Acoustic Neuroma: Symptoms, Causes, Diagnosis, and Treatment - Aaron Cohen-Gadol, M.D.

[@ricardomiro2517]

I just find out a week ago, after having an MRI (headaches), that I have a small AN on my left ear. Second page of this new chapter in my life, will be seeing a neuro-otologist in 3 weeks. And then, I will start to focus on the different possibilities. I'm 67 and have to take things..."despacito", like the song. Great information, thank you Dr. Cohen !

[@Lotus21444]

Thank you for the information. I was diagnosed with an acoustic neuroma that was 7 mm. I had sudden complets hearing loss. after 2 months my balance problems became extreme amd with testing it showed i lost 80% of my vestibular nerve function. The worst symptoms that has impacted my life are fatigue and cognitive dysfunction. I get alot of neurofatigue. Thpugh small it has had a huge impact on my life. I wish the Dr.s would also mention these symptoms, i know they are just now recognizing and studying the cognitive effects.

[@godsays4660]

God Seriously Wants You To Open This Now

[@simplymeconnie4003]

Amazing video until the outcomes. All that looks fantastic. BUT, some people end up with permanent facial paralysis, some require assistance with a walker or other walking device permanently, some end up with Trigeminal neuraligia (Headaches), and sadly, some don't make it through surgery. That is being blunt and honest. I know of a young Mom who had a small AN surgically removed, she did NOT make it. I personally have Trigeminal neuralgia and no longer work. I used to moderate a group on Facebook with 7k people who had or were family members of AN patients. The ones who were lucky had radiosurgery. One person passing away from a small AN removal is one person too many, and that one I personally knew online. Her husband and kids are left without Stephanie. Mine was almost 6cm, and I am left with 2 cm 7 years later, even after having Gamma knife on the remainder. I will never go have another invasive surgery for it because recovery is something I don't wish on my worst enemy. Radiosurgery is a cake walk and needs to be pushed more for the smaller ones. My team said it "You're so deep asleep that you're practically dead so you don't twitch at all". Invasive surgery is sometimes the ONLY thing that is an option, like in my situation, but I truly tried to have radiosurgery instead, and that was before I met all the amazing people I did online.

[@ricardomiro2517]

Thank you Ms. Connie for the feedback. With your detailed explanation plus more than 7,000 different opinions, I will consider radiation as the best option for me, specially at my age (67) and the tiny small size of my AN. Thank you for sharing such a valuable extra official survey, very helpful. 🙏

[@simplymeconnie4003]

@@ricardomiro2517 Good morning. Almost 8 year since diagnosis, a surgery and radiation, mine is now back to almost the original size of 2.9cm x 2.4. I am choosing to let it be and take me out as I won't go through that again.

[@samasonipea3087]

❤

[@glenwoodengineeringllc9838]

Thankyou so much for the information

[@mujahidyalhassan2481]

If the world had more people like you, it would be a better place. You make a difference, Dr Igudia thank you for curing my Hepatitis B disease and introducing your medical products to the worlds

[@LifeDesignsLaura]

I experienced sudden unilateral sensorineural hearing loss. One of the further steps ordered by the ENT is MRI with contrast. The contrast used is gadolinium. I really do NOT want to have this. Is there some other objective measure to scan the brain for stroke, acoustic neuroma etc? Less likely to produce lasting complications? Thamk you!

[@jessicaedpatule4042]

I have a CT scan and was normal, but still feeling sick vertigo ear ringing, Should I ask the doctor for a MRI?

[@ushakrishnamurthy8355]

Sir, I am from India. Diagnosed with AN. Have severe balance problems only. No hearing problem at any others . Have to use a rollator outdoors. I want to know what will be the outcome on balance issues post surgery. Thanks.

[@linussamuel8748]

My heart just keeps thanking you and thanking you Dr Igudia for all you have done for me, you gave me your words that you could heal any sickness or disease, thank you for permanently curing me of my Hepatitis b virus you are amazing

[@marciwhitman3513]

I had radiation. It was called stereotactic radiosurgery and it only lasted for six minutes and I only had one treatment. I don't know why your video says it lasts for a half an hour or two longer than that because that doesn't make any sense. I had 2 bursts of radiation and the total time was about 6 minutes. Maybe the radiation spoken about in the video is something different than what I received but I was told that this is the specific type of radiation that is given for this type of tumor. It was not gamma knife or CyberKnife. I'm not really sure about the specific type of radiation. That was about a month ago and I'm still having side effects. Although most of the side effects have gone away I'm still left with occasional dizzy spells and tiredness and lack of energy and also feeling out-of-sorts. And the doctor doesn't know how long this is going to go on because everyone is an individual and everyone heals differently. So I've been searching for answers to find out if what I'm going through is normal and I can't find anything. It's all so frustrating that I won't find out for awhile whether or not the radiation treatment actually worked. I have to get an MRI done in August which may show swelling of the tumor or it may show growth. There's no way of knowing until another MRI is done to compare the two. So that maybe another three to six months. 😳 All this to find out whether or not the radiation treatment worked or not. And if it didn't work I'm not sure what my options are. I'm not sure if they can do another radiation treatment or if I'm stuck with surgery. I don't want surgery. It comes with a whole load of complications.

[@mujahidyalhassan2481]

If the world had more people like you, it would be a better place. You make a difference, Dr Igudia thank you for curing my Hepatitis B virus and introducing your medical products to the worlds

[@arbenitakajtazi8522]

Hello dos thiss tumore after remuving coms back ?

[@SOMEONE__DUMB76]

How can I communicate with you please

[@mrsmith5102]

I wanna ask anyone who had this, could you feel the tumor with finger just below the skin around ear?

[@joanndaprile9076]

I did not have this, but I can tell you that you would not feel it with your fingers since it grows under the bony skull.

[@caridadrevilla2439]

I want to say that I have not been diagnosed with this but I think I may have, as I have many of the symptoms. But I do have what you are experiencing. Behind my left ear it feels swollen and tender to touch. I also feel va slight tingling sensation that feels like an itch

[@anistanveer1298]

Sir,is there any role of cyber knife therapy in treatment of acoustic neuroma ?