Amyloidosis Awareness 2021

Learn about amyloidosis in this short, educational video narrated by Michael York. You can get support and find more information about amyloidosis on the Amyloidosis Support Groups website, www.amyloidosissupport.org plus download the pamphlet referenced at the end of the video at www.amyloidaware.com
Please like and share this video! You'll promote awareness and understanding of this under-diagnosed disease for patients, caregivers, and health care providers.
About Amyloidosis
All of the normal proteins in our body are biodegradable and recyclable. Amyloidosis is a disease in which abnormal proteins (amyloid) are resistant to being broken down. As a consequence, the amyloid proteins deposit and accumulate in the body’s tissues. If amyloid builds up in the kidney, heart, liver, gastrointestinal tract or nerves, it causes those organs to function poorly. Thus, the symptoms of amyloidosis are associated with the abnormal functioning of the organs involved. Typically, patients will have some of the following symptoms: unexplained weight loss, fatigue, shortness of breath, foamy urine, swelling in the ankles and legs, as well as numbness and tingling in the hands and feet. These are manifestations of damage to the underlying organs from the insoluble amyloid protein. Treatments are designed either to dissolve the amyloid deposits or to interrupt their production. Left untreated, the disease can be life-threatening. Therefore, early and accurate diagnosis is the key to promoting positive outcomes.
Subtitles
To turn on captions or subtitles, click the "CC" button in the lower-right of the video player's toolbar. To choose a language*, click on the gear selection icon (⚙) next to the "CC" button; then select the language you would like to display as captions or subtitles.
* 15 languages available: English, French, Spanish, Portuguese, Chinese, Japanese, Italian, German, Dutch, Turkish, Arabic, Hebrew, Russian, Hindi, and Korean.

[@marietompkins5553]

Excellent presentation. I was diagnosed in 2007, treated in 2008 at the Mayo Clinic, and doing well.

[@ellensmith6580]

My AL amyloidosis was diagnosed May 13, 2022. I am still in shock, but coping 😢

[@annemadden959]

Good luck. I had a SCT at Boston Medical 13 years ago. Doing well. Highly recommend Boston Med.

[@jacquiestumbo4569]

What were your symptoms

[@lloydwelch6492]

Diagnosed a few weeks ago. I had my bone marrow biopsy 3 days ago. Will find out which kind I have on wed 2 days from now. My dad had all the same symptoms I have. He died 5 years ago.

[@starflyer3219]

What determimes where the proteins accumulate?

[@mackenziesmission6353]

Excellent introductory video to amyloidosis!

[@tuhindutta7892]

I am an amyloidosis ATTR patient in India

[@santhosh7886]

Hello.. What has doctor suggested post diagnosis..

[@tuhindutta7892]

What is treatment of amyloidosis ATTR in India

[@Honesty949]

Please next time make videos with subtitles

[@AmyloidosisSupportGroups]

This video has captions available in 15 languages. To turn on captions in the language you want, find the playback settings for the video, usually by clicking the gear icon in the upper right corner when the video is paused. You can then select a language in the Captions box.

[@Honesty949]

Thank you 😊

[@user-vp8pg8qd9i]

@@AmyloidosisSupportGroups we want in arabic language