another rough symptom week... | gastroparesis days in my life

[@jaejamieson2647]

Zofran always makes my nausea worse for a few minutes then there’s so much relief

[@jennanolan9479]

Hey my name's Jenna and I just got diagnosed with gastroparesis and I'm on a NJT and your videos have really helped me and my wife figure stuff out. I watch your videos religiously. Thanks for being you Kenna!

[@KennaKrueger]

Hi! Welcome to the Gastroparesis family, not necessarily one you want to be a part of but you are not alone! I hope the NJ tube is treating you well and I am so happy I was able to provide help. You are too kind and I am wishing you so many good health days!

[@Dulcimerist]

Sorry about your diagnosis. I have dysmotility issues throughout my digestive system, and I'm thankful that Kenna has created these videos as well as this supportive community on her channel. Hoping your doctors can find the best treatment options for you. My doctors have me on Mestinon to manage my issues much better, but there are quite a few different options out there and new treatment options being researched all the time.

[@crabbyabby]

it amazes me how you still film and produce amazing content even when you’re not feeling well. sending good health vibes and lots of love! 💚

[@KennaKrueger]

Aww this seriously means so much to me thank you so so much!!💚💚

[@Dulcimerist]

6:47 - What was the cat slapping at in the suitcase lid? LMAO! Huge slap a few seconds later! Your cats always crack me up! They're your video sidekicks. Hoping you feel better soon. Sorry you're not feeling well. Hoping you're able to stay out of the heat and humidity, as that can mess up hydration and can aggravate symptoms.

[@KennaKrueger]

My other cat was underneath the lid haha and they were playing with each other! My cats really are my little sidekicks they follow me everywhere. And thank you so much!

[@kristiericson1365]

It looked like you were having reflux issues to me. I just finished half a sandwich, which is amazing, but now paying the price. I’m with you! Celebrating little things is what gets us through!

[@KennaKrueger]

I think I was too haha which I was not used to because I usually don’t get it! I totally get that excitement after being able to eat something but then having to pay the price but sometimes it is worth it for that little bit of normalcy. The little things are truly the big things!

[@minky8966]

Can you do a “what I eat in a week” or “safe foods/recipes” video? I know everyone’s gp is so different but I feel like it would be so helpful to so many people!

[@KennaKrueger]

I eventually want to do that!! Right now I am actually working on making changes to my diet so I can find more safe foods so once I figure that out I will definitely have to make a safe foods video!

[@chronically_bqueenb]

I love your vlogs. Please make more

[@KennaKrueger]

Aww thank you so much!!

[@artemisaeris2454]

Just got my GJ tube in a couple days ago on my birthday and have been anxiously waiting in recovery for your new video to get me through the pain! Oh! Also showed your videos to my doctor and he's so excited about what you're doing and wants to share your videos with his other patients! To show them that there are other people that live with gastroparesis that still do fun amazing things like you. Can't wait for next weeks! Good luck with your new house and decorate to your hearts content! You've got people rooting for you in Philly!

[@KennaKrueger]

I hope the surgery and recovery is going well! I know it is so rough at the beginning but it really does get better! Oh my goodness you are the sweetest for sharing that seriously means so much to me! In my videos I truly want to show that you can still do fun amazing things with this illness. It might look different than your original plans but that doesn’t mean it can’t be equally as fun and amazing. I truly truly appreciate you sharing. Thank you so so much and I am just so thankful for everyone’s support💕💕

[@justwatching1070]

I have a gj to and u can crush zofran,mix it with sterile water and flush it through ur j ,it makes it work better Xx

[@KennaKrueger]

Thank you for sharing! My zofran is one that is meant to dissolve under the tongue so I’m not sure if that would work properly for me but I appreciate you for letting me know!

[@justwatching1070]

@@KennaKrueger that’s even better,that’s what I take to,just means u won’t need to crush it and just let it desolve in the syringe Xx

[@loislaine2762]

Sorry you are not feeling well! Gastroparesis is so hard. My weight is at the point where my doctors have started talking about a feeding tube. It is so frustrating trying to stay at a healthy weight and hydrated with all the symptoms. The abdominal pressure is awful sometimes.

[@KennaKrueger]

Gastroparesis really is so so hard. I am sorry you are at this point. It is so frustrating because you fight so hard and fight through the symptoms and deal with the pain but it still isn’t enough. It’s important to take a step back sometimes and recognize yourself for fighting so hard. Dealing with pain every single day is exhausting. I know a feeding tube sucks and should be a last resort but if you truly need it don’t feel like it means that you are giving up because you aren’t! If there is something out there that will help you fight and make your symptoms better don’t be afraid to try it! I am wishing you so many good health days and hope everything turns out okay for you!

[@hazstyle2]

Usps gives free boxes

[@KennaKrueger]

I totally did not know that thank you so much for sharing!

[@slong6460]

Can you not put any fluids down your tube? Boil and let it cool even if like 10-20mls every hour working out to 250-500 mls extra I know not a lot but everything adds up

[@KennaKrueger]

I’ll have to start trying to do that. Right now I have been struggling with tolerating my feed rate and flushes often increase the nausea and discomfort so I only did them as needed but I’ll have to start trying with smaller amounts because like you said it adds up!

