Adrenal Crisis Prevention and Preparation

[@chickensfordays9149]

Thank you very much for this presentation. I was misdiagnosed until 2021 when the tumor took 100% of my pituitary gland & my left eye partially paralyzed. I'm struggling. I will be signing up for the injection method trials for sure. I still can't find a doctor ( PCP) I do have an endocrinologist though, she is the best. I know I'm not getting the proper health care, barely the bare minimum and even that is poor. I don't know what to do to find a doctor. I just take each day as it comes and goes. Stay safe everyone. 🥰❣️🌞

[@marylougraham2123]

I am a retired RN with AI. As an ER nurse I never had a patient in an adrenal crisis. I honestly did not know much about AI until my diagnosis 3 yrs ago. I would love to volunteer to help with whatever I can do. My mobility is poor during to balance, vertigo and pain issues. Thank you for this presentation. It was reassuring to learn that others experience the same issues I have had in the ED and hospital. Marie Graham

[@sherriv8615]

Thank you for a very informative presentation

[@alisagrant1134]

I have a question. I have had my left adrenal gland removed due to a pheochromocytoma. I had an adrenal crisis after my UFE. My skin has darkened on my face, arms, knees, elbows, and lower legs. I believe I have Addison syndrome along with my aunt who had her right adrenal gland removed. Together we have Addison’s disease. Before my surgery, my heart would beat super fast and my HBP was uncontrollable and I started to get darker. The constipation started right before my heart attack and my heart started failing. Her diabetes was uncontrollable before her right adrenal gland removal. She lost a lot of hair in the top of her head, she gets diarrhea when stressed and stomach discomfort. I have more memory issues and she sits down and falls asleep. I don’t I take meds for insomnia and depression now. We both see Endocrinologists at UFHealth Shands Gainesville, but it appears that they are clueless about adrenal insufficiency. I have asked about studies to see the different symptoms of people who have had opposite sides adrenal gland removal. IMO the left and right adrenal glands do different things, but I can’t find anyone who cares. I think that doctors would be more apt to check the metanephrine levels as there are women walking around with hair loss in the top and they are being told that their thyroid hormones are just fine. Also people would’ve be over medicated with HBP meds. Less tumors would be found after the death of people because many doctors don’t bother to check because they don’t know the symptoms of someone suffering because their adrenal gland is not functioning properly. Last thing, I know that so many people are suffering with memory loss due to the adrenals. I went into surgery with an excellent memory, but right after the surgery til now, I have memory issues, add, some anxiety, and exhaustion if I push myself too hard. Please tell me where I can find some literature or copies of journal articles that I can give to my endocrinologist. Everyone I’ve seen only focus on my thyroid. I’ve had nodules on my thyroid for years. Thank you for this video and any help you may direct me to. I was in the hospital for a week after my UFE because they didn’t recognize the symptoms