Advocacy can help you voice your needs (8-3-19)

Stacey is going stir cray being stuck in sick and starting to get 4 wall syndrome. John is trying his best to try make Stacey feel better! and we have a chat about how advocacy can help you.
#unpaidcarer #disabledlife '#chronicillness #wheelchairlife #epilepsy #asthma #neuromusculer #disabilityrights #socialcare #spoonie
Welcome to our Crazy world! Where nothing is as it seams and daily life can change from minute to minute! If it’s not fighting health its fighting barrier’s and discrimination. But one thing is always guaranteed. We will always find the positives in the negatives, we will always fight back against what’s wrong and we will always remember to laugh, smile and love each day!
We post new vlogs every day at 6pm UK time. Showing daily life as a couple with one person living with disabilities and chronic illness and the other the full time carer (Care Giver).
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Asthma UK ➡️ www.asthma.org.uk
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[@MammaCass]

Good to see you guys, I’ve been catching up, sorry I haven’t commented everywhere I’ve had you all on tv a lot where I can’t! Im making a video right now, finally doing my 600 sub competition winners soap, I’m excited about it! I also have a bath bomb video in editing- just need to stay awake to complete these! Bless you Stacey you remind me so much of me with all the bugs we catch and how we feel with it. I have been worried for you, problem is we feel like we aren’t so bad whilst on the antibiotics but then within a day or two of coming off them it starts getting worse again and when that falls at weekends it sucks! I hope this course of antibiotics kicks it into touch and if not I hope you have more on hand to keep fighting it. Best wishes to you both xx

[@RawAbilityLife]

Hugs, congrats on the 600 sibs that is amazing!!!!! TC, hugs, Stacey K xxx

[@happyabbie10]

Multi purpose flowers 😁 that basket is so pretty 🤭 don’t go out I made myself worse again by doing that today 😂🤭 are u aware you should get u4 lens free on ur glasses on the NHS coz ESA just pay for frame x

[@RawAbilityLife]

what are u4 lens? I know they wont pay for my blue tint for my dyslexia nor the sunglasses part. TC, hugs, Stacey K xxx

[@happyabbie10]

Raw Ability Life it was meant to say your lol 😂 I know I get my lens free with a blue iris on the nhs. But I’m unsure if it because of my ESA or if it’s because I’m blind either one u could ask about 8 get the provided by the hospital too I don5 go to a optitions

[@lifetryingagain]

i got my support cut as soical worker not repsond to her, for 3 mths so ssory to here your unwell and crime of your van x

[@RawAbilityLife]

Have you been able to get hold of an advocate to help you get a new assesment for your care? TC, hugs, Stacey K xxx

[@lifetryingagain]

hi, @@RawAbilityLife

[@lifetryingagain]

3rd time voice abitlity withdrawn as my are asult care stempts manger blocking me now a yr to tranfer my case on to long term team. then claim still before i need ot assessment , yet in care act 2014, i not found ground for this, i know your not well your self. since 2013 . i won my case for same reasons via LGO, since i blocked in 2014 to SDS funding, to hire my own choice care, then abused in my home i got police i got traged hate ceime here, so why then i trying to move, but nothing i able to find for me my medical equitment, so , by 2017, i had major stroke, heart attack, when i again ask local council for support in stead my ferinds whom cant cope much longer,. now landlord trying to froce me out my home 8 years by nott repair wetroom, this now one year 9 mths, unlawful traget too by home group ltd, , soory for spelling and long repsone , how you,?

[@RawAbilityLife]

life trying again can you please send me a email at [e-mail] so I can try get you so more help hun. Thank you. Hugs, stay strong. Stacey K xxx

[@lifetryingagain]

@@RawAbilityLife thanks. I will do

[@flov984]

Really love your pretty basket. I am having a lovely time in Mississippi. We also drove to Alabama to visit relatives who are visiting there. It was only a 90 minute drive. Sorry to hear you have been poorly. Hoping you feel better soon. Thinking about you both and wishing things would be easier for you. Hugs from friend Flo

[@RawAbilityLife]

I am so glad to hear your having a good time in Mississippi and that you've been able to visit friends thats awsome! I am feeling so much better now thank you. TC, hugs, your friend Stacey K xxx