All your questions answered about Freya’s limb difference

[@kimwalser545]

Freya is a beautiful precious angel. I love her!

[@doloresnewman2983]

She is so so cute and such a sweet personality! I enjoy your other daughters 😢too when they're on the video. It's hard when you have a special needs child who needs more attention sometimes but I see you have a nice balance going on. I have a special needs child in the group as well. I get a kick out of your son! Thank you for letting us join your family Marcy!

[@ginaaugenstein9454]

Freya is the cutest little girl I have ever seen.

[@lauraann7816]

I'm not in the medical field at all-- but I would imagine Freya's spinning is good for her muscles and circulation. We all know being sedentary all the time is no good. Her liking it and getting the giggles is just an added bonus 😊

[@Freyasluckyarm]

Yes it’s great exercise

[@kellygould7305]

I watch Sebastian and I'm so thankful to find Freya. I love these precious children 💛🥰

[@Freyasluckyarm]

We love Sebastian

[@doloresnewman2983]

I watch Sebastian as well. He is darling. I don't find that Freya and Sebastian are very similar for both being under the umbrella of the same syndrome. It seems to have a wide spectrum of characteristics.

[@maryjones1]

Loved hearing her giggles when she twirled in circles. She’s a happy girl

[@cheryljones7742]

she has such a cute giggle

[@dawnfield4461]

LOVE how the kids named her Lucky Arm. What a great story. Thank you for sharing!

[@Freyasluckyarm]

Our pleasure!

[@hermanklump8983]

She’s the cutest!

[@racheltessmer925]

P.S. I love when Jesse talks about Freya...she is so proud! 🤩

[@Freyasluckyarm]

She is! It is so fun to watch

[@anngoodrich4611]

Freya's laugh is so cute. Hope Jessie gets to feeling better.

[@GeeBeeSchreiner]

Thanks for educating your viewers. You have done a great job educating your older children. You’re a sweet soul. Bless your heart for being who you are.😊

[@Freyasluckyarm]

Thank you so much!

[@alh2116]

Freya is beautiful they way she is the way God made her!! She is so silly I love hearing her laugh and smile!!

[@Lisa-st7nw]

Thank for the explanation. I’m always interested in learning something new about Freya. She is a gem! I can’t help but giggle when she giggles. You are a special person Marcie! Hope I spelled your name correctly.❤

[@Freyasluckyarm]

It is Marci but I will answer to anything 😂

[@createconsiderconnect3356]

All your children are so stinking precious! Their love for their sister & I suspect everyone exudes from them ❤

[@Freyasluckyarm]

Thank you. They are pretty amazing

[@audrey7009]

I love Freya’s giggle. It’s quite infectious. Freya uses her lucky arm quite well considering after watching all the videos of her that I have I really do forget about it until it’s mentioned. My friends niece has a condition called Ectrodactyly inherited from her fathers family she has both hands and feet affected but she lives a normal life. I know that it’s not quite the same.

[@Freyasluckyarm]

When I was pregnancy with Freya on of the doctors was convinced Freya had ectrodactyly.

[@peaches2839]

Thank you for sharing ! I think it is a wonderful name for her arm. She is so lucky to have the interaction with her siblings. I love your patient nature with your children.

[@Freyasluckyarm]

She is very lucky to have her siblings. I’m glad they all have each other

[@eileenalholinna5310]

Oh, she is precious!! ❤ love from Michigan!!!

[@MommaVapesBeauty]

Freya is so beautiful!

[@deedeewass3047]

What a beautiful daughter you have. I just love Frerys little laugh! Have you tried one of those sit and spin toys? Both my kiddos have autism and seek the same spinning that Freya does. They both love their sit and spin! Thank you for your explanation of Freya. Since my two where born with autism I like to learn from others on differences. Sometimes families come up with some amazing tips and tricks that I try with great success on my kiddos!

[@Freyasluckyarm]

I know a lot of cdls kids love them. Maybe for her birthday we will have to get one

[@patriciaharkin1571]

What a sweet story about naming Freya's arm. I agree with the second surgeon, cosmetic surgical procedures that would be prolonged and painful are totally unnecessary and I'm sure if Freya could voice her opinion, she'd agree too. 😊😊 God bless.

[@Freyasluckyarm]

I totally agree!

[@donnahart823]

Great picture of the 3 of you at the end.❤️

[@Freyasluckyarm]

😊 thank you

[@doloresnewman2983]

She is just adorable! You have a lovely family Marci. Also, I love your hair style and color!

[@Freyasluckyarm]

Thank you so much!

