Alport Syndrome Female Diagnosis Stories

  Рет қаралды 3,582

Alport Syndrome Foundation

Alport Syndrome Foundation

3 жыл бұрын

Maddie, Carol, Cassie, and December share their Alport journeys. Hear about diagnosis difficulties, ripple effects for other family members, and why all four remain positive and hopeful. Learn more about the accompanying ASF "Diagnosis Stories" Survey Project and read the March 2021 Full Report which documents the experiences of 240 Alport patients: www.alportsynd...
Thank you to the generous sponsors of the “Diagnosis Stories” project: Chinook Therapeutics and Travere Therapeutics

Пікірлер
Dr Simon's Alport Syndrome Overview 2020
1:05:52
Dr Simon's Alport Syndrome Overview 2020
Alport Syndrome Foundation
Рет қаралды 7 М.
Women and Girls with Alport syndrome
44:46
Women and Girls with Alport syndrome
Alport Syndrome Foundation
Рет қаралды 1,3 М.
小丑妹妹插队被妈妈教训！#小丑#路飞#家庭#搞笑
00:12
小丑妹妹插队被妈妈教训！#小丑#路飞#家庭#搞笑
家庭搞笑日记
Рет қаралды 38 МЛН
Minecraft Creeper Family is back! #minecraft #funny #memes
00:26
Minecraft Creeper Family is back! #minecraft #funny #memes
SNAK
Рет қаралды 10 МЛН
哈莉奎因怎么变骷髅了#小丑 #shorts
00:19
哈莉奎因怎么变骷髅了#小丑 #shorts
好人小丑
Рет қаралды 53 МЛН
Do you choose Inside Out 2 or The Amazing World of Gumball? 🤔
00:19
Do you choose Inside Out 2 or The Amazing World of Gumball? 🤔
BigSchool
Рет қаралды 22 МЛН
Psychopath or Sociopath | What You Need to Know
2:23:39
Psychopath or Sociopath | What You Need to Know
MedCircle
Рет қаралды 8 МЛН
Robert Greene: A Process for Finding & Achieving Your Unique Purpose
3:11:18
Robert Greene: A Process for Finding & Achieving Your Unique Purpose
Andrew Huberman
Рет қаралды 12 МЛН
The mysterious disease that affects millions of people worldwide | DW Documentary
42:27
The mysterious disease that affects millions of people worldwide | DW Documentary
DW Documentary
Рет қаралды 3,2 МЛН
Living with Alport Syndrome: Katie Brown
4:50
Living with Alport Syndrome: Katie Brown
Alport Workshops
Рет қаралды 689
Hyponatremia
3:09:54
Hyponatremia
Ninja Nerd
Рет қаралды 856 М.
What happens when you have a disease doctors can't diagnose | Jennifer Brea
17:08
What happens when you have a disease doctors can't diagnose | Jennifer Brea
TED
Рет қаралды 927 М.
Alport Syndrome: What You Need to Know - Anjay Rastogi, MD, PhD | UCLA CORE Kidney Program
24:01
Alport Syndrome: What You Need to Know - Anjay Rastogi, MD, PhD | UCLA CORE Kidney Program
UCLA Health
Рет қаралды 12 М.
Diuretics
2:36:08
Diuretics
Ninja Nerd
Рет қаралды 243 М.
The Story of Alport Syndrome
5:58
The Story of Alport Syndrome
Alport Syndrome Foundation
Рет қаралды 6 М.
Alport syndrome, Thin basement membrane disease (TBM)
35:39
Alport syndrome, Thin basement membrane disease (TBM)
Prof. Mohamed Mamdouh Elsayed اد.محمد ممدوح السيد
Рет қаралды 1,2 М.
小丑妹妹插队被妈妈教训！#小丑#路飞#家庭#搞笑
00:12
小丑妹妹插队被妈妈教训！#小丑#路飞#家庭#搞笑
家庭搞笑日记
Рет қаралды 38 МЛН