story on KZbin. We're looking for patients, who would be interested in doing a paid project (virtual, from home) about their experience with the condition. • US residents only • diagnosed with advanced/later stage endometrial cancer • 60 minute virtual interview; $110 If you're interested, please let me know and I can send over a link to our screener. Thank you so much, Kelli Savvy Cooperative Recruitment Contractor

[@annbrian708]

Hi if you don't mind sharing. Can you tell me what was the thickness of your endometrium lining?

[@Bujji0423]

What was your diagnosis?

[@luvinubak]

Thank you for this video, I’m 62 and was diagnosed with Endometrial Cancer….preparing to start Chemo…..once every three weeks whew, asking God strength through it all….

[@Americansangel]

❤️🙏🏽

[@happycook6737]

🙏Dear Lord, Please strengthen my sister and carry her through. In Jesus' name amen.

[@samkhan2426]

Hi luvinubak... how are you doing?i pray your chemotherapy is going well. May i ask what stage cancer you have- my mum was diagnosed with stage 4 cancer today as it has gone to her lungs ... i am sooo scared an in shock. She will start chemo this month hopefully. How are you doing? I just need more information plz xxx

[@luvinubak]

@@samkhan2426 hi, I pray that your mom gets through this with strength, faith and stay positive and try and eat well. I was stage 2 and I’m finished with chemo treatments and radiation 3 weeks now. Every three weeks was a great schedule for me, after the first 3 days of treatment I felt better and worked full time during the entire treatment.. I look forward to the day that the scans show no signs of cancer and the removal of my port.

[@samkhan2426]

Luvinubak. Thank you so much for your swift reply. I am so happy you are at the end of your treatment i will pray that your test come out clear an you can begin your cancer free life ahead. My mums cancer has spread to her lungs an they are staying uts stage 4.... i need my mum to be posotive, she is scared an deflated. I pray she gets through this. Xxx

[@brendalu511]

Thank you ladies.. hearing your stories have helped me.

[@barbarameehan113]

I have st. 3c endometrial ca. Clear cell..aggressive... Had hysterectomy, 6 rounds of chemo, now preparing for radiation and immunotherapy. Fatigue and achy are the big side effects. This is a journey, one day at a time. Yes, our feelings are very real. If we can't go or do something it's ok. I do struggle with the guilts of having to cancel some things. Oh well. Thank you for sharing.💟

[@tenyangbaliw]

hi good day..my grandma had her endo cancer stage 3c..i just want to know u more how u survive those chemo session to make my grandma inspired

[@supriyachristy8362]

We are in it together and pray it's easier for both of us.

[@skpwilson]

I wish I had seen this at the beginning of my journey, but even now it helps so much, especially knowing being tired and having "bad days" even months/years on is okay. Thank you so much for sharing your stories. The story about the lubricant was awesome! Mine is a bit different as I had chemo and radiation first and simultaneously to shrink the tumor, prior to radical hysterectomy, brachytherapy after. Stage 3b endometrial with a large carcinosarcoma. Had an allergic traction after every chemo - first one I went to the hospital in an ambulance. They got less severe as treatment went on but happened every time - one of the worst things for me was knowing it was coming, being terrified and trying not to panic (I couldn't swallow!). Has anyone else has allergic reaction to Cisplatin and/or Lasix?

[@skpwilson]

*allergic reaction

[@ChristineWhiting-d3x]

Thank you. Second bout of metastasised endo cancer, 2009 radical hysterectomy, 2019 mid right lobotomy, 2024 now in right hilar lymph node and others nearby. Surgery to debulk bronchial tube, perforated by mass, now starting radiation and maybe chemo later. 76 in May, hope to make 80...

[@happycook6737]

This is such a good video. Thank you ladies for being so brave to share your stories. When I was diagnosed with uterine cancer, I had no one to talk to. I think hearing your stories would have been very helpful. 🤗

[@naimasebti9767]

Would you please share your story? I am in the middle of a similar situation ..the only difference is that I had a cervical cancer

[@kellivelasquez149]

Hi Happy Cook, I work for Savvy Cooperative- a patient owned public benefit co-op and a patient insights platform. I was searching online for stories about Endometrial Cancer and came across your story on KZbin. We're looking for patients, who would be interested in doing a paid project (virtual, from home) about their experience with the condition. • US residents only • diagnosed with advanced/later stage endometrial cancer • 60 minute virtual interview; $110 If you're interested, please let me know and I can send over a link to our screener. Thank you so much, Kelli Savvy Cooperative Recruitment Contractor

[@susanabran5326]

Thank you all for sharing what you have gone through with endometrial cancer. I was diagnosed 2 months ago and having first MRI tomorrow. It’s scary. But I keep telling my family not to worry, just a hysterectomy and it will be gone. I don’t really believe that.