[@marilyngaeta1362]

I came over from Stephanie, Geo and Sebastian’s channel and I love watching you. I absolutely love Freya and the story of how her arm got its name. Her smile makes my heart happy. I have five grandchildren and I remember each one when they were that age. Your other children are great too. So nice. My youngest grandson( who is 18 years old now used to love to garden with me. He lives about four hours away so we can’t garden together any more but the memories warm my heart. Keep up the wonderful job of being the best mom for those beautiful children.

[@Freyasluckyarm]

Thank you so much

[@bunnygaffney2765]

She's a doll ❤ she must love corn chips that's so cute .

[@kristaparks5201]

Love hearing her voice and watching her laugh it is the greatest thing even. Prayers for Jessie, hope she's feeling better. ❤😊

[@shelbycane9981]

I love Little Freyas Spirit. She’s so happy seems Fearless and just has the best Spirit. Such a sweet happy Girl. Thankful she has such a supportive loving family that helps her thrive. ❤ u guys have a great day!!!

[@Freyasluckyarm]

You are so kind

[@shelbycane9981]

@@Freyasluckyarm No I’m just honest with what I see. If you weren’t such a good Mommy Freya wouldn’t be so happy. You’re doing great Mom. Keep it up but make sure to take some self care for Mom too. It’s very important!!! Y’all have a good day. I have just fell in love w Freya. Thanks for sharing her with us!!!!

[@trishpoppins5148]

Sweet happy and very much loved little girl ❤

[@janetslicer3637]

I love her spinning technique and it certainly makes her happy! I personally never wondered about her lucky arm because she seems to use it to the best of her ability and it doesn't appear to bother her at all. ♥️

[@Freyasluckyarm]

She uses it quite well.

[@lisamoore6804]

I'm glad you got a second opinion. If it isn't "broke" don't fix it, I always say and that belly laugh, I love it.

[@Freyasluckyarm]

Amen!

[@llijable]

This was a great video. Lots of explanations. I like that you explain things often and don't beat around the bush,

[@Freyasluckyarm]

I appreciate that! I am a direct person 😂

[@racheltessmer925]

Hello! I think Freya is saying...Where is the rest of the Potato Head? 💖😉 The warmth with you explain everything about Freya...and your family...warms my heart! I just seem to concentrate on that SMILE! As always, humble thanks for allowing us into your home 🏡! Love from Minnesota ☃️!

[@charlieoglesby3468]

She's so beautiful, but all your kids are. So are you Momma. I wish I could meet your family in person. You're a wonderful bunch. Love your videos 💖🤩

[@Freyasluckyarm]

Thank you so much!

[@mercedesvisage4131]

Freya is a sweetheart 😍

[@lindamarie6574]

Freya you are such a cutie! And what a smile! She does all right with her lucky arm though! She grabs stuff. One thing all of us who follow you know is that Freya is a beautiful little girl and we adore her!❤😊❤Please give her a hug & kiss from me!😊

[@Freyasluckyarm]

She does great with her lucky arm

[@jennifergragg1850]

Thanks for sharing! Y’all are an awesome family!! 💜💜

[@kimdespres1693]

You and Chris are such wonderful people and parents and all 4 of your kids are beautiful I love Freya's eyelashes and eyebrows. Best of luck to all your family. God bless.

[@Freyasluckyarm]

Thank you so much

[@biddiemutter3481]

Thank you, I hadn't thought that much about Freya's arm, just part of her, but that was interesting.

[@Share2885]

She is a beautiful child

[@sheriethomas3519]

You are doing great! When I had my baby I was shocked at how many friends and strangers would give me their opinions on how I was doing things. It has to be thousand times worse for you. Keep your spirits up and do what you want. Love from one mom to another. FYI my baby is 30 now. She is a teacher so I must have done it right.

[@Freyasluckyarm]

So true! Thank you so much

[@teresawright4424]

Good to share the experience of seeing 2 surgeons and not jumping to take the advice of the 1st.

[@Freyasluckyarm]

Exactly!

[@kathryndomer2109]

She’s having a good old time for herself. I love when she vocalizes. I truly enjoyed your Video today. Thank you for being special you. Hello to your family from New Jersey.💋❤️🙏🏼💗🙋🏼💕

[@Freyasluckyarm]

Thank you so much!

[@Musicteach97]

I would love to know more about the medically complex waiver. Thank you for your channel💟.

[@Freyasluckyarm]

It varies from state to state. But in Utah you have to meet certain criteria to prove that your child is medically complex enough then they waive the financial requirements to get medicaid

[@julieberns1474]

Thanks for sharing your experience with the different surgeons.

[@Freyasluckyarm]

My pleasure!

[@conniemaniaci3612]

I always wondered if there was surgical intervention that could help. Thanks. I would have made the same conclusion 😊

[@hairybaldwin1663]

I ADORE THIS FAMILY.

[@Freyasluckyarm]

Thank you!

