All about Ehlers Danlos Syndrome

In this video all about EDS I'll be covering
- What are the symptoms of EDS?
- What are the types
- What are the lesser known symptoms
- What conditions are associated with EDS
- The process of diagnosis
- Different treatments
- Research into EDS
P.S. The zebra is the symbol for EDS because when you hear hooves (a lot of the symptoms of EDS) you expect to hear a horse (many other conditions that EDS can be misdiagnosed as) not a zebra. The zebra represents EDS for this reason, as it it often takes a long time to put all the symptoms together!
Feel free to ask any question! References are on the end slide.
Disclaimer: I am not a medical professional. The Chronic Notebook should not be used as a substitute for medical advice. Always seek the care and opinion of your doctors.

[@annab13]

The chronic fatigue is caused by having to tense your whole body up in order to keep yourself from dislocating or clicking painfully. It's from the extreme constant pain. It's from depression and how it affects your circulatory system. Your heart, blood, etc..

[@the_chronic_notebook]

Yeah I definitely think it's really multifaceted! Thanks for sharing.

[@Truerealism747]

What symptoms do you get in your blood

[@anabellik]

Pretty much all your organs are made of connective tissues, so everything from heart to liver, kidneys etc. is somewhat weaker and takes longer to regenerate. When I was a child, I never played with other kids, my parents almost thought I had autism or something like that (which funnily enough I don't). I was just constantly tired and running around, jumping and fooling around just felt uncomfortable because of my joints. I wasn't diagnosed until much later, but I wish it happened sooner, maybe my social life wouldn't have suffered as much.

[@Truerealism747]

@@anabellik I now no I have asperger's ADHD heds lost my mum to severe ms heds now son's diagnosed asperger's ADHD heds do you have pains everyday

[@donna8916]

Thank you ❤ very helpful 😊

[@cynthiabemis2959]

My son who had type 9 passed away at the age of 33 even though he had no heart problems his heart was the first to go

[@Truerealism747]

Couldn't they see it on echo so sorry about this just lost my mum to severe ms heds

[@megansnyd74]

Hi, Nia. Can I download the PowerPoint presentation used in this video? I am doing a research paper for University on EDS, and I need some example PowerPoint presentations to follow so that I can create one for my project. Thanks so very much for this information.

[@Truerealism747]

I have heds nightmate

[@cynthiabemis2959]

My son had type 9 e d s it started off with his bladder for surgery he had dental problems, he was knocked knee , his elbow looked like he was dislocated, he had problems with his hearing and problems with his eyes and he had a big head .

[@vocalsunleashed]

Very interesting. Just your pronunciation of women is driving me nuts 😩 it's pronounced wi · muhn. Not like the singular woman

[@Truerealism747]

1.05 mtr us it arm.length