[@teresafurchess397]

I'm scheduled for radical hysterectomy September 12th. Due to pelvic pain and pressure for over a year, found issues in uterus. On the third vaginal ultrasound , a young ultrasound tech was persistent in obtaining images. If not for her I would still be hurting with no answers . Im menopause over 4 years. Had 3 cervical surgeries since 2018 due to high grade dysplasia. Many blessings to you. Thank you for sharing❤

[@G38000]

HOw are you ? Hope you're doing fine. My mother had the same conditions and done total hysterectomy taking rest at home now. Take enough rest and eat healthy. Hope everything be fine.

[@susanabran5326]

Still going through testing have hormone therapy for endometrial cancer. Now have lots of enlarged lymph nodes, too. Hoping it’s nothing. Best wishes for your Mom! Thank you.@@G38000

[@melaniepitt4295]

You are right to be skeptical. I have been diagnosed with advanced recurrent cancer after a hysterectomy twelve years ago for Stage 1a. I was offered NO follow up at all.

[@deborahapplebaum4313]

I had stage 1 endometrial cancer last year, had a complete hysterectomy, and no further treatment. Believe!

[@BarbCosgrove-q5u]

Thank you for doing this. I too have stage 2B endometrial Cancer....

[@jesusislife345]

Hello, I hope you’re doing well. I have the same stage 2. I am 10 days post surgery, complete hysterectomy. My oncologist recommended to do chemotherapy and radiation therapy. I am really worried about the side effects, I know it’s necessary because I have The Serous type which is the most aggressive but it’s a difficult decision to take. How are you doing? God bless you 😘

[@marytownsend1978]

Thank you for sharing your stories. I'm 44 and was diagnosed with endometrial cancer. I have surgery on the 31st of this month and I'm praying it hasn't spread. It's been hard for me to wrap my head around it all. I did discover that for 3 years my white blood count has been high. It wasn't until I got the Dr that I have now that because she noticed she recommended I see a hemotologist. However 12/22/2022 I ended up at the ER because I was bleeding like someone turned on a facet down there. The blood clots were HUGE. It scared the tech that did my vaginal ultrasound. The ER sent me home and said if you pass out come back. They did schedule a follow up with my PCP. She took it all by the horns and got me to a gynecologist and he connected me to my oncologist. I have days where I'm tired of being in pain and freezing cold all the time. My energy is short lived so I do what I can at work and leave early.

[@marygwynn583]

My name is Mary and I was diagnosed in 2020 and had a recurrence (stage 4 now) Feb 2022. After very successful chemo and surgery to remove metastatic tumors in my abdomen this past October I have No Active Disease. You can do this. I will be praying for you tomorrow!

[@beverlyho9559]

Mary, I can relate. I started heavy bleeding Jan 2nd. I'm 66 and knew that wasn't normal. I was diagnosed with endometrial cancer and have had a total hysterectomy plus some lymph nodes.Monday, Feb. 6th. I go see my oncologist and find out the results. I feel well, except for a weak bowel, no pain. Like you, I'm having a hard time wrapping my mind around this and wonder how I'll do when I start chemo. I have times I feel really down. It's more emotional than physical for me now.

[@diouranke]

I'm so sorry you're going through this, you shouldnt be try in g to go to work, so you have a social worker, someome to help you sort things out, transportation work etc. I am 44 as well with endometrial cancer it's been a roller coaster ride, especially pain management, getting around,etc, now in clinical trials, I'm hoping they can get you to a better place, prayers

[@Katie-vy5rd]

Anyone else have lymph node swelling of the inguinal /groin area? And or hip/upper leg pain? Is the endometrial biopsy painful, i have mine in office in 4 days and im a big wimp so wondering if i need to take a sedative prior?

[@amelapapan6625]

You are not alone. I feel the same. Pray for God's help. ❤🙏

[@barbaragregory1927]

I am 69 years old,and been bleeding a lot for 5 weeks,I went to A@E on the day it started,after 6 hours they told me I needed a biopsy,just got my appointment for the 3rd December.by then I would have been bleeding for 10 weeks,they say if you get an early diagnosis, you have a good chance,I'm worried,but can't get it any sooner.

[@Bujji0423]

What was your diagnosis? Hope you're well now..

[@supriyachristy8362]

Friends i have been diagnosed with the same and at stage 3. Underwent two surgeries and scheduled for my first chemotherapy on 17th, next week. Need your prayers and wishes.

[@cathietonkin5577]

Sending prayers and good thoughts to each of you….. God bless each of you! I’ve been diagnosed with endometrial hyperplasia….. had to go off my cancer meds as a week from now I’m having surgery to remove atypia cells in my right breast! At first my O.G. Dr. wanted to operate, now 6 months later he’s changed his mind! He did a biopsy it didn’t get the results he thought he would find. Now he says let’s do another biopsy in April of 2024. I’m scared and I’m soon to be 74years old….. I had a d&c in Feb this year, so they could remove the polyp, but now I’d rather just have the hysterectomy, get done and over with! I’m not pleased with my current O.C. Doctor, I’ve started looking for a woman, this one just about ripped me apart, twice, and I feel put me on hold! He intentionally pinched me hard as he was ending the first exam, and during the second exam I felt he used the largest instrument he had and I ended up almost lifting myself off the table.

[@juliebriz1703]

That's dreadful!

[@treespirit9102]

Have stage 4b endometrial cancer for 2 yrs tonow. Oncologists dropped ball on me several times since first diagnosed in 2018. Just starting chemo. Tried immunotherapy first but it attacked my lungs and nearly killed me. One day at a time. 64 yo. Moving near grandson in a couple/few months. Need to be near family as I can no longer take care of myself 100 %. Lots of fatigue. 💙🕊️

[@sarah_j_t]

I'd just turned 39 when I was diagnosed with endometrial cancer

[@kellivelasquez149]

Hi Sarah, I work for Savvy Cooperative- a patient owned public benefit co-op and a patient insights platform. I was searching online for stories about Endometrial Cancer and came across your story on KZbin. We're looking for patients, who would be interested in doing a paid project (virtual, from home) about their experience with the condition. • US residents only • diagnosed with advanced/later stage endometrial cancer • 60 minute virtual interview; $110 If you're interested, please let me know and I can send over a link to our screener. Thank you so much, Kelli Savvy Cooperative Recruitment Contractor

[@sarah_j_t]

@@kellivelasquez149 I'm in the UK 🇬🇧

[@Maria-tl1lm]

Wonderful video, thanks a lot.

[@dandelions2414]

Hi, can I please ask what were your findings on the US that led to them wanting to do a biopsy? I had my US last week and had a endometrium thickness of 18 mm and a suspected focal hyperechoic opioid mass 1.5cm by 1.4. and they want to biopsy to check for malignancy or polyp I have read very few polyps are cancer and also reading that 18mm is not that abnormal during certain times of cycle even though my US said I had abnormal thickened heterogenous endo really not sure if I should even worry as its so expensive.

[@Katie-vy5rd]

Anyone else have lymph node swelling of the inguinal /groin area? And or hip/upper leg pain? Is the endometrial biopsy painful, i have mine in office in 4 days and im a big wimp so wondering if i need to take a sedative prior?

[@amelapapan6625]

Biopsy under anaesthetic is much easier. I had DNC and biopsy under anaesthetic. Waiting on results. Keep on praying for God's help.

[@francesrandazzo9434]

Biopsy was similar to pap smear….and I am a wimp. Took a mild anti anxiety…..would recommend, just for your piece of mind. Diagnosed with endometrial cancer , scheduled a complete robotic hysterectomy 4 weeks later. To be completed in 6 days.

[@edemontfort9482]

I Had the biopsy and it did hurt but I kept my mouth shut and didn't complain because I knew it was necessary. Test result is endometrial cancer grade 1, and i'm going to see the oncologist to plan for the hysterectomy. Of course i'm afraid, like everyone else, that the stage will be worse than grade 1 but I'm staying positive and will deal with whatever I need to. I cry when I hear about ladies that are in advanced stages. It isn't fair and I pray and hope for successful treatment and miracles for them. I hope you, dear lady, are still well after a year. To anyone afraid of the biopsy , just get yourself to the doctor and get it done because it may save your life.

[@barbarameehan113]

My office biopsy was painless but did bleed more than I thought it would.

[@ChristineWhiting-d3x]

Sorry, lobectomy not lobotomy...sometimes feels like it!

[@kellivelasquez149]

Hi Wendy, I work for Savvy Cooperative- a patient owned public benefit co-op and a patient insights platform. I was searching online for stories about Endometrial Cancer and came across your story on KZbin. We're looking for patients, who would be interested in doing a paid project (virtual, from home) about their experience with the condition. • US residents only • diagnosed with advanced/later stage endometrial cancer • 60 minute virtual interview; $110 If you're interested, please let me know and I can send over a link to our screener. Thank you so much, Kelli Savvy Cooperative Recruitment Contractor

[@JIL-m3j]

IMVERMECTIN

[@marilyntonelli8832]

Isn’t this nice! I had none of that sampling

[@drusilla_darke]

I'm 58 and I was diagnosed 3 weeks ago tomorrow. My surgery is in 4 days. It's all happened so fast I think I'm still in shock. ▪︎▪︎▪︎ Thank God for both my Doctors and the Canadian Healthcare System. 💕

[@happycook6737]

Hi. I hope your surgery went well and you are on the mend. 🤗💐