[@kathykupanoff6023]

Freya’s laughing & giggling are such sweet music 🎶 to my ears 💝💝💝. Marci, is there a possible procedure that could maybe enlarge her tear ducts? It seems I might have heard of something like that before - or maybe I’m just doing some wishful thinking. Hugs to your whole family 🤗💙💝💙💝💝💝

[@Freyasluckyarm]

Yes. We have had it done. It helped a little bit but needs to be done again. If she has surgery for anything else we will do that again.

[@amyb2646]

Thank you for sharing this about Freya’s lucky arm! She seems to do so well with it. She is so precious! I love your son’s explanation of Freya’s lucky arm. You have such sweet children, Marci! Sending all my love and hugs to you, God bless you all 🤗❤️🙏🏻🥰

[@Freyasluckyarm]

Thank you so much!

[@amyb2646]

@@Freyasluckyarm You’re so welcome! ❤️🥰

[@Bindismom]

You have sweet, lovely children.🥰🥰🥰🥰👍👍

[@Freyasluckyarm]

Thank you 🤗

[@Roro19609]

Thank you for sharing Freya Lucky Arm. It was very informative. Your little girl seems to be doing just fine and she seems happy most times. We love her just the way she is. Your a great family. Marci,you never look tired even though your 24/7. See you soon. I always look forward to seeing you all.😊❤

[@Freyasluckyarm]

I’m glad I don’t look it because I feel it 😂

[@cheryljones7742]

thank you for the information you did a fantastic job

[@usernettie20]

Freya make me smile

[@annedugan7618]

She is sooo cute! :)

[@suemuster9826]

Thos part of FREYA that we all love. She is a beautiful little girl. As my children are all grown up, 2 grands have graduated from high school already, and one will graduate in 2 years, then we drop down to 14, 5, and 1. My youngest doesn't have any.

[@Freyasluckyarm]

So fun

[@tp06]

Thank you for sharing this info. It's always interesting and helpful to learn about others. 😊

[@Freyasluckyarm]

Glad it was helpful!

[@marshadewey7432]

love her laugh

[@jennifer_duncan]

Oh, my goodness, I was giggling along with Freya when she was spinning-her joy is so infectious! 😊 Great explanation of how her arm is structurally different. It’s so neat that she uses it so well. I’m sure she’ll continue to use it to do tons of things she sets her mind to, and that’s going to be amazing to witness. Liam did a great job explaining why you call it her Lucky Arm, and Jesse is pure starlight. 🌟💜

[@flossyflue4305]

Freya’s luck arm in my opinion is part of her we except Freya as she is. I don’t think She would be Freya without it. She’s having lots of fun.

[@Freyasluckyarm]

I completely agree. Thank you

[@donnataylor980]

I'm glad you didn't do the surgery on her arm. it's a great arm❤ I enjoyed this video see y'all in the next one.

[@lauragrueninger6048]

Yes, the description of that (painful) surgery sounded so ridiculous. And then when you said it wouldn't make it any more useful, I was like, "no way am I putting my child through that". Good on you for seeking the all important second opinion when something doesn't sound right. Freya is adorable!

[@laurahobbs1936]

If she really likes spinning fast, check out a Dizzy Disc. I think it would work better than a Sit and Spin.

[@shelbycane9981]

Hello Freya missed you about a week somehow. You look so cute doin your little spinning. Cutie pie have a great day!!! ❤🎉❤

[@Freyasluckyarm]

Thank you! You too! We’ve been here making videos. Make sure to go back and watch so you don’t miss anything.

[@shelbycane9981]

@@Freyasluckyarm I will hunni. I’ll probably pick a time at night and catch up. Girl she really is so beautiful!!!! I know you’re so proud of her. She looks like her sweet Momma!

[@biddiemutter3481]

I hope Jessie feels better soon

[@elizabethdeleo426]

I was thinking that in the future when she reaches her full growth she would be a good candidate for limb lengthening with an external fixator, or/and perhaps some type of titanium rod, but on second thought it might compromise the function, dunno, just a thought and wishful thinking...Thanks for sharing, and many, many blessings.

[@Freyasluckyarm]

Unless she looses function we will not be doing any surgery

[@emilysouther4614]

She is so incredibly cute I pray that her brain allows her to understand the love she receives. But i also feel so conflicted that if she can not understand love but only understands discomfort then i feel sad for her life. I watch the little boy Sebastian and im not sure he is happy. My heart just absolutely breaks for children born with severe disease. I know God made them this way but i cant help but feel complete sadness when i think about their lives. I just hope they always feel loved and happy.

[@Freyasluckyarm]

Have you watched our videos? Freya absolutely knows she is loved. She understands a lot. Just because she can’t talk doesn’t mean she understands nothing.

[@supersparkley123]

I love to hear the stories behind names….can you please explain how Freya got her name in a video, it’s a unique name! Thanks!😊

[@Freyasluckyarm]

Sure thing!

[@ΑΙΚΑΤΕΡΙΝΗΤΣΙΑΒΟΥ]

Η Freya είναι το πιο γλυκό πλάσμα του κοσμου ❤❤❤❤❤❤❤❤

[@V.I.C.]

I think that is soooo crazy that she is actually left handed! Lol is anyone in your family left handed like you or the other kids? If not thats even more weird lol did you guys intentionally make her a lefty? Like did you train her only use her left hand to do stuff? Always hand her stuff with her left hand or make her use her left hand to do things? Im just curious bc you would think she wouldn't choose to use the hand thats pretty much doesnt work when she has a completely regular 100% working right hand ya know? Lol that is crazy though for sure! But hey she gets the things done that needs to do with that lucky arm so thats all that matters!! 😁😁 Shes so adorable!! 😍😍 Thanks for sharing hun!!

[@Freyasluckyarm]

I have a lot of left handed cousins. From what I understand it is a brain connection so babies will naturally grab with their dominant hand no matter where things are handed to them

[@lauragrueninger6048]

It's a brain thing. One of my 5 siblings is left handed. We are 50's-60's babies, so when he was little a nun teacher actually tried to force him to write right-handed. My Mom was furious because he was so upset and demanded a different teacher. Keep in mind things were different then and not as much was known about the brain, so a lot of people actually thought this way.

[@mercibeaucoup2486]

Omg ur hair !!!!!!!! 🙌🏻

[@Freyasluckyarm]

Thank you

[@user-fh4tm6vw6y]

Thank you. Does the black eyebrows goes with her illness ?

[@Freyasluckyarm]

Not the black but the thickness yes.

[@purpleandred7]

There's also the humerus bone in the arm, right? That's what we call our funny bone if I'm not mistaken. Is that bone affected in Freya's arm, as well?

[@Freyasluckyarm]

The humerus is from the shoulder to elbow. It is not effected in freya

[@lindasprettypressons]

Thank you for sharing Marcie, as always. I’m curious, as Freya grows, will her arm grows a little more? Is the size that it is now what it will be for her whole life? ❤ regardless, she is a beautiful, happy little girl!

[@Freyasluckyarm]

It will grow in proportion to her. So it will grow and has grown. If that makes sense.

[@DesAMowadeng]

I swear doctors are way to obsessed about looks. Make no wonder society has the attitude it does toward physical difference. I've noticed that she seemed to be missing fingers or at least had no use of some fingers on that side. I had thought she might have had ectrodactyly but that usually result in the middle fingers or toes missing. This was informative!

[@Freyasluckyarm]

Ectrodactyly is more of a split hand.

[@DesAMowadeng]

@@Freyasluckyarm on another note Freya has long pretty eyelashes!

[@patriciabaldwin4680]

♥♥♥

[@vdeniceeckert3494]

My eye Dr told me to wash my eyes with baby shampoo . For goopy stuff

[@kathyerb3134]

Hi everyone, your kids are so awesome. When did u find out about Freyas birth defects? Im sure they showed up in the womb did the not?

[@Freyasluckyarm]

Yes we found out about her limb difference at our 20 week ultrasound and her syndrome after she was born

[@kathyerb3134]

@@Freyasluckyarm thanks for responding. You and your whole family are adorable. My daughter was dx age4 with very rare lung lung disease affecting lungs, sinuses, ears, then 3 mths later found out missing a kidney. First 5 yrs spent in children's hospital. Asthma would eventually clear up but not the fluid. Biopsy needed and genetitic testing, results 17 January 1990. Even lung specialist was shocked.

[@Freyasluckyarm]

Wow 4 years. That must have been a shock.

[@mariemulcahy9865]

❤❤❤❤

[@laylachaaban2243]

Making awareness about the bottom 🔘 battery it comes in different sizes ☣️ if injest it , it could be fatal you find them in remote, car keys with remote , remote control for tv , toys and that electronic button you gave her to test her hand that has battery too keep bare in mind some parents have lost their kids from missing battery

[@Freyasluckyarm]

All of her toys have screws to keep batteries in.

[@amandamaynard3514]

💚💚💚

[@annalangham3950]

Cute

[@gailobrycki2978]

Let her sit on lazy Susan. Spinning will be easier, lol

[@Freyasluckyarm]

Great idea

[@catlove111]

Do you know sebastian this woman has the same child but he's a boy um do you know the mother have you met her

[@Freyasluckyarm]

We haven’t met in person but we know each other through social media

[@catlove111]

@@Freyasluckyarm Oh well thank you for replying thank you so much she have a beautiful girl

[@gaylynnadams5550]

Getherspendwill

[@sabrina19ization]

❤❤❤❤❤❤