[@slong6460]

@@KennaKrueger just keep going kenna I know it super hard but maybe as water is thinner than food it might work keep going have you watched Beth gallery KZbin she is a fellow gastroparesis suffer too

[@KennaKrueger]

Yes you are right I will definitely have to try! And no I haven’t but I will have to look into her!

[@kristiericson1365]

Oh my gosh! I want that little pliers set!!

[@KennaKrueger]

You should get it! It is so useful!

[@MOJORAPSCALLION]

Love & kudos to you Kenna you’re amazing 💚

[@KennaKrueger]

Thank you so so much!

[@TerriWhyton]

I just wanted to let you know that I always look forward to Sundays to watch your videos (I'm in Europe so it gets published like Saturday evenings here so I always watch your video Sunday morning). It's definitely the highlight of my Sunday mornings!!! I always feel the same way about being productive. I'm trying something new which you might like. Instead of having a to do list everyday/week I've been doing a ta dah list. So I wrote down everything I have done instead. It really helps me to see all the things I do, even the small things and I realise I'm not being "lazy" like I think I am

[@KennaKrueger]

Aww comments like these make me so happy thank you so so much!! And omg I love that “ta dah” list that is such a cute idea. I am doing something similar now in my journal where I write down all the exciting things that happened during my day no matter how small and it makes me appreciate the day and what I have done so much more. It is so easy to feel “lazy” (even though we are not because our body needs rest and functions differently than most!) but when you write it all down you realize how much you were able to accomplish and enjoy throughout the day!

[@TerriWhyton]

@@KennaKrueger Ooh like a gratitude journal. I love that idea!!

[@dizzypancreaspump]

I want to raise awareness for gp but im afraid no one will like my content:/ it's a truly horrible illness and your videos make me feel so much less alone:)

[@mariablair8955]

I hope that by the time you read this, you are feeling much better. Moving takes a lot of energy and sometimes can be stressful, but you are really getting a lot done, yay! Embroidery is definitely looking good, and crochet is easier than embroidery, I think, lol! Jewelry...don't have a clue how to do that, but I'm sure you will gett that done too ;) I'm so proud of you, I just love you and pray for your healing. Take good care of yourself ! ❤🌻🙏

[@KennaKrueger]

Thank you so much! I’m a little better but as you said packing and moving takes a lot of energy out and our moving date got changed so that caused a bit of stress but things are starting to work themselves out! And I feel like so far crochet is easier as well because once I learned how to do the specific stitches, the more I did it the easier it became! Thank you so much for your kind words your support means the world to me!💚

[@kristiericson1365]

Glue some lace or ribbon around the edge of the embroidery frame. It makes them look so cute!

[@KennaKrueger]

Ooo that’s such a good idea thank you!

[@avratzz]

We missed you kenna!

[@KennaKrueger]

Aww you are too sweet!!💕

[@cleaningamps]

Heyyy Kenna sending you love and good health🧡 also wanted to mention that I feel like your subs know you and your bf well enough for you to just call him by name in your vids if “my boyfriend” ever gets repetitive

[@KennaKrueger]

Thank you so much!! And thank you for letting me know haha but I actually never call him by his actual name so it feels weird for me to say his name which is why I think I always refer to him as my boyfriend😂

[@cleaningamps]

@@KennaKrueger lolol i can actually relate to that😂 can’t wait for the next upload!!

[@KennaKrueger]

@@cleaningamps aw thank you so much!

[@Dulcimerist]

@@KennaKrueger If you want to mix things up, you can call him your beau. :) Or "cameraman extraordinaire" - I love his fun camera work a lot!

[@shannoncaeley]

Hey former jewelry maker here! You should try using headpins for your mushroom earrings. They way they work is theres a little flat part on the end that keeps the bead from sliding off, then you use your pliers and coil the other end around the top of the bead, like in this video kzbin.info/www/bejne/e4WvXpeYo8imbJo. Then you can attach the looped part to the earring and you'll be able to see the mushroom!

[@KennaKrueger]

Thank you so much! I went back to the store and I think that’s what I ended up getting but I haven’t got around to making them yet! But if I didn’t get those now I know what to get thank you!!

[@shannoncaeley]

Of course! Always happy to help a fellow spoonie fighting to be productive through pain 💜. Definitely a daily struggle here.

[@KennaKrueger]

@@shannoncaeley thank you so much!!

[@kristiericson1365]

I think it’s easier to make headbands first when learning to crochet. I’m sorry, I’m constantly commenting this time.

[@KennaKrueger]

Oooo I’ll have to look into that! And omgg no don’t apologize for commenting too much haha it really only helps me and I love talking to you all!

[@mossthegremlin6161]

Hi how are you?

[@KennaKrueger]

Thank you so much for asking! I’m doing all right. GI symptoms and fatigue are still really affecting me right now but I’m working hard to get more nutrition and fluids in me!

[@mossthegremlin6161]

@@KennaKrueger that good I hope the next days are good to I’m still in a weird place and I still can’t really eat and we’re goin on a trip soon so I won’t be able to see any doctors I also have no way to get nutrition except by mouth

[@KennaKrueger]

Thank you so much! Aww I am so sorry to hear that you are also struggling with symptoms. I hope you are able to get them under control so you can enjoy your trip!