Almost 18 percent of patients diagnosed with multiple sclerosis don't have it

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[@Larrysbride]

This has absolutely zero information... How was she misdiagnosed?? What kind of tests did they do?? How did they find out she does not have it??

[@silviaargent551]

Why didn’t they do a spinal ?

[@Mllascelles1]

These are my questions.

[@stephenwalsh4481]

What did she have then?

[@juliesczesny90]

Right!?

[@jennawatson]

Totally agree. This is a terrible misrepresentation. They didn’t say how she was diagnosed or how she found out she didn’t have it. The only way to definitively diagnosis MS is with an MRI. It’s not a diagnosis of exclusion. They can see the scars on the Myelin sheath via an MRI.

[@MS-pw6ur]

This video provides basically no information about this woman's situation. What was she ultimately diagnosed with? A mimicking disorder? Migraines? What led the second doctor to change the diagnosis? Stopping your medication and not seeing any symptoms is not proof that you don't have MS like it's framed to be in the video. It's a relapsing remitting disease, meaning you can potentially go years without any relapse activity without treatment depending on how aggressive your disease course is. You go on the treatment not to help your symptoms but to prevent the next relapse from happening, cause just one new lesion can cause severe irreversible damage depending on where it lands in the CNS. Interferon betas are the least effective medications out there for MS anyway. Not doubting that this woman was misdiagnosed - it is true that misdiagnosis is common as there are so many mimicking disorders and incompetent doctors out there - but there's a lot of missing information here.

[@nadogrl]

Several years ago, a 20-something coworker told me that she had been diagnosed with MS, the year before. She had started to lose body functions gradually, and eventually was bedridden. She asked for a second opinion, and it turned out that the diet gum she chewed everyday had aspartame, and when she quit the gum, her symptoms went away completely within a week or so…ASPARTAME! Obviously, not everyone is affected that way.

[@janbarriault4494]

aspartame is a neurotoxin, so that makes sense

[@princessnahema]

how did they discover she didn't

[@finnajane]

Great advice at the end of this video...go to a neurologist that specializes in MS or at least a neurologist. Get a 2nd opinion. I actually do have it - have had it for 25 years. I was misdiagnosed as NOT HAVING IT when I actually DID have it. Had optic neuritis 3 years apart from each episode. Should have been diagnosed at that time....it took another 14 years before I got diagnosed. Ideally, they should rule out other potential diseases before giving an MS diagnosis.

[@kbellmurray]

Unfortunately a lot of MS specialists are looking for MS. I was misdiagnosed by an MS specialist. That was my second opinion. I wasn’t willing to accept my first neurologist telling me he didn’t know. I found someone who specialized in MS. It was still wrong.

[@maryjs4878]

@@kbellmurray you were misdiagnosed of MS from a MS specialist. What was the cause of your illness?

[@DeehH7]

@@maryjs4878 good question.

[@Mllascelles1]

I’m confused and concerned. How are the lesions on her spine, brain, or both a mistake?

[@directioner2870]

Vitamin b12 deficiency causes lesions exactly like ms..... There are lots of diseases that mimics ms

[@saraev1119]

Good question. Too bad you didnt get an answer, why DOES she have those lesions. I have them all over my brain and spine, and I'm about to stop medication and switch because I've relapsed again. I get that she was misdiagnosed, but how many people HAVE MS and are treated for something else and have to become disabled before they're given Dx? Look at Selma Blair.

[@directioner2870]

@@saraev1119 my gamma globulins are normal and beta 1 too I have presence of oligoclonal bands and slightly elevated igg and negative ana test .... I started avonex 1 year ago and my last mri showed that I have two new lesions Could it be something else and not ms ? .. and I was diagnosed at 17 year old I'm young for this disease .

[@saraev1119]

@@directioner2870 I suppose it could be, but what other disease causes lesions? Cause the disease I was diagnosed with seems to be progressing unfortunately.

[@MS-ir1es]

So WHAT was HER ISSUE?

[@janeca10]

Always take the second opnion among specialists in neurology.

[@markkenna9307]

I was diagnosed in Melbourne Australia (well the Mornington peninsula 30 minutes from were I live in Melbourne) 9 years ago… they did an MRI of my brain 🧠 and spinal cord at the hospital The MRI said I had it then the spinal tap was confirmation I was having very bad symptoms of memory loss, couldn’t talk properly (not so much slurred Speach) I went numb down my whole left side and after I went home from hospital 🏥 the pain from this disease was terrible etc Edit… yes make sure you see a neurologist who specialises in MS for sure!! I stopped the copaxone for a while (lol 😅because I kept forgetting to take it) and I was better off on a healthy diet and trusting him tbh So I don’t know what doctors do around the world but in Australia this is what they do (first symptoms assessment, MRI, Spinal tap to confirm God bless you all!! Jesus loves you all very much, and to show his love for you he died on the cross for the world sins ‘mine too’ he died in our place On the third day he rose from the dead and now is seated in heaven on the right side of the Father Jesus did not leave us as orphans, he sent another, the Holy Spirit 😀🕊🙏🏼 Please ask him into your heart today, tomorrow is not promised to anyone, and eternity is a long time, a long long long time (for all of time) There is a heaven to be gained through Jesus and the blood that was shed for you, and a hell to be shunned!! Please think about it and make the right choice, and I only say all of this because it’s the truth!! The word of God is truth Jesus said .. I am the way the truth and the life, no one goes to the Father except through me. (Jesus speaking) John 3:16 For God so loved the world that he gave his one and only Son, that whoever believes in him shall not perish but have eternal life. God bless Stace 😀💕

[@freespirit7450]

I think I have ms but misdiagnosed with schophrenia. Overweight all in my 20s. Its like they dont want me to live my life. Evil doctors.

[@moethree4442]

By listening to your comment you definitely have schizophrenia

[@angeliquetamsinpotgieter1165]

Question if you were given an MRI AND lumber puncture could ones diagnosis of MS still be wrong??? I have MS 🎗

[@eistenlawson2722]

I want to thank Dr Madida who I met on KZbin for curing me of Parkinson Disease.

[@Leo03083]

Could MS be related to B12 deficiency?

[@kbellmurray]

I took injections every day for almost two years. I don’t think I have it either. They scared me into taking the drugs. I’m glad I stopped. I’m pretty sure I have Lyme or something.

[@keelybaby17]

This is unacceptable. This infuriated me.

[@nimekupata]

I don’t think it’s a misdiagnosis, MS is caused by a whole lot of things. MS just means a lot of spots! Got spots, yes? You can have Lyme too. I have scars all over from shots. They helped! PS I have 2 kinds of lyme and MS. Over 11 years too. 🧡🧡🧡

[@freespeech343]

Good point Katie. Have your methylmalonic acid tested, which will show your B12 tissue level. Most people diagnosed with MS have a severe B12 deficiency at the tissue level. A B12 blood test won't show if the tissue is low, only a M acid test will suffice. When it gets low at the tissue level, this acid elevates and dissolves the myelin sheaths. The elevated acid also blocks enzymes in the urea cycle that convert ammonia to urea, and the elevated ammonia causes a whole host of other problems. If the ammonia gets high enough it can cause depression, anxiety and even psychosis. My brother was diagnosed with schizophrenia years ago, but the shrinks could never tell me what was causing his problems. I started taking him to walk in labs and running my own blood tests. I eventually figured out he had a B12 deficiency and elevated free copper causing his problems. The elevated free copper was causing the B12 deficiency since it's an antagonist to B12. The free copper test code at lab corp is 279071 in case you want to have your free copper tested. Since this free copper is relatively new discovery, only a few lab companies test for it. That Lyme disease you mentioned seems to be a pretty common thing, especially if you live in the country like I do. I also have a herd of deer that live on my land, so I have alot of deer ticks, which as you know carry Lyme disease. How long ago did you have Lyme disease?

[@nimekupata]

@@freespeech343 I suspected b12 and my blood levels were through the roof over 2000 which they of course said I’ve got too much not too little. Ugh. I’m sure my blood levels are high bc I can’t absorb it. No dr will listen to me! I think I got the Lyme dx about 8 years ago. Not sure even with tests if any of them will listen. My neuro scoffed at the Lyme tests saying they were bogus tests.

[@nimekupata]

@@freespeech343 PS what if anything was done to help your brother? I hope with all that he’s doing better now! I wish I had siblings that cared even a bit how you care for your bro! That’s amazing!

[@mwsales9202]

@@nimekupata Thanks for the kind words Katie. Yeah my brother is now doing alot better. I just thank God he showed me what was causing his problems.

[@nimekupata]

@@mwsales9202 🙏🙏🙏

[@victoriaandreevna2658]

LYME !!!???

[@juliesczesny90]

My one sis waivers between: Fibromyalgia: Lyme & MS. Finally decided she has all three - what? As for plaques, did spot them on the tiny MRI of my brain, included with the one of my neck, from accidents, lower right on it. Everyone got bit by ticks in OK, before we knew you had to spray, because of Lyme